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Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

I've been bad this year, disability has got much worse, no DMT at present, largely down to circumstances conspiring against me, waited a year for bloods to improve enough to start the Chariot Trial, then had a heart attack, so got rejected before I started 😞 was finally offered an unlicensed in Wal...

To take DMT's or to not take DMT's - that is the question... I was diagnosed in June 2017, and have been given no advice from my neurologist other than go and look on the MS website, see which drugs are licensed in the U.K. And make a decision on when, and if I want to start treatment and to decide...

Looking forward to my enforced rest day with drug induced temporary snooziness. Having been Dx'd for 26y, Ocrelizumab is my 4th DMT. Rebif and Copaxone are so very yesterday - had them both back in the day - then Tecfidera until Ocrelizumab was licensed back in Dec 18. I had my first hit Jan 5th th...

Are people aware that there are now treatments available that may well be cures for MS? Cladribine is licensed for treatment of MS in Australia. It seems to stop MS activity completely in something like half the people who have it. You can get it here, but only from Barts at present. You have it...

After 8-9 years in a Daclizumab trial (my first drug since diagnosis), Dacluzimab is now licensed. However it is reserved for people, for whom other drugs have been ineffective, and I am not eligible. I have now been advised to try Tecfidera. Daclizumab is a subcutaneous injection, taken once every ...

Hello everyone, I joined this site back in November when I was diagnosed with RRMS. I didn't know anything about MS at the time so I had a lot to learn. I had a sensory relapse in November and an MRI identified a small number of silent lesions in my brain. Since then I have been reading everything ...

Hey guys , as summer seems to have arrived, would anyone fancy a meet up in Derby on Saturday 2nd of June ? I was thinking of Carneros Lounge for drinks/ lunch .. it’s licensed but also serves coffee , tea & soft drinks which ever you fancy & a good mix of food.. It is wheelchair friendly wi...

Hello, Is there anyone on here that has started their treatment in the UK? I see that some Americans have. I am interested to know the approach taken by UK Neuros. I haven't got it yet but I am going to see a neuro later this month with a view to having it Rx for me. I dream of not being tied to a...