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These are treatments which have not obtained a license to treat multiple scleriosis, but have been suggested by some as having benefits to people with multiple sclerosis. Why not share your thoughts with the Shift.ms community and read what others have to say about unlicensed treatments?

Topics

  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
  • Plegridy
  • Rebif
  • Tecfidera
  • Tysabri
  • Unlicensed
  • Which DMT
  • HSCT
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Recent activityNewest posts

@Lottiegrace17 

Edited

Lottiegrace17

MS Society Fun Day!

🎉 JOIN US FOR A FAMILY FUN DAY IN SUPPORT OF MS SOCIETY UK! 💜 📍 Niagara Leisure Centre, Sheffield (S6) 📅 Saturday 19th July 🕛 12pm – 5pm 👉 https://facebook.com/events/s/ms-society-uk-fundraising-day-/838459067943410/ We’re excited to invite you to a fantastic Family Fun Day packed with fun, f...
Sheffield, UK

@Laura92 

Last reply

Laura92

New here + Mavenclad

Hi everyone! I’m new here so just saying hi I’ve been offered Mavenclad and not sure what to do, it seems a bit too good to be true Has anyone taken it?? How effective has it been and how are the side effects?? Tnx, Laura
Southampton, UK
  • Treatment
  • Mavenclad
  • Unlicensed
  • Relapsing remitting
91

@Catlover2 

Last reply

Catlover2

Questions for anyone who’s ever taken Kesimpta and/or Mavenclad

I have narrowed down to two DMTs and have some questions for anyone who’s ever taken Kesimpta and/or Mavenclad: 1. Did you "feel better" (i.e. did some symptoms become less noticeable) after taking either Kesimpta or Mavenclad? How significant were the improvements? I appreciate DMTs are designed t...
Llansantffraid Glan Conwy, United Kingdom
  • Treatment
  • Mavenclad
  • Which DMT
  • Symptoms
  • Fatigue
  • Unlicensed
6

@jellysheep 

Last reply

jellysheep

Vitamin B12 query

Hi, everyone. I went into a Holland & Barrett health food shop the other day and asked a lady if they sell Vitamin B12 tablets. I told her I have MS and been advised to take B12 by my MS nurses, and that I have been taking 10 micrograms (µg) as I haven’t been advised on any particular dose. My nu...
  • Vitamins and supplements
  • Healthy living
  • Disclosure
  • Symptoms
  • Fatigue
  • Work and Study
  • Diagnosis
  • Unlicensed
  • Mental health
  • Diet
First posted on the Shift.ms app
8

@lemtrada-uk 

Last reply

lemtrada-uk

Tysabri > Lemtrada > Ocrevus… now what? Stem cells?

Hi everyone. Just very worried. I have Relapse Remitting MS. I have tried a few dmd’s (I’ve had tysabri , lemtrada & now ocrevus.) Initially I tend to be ok. But then I have had a big relapse on them. I’m just wondering what if history repeats itself. Where do I go to after having ocrevus? I asked ...
Huddersfield, United Kingdom
  • Treatment
  • Relapses
  • Which DMT
  • Symptoms
  • Ocrevus
  • Relapsing remitting
  • Stem cells
  • Work and play
  • Unlicensed
  • Research
2

@Calling 

Last reply

Calling

Hello. Introduction post.

I have a strange story to tell. I got drunk one time, yelled at some kid, said a bunch of horrifying things about my autistic father, and now I think narcissistic people are trying to get revenge on me by dismantling my life and my family. I think that they are trying to imitate me and make my word ...
San Antonio, United States
  • Disclosure
  • Family and children
  • Diagnosis
  • Work and play
  • Unlicensed
  • Treatment
  • Balance
  • Relationships
  • Copaxone
1

@Rikki 

Last reply

Rikki

Stem Cell Therapy

Hi MS Gang … has anybody on here had stem cell therapy or know anyone that’s had stem cell therapy? if so is it any good? … any feedback or information would be appreciated, thank you 🧡
March, UK
  • Treatment
  • Unlicensed
  • Research
  • Stem cells
10

@abs95 

Last reply

abs95

6 months on from diagnosis (and a hello!)

Hi all, thought I'd share a little about my journey so far! I got my diagnosis at the end of last year, a few months after a hospital stay when I woke up one morning and the entire right side of my body had gone completely numb. Initially it felt like a relief to get the diagnosis, because I'd be...
  • Diagnosis
  • Positives of MS
  • Numbness
  • Treatment
  • Symptoms
  • Disclosure
  • Work and play
  • Unlicensed
  • Tysabri
  • MRI
2

@Pippa_Neilson_Blaikie 

Pippa_Neilson_Blaikie

Switching from Tysabri to either Lemtrada or Cladribine

I’ve been on Tysabri for the last year and found out I was highly JC virus positive in January. I’ve been advised to switch to another high efficacy DMT in the next year. The top choices I’ve been recommended are Lemtrada and Cladribine. I’d like to know from anyone who has had to make a similar cho...
London, United Kingdom
  • Treatment
  • Which DMT
  • Lemtrada
  • Tysabri
  • Research
  • Relapsing remitting
  • Diagnosis
  • Unlicensed
  • Mavenclad
  • Ocrevus

@Hollie18 

Last reply

Hollie18

Tysabri

I had my third infusion of Tysabri today and I’m noticing the side effects getting worse than before. Is anyone else on Tysabri? What are your experiences? I was also curious on when they started to feel the full effects of it. Did it take 6 months to a year until you felt the positive change?
Joliet, United States
  • Tysabri
  • Treatment
  • Symptoms
  • Positives of MS
  • Work and play
  • Relapses
  • Mavenclad
  • Unlicensed
  • Healthy living
  • Mental health
13
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