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These are treatments which have not obtained a license to treat multiple scleriosis, but have been suggested by some as having benefits to people with multiple sclerosis. Why not share your thoughts with the Shift.ms community and read what others have to say about unlicensed treatments?

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@Laura92

7 Sep 2024 13:39Last reply 6 Apr 2025 14:18

New here + Mavenclad

Hi everyone! I’m new here so just saying hi I’ve been offered Mavenclad and not sure what to do, it seems a bit too good to be true Has anyone taken it?? How effective has it been and how are the side effects?? Tnx, Laura

Southampton, UK

@Catlover2

4 Sep 2024 18:27Last reply 4 Sep 2024 23:08

Questions for anyone who’s ever taken Kesimpta and/or Mavenclad

I have narrowed down to two DMTs and have some questions for anyone who’s ever taken Kesimpta and/or Mavenclad: 1. Did you "feel better" (i.e. did some symptoms become less noticeable) after taking either Kesimpta or Mavenclad? How significant were the improvements? I appreciate DMTs are designed t...

Llansantffraid Glan Conwy, United Kingdom

@jellysheep

2 Aug 2024 09:11Last reply 2 Aug 2024 16:55

Vitamin B12 query

Hi, everyone. I went into a Holland & Barrett health food shop the other day and asked a lady if they sell Vitamin B12 tablets. I told her I have MS and been advised to take B12 by my MS nurses, and that I have been taking 10 micrograms (µg) as I haven’t been advised on any particular dose. My nu...

First posted on the Shift.ms app

@lemtrada-uk

14 Jul 2024 01:13Last reply 14 Jul 2024 18:46

Tysabri > Lemtrada > Ocrevus… now what? Stem cells?

Hi everyone. Just very worried. I have Relapse Remitting MS. I have tried a few dmd’s (I’ve had tysabri , lemtrada & now ocrevus.) Initially I tend to be ok. But then I have had a big relapse on them. I’m just wondering what if history repeats itself. Where do I go to after having ocrevus? I asked ...

Huddersfield, United Kingdom

@Calling

11 Jul 2024 04:43Last reply 11 Jul 2024 07:11

Hello. Introduction post.

I have a strange story to tell. I got drunk one time, yelled at some kid, said a bunch of horrifying things about my autistic father, and now I think narcissistic people are trying to get revenge on me by dismantling my life and my family. I think that they are trying to imitate me and make my word ...

San Antonio, United States

@Rikki

19 Jun 2024 22:22Last reply 14 Dec 2024 03:09

Stem Cell Therapy

Hi MS Gang … has anybody on here had stem cell therapy or know anyone that’s had stem cell therapy? if so is it any good? … any feedback or information would be appreciated, thank you 🧡

March, UK

@abs95

6 Jun 2024 13:35Last reply 7 Jun 2024 09:39

6 months on from diagnosis (and a hello!)

Hi all, thought I'd share a little about my journey so far! I got my diagnosis at the end of last year, a few months after a hospital stay when I woke up one morning and the entire right side of my body had gone completely numb. Initially it felt like a relief to get the diagnosis, because I'd be...

@Pippa_Neilson_Blaikie

20 Apr 2024 19:28

Switching from Tysabri to either Lemtrada or Cladribine

I’ve been on Tysabri for the last year and found out I was highly JC virus positive in January. I’ve been advised to switch to another high efficacy DMT in the next year. The top choices I’ve been recommended are Lemtrada and Cladribine. I’d like to know from anyone who has had to make a similar cho...

London, United Kingdom

@Hollie18

2 Apr 2024 03:07Last reply 12 Apr 2024 04:31

Tysabri

I had my third infusion of Tysabri today and I’m noticing the side effects getting worse than before. Is anyone else on Tysabri? What are your experiences? I was also curious on when they started to feel the full effects of it. Did it take 6 months to a year until you felt the positive change?

Joliet, United States

@JIMRIDDLER

18 Feb 2024 13:06Last reply 18 Feb 2024 18:32

Thoughts on Cladribine - (Mavenclad)

Hi, everyone I was wondering if anybody has any information on their cladribine - (Mavenclad) experience and any side effects? What are your experiences/side effects when taking Cladribine(Mavenclad)? How are your long- ter experience//side effects when finishing the course of treatment? Than...

London, United Kingdom

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