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Topics

  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
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Found 931 results

@Ancy

22 Dec 2020 13:05Last reply 19 Feb 2021 13:41

Ancy

Any advice on Tysabri fears

Hi 👋 first time poster here 😀. A brief (I hope) background. I was told I had tumours on my brain and spine which were highly likely to be cancerous. Cut to 'downgrade' (not my words) to MS. I am under a neurologist who said I need to forget the notion that all the different types of MS were the w...
  • Treatment
  • Tysabri
  • Diagnosis
  • Mental health
  • Which DMT
  • Symptoms
  • Ocrevus
  • Disclosure
  • Brain fog
Show support
35

@S_777

7 Dec 2021 15:05Last reply 30 Jan 2022 20:12

S_777

Occrevus or Tysabri?

Thoughts & why a certain DMT was picked? 💕 I'm on Tysabri but thinking about Occrevus now although tysabri is working great but its monthly...
  • Which DMT
  • Treatment
  • Tysabri
31

@Criswell

28 Sep 2018 14:32Last reply 16 Oct 2019 14:36

Criswell

Switch from Tysabri to Lemtrada?

Hi! I am new to Shift.MS. The reason I joined is because I am trying to decide about a possible change of medication. A little about me,I am 65 and was diagnosed with MS 35 years ago. I actually had symptoms starting 15 years before that but it wasn't until I had an attack of optic neuritis that a d...
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Blurred vision
  • Relapses
  • Treatment
  • Copaxone
  • Lemtrada
  • Tysabri
  • Work and play
  • Relationships
22

@Ms2021

16 Jan 2021 20:20Last reply 27 Jan 2021 15:13

Ms2021

Tysabri infusion

I'm having my first tysabri infusion next week. I'm really anxious about it! Can anyone share their experiences?
  • Tysabri
  • Treatment
  • Mental health
  • Symptoms
  • Which DMT
22

@alephbet

19 Sep 2017 13:29Last reply 5 Sep 2021 20:44

alephbet

Ocrevus vs Tysabri

Good morning, everyone, I spoke with my MS nurse about possibly switching from Tysabri to Ocrevus later this year. My neurologist isn't inclined for me to switch since "Tysabri is working so well for you." Meanwhile, I just read this morning that the neurology director at my hospital, Dr. Anthony ...
  • Ocrevus
  • Treatment
  • Disclosure
  • Diagnosis
  • Tysabri
  • Mavenclad
  • Relapsing remitting
  • MRI
19

@Gwenny

9 Mar 2014 10:08Last reply 19 Mar 2014 21:17

Gwenny

Tysabri,

Hi Folks, just wondering if anyone else is on Tysabri and would like to know is it working for you, any side-affects? I've been on it now for almost 6mths and am thrilled to say I have a lot of my movement back, just feel really tired the week leading up to Infusion. any comments would be appreciate...
  • Symptoms
  • Fatigue
  • Relapses
  • Treatment
  • Tysabri
19

@kea21

17 Nov 2017 19:49Last reply 2 Mar 2018 13:44

kea21

Tysabri

Had infusion number five, procedure went ok, but I had issues halfway home driving, It became quite dangerous couldn't get my right leg/foot to work! (Monday) Since then the week has been crap!, headaches,dizziness and my walking has been all over the place ( wobbling ) I was really struggling to dr...
  • Healthy living
  • Exercise
  • Symptoms
  • Bladder and bowel
  • Dizziness
  • Relapses
  • Tysabri
  • Work and play
18

@jojo75

3 Dec 2017 22:03Last reply 21 Nov 2020 07:17

jojo75

Tysabri

Hi this is my first post. Excuse me if I waffle! I was diagnosed in 2012 with rrms. I've had 3 different dmds. In September I was signed off work for 6 weeks. With what I now think was a stress related relapse. My first real severe relapse. Any way saw my Neuro in October who wants to change me...
  • Relapses
  • Symptoms
  • Diagnosis
  • Newly diagnosed
  • Mental health
  • Relapsing remitting
  • Work and play
  • Which DMT
  • Work and Study
  • Treatment
Show support
15

@AmyBarr55

26 Mar 2022 11:02Last reply 4 Apr 2022 18:18

AmyBarr55

Tysabri

Hi just seeing if anyone has switched to the injections of tysabri. I am thinking of doing this just want to find out if any difference and if has the same effect etc? Thanks a mill
  • Tysabri
  • Treatment
  • Symptoms
  • Relapses
14

@LisaNeighbour

30 May 2018 16:41Last reply 2 Jun 2018 18:52

LisaNeighbour

Tysabri

Hi Hope everyone having a nice evening, wherever you are. Just wondered if anyone had any words of wisdom on Tysabri? I’ve had all my blood tests, read my information booklet and am now just looking for advice. I’ve looked up tysabri on our site but any more advice or support before making this com...
13

@kea21

9 Mar 2017 20:37Last reply 1 Apr 2017 07:59

kea21

Tysabri

Well as expected my Neurologist wants me to start Tysabri, I kept saying that I wasn't happy and he kept saying Yes you are! But I am still NOT, If Lemtrada was available here I think I would definitely go for that,but like every thing here we are way behind, it took 8 years longer than Australia to...
  • Treatment
  • Gilenya
  • Lemtrada
12

@Gwenny

14 Sep 2014 05:28Last reply 24 Sep 2014 01:10

Gwenny

Changing from Tysabri to Gilenya

I have just tested as Positive to the JC Virus, so my Neuro is talking of switching me to Gilenya in 12 months time. Has anyone else done this, I would be interested in your opinions please.
  • Treatment
  • Gilenya
  • Tysabri
  • Work and play
  • Positives of MS
12

@almosthappy

3 Feb 2019 08:33Last reply 5 Feb 2019 14:34

almosthappy

Tysabri, Lemtrada or Ocrevus?

Hello folks 👋🏻 I’m Sarah, I was diagnosed last year (first CIS was on world MS day, would you believe.. 🤦🏻‍♀️) And I’ve had 4 episodes since then - May episode (which saw me admitted to hospital, steroids, LP and scans); further episode in August (same, plus left me walking with a stick); mino...
  • Diagnosis
  • Limbo land
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Relapses
  • Steroids
  • Treatment
  • Lemtrada
  • Tysabri
  • Which DMT
  • MRI
  • Ocrevus
12

@Sarah_Irwin

27 Mar 2018 14:43Last reply 18 Apr 2018 03:33

Sarah_Irwin

Pain increasing while on Tysabri

Hello, I have just had my 10th Tysabri infusion and have noticed the pain in my arms and legs has increased. The nurse asked me if i had any changes so i mentioned the pain. Two more nurses then asked me about it and told me to contact my MS nurse if it worsened. I am JC + and im now worried that i...
  • Diagnosis
  • Disclosure
  • Healthy living
  • Exercise
  • Symptoms
  • Pain
  • Treatment
  • Tysabri
12

@Ancy

20 Feb 2021 01:12Last reply 6 May 2021 07:57

Ancy

Tysabri and Steroids

Hi all..again 😄 So...I've had my first infusion of Tysabri a week ago...I obviously do not expect to suddenly be able to run a marathon (not that I ever would of prior to MS anyway 😄) but I just had a query about Tysabri and steroids.. If you do happen to have a terrible relapse whilst on Tysabr...
  • Symptoms
  • Steroids
  • Tysabri
  • Relapses
  • Treatment
  • Gilenya
  • Exercise
  • Healthy living
  • Tecfidera
  • Which DMT
12

@Bettyarcher

14 May 2021 09:53Last reply 8 Jun 2021 22:28

Bettyarcher

Tysabri or Ocrevus

Hey guys, Its been a little while since I have posted on here!I hope you are all doing okay. So, turns out the Tec isn't working for me as my recent MRI showed new lesions on my brain and spine. I have been given the option to go on either Tysabri or Ocrevus. I have been doing so much research and ...
  • Treatment
  • Tysabri
  • Ocrevus
  • MRI
  • Which DMT
  • Research
  • Diagnosis
  • Tecfidera
  • Symptoms
12

@reens

10 Jun 2014 21:38Last reply 26 Jun 2014 21:37

reens

Tysabri newbie!

Signed paperwork today to start tysabri in 2 weeks and just thought to ask others if they have any tips for me, like I had with avonex (keeping hydrated etc) I am JCV positive if that makes any difference to advice. Before today I was a bit worried about the risk of PML but my nurse assured me today...
  • Symptoms
  • Mental health
  • Relapses
  • Treatment
  • Avonex
  • Gilenya
  • Tysabri
  • Which DMT
  • Work and play
  • Positives of MS
  • Work and Study
11

@Bigpeg88

27 Mar 2020 15:17Last reply 24 Feb 2021 10:40

Bigpeg88

Tysabri changes...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...
  • Treatment
  • Tysabri
  • Relapsing remitting
  • Diagnosis
  • Symptoms
  • Mental health
  • Which DMT
  • Work and play
11

@Boulevard_Soul

12 Sep 2021 18:32Last reply 5 Feb 2022 21:11

Boulevard_Soul

Tysabri - injection vs infusion...thoughts?

Hi all, hope everyone’s doing ok! I’ve recently changed from getting monthly tysabri infusions to getting my dose via injection. My hospital were promoting it as an option as its a much quicker process and in theory there’s no extra risks, it’s simply a different route for the same drug to get into ...
  • Relapses
  • Symptoms
  • Treatment
  • Tysabri
  • Copaxone
  • Avonex
  • Rebif
  • Extavia
  • Betaferon
  • Which DMT
11

@roodruss

10 Aug 2017 07:40Last reply 17 Sep 2017 14:36

roodruss

tysabri vs. lemtrada

My family member is in her early 20's and just diagnosed last year. Besides a case of bell's palsy she had only one other relapse that effected her walking and writing and also extreme tiredness. This episode resolved fairly quickly but MRI showed 12 lesions. Within 3 months of MRI she started gilen...
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Relapses
  • Treatment
  • Gilenya
  • Lemtrada
  • Tysabri
  • Work and play
  • Family and children
  • Work and Study
  • MRI
10
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