#tysabri - Shift.ms

11 Sep 2022 21:39Last reply 17 Sep 2022 20:02

Tysabri and JC virus

Hi all, is anyone else positive for JC virus and still taking Tysabri? My MS nurse says the risk of PML is the same for the first 2 yrs of tysabri treatment whether you're positive or negative for JC virus. I was only offered tysabri as my treatment (no alternatives were offered) and I've only bee...

Victoria, Canada

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@Caro81

11 Sep 2022 18:55Last reply 14 Sep 2022 18:44

Tysabri injections

Hi everybody, are there people who are getting tysabri injections instead of the infuse? Would you share your experience with me? Thank you!

Amsterdam, Netherlands

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@ScarletDamsel

7 Sep 2022 17:42Last reply 10 Sep 2022 15:40

Tysabri or Ocrevus

I have tested negative for the JC virus, apparently the consultants are looking to offer me either Tysabri or Ocrevus. Do they really lower your immune system? I work in retail and my job involves a lot of fairly close contact with customers. Am I going to have to wear a mask when I'm out and at wo...

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@MissC

1 Sep 2022 10:16Last reply 1 Sep 2022 18:15

First treatment today - Tysabri injections

Morning all. I’ve just had my first two Tysabri injections. Feeling apprehensive about how this might affect me. Anyone else had this? What happened after (if anything)? 😬🫣

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@Mem10

24 Aug 2022 22:29Last reply 28 Aug 2022 12:10

Why is the flush an hour long after Tysabri infusion ?

Hi just had my 4th infusion and was just wondering if anyone knows why the flush takes so long ?

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@Boulevard_Soul

3 Jan 2022 18:30Last reply 27 Aug 2022 03:03

Tysabri causing a rash?

Hey gang, I've been on Tysabri for a year with no side effects, but i've woken up today with a weird rash all over my neck and chest. A quick google told me that rashes can be a side effect, so i'm wondering if it's that, although I've never had this before... I'll bring this up with my medical ...

3

@lucys

20 Jun 2022 09:00Last reply 28 Jul 2022 21:02

Tysabri questions

Hi everyone. I’m recently diagnosed and looking at the options for DMT’s. I’m looking at the ‘hit it hard’ approach so my options are Tysabri (bloods depending), Kesimpta or Ocrevus. My first thought was Kesimpta sounds convenient but not I’ve been looking more into Tysabri injections I think the...

7

@Magda_odp

15 Jul 2022 15:48 EditedLast reply 23 Jul 2022 22:49

Tysabri and flair up

Hello everyone. I’m just wondering how does your symptoms feel straight after the infusion. I had a whole lot of immunisations last week prior to my first infusion last Wednesday. Since then the numbness in my legs partially came back (not a new symptom). I’m just thinking if that’s to do with vac...

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@MamasAtrophy

16 Jul 2022 10:20

Pregnancy, Tysabri & the dark wild horse (that is MS)

Hello, I’m new on here! I was wondering if anyone could share their experiences of pregnancy and breastfeeding while on Tysabri? I would love to have one last child (I have 2 under 5 lol) but I’ve always loved the idea of a big family. I’ve decided 3 is the number.. other half is so worried about me...

@karolinaherbut

6 Jul 2022 17:38Last reply 7 Jul 2022 18:22

Today I had my first Tysabri dose

Ahhh well today I went into hospital expecting a Tysabri infusion but they come out with 2 injections … I was confused as I was told it was an infusion of the neurology nurse and that’s what it stated on the letter. I questioned the nurses on the ward and they were like nope you’re definitely get...

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@Kanga

24 Jun 2022 07:00Last reply 27 Jun 2022 08:06

Is this normal-Tysabri

Hey folks I started on Tysabri infusions. At the beginning of June. Literally, within 2 days I was like a new person. My cog fog pretty much vanished, my cognitive processing was sharp and my fatigue was gone! I completed things that I pretty much gave up any hope of doing. I was mindful though tha...

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@giraffelady

24 May 2022 23:33Last reply 26 May 2022 17:32

Tysabri- time between each treatment?

How long should you have between Tysabri infusions or injections and why? Is there any benefit to having them 4-5 weeks apart compared to 6 weeks apart? I feel better with a shorter time in between than longer. It might be nothing to do with Tysabri but just wondering

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@Magillz

17 May 2022 10:44Last reply 17 May 2022 13:28

Tysabri to Ocrevus

Hi all this is my first post and have been quietly in the background…interested in other’s thoughts or opinions…so I’ve had a conversation with my neurologist yesterday as after 12 months of tysabri I am experiencing quite bad flares ups post infusion for at least 7 days afterwards we did discuss go...

Bridgwater, United Kingdom

2

@Barbie30

13 May 2022 19:52 Edited

Tysabri

Any one get dental implants? Can you get this with ms or all four snap in dentures

@selma15

9 May 2022 12:07Last reply 11 May 2022 22:29

tysabri

I had my first injections of tysabri on wednesday, how quickly do you get symptoms?

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@hazz

21 Apr 2022 17:13

Tysabri and repeated infection

Hi Does anyone else here take tysabri and have repeated infections all year round ?

@hazz

21 Apr 2022 17:13

Tysabri and repeated infection

Hi Does anyone else here take tysabri and have repeated infections all year round ?

@bcope

8 Apr 2022 22:13Last reply 13 Apr 2022 13:56

Tysabri

After getting diagnosed with RRMS back in December, I started my first infusion of Tysabri after some hesitation. I was curious if anyone here had been on it for a while, and what your experience is/was?

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@S_777

9 Apr 2022 14:52

Tysabri

Do people feel like tysabri is one of the most discriminated DMT for MS? Please let me know and feel free to msg me... its how I feel following a very bad experience and fearful of employment ahead now.🙏🏽 i have a monthly infusion my relapses were happening often. 🙏🏽 I honestly would have thoug...

@Mathew_Hare

6 Apr 2022 15:21Last reply 7 Apr 2022 22:51

Moving from Tysabri to Gilenya

Hey all, I’ve been on Tysabri since March 2020 and have been fortunate to have no relapses but my MS team told me a couple of days ago that I need to change to Gilenya due to a change in my JC status. I had my last Tysabri infusion earlier today and the neuro nurses seemed very confused about wh...

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