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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
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  • Rebif
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@Em75 

Last reply

Em75

Tysabri - thoughts/ views/ experiences

Thoughts/ experiences from those who have taken Tysabri ? I am newly diagnosed rrms and have had blood results for jcv showing negative. I was offered Tysabri, ocrevus and kesimpta and and meeting ms nurse next week to talk through my decision.Ive read everything! I'm a bit apprehensive about Tysabr...
  • Treatment
  • Tysabri
  • Diagnosis
  • Newly diagnosed
  • Which DMT
  • Relapsing remitting
  • Ocrevus
  • Lemtrada
45

@hazz 

hazz

Has anyone moved from tysabri to ocrevus

I have a question has anyone moved from tysabri to ocrevus and how does it feel ??? is it better feeling than tysabri any improvements mind fog walking etc ...
  • Exercise
  • Healthy living
  • Ocrevus
  • Symptoms
  • Treatment
  • Tysabri
  • Brain fog

@ChloeM102 

Last reply

ChloeM102

Tysabri not working

Hi everyone, I’ve been on Tysabri since January, however I’ve had a new lesion in my recent scan and need to move to another treatment. I have rapidly evolving severe rrms. Has anyone had Tysabri and it’s not worked? If so what did you choose to switch to?
Sheffield, UK
  • Treatment
  • Relapsing remitting
  • Diagnosis
  • Tysabri
  • Symptoms
1

@whisperingLOUD 

Last reply

whisperingLOUD

Tysabri

Who has had tysabri treatments? When will I be able to do cartwheels?
Tupelo, United States
3

@hazz 

Last reply

hazz

Has anyone started taking tysabri 6-8weekly

I am really curious to know if any here takes tysabri 6-8 weekly after getting a high titre of JCV ? How is this treating the ms and how does one feel? I have previously done 9 weeks on and 6 weeks and than 5 weeks, it was horrible !!!
  • Symptoms
  • Healthy living
  • Tysabri
  • Work and play
3

@Larraine 

Last reply

Larraine

Tysabri to ?

I’m having to come off Tysabri because my JC virus levels have increased. The professionals have talked about Ocrevus and Kesimpta. I’m swinging towards Ocrevus but does anyone have any thoughts?
  • Ocrevus
  • Treatment
  • Tysabri
  • Diagnosis
2

@randomchick 

Last reply

randomchick

Tysabri?

Hi all. I’ve been on and off Tysabri for about 7 years now, but this summer feel that it is not really helping to keep me stable anymore. I’ve tried lemtrada, ocrevus beta interferon fingolimod and copaxone. Out of them all only copaxone and Tysabri gave some stability. I think I have moved into spm...
London, United Kingdom
  • Treatment
  • Copaxone
  • Secondary progressive
  • Hot and cold
  • Ocrevus
  • Lemtrada
  • Symptoms
  • Diagnosis
  • Gilenya
  • Avonex
3

@Kieron1299 

Last reply

Kieron1299

whats it like on Tysabri?

Been suggested i start Tysabri however slightly hesitant due to the risk of PML. How have people found Tysabri does the reward outweigh the risk? Thankies
Hampshire, UK
  • Tysabri
  • Treatment
  • Symptoms
  • Work and play
  • Healthy living
1

@SM_007 

Last reply

SM_007

Tysabri to Ocrevus?

Hi, Smile :-) I'm searching for people who have moved from Tysabri to Ocrevus (because they were JC Virus Positive) and have been on Ocrevus for 'many' years now. Would love to know your experience and of differences you feel with the drug and symptoms. For me the 6 month trip to the hospital sound...
Farnborough, United Kingdom
  • Ocrevus
  • Treatment
  • Symptoms
  • Tysabri
  • Relapsing remitting
10

@Aton 

Last reply

Aton

Tysabri

Does any one feel fatigue and tired a week before your next infusion ??
10
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