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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Topics

  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
  • Plegridy
  • Rebif
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  • Tysabri
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Found 1107 results

@AmandaMartin

Last reply

AmandaMartin

Tysabri side effects?

Hi, I'm wondering what side effects people have experienced with Tysabri infusions? I had my 8th infusion on Friday, and I'm feeling so dizzy! This is a first for me, previously I've felt a bit tired for a day or so after, but not dizzy. Other than this dizziness my experience with Tysabri has be...
  • Dizziness
  • Symptoms
  • Tysabri
  • Fatigue
  • Work and play
  • Positives of MS
  • Treatment
  • Ocrevus
13

@Hadil

Last reply

Hadil

Tysabri

I've been on Tysabri for 6 months and my MRI results came back looking good. I have been feeling unwell for 2 days and this makes me spiral down into dark thoughts and what ifs🥺 does it usually work for a long time?!
Les Arcs, France
  • Work and play
  • MRI
  • Symptoms
  • Tysabri
  • Diagnosis
  • Relapses
  • Treatment
  • Work and Study
3

@DalJoy

Last reply

DalJoy

Tysabri and Ocrevus

Hi everyone, I've just had a relapse while on Gilenya so I'm going to be changing treatment to either Tysabri or an antiCD20 molecule like Kesimpta. I was wondering whether it gets progressively more difficult to find a vein for iv access once a month while taking Tysabri? Also, does anyone have ex...
  • Treatment
  • Gilenya
  • Relapses
  • Tysabri
  • Ocrevus
  • Symptoms
  • Work and play
  • Which DMT
4

@Mattkohl

Last reply

Mattkohl

Tysabri

So I start tysabri this week…anything I should know or prepare for?
  • Tysabri
  • Treatment
  • Symptoms
6

@Sairah

Last reply

Sairah

First Tysabri treatment

Hi All, Quiet new to this but I've been reading all the posts and the responses and everyone has been so supportive towards each other. I have my first Tysabri treatment coming up soon and I was wondering what I should take with me to pass the time? (Abit of a foodie) can I take snacks to eat and ...
  • Treatment
  • Tysabri
  • Healthy living
  • Which DMT
  • Diet
  • Symptoms
37

@Thomas1

Last reply

Thomas1

Question about treatment Tysabri

My wife was just diagnosed with MS, symptoms started showing over a month ago. First a slur developing into a loss of words and brain fog, plus loss of left arm and leg usage. The neurologist wants to put her on Tysabri, what can anyone tell me about it? Thank you in advance
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Treatment
  • Disclosure
  • Brain fog
  • Relationships
  • Work and play
  • Tysabri
62

@wjgregg

wjgregg

Tysabri

I have just had my 55th Tysabri infusion. I had my bloods taken last time around. I was told today that I am still jc-. I am feeling blessed. Tysabri has been so good for me.
  • Tysabri
  • Treatment
  • Diagnosis
  • Disclosure
  • Symptoms

@Ollyreeves

Last reply

Ollyreeves

Opinions on Tysabri

Hello all, I’m recently diagnosed with MS, it’s a bit of a relief to get a diagnosis if I’m honest. It ties up a few strange loose ends and means I don’t have prostate cancer or a brain tumour! I have had several MRIs, second one was brain and spine with dye and it was after that that I got my f...
London, United Kingdom
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Work and play
  • Tysabri
  • Brain fog
  • Symptoms
1

@Cookie37

Last reply

Cookie37

Starting tysabri

Im so nervous to start tysabri as i had a bad skin rash from steroid infusion which has sort of gone after 3-4 months taking antibiotics but still ruined my face I just want to be able to dance and walk without thinking about it So im 50/50 about taking dmt drugs has anyone had a skin rash on face t...
  • Treatment
  • Tysabri
  • Which DMT
  • Exercise
  • Healthy living
  • Work and play
  • Fun drugs
  • Bladder and bowel
  • Numbness
  • Balance
2

@Cookie37

Last reply

Cookie37

Tysabri

Hi im really confused as im about to start Tysabri infusions because i have a new active lesion in my brain. I have rrms since 2008 Has any obe taken this drug and how did they find it ?
  • Relapsing remitting
  • Tysabri
  • Diagnosis
  • Treatment
  • Which DMT
3

@evecockerham

Last reply

evecockerham

Tysabri and JCV

I got diagnosed with MS in October and started on Tysabri in December however, I tested positive for the JC Virus. Did any body else test positive at the start of their treatment and still continue with Tysabri?
  • Tysabri
  • Treatment
  • Newly diagnosed
  • Diagnosis
  • Positives of MS
  • Work and play
  • Symptoms
  • Which DMT
  • Relapses
1

@laurenfster

laurenfster

New Tysabri injections..

Hi guys, I had the new Tysabri injection form rather than the infusion the other day and would recommend it! Especially if you hate sitting around waiting for it to finish...it's much quicker than the infusions. :)
  • Tysabri
  • Treatment
  • Avonex
  • Betaferon
  • Extavia
  • Symptoms
  • Plegridy
  • Rebif
  • Copaxone

@darya

Last reply

darya

Tysabri or Lemtrada?

Hi everyone, I have recently been diagnosed with RES MS as I have had 3 relapses since the disease onset in June. I am due to start treatment very soon, hopefully in January. I have been told that I need to choose between Lemtrada or Tysabri (depending on whether i'm JC +/-). Please can you advise m...
Cambridge, United Kingdom
  • Treatment
  • Lemtrada
  • Diagnosis
  • Newly diagnosed
  • Tysabri
  • Which DMT
  • Disclosure
  • Symptoms
  • Relapses
26

@laurenfster

EditedLast reply

laurenfster

Tysabri

Hi guys... I've been on two treatments since my diagnosis (Rebif and now Tysabri) Rebif didn't work out for me so changed to Tysabri and is working wonders for me. Tysabri is given intravenously but recently I have been given the opportunity to have the treatment through injections to speed up the...
  • Rebif
  • Treatment
  • Tysabri
  • Betaferon
  • Avonex
  • Copaxone
  • Plegridy
  • Extavia
  • Work and play
  • Which DMT
1

@Mssilver

Mssilver

Tysabri International

Hi all! I’m really excited I found a forum like this - I’ve been trying to find a solution and I was wondering if perhaps someone here has insight - I live in the US and I’m currently on Tysabri (switched from Tecfidera) for over two years and it’s working well. I am supposed to receive the infusion...
  • Treatment
  • Travel
  • Work and play
  • Symptoms
  • Tecfidera
  • Mental health
  • Tysabri
  • Which DMT
  • Relapses

@VicWest

Last reply

VicWest

Switching from Tysabri to Ocrevus

Hello, has anyone any experience with coming off Tysabri and moving to Ocrevus. My consultant is very keen on me switching due to PML. Just wanted some advice / to hear people's experiences. Thank you 😊
  • Ocrevus
  • Treatment
  • Tysabri
  • Healthy living
16

@SBGill91

SBGill91

Tysabri (Sub -Cutaneous) VS Infusion

Thoughts anyone?? https://pubmed.ncbi.nlm.nih.gov/36639226/
  • Treatment
  • Tysabri

@VishyAndMehul

VishyAndMehul

Tysabri to Rituximab

Hi, my partner had COVID in February 2022 and the week after that she started feeling the weakness in her legs. In a matter of months, she was completely immobile. She was diagnosed with MS in June 2022. The treatments started with Steroids, then moved to 6 doses (one every 28 days) of Tysabri (Nat...
Bengaluru, India
  • Symptoms
  • Tysabri
  • Newly diagnosed
  • Diagnosis
  • Relationships
  • Work and play
  • Family and children
  • Treatment
  • Steroids
  • Positives of MS

@PrayLove84

Last reply

PrayLove84

Morning All, today is my first treatment on Tysabri!! I’m nervous 😖

Any advice❓Tips? Please share👋
Moultrie, United States
  • Treatment
  • Tysabri
  • Symptoms
  • Which DMT
2

@Will1974

Last reply

Will1974

Tysabri

I was just wondering if anyone else here is on Tysabri? I have been on it for two years and at risk for the complications that Tusabri can bring - but have chosen to stay on it as it is working so far. I also have just had my first dose of it through subcutaneous injections. Has anyone else had e...
  • Treatment
  • Tysabri
  • Symptoms
  • Avonex
  • Work and play
2
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