#tysabri - Shift.ms

22 Dec 2020 13:05Last reply 19 Feb 2021 13:41

Any advice on Tysabri fears

Hi 👋 first time poster here 😀. A brief (I hope) background. I was told I had tumours on my brain and spine which were highly likely to be cancerous. Cut to 'downgrade' (not my words) to MS. I am under a neurologist who said I need to forget the notion that all the different types of MS were the w...

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@Criswell

28 Sep 2018 14:32Last reply 16 Oct 2019 14:36

Switch from Tysabri to Lemtrada?

Hi! I am new to Shift.MS. The reason I joined is because I am trying to decide about a possible change of medication. A little about me,I am 65 and was diagnosed with MS 35 years ago. I actually had symptoms starting 15 years before that but it wasn't until I had an attack of optic neuritis that a d...

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@Ms2021

16 Jan 2021 20:20Last reply 27 Jan 2021 15:13

Tysabri infusion

I'm having my first tysabri infusion next week. I'm really anxious about it! Can anyone share their experiences?

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@Gwenny

9 Mar 2014 10:08Last reply 19 Mar 2014 21:17

Tysabri,

Hi Folks, just wondering if anyone else is on Tysabri and would like to know is it working for you, any side-affects? I've been on it now for almost 6mths and am thrilled to say I have a lot of my movement back, just feel really tired the week leading up to Infusion. any comments would be appreciate...

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@kea21

17 Nov 2017 19:49Last reply 2 Mar 2018 13:44

Tysabri

Had infusion number five, procedure went ok, but I had issues halfway home driving, It became quite dangerous couldn't get my right leg/foot to work! (Monday) Since then the week has been crap!, headaches,dizziness and my walking has been all over the place ( wobbling ) I was really struggling to dr...

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@jojo75

3 Dec 2017 22:03Last reply 21 Nov 2020 07:17

Tysabri

Hi this is my first post. Excuse me if I waffle! I was diagnosed in 2012 with rrms. I've had 3 different dmds. In September I was signed off work for 6 weeks. With what I now think was a stress related relapse. My first real severe relapse. Any way saw my Neuro in October who wants to change me...

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@LisaNeighbour

30 May 2018 16:41Last reply 2 Jun 2018 18:52

Tysabri

Hi Hope everyone having a nice evening, wherever you are. Just wondered if anyone had any words of wisdom on Tysabri? I’ve had all my blood tests, read my information booklet and am now just looking for advice. I’ve looked up tysabri on our site but any more advice or support before making this com...

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@kea21

9 Mar 2017 20:37Last reply 1 Apr 2017 07:59

Tysabri

Well as expected my Neurologist wants me to start Tysabri, I kept saying that I wasn't happy and he kept saying Yes you are! But I am still NOT, If Lemtrada was available here I think I would definitely go for that,but like every thing here we are way behind, it took 8 years longer than Australia to...

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@Gwenny

14 Sep 2014 05:28Last reply 24 Sep 2014 01:10

Changing from Tysabri to Gilenya

I have just tested as Positive to the JC Virus, so my Neuro is talking of switching me to Gilenya in 12 months time. Has anyone else done this, I would be interested in your opinions please.

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@almosthappy

3 Feb 2019 08:33Last reply 5 Feb 2019 14:34

Tysabri, Lemtrada or Ocrevus?

Hello folks 👋🏻 I’m Sarah, I was diagnosed last year (first CIS was on world MS day, would you believe.. 🤦🏻‍♀️) And I’ve had 4 episodes since then - May episode (which saw me admitted to hospital, steroids, LP and scans); further episode in August (same, plus left me walking with a stick); mino...

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@Sarah_Irwin

27 Mar 2018 14:43Last reply 18 Apr 2018 03:33

Pain increasing while on Tysabri

Hello, I have just had my 10th Tysabri infusion and have noticed the pain in my arms and legs has increased. The nurse asked me if i had any changes so i mentioned the pain. Two more nurses then asked me about it and told me to contact my MS nurse if it worsened. I am JC + and im now worried that i...

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@reens

10 Jun 2014 21:38Last reply 26 Jun 2014 21:37

Tysabri newbie!

Signed paperwork today to start tysabri in 2 weeks and just thought to ask others if they have any tips for me, like I had with avonex (keeping hydrated etc) I am JCV positive if that makes any difference to advice. Before today I was a bit worried about the risk of PML but my nurse assured me today...

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@Bigpeg88

27 Mar 2020 15:17Last reply 24 Feb 2021 10:40

Tysabri changes...

Hi guys hope everyone is keeping safe in this new world order we are going through! I am writing this post as I have rrms and have been receiving natalizumab ( tysabri ) at monthly treatments for last 9 years and I am switching to every 6 weeks instead of 4. Can anyone out there describe in any wa...

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@Ancy

20 Feb 2021 01:12Last reply 17 Mar 2021 21:57

Tysabri and Steroids

Hi all..again 😄 So...I've had my first infusion of Tysabri a week ago...I obviously do not expect to suddenly be able to run a marathon (not that I ever would of prior to MS anyway 😄) but I just had a query about Tysabri and steroids.. If you do happen to have a terrible relapse whilst on Tysabr...

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@roodruss

10 Aug 2017 07:40Last reply 17 Sep 2017 14:36

tysabri vs. lemtrada

My family member is in her early 20's and just diagnosed last year. Besides a case of bell's palsy she had only one other relapse that effected her walking and writing and also extreme tiredness. This episode resolved fairly quickly but MRI showed 12 lesions. Within 3 months of MRI she started gilen...

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@LM24

14 Jan 2017 20:23Last reply 28 Jan 2018 14:37

Starting Tysabri on Monday

Hi, Had MS for approx 16yrs. I've been on Avonex and over the past 4yrs Gilenya. Unfortunately both didn't work for me and my last MRI showed my MS was still highly active and had acquired a number of new lesions despite being on Gilenya. Lemtrada was discussed but apparently the change from Gileny...

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@Laurabeebee

10 Apr 2015 13:45Last reply 13 Apr 2015 10:19

Tysabri - am I being unreasonable?

I had my JCV test on March 4th and was told that once the results were in someone would call me with the results so I waited and no call (but I was told it could take a few weeks as they are sent away). However a letter landed today with an appointment for my first infusion tomorrow! Not much no...

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@DarrenF

23 Sep 2013 19:19Last reply 1 Oct 2013 11:14

Tysabri

I was diagnosed with MS a year ago, sadly had a number of relapses. Rebif caused liver function issues, so they are putting me on Tysabri. When I read up on this drug the side effects scare me! Would be great to hear from anyone who is taking Tysabri? How are you finding the treatment etc

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@smallbrowngirl

20 Jul 2011 22:00Last reply 28 Jul 2011 16:10

Tysabri

I've had my first infusion, is anybody else on this? Your comments would b much appreciated :o)

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@ophelia

15 Aug 2012 13:08Last reply 23 Aug 2012 05:23

Tysabri start date!!

5 months to the day since diagnosis I will be starting Tysabri!!!! 10th September the fight back starts in earnest!!!! Just a quick question for those on ty already, how do you feel after your infusion? I need to be able to make a rough plan for work!

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