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I was made redundant in 2020 and after spending some time thinking about my future I wrote a book. It comes out in May. Will be available in paper and digital. Is called Diagnosis Multiple Sclerosis. Is about my journey.

Join Roxy, Heather, Maytee, Katt and Dave as they agree and disagree with hot MS topics, opinions and share their multiple sclerosis diagnosis stories. Did you have a difficult diagnosis? Why not share the lessons you learned with the Community in the comments below 👇 https://www.youtube.com/watc...

So when I had my first little boy he was around 4 months old when I started with my ms symptoms and a year later I was diagnosed. We’re hoping to have another baby sooner rather than later however I am worried as I do struggle with MS chronic fatigue, and I’m just worried about what it could do to m...

I feel like the neurologist don’t care about tingling and numbness told me to put it to the back of my mind and they don’t like treating people as the medication is harsh? Do I jus live with tingling sensation and numbness?

Hi all, new here. Was suggested to visit by a work colleague. 2021 I had intermediate uveitis, at the time I also had problems with my hip and a an endometriosis flare up. Absolutely did not think these were related at the time, now looking back they absolutely could have been. Had a load of blood t...

My dad died in 2001 from ms, 5 years after diagnosis. Last August I was diagnosed with ms by a private neurologist. I was then referred to nhs neurologist who I saw in November. Since then I’ve had an mri and am waiting for a lumber puncture. I’ve had great help from the nurse, physio and OT but I’m...

Hi all, I was just wondering if you all have had a lumbar puncture for your diagnosis, I met a lady the other day who was diagnosed by MRI alone, I though you had to have a lumbar puncture x

Hi everyone - I'm currently waiting to see a neurologist, after being referred by my GP due to suspected MS. I got a call the other day saying that the neurologist wants me to have an MRI first before I see him.... has that happened to anyone else in their diagnostic process? Should I be concerned a...

Hi I'm just wanting some advice are you allowed to take vitamin c? I had me results back from my lumbar puncture and all of them are signing to ms, I'm not due to seeing my consultant until the 24th of march but know absolutely nothing of what I can and can't take x

Hello, I got diagnosed earlier this week so I’m super new to this whole process but keen to learn about all options available to me asap. My neurologist suggested 3 dmds but the one that stuck out to me was kesimpta due to the fact I can administer at home and appears to have the least possible s...

Hi everyone I joined to make sense of myself. I had a flare in Oct 2021 that has left me taking ill health retirement from the nhs. Currently awaiting a second neurologist to look at my newest mri. The newest brain mri said high signal T2 changes, is this anything to do with MS? I’m diagnosed with...

Hello all, I am 41 with 2 children and work as a teacher. I do not smoke or drink and have perfect bp and cholesterol lol but on Sunday last week I went to sleep and by Monday I could not walk, my right hand side was frozen so I was dragging myself around into work till Thursday. On Thursday pm I re...

So sorry guys looking for more advice as am in so much pain. I had three Mri scans Brain Cervical and thoracic done by an independent company these were done without contrast three weeks ago in the meantime I have increasing burning nerve pain all over my body and hands are very bad.I have deterior...

Do people find that hiding the condition far more exhausting than disclosing it? I’m trying my hardest to hide every symptom and avoiding certain situations without explanation.

Pre-diagnosis, did anyone experience a progressive physical weakness and a general feeling of something is definitely wrong both mentally and physically but you can’t quite put a name to it & it’s a “I don’t feel good & I don’t know why” type of thing ? At times debilitating pain in the spine, wet ...

Hi all, I’m Agathe, originally from France but living in Germany. I have been having symptoms since 2017 that at first drs explained through “side effects” of heavy heart treatments I needed at the time. I since then had 2 heart surgeries and symptoms came back even tho my heart is healthy now and ...

Disappointed that I can't find any local support groups and you also need to know when I turn location sharing on it says I'm in Huntington United States I don't know why because I'm in Dublin Virginia United States I've never heard of Huntington United States

Hi, I am currently waiting for a private neurologist appointment (NHS waiting list 8-10mths for initial appointment) my GP has not been overly helpful and infact I have spoken to a different locum every time. The symptoms I have are as follows: difficulty walking on flat surfaces if the pattern of t...

At age 25, some 37 years ago I got a bout of measles very badly despite having had them badly as a child. After this I was left unwell for many weeks, mainly with fatigue. Looking back to that time other symptoms developed too but I always felt that most things would pass and there was no point both...

Happy Friday! I’m new to this space. I’m currently in the process of ruling out what could be going on with me. This post will be a bit long but figured this is a safe space to get it all out. Late Jan 2021 was when I experienced some of my first symptoms. My left upper lip had some numbness. ...