#diagnosis - Shift.ms

30 Jul 2020 08:51 EditedLast reply 1 Dec 2020 20:30

Diagnosis - the long and winding road

2001 Optic neuritis. Go blind suddenly - and fortunately temporarily - in one eye. Ophthalmologist sends me to neurologist. The neurologist tells me in a jovial tone to say that I have had optic neuropathy to insurers - if I say optic neuritis they’d put me down as having MS. MRI done. No follow up...

36

@MelvieMoon

20 Oct 2019 07:48Last reply 23 Nov 2020 21:34

What lead you to your MS diagnosis?

I would like to start a thread to find out how others found out lead others to their MS diagnosis... I found out I had MS by fluke and for that I am extremely grateful! I started out with what I can only describe as ‘my own legs not feeling like my own’...I got bloods done and found out I was defici...

34

@kateybash

26 Jul 2017 15:40Last reply 26 Nov 2017 17:14

Revoked license following CIS diagnosis.

Really needing advice.. as of this afternoon I have been advised by the DVLA that I am no longer allowed to drive, I have to send my license back to them due to my CIS diagnosis. I have been crying all day. I am a health visitor and need my car to work. I was under the impression that this would not...

25

@ciara1982

22 Jul 2020 18:27Last reply 22 Jul 2020 22:56

Diagnosis

Hi I have had a recent mri identifying inflammation on both spinal cord and brain. I’m seeing neurologist on Friday. Did anyone get a diagnosis with the same mri result? My symptoms are weak left leg, tingling in right hand and poor balance. I also tend to be very sensitive to alcohol.

24

@Luv_Ma_Name

14 Mar 2021 19:09 EditedLast reply last Friday at 09:07

Do you think your MS diagnosis came with a free mental health issue?

Just wondering if anybody else has changed mentally also, I suffer badly with anxiety now and cannot bare loud noises, traffic, shouting even laughing! I love staying indoors now and living like a queen. Total opposite from what I used to be x

24

@Dx24012021

28 Jan 2021 21:06Last reply 31 Jan 2021 18:45

Recent MRI confirmed diagnosis

I was diagnosed on January 24th. MRI showed numerous old lesions in brain- a mix of old and new as well as C spine involvement. I am 37, fit and healthy up until now. I feel like the rug has been pulled from under me. To the members of this community, what helped you cope, what advice can you give s...

24

@jps1980

30 Jan 2019 13:46Last reply 24 Jun 2019 12:37

Not coping well after diagnosis

HI everyone I'm 38 years old and have recently been diagnosed with Ms after having ongoing problems with my vision. It took over 12 months to get my diagnosis and not finding things easy. I'm a father of four and I'm married, I've always had problems with my mental health but have been very low si...

22

@Aaron_Holden

21 Aug 2020 17:28Last reply 24 Aug 2020 15:39

Recent diagnosis

Hello everyone. I just wanted to say hello and maybe get any useful info from anyone who may have had similar experiences. Firstly I want to point out that I am not suffering badly and am well aware that I am more fortunate than many so really don't want any sympathy, just thought my story might be ...

22

@whitneya

6 Aug 2020 14:58Last reply 7 Aug 2020 08:13

Quitting job after diagnosis?

Hi all, I am 22 and was diagnosed with rrms in July after an attack in May. I’ve just started a dmd. Still have some symptoms - fatigue, feeling faint and I overheat quickly. My managers know, but they just don’t get it. My job is so fast-paced and they still think I can do anything and everything...

22

@ShadowFox

19 Jun 2018 15:41Last reply 26 Jun 2018 05:12

MS Diagnosis ... finally!

So I posted last week about being new to Shift and awaiting MRI results, and thought I'd give an update ... More lesions on the brain since my MRI in August 2017, but spine is clear. Neuro confirmed I have RRMS. As with many here, I'm relieved to have a diagnosis even if MS isn't exactly good new...

20

@Linzzzi

11 Dec 2017 12:22Last reply 25 Jan 2018 11:41

Waiting diagnosis

Hi this will probably be a bit long winded but here goes. I was told probable ms after a severe bout of vertigo and double vision. This was back in june/july time and since then i have had another mri scan and am awaiting results. I am in alot of pain at the moment in my arms shoulders and legs with...

20

@Sylvanna

22 Oct 2017 14:16Last reply 23 Oct 2017 15:24

How long did your diagnosis take?

Here's the thing, although I am actually really pleased to finally have a diagnosis of 'mild' RRMS I am really angry about how long it has taken. It is 8 years since I first went to the GP after suffering what I now know to be my first really obvious relapse. The delay in diagnosis was not for wa...

18

@nobodyin

24 Sep 2018 08:52Last reply 1 Jan 2019 12:24

diagnosis confusion?

Hello all, having recently been diagnosed with primary progressive MS, after an uphill fight of over a year to get a diagnosis, I wonder if anyone else on here has had a diagnosis blaming alcohol abuse for their MS. My latest clinic letter, after an MRI of my brain and spinal cord with dyes would se...

17

@Vixen

29 Apr 2021 09:09Last reply 30 Apr 2021 17:56

Diagnosis by Post - your stories (UK)

Hi all, I need to get some more stories as part of a campaign I'm involved with to stop UK patients being diagnosed by post. Often this means a letter is sent by the hospital to the GP and the patient is copied in. There have been a few posts on here about this recently. Sometimes, patients don't re...

York, England, United Kingdom

17

@Phillip_Dark

9 Nov 2018 09:07Last reply 11 Nov 2018 10:39

Recent Diagnosis - DMTs

Hello, so this week I have my second opinion from a consultant and been diagnosed with RRMS. I am 29 and currently have symptoms of pins and needles in both legs and random spasticity that come and goes in my calfs, feet and around my waste line. At the beginning of this relapse I had the occas...

16

@Lframe

3 Feb 2021 19:44Last reply 4 Feb 2021 19:59

New diagnosis

My mum has been diagnosed with ms a month ago she has trouble walking. In the last week she has fallen over several times and is literally crying in pain despite being on painkillers. Her gp said the falling over is not normal and we need to speak to the neurologist despite several attempts he hasn’...

16

@RMDaniels

10 Apr 2019 09:33Last reply 10 Apr 2019 17:19

Age at Diagnosis

Good morning from the beautiful state of Kansas, USA! I'm wondering about disease course when diagnosed at an older age. I'll be 50 in June & was just diagnosed this year with RRMS. I've read that being diagnosed after 40 is often PPMS and/or can have faster progression. Anyone else here dia...

15

@Cazzzzzy

10 Mar 2013 16:10Last reply 11 Mar 2013 20:05

Theatre tickets bought before diagnosis...

I booked tickets before my diagnosis and so didn't tick the disability box as was hoping I'd have something more treatable.... Anyway my tickets are here now & not sure what to do :/ .... I will call them tomorrow but just wondered if anyone here may have an idea of what I could do etc... Th...

Diagnosis

15

@Peacezone

5 Apr 2018 19:42Last reply 8 Apr 2018 13:12

Recent diagnosis

Hi, I'm very recently diagnosed, last month in fact. I'm 36 mum of three and soon divorced, so all of this had happened very quickly and is Very overwhelming. At the moment I have hardly any symptoms apart from numbness but I'm really scared of getting some of the symptoms and whether they will remi...

15

@Shmi

18 Mar 2021 10:23 EditedLast reply 20 Mar 2021 09:39

Diagnosis experiences?

Hey folks, I wanted to ask you (particularly those in the UK) about how the diagnosis process went for you. I'm in the north west, visiting home since christmas and kind of stuck here since being blindsided with the ms diagnosis after visiting the gp with some numbness and neck pain. I've had an m...

15