#fun-drugs - Shift.ms

5 Jun 2016 19:43Last reply 17 Dec 2022 02:37

Recreational drugs use

Ok this is probably a bad idea to post as people will judge but it is called fun drugs so it must be on others people's minds too so here it goes anyway. I used to be the biggest party animal ever from my teens trough my twenties. I'm Dutch and all thing that are party feeling enhancing are readily ...

21

@Chevy_bel_air

30 Oct 2022 01:28 EditedLast reply 30 Oct 2022 04:48

Vascular insufficiency

So since I had COVID almost a year to the day and had the fun delta variant I've noticed my legs retaining water. I tried more potassium, lower my salt intake, drink more water, water pills both over the counter and prescribed, compression socks but all to no avail. So my neurologist after trying al...

Yulee, United States

1

@Shonacampbell

27 Jan 2023 01:47Last reply 27 Jan 2023 18:52

Modafinil

I have had chronic fatigue progressed for years now. I struggle constantly with body fatigue and constant brain fatigue,I have tried everything and am on amandatine,My neuro refuses to prescribe me modafinil even though I know of others in the uk that get it from there neuros,They are happy for me t...

10

@Samg276

1 Dec 2022 19:19Last reply 26 Jan 2023 13:43

Life on ocrevus or cladribine

Hello I am due to switch from tysabri to either ocrevus or cladribine in the new year. I was wondering how these drugs affected everyday life in relation to it's immunosuppressive nature. Do you still socialise the same? Do you still go in to big crowds? Is work affected. I also have a new born and...

13

@ChiMum

23 Jan 2023 20:22Last reply 23 Jan 2023 23:22

aHSCT Dates

I found out some key dates today from the research team. On the 8th Feb, I find out if I am having the stem cell transplant or the high efficacy drugs (Kesimpta). If I get the transplant then I will have my first round of chemo on 25th Feb and my stem cells will be harvested on 6th March. It's al...

Sheffield, United Kingdom

3

@Lost

17 Jan 2023 21:19Last reply 19 Jan 2023 20:43

Help!

Hey, i don’t know how to start. This is my first time writing a post here so i am a little bit nervous. Few months ago, i had a flare up that was basically pain in my right arm and leg. Since then, this pain stayed as a constant symptom. Sometimes goes but most of the time is present. My doctor ad...

Potsdam, Germany

10

@deano

19 Jan 2023 10:23Last reply 19 Jan 2023 18:14

MS and COVID

I caught COVID over Christmas. My body did not know who to attack, COVID or me, in the end, I could not walk, and I could not even lift my legs to climb the stairs. I am immune supressed so logged my tests results online and within 2 hours a local Hospital contacted me , we had a chat and that...

6

@Mebutnot

17 Jan 2023 15:51 Edited

MS drug

Hello Im mot fully aware of what it says here * language barrier * but seems quiet close to my opinions regarding to MS drugs https://newsroom.uvahealth.com/2020/11/13/multiple-sclerosis-drug-could-worsen-disease/

Unpublished

@LawrenceHofer

13 Jan 2023 22:51Last reply 13 Jan 2023 23:45

Lawrence Hofer here from Dinsmore, Saskatchewan Canada

Elizabeth I've got Multiple Sclerosis to drugs can't help me but I've found Dr.Balugon from Nigeria who can fix the damage that MS has done to my body for 300 CAD shipping included garenteeing it to be 100%successful Elizabeth my email address is [email protected] let's stay connected I'm getting i...

1

@SamanthaF

11 Jan 2023 14:16Last reply 11 Jan 2023 20:25

Helpful tools/gadgets

Hi all. So I've completed my one activity for the day 🙄 and made a cake. It's definitely time for a stand mixer because I love baking and cooking but it's just exhausting! It got me thinking about other tools and gadgets others might use to make life easier and enable you to hold on to some of yo...

5

@ChiMum

4 Jan 2023 08:13Last reply 10 Jan 2023 09:34

aHSCT Trial

I am newly diagnosed as of December last year, and my MS Nurses gave me the option of a stem cell trial. 50% of the trial will get the stem cell and 50% will get 50 high effect drugs. It is completely random, which one you get, but if you get the drugs and you continue to you have relapses, then y...

Sheffield, UK

9

@Leahdanielle

7 Jan 2023 18:49Last reply 8 Jan 2023 16:51

Immune system

Hi all, Do you think MS or the drugs play with your immune system. I work full time and in a school and always seem to get hit quite bad with colds, coughs, throat problems. Can it be classed as connected to MS? Worried about having time off.

5

@GraceKasia

8 Nov 2017 22:06Last reply 8 Jan 2023 16:20

Marijuana and inflammation

Hi I would love to know if anyone has found using marijuana a successful anti-inflammatory and if so have you seen any improvement by using it? I'm slowly realising that this could be a very useful medicine for MS the more I research it. I am also looking for recommendations regarding strains whic...

17

@Sonic_Sarah

8 Jan 2023 01:24

Where do I begin....

So, I don't sit neatly in any medical bracket, may get rebuffed from here too... I have MS, my Neuro team in Swindon are narcissistic idiots and have treated me abismally, so yes I am entitled to use those words. I have had letters, no treatment, I have a plethora of symptoms, I self explore and tre...

@Pires2005

14 Mar 2022 08:38Last reply 7 Jan 2023 20:40

Legalisation

I didn’t think MS could still humiliate me. I feel bad about how I’m effecting those around me and how I am going to be a greater burden on my family. I lost it and tore into my wife. I was in such a haze that I can’t remember what I said. I acutely remember the feeling of being mortified. Of c...

7

@muke

6 Jan 2023 19:27

Ocrevus infusion

Just Be Careful I've had 4 infusions going for 5th. Pls do some research on it find out What this Drug Consists of you would Be amazed and Shocked.a friend of mine is a lab tech at hospital. It is a type of Poison infused into you that attaches and kills certain cell. Alot of side effects and things...

Windsor, Canada

@dkon

2 Jan 2023 16:34 EditedLast reply 5 Jan 2023 23:38

Choosing DMT - high efficacy early on?

Has anyone here started straight with high-efficacy treatment (ocrevus, kesimpta or Tysabri) while not yet having accrued any disability and only few lesions in the brain? I am reading quite a few opinions and studies indicating it might be better to hit MS hard and early. In my case (36F) I have 3 ...

16

@Dan_Davis

2 Sep 2020 12:24Last reply 4 Jan 2023 11:57

Using RSO (Rick Simpson oil) to help MS

Hi there, I was wondering if anyone in this community has used or heard about using RSO to treat MS, this is an oil derived from marijuana, I’ve heard a lot about it, just want some feed back the MS community, thank you.

6

@ToreaDenea06

6 Nov 2022 01:05Last reply 2 Jan 2023 09:12

Dealing with Ms

It’s been a year living in Okc and the Neurologist that I have is not helping me he has me on Sleeping pills that don’t help with my Ms at all I feel I need to find a different Source a different doctor for me

3

@Jasmin

1 Jan 2023 11:24Last reply 1 Jan 2023 17:44

oil

does anyone use cannabis oil

8

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