#fun-drugs - Shift.ms

5 Jun 2016 19:43Last reply last Sunday at 22:28

Recreational drugs use

Ok this is probably a bad idea to post as people will judge but it is called fun drugs so it must be on others people's minds too so here it goes anyway. I used to be the biggest party animal ever from my teens trough my twenties. I'm Dutch and all thing that are party feeling enhancing are readily ...

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@Kylie1982

23 Dec 2013 01:19Last reply 5 Jul 2015 15:42

Tecfidera reviews wanted! Anyone else on this?

Just wondering if anyone else out there has made the switch to Tecfidera? I used to be on Copaxone but hated the needles so have switched to the pills! They're not going so well at the moment! I'm on week 3 and have terrible cramping in my stomach, nausea, headaches, bloating, indigestion and reflux...

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@xander

2 Dec 2012 22:59Last reply 10 Mar 2013 17:20

weed cannabis Marijuana?

for me all my problems started 6 weeks or so after i gave up smoking weed 4 years ago. i was wondering if any of you use cannabis to help with there ms?

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@splick

18 Jun 2015 15:23Last reply 3 Jul 2015 10:32

Let's get an MS drug picture of the UK..

Please say where you are in the UK, What drugs you are prescribed and your Type of MS....so I'll get started.. PPMS - Gabapentin 2500mg daily, Fluvoxamine 100mg daily, Zopiclone 7.5mg daily, Amantadine 200mg daily, Targinact 20/10mg twice daily, Lansoprazole 30mg daily (to stop reflux from other ta...

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@davemcfaull

11 Jul 2012 10:01Last reply 13 Nov 2012 16:17

Mobile Phone app to help with daily life

My name is David McFaull, I am about to go into final year in software development at University of Ulster Coleraine. As part of our final year we are required to create a piece of software and I want to create a mobile phone app to help people with MS. My mother has had MS for around 8 years now. I...

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@RachaelLouise

6 Jan 2018 18:08Last reply 8 Jan 2018 12:56

How have all these people got better?

How of all these people got better with ms ? If you can’t cure it and it’s progressive how have they gone into remission ? They can’t have all been misdiagnosed or been ‘mild’ or benign ms . And not all on drugs . Stats say by 10-15 years go in from RRMS to Primary progressive . Some had been pro...

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@finchy

25 Mar 2015 10:28Last reply 11 Jun 2015 20:05

Risk perception and DMDs

Dear colleagues I have posted a recent blog on the subject of risk: how we deal with choices regarding disease modifying drugs. You can see the posting on http://www.whatmsmi.com. I would welcome your own comments.

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@DominicS

12 Dec 2019 07:43Last reply 16 Dec 2019 14:30

Everyone, help please!

Hi, I really need the help of regular everyday people with MS. I am writing an application to do a Doctorate that is looking explicitly into the patient side of MS. It is at the Nuffield School of Primary Health at Oxford and is a scholarship. I have not got it yet and have two more weeks to wri...

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@Loulou1962

6 Jul 2021 10:40Last reply 19 Aug 2021 21:33

COVID VACCINE

Hi everyone, I am new to this forum and I was looking for some advice. I was diagnosed with MS 13 years ago and I have been very fortunate that I have kept well and I am on no medication and never have been. The only thing I take daily is VitD3 (5,000 units). I have postponed getting the vaccine ...

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@pj887

9 Oct 2018 10:35Last reply 16 Oct 2018 09:01

Medical cannabis

As much as I appreciate cannabis derived medicine being legalised I find it hard to believe that anything the government says about it will help anyone. Will a gp be able to prescribe it, how much cbd and thc will be in them, will everyone with ms be able to get it. All the news stories still don't ...

31

@Karen

12 Jul 2021 23:16Last reply 20 Jul 2021 23:40

Neuropathic pain advice please

I'm looking for advice regarding neuropathic pain and various drug options. The pain in my legs is driving me crazy but I am loathe to take drugs with a myriad of side effects. Are there any reasonable options or is it trial and error?

Ottawa, Canada

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@doubleo7HUD

22 Jun 2017 03:52Last reply 23 Jun 2017 19:59

WTFIF help 😂

Morning MSdebators, Hope you are all well, I woke up at half 5 as normal ready to head to work, just one problem I noticed my right leg is slightly numb, upon further inspection it's is not just numb but has decided not to work very well at all and is quite asleep. I have managed to crawl to the b...

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@shopaholic84

8 Dec 2015 19:41Last reply 3 Jan 2016 20:45

Lemtrada - The ONLY drug worth taking?

I'm new to the site and MS. I was recently was diagnosed and am not currently taking any dmd through my choice. I am leading a pretty healthy lifestyle and have not had a relapse since my first in January which was light sensory loss in legs. My recent mri showed a signal change since January . I f...

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@Anawith1n

25 Mar 2015 10:02Last reply 29 Mar 2015 21:04

On Gilenya ( fampyra or lemtrada)

HI it's me again seeing my neourologist on Friday im going to ask him to change my treatment. I'm on Gilenya now for nearly a year. I've just heard about these 2 drugs this week. Fampyra yes it's quite expensive here in Australia but I hear it gives you energy and u can walk better. Lemtrada well I...

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@schjo

17 Jan 2015 14:42Last reply 8 Mar 2015 14:42

Tysabri&lemtrada. Turning down treatment

Hi all, Just checking this site out properly for the first time. Hoping it will help to discuss things with other msers rather than feel kind of isolated with my condition. I also have a decision to make regarding treatment which talking about with others might help. I'm on gilenya which is not ...

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@selma1

19 Feb 2022 16:36Last reply 28 Feb 2022 09:13

medication

hi hi i was diagnosed with ms (officially) last year november/december time now they want me to take a treatment for ms on 1st march and i have absolutely no idea which one to get out of the ones they’ve given an option of. - Tysabri - Ocrevus (not too keen on this one because to my knowledge it’s q...

London, United Kingdom

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@willow

30 Nov 2015 20:21Last reply 8 Dec 2015 18:17

What can I do if i'm refused Lemtrada?

Hello, I have a long waited appointment with my Neurologist this Wednesday. I had rrms for 14 years with occasional relapses. I've had 2 years with no relapses so have now moved into Secondary progressive MS. After doing my own research, and reading about other people's positive results from bein...

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@f3ng5hu1

10 Jul 2012 16:42Last reply 23 Jul 2012 13:57

Any musicians here?

Just curious as to any that still play a bit if having an ok'ish day, ms aside. Though I don't play as often as i did a few years ago, I do enjoy still playing from time to time if i'm having a good day and it can be quite therapeutic if i'm in the right mood at the time. So if you still play ...

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@Victoria5905

21 Jan 2016 15:10Last reply 27 Jan 2016 11:20

Dr Swank

Has anyone heard about Dr Swank and his impressive results? He dealt with 5,000 patients over 50 years published and was published in the Lancet. In the first year of eating the diet relapses decreased by 70%. In the following years it became less and less so that after 16 years the results were 95%...

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@chueykooh

19 Jul 2012 23:12Last reply 23 Jul 2012 07:25

If money didn't matter?

Ok, so I am wondering what drugs or treatments you would take or do if money and insurance weren't a factor? If your funds were endless what therapies or treatments would you try? Any takers on the subject?

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