#hot-and-cold - Shift.ms

18 Nov 2015 20:35Last reply 28 Nov 2015 08:21

Opinions welcome...PLEASE!!!

Hi everyone..I need your help / advice please...loooong story so please bare with me. I have been experiencing severe tingling on my left side especially worse in my leg and arm...no facial tingling and no weakness whatsover. Oh yes and a little bit on my right leg for the last year and four months....

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@Sharrona

23 Feb 2017 17:24Last reply 12 Jul 2021 08:27

Struggling in Limboland :-(

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

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@caseyjane

21 Jun 2018 16:54Last reply 27 Jun 2018 19:08

Newly diagnosed and worrying

Hi all, I’m new to this site but am excited to be here. Im 28 and was diagnosed with RRMS 2 months ago after over a year of numbness, tingling, fatigue and changes in my sense of hot and cold. Doctors suspected I may have Lyme disease so although they found spinal cord lesions in my first mri my dia...

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@samlex11

21 Apr 2017 11:59Last reply 23 Apr 2017 02:30

Advice. Help

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm suppos...

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@funnybank

30 Jun 2012 06:43Last reply 3 Jul 2012 05:29

new pain

it's been 2 months since my last relapse, which took motor skills from my right side, i didn't take steroids as i'm still breastfeeding. as the motor skills slowly returned the nerve pain i experienced went through the roof burning itching hyper sensitive to hot and cold. i thought things had platea...

2

@jman

3 Aug 2014 16:47Last reply 4 Aug 2014 09:56

Russel Square Picnic - Saturday 9th Aug

Xposted this to the London Group, but not sure if people get notified of posts, or it shows up when you log on to the speakeasy.. I would like to invite you to — Join the Outsiders Club for their August picnic, in Russell Square, Bloomsbury in the London Borough of Camden. Outsiders is a UK based ...

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@Feloreena

12 Dec 2013 12:19Last reply 11 Mar 2021 15:16

Slow recovery from Optic Neuritis?

Hi everyone, hope you are all doing well. :) I am interested to hear about people's experiences with Optic Neuritis, and in particular those who have had a slow recovery from it. My own story - I got an attack of Optic Neuritis in my left eye in June this year. It started off with some mild pain a...

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@Stumbler

28 Jul 2012 12:20Last reply 10 Apr 2021 20:13

Describing your MS Symptoms

I've seen this list before, but it may be useful. What living with MS feels like..:- When We say we can’t do something because we don’t feel well, put yourself in our shoes by using the examples of our symptoms below… Painful Heavy Legs: Apply Tightly 20 LB ankle weights and 15 LB thigh wei...

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@lorag

26 Dec 2015 12:20Last reply 1 Jan 2016 17:04

Want to have a whinge

I just want to say I am really sick and tired of not being able to walk without a crutch or my gofer or freezing when I need to step up a high side curb. I do get to the point that I don't want to go out because people feel sorry for me just want to be how I was 15years ago. OK got that out :-)

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@chris

3 Nov 2012 14:52Last reply 29 Nov 2012 23:15

When were you born

My birthday is in April and I know a few ms'ers who were also born in the early spring (mothers pregnant during winter no summer sun low vitamin D) wonder how this fits with everyone on here. Cheers Chris.

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@Dave-c

18 Jul 2014 17:53Last reply 27 Jul 2014 19:12

Summer sucks

Who else is looking forward to winter? This heat is killing me! I'm as weak as a kitten and I have no energy to do anything. I just spent half an hour cooking then I felt too crap to eat it. Not good!

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@choozysuzy

25 Jul 2012 15:00Last reply 18 Nov 2015 14:36

chocolate and ms

I am just reading a book about food intolerances and allergies.This is a new one on me ,have never seen this mentioned anywhere else. "One new theory is that chocolate plays a part in developing MS.Clearly it does not produce ms in everyone,but there may be a small number of people who are unusuall...

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@Hannah015

4 May 2014 14:30Last reply 23 May 2014 11:48

Heat and ms

I have only been diagnosed just over a month, I was told heat is bad for ms symptoms but I find cold makes me worse and a hot shower helped, anyone find this?

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@pisces95

16 Nov 2015 01:14Last reply 26 Apr 2021 14:49

Icy Hot Sensation

About a week ago, I woke up in the middle of the night with both arms fingers to shoulders completely numb. I was able to get the feeling back after flopping around like a seal for few minutes and went back to sleep. The next day, there was a band of what I can only describe as an Icy Hot sensation ...

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@Mandela

3 Dec 2012 00:24Last reply 8 Dec 2012 13:33

Dreams/Ambitions/Aspirations/Goals

I was just wondering if MS has hindered anyone from pursuing their dreams, their goals in life, their ambitions, their aspirations, or just made you rethink how you are going to get where you want to go. Or has it made you grab the bull by the horns and pursue your dreams vigorously? I have experien...

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@altmar79

2 Jan 2013 16:17Last reply 11 Jan 2013 23:04

MS causes

Unfortunately nobody knows the causes and the cure for MS. However, last summer I came to know of a doctor called Dr. Ryke Geerd Hamer and his theories about our subjective active role in MS. Part of his argument states that our brain is the motor which responds to our emotions and sends biologica...

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@Stumbler

10 Sep 2018 11:51Last reply 30 Sep 2018 16:02

UK: Ocrevus Declined by NICE for PPMS

This is hot off the press and has upset people in the medical profession, as well as UK PPMSers. There's already a campaign to contest this decision :- https://signup.mssociety.org.uk/page/30088/petition/1

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@AdeleCB

7 Aug 2016 11:40Last reply 8 Aug 2016 15:18

Pretesting for lemtrada

Hi all, Hope you are all ok this hot summer? I am awaiting for a date for lemtrada. Have already had s blood test and go back on the 19th of this month. Not sure what for. What does the prescreening/pretesting involve? I am with Addenbrookes. Thanks for all your support xxxx

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@Sonia1984

15 Dec 2015 23:49Last reply 18 Dec 2015 12:33

Freezing cold!!!!

Laying here with an electric heating pad and a hot water bottle. I always figured I could handle the cold growing up with lovely Canadian winters not so much anymore!!! Wondering if the cold intolerance is caused by the weather or these pesky brain lesions! Anyone else deal with a deep bone chill?

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@Henrietta

30 Jul 2020 08:51 EditedLast reply 1 Dec 2020 20:30

Diagnosis - the long and winding road

2001 Optic neuritis. Go blind suddenly - and fortunately temporarily - in one eye. Ophthalmologist sends me to neurologist. The neurologist tells me in a jovial tone to say that I have had optic neuropathy to insurers - if I say optic neuritis they’d put me down as having MS. MRI done. No follow up...

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