#hot-and-cold - Shift.ms

3 Nov 2022 10:10

Pain

Morning all I have been for the last 2 weeks getting a weird feeling in my left arm shoulder it feels so cold then can feel like burning and starting to feel it in my other arm and sometimes the burning in back, is this normal of ms or something else, its a combimation of numbness, bit of weakness, ...

@colemobrownees

30 Jul 2022 00:34 EditedLast reply 28 Sep 2022 04:46

Diagnosis Journey

Happy Friday! I’m new to this space. I’m currently in the process of ruling out what could be going on with me. This post will be a bit long but figured this is a safe space to get it all out. Late Jan 2021 was when I experienced some of my first symptoms. My left upper lip had some numbness. ...

9

@TheDreamer

11 Mar 2022 12:32 Edited

Plegridy

Hi people. My name is Tivanya. I've been on Plegridy for the last 3yrs and wanted to know if anybody else is taking it and what's your experience, side effects on it. I really suffer when I take it,extreme body pain,hot and cold polar opposite temperatures. But so far its kept the lesions in check...

@worldunite193gmailcom

28 Nov 2021 20:49Last reply 29 Nov 2021 11:17

Brabio severe reaction - Is it likely with Tecfidera

I was taking Brabio for just under 3 months. In that period I had 4 occasions were 3 ish hours after injecting I would get hot and cold chills and a bit of a fever that I would sit through for a couple of hours. The last time I injected I noticed that the injection was going in slower than usual an...

1

@Sharrona

23 Feb 2017 17:24Last reply 12 Jul 2021 08:27

Struggling in Limboland :-(

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

10

@caseyjane

21 Jun 2018 16:54Last reply 27 Jun 2018 19:08

Newly diagnosed and worrying

Hi all, I’m new to this site but am excited to be here. Im 28 and was diagnosed with RRMS 2 months ago after over a year of numbness, tingling, fatigue and changes in my sense of hot and cold. Doctors suspected I may have Lyme disease so although they found spinal cord lesions in my first mri my dia...

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@samlex11

21 Apr 2017 11:59Last reply 23 Apr 2017 02:30

Advice. Help

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm suppos...

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@amvw

18 Nov 2015 20:35Last reply 28 Nov 2015 08:21

Opinions welcome...PLEASE!!!

Hi everyone..I need your help / advice please...loooong story so please bare with me. I have been experiencing severe tingling on my left side especially worse in my leg and arm...no facial tingling and no weakness whatsover. Oh yes and a little bit on my right leg for the last year and four months....

17

@jman

3 Aug 2014 16:47Last reply 4 Aug 2014 09:56

Russel Square Picnic - Saturday 9th Aug

Xposted this to the London Group, but not sure if people get notified of posts, or it shows up when you log on to the speakeasy.. I would like to invite you to — Join the Outsiders Club for their August picnic, in Russell Square, Bloomsbury in the London Borough of Camden. Outsiders is a UK based ...

1

@funnybank

30 Jun 2012 06:43Last reply 3 Jul 2012 05:29

new pain

it's been 2 months since my last relapse, which took motor skills from my right side, i didn't take steroids as i'm still breastfeeding. as the motor skills slowly returned the nerve pain i experienced went through the roof burning itching hyper sensitive to hot and cold. i thought things had platea...

2

@Mebutno

24 Jan 2023 20:24Last reply 29 Jan 2023 04:31

Dont want to talk much about me

Hello Im up since 4:45 Now its 11/21pm I’ll be up 5:30 am Had two cups pf tea two cups of voffee and cola today Then i ask why my brain is shrinking 🌚 but wallah i tried to sleep since 9 pm i stayed two long boring hrs on bed doing nothing I blame no one but me not even ms

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@Karlinkj

28 Jan 2023 18:06

Chest achiness

Hello! First time on here. Last week I had horrific food poisoning and since then, my chest has been feeling a bit tight and achey, so much that I’ve been having troubles sleeping. But it also comes and goes. Is it the MS hug? It also makes me feel breathless sometimes and the cold makes it way wo...

@Karlinkj

28 Jan 2023 18:06

Chest achiness

Hello! First time on here. Last week I had horrific food poisoning and since then, my chest has been feeling a bit tight and achey, so much that I’ve been having troubles sleeping. But it also comes and goes. Is it the MS hug? It also makes me feel breathless sometimes and the cold makes it way wo...

@Nikki2127

25 Jan 2023 17:41Last reply 28 Jan 2023 15:16

Kesimpta & travel

Hi everyone, This is my first post but I find all the info on here super helpful, I was diagnosed with RRMS last year and started kesimpta in the summer. I'm in the UK and planning to travel to Belgium in a couple of months via the overnight ferry. It's badly timed really as we travel on the 13th a...

11

@Wendy_Thomas

27 Jan 2023 08:52Last reply 28 Jan 2023 06:52

Demoted at work due to my “illness”

Hi everyone I am having trouble at work I have been working there for just over 12 year and I love my job, i had a relapse in February and had time off when I went back they suggested I did a phased return which I agreed to, then lost my driving license in the summer due to the medication I am on an...

3

@Ruslan

1 Aug 2022 01:48 EditedLast reply 27 Jan 2023 17:51

My symptoms, It's getting somewhat more real

Hi, I just joined, I was happy to find this place, and thought to introduce myself and give you a short intro through my story. English is my second language, so please forgive my grammar. I recently had new symptom, but I'll start at the begining. I have been diagnosed in 2019, but I had first s...

9

@yourfriendDOUG

27 Jan 2023 12:30Last reply 27 Jan 2023 17:04

That was odd...

In the shower this morning my feet had an extreme fire sensation in the water. Almost like they were frozen and I poured hot water on them continually. But they started warm to the touch. It's just shocking that's the first time this has happened.

2

@DennisMC93

25 Jan 2023 13:13Last reply 25 Jan 2023 13:19

Staying Hydrated

I just wanted to pass along some info. It’s very important to drink water especially when you have MS. I know there are some people out there that don’t like drinking water or have a hard time drinking water. There is a product that you may have seen on social media called Cirkul. It’s basically a ...

West Bloomfield, United States

1

@Katie01

24 Jan 2023 22:10Last reply 25 Jan 2023 01:03

Tendinitis is that a flare up ?

Hi iv got RRMS I’m on ocrevus but due my next infusion 22nd feb but iv had tendinitis in my top ankle bottom of my left leg an I’m struggling to lift my foot all the way up an is sore to touch but also feels cold could this be another flare up ?? I’m not struggling to walk anymore then I already Do ...

3

@Chanelle_1

21 Apr 2022 01:58Last reply 24 Jan 2023 23:30

Sleeping issues

For the past few months ive had awful troubles trying to nod off, i have tried sleeping tablets and they work great, but has anyone tried any over the counter medication to help?

Limerick, Ireland

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