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Multiple sclerosis and heat are not a great combination. Some MSers report heat affecting their multiple sclerosis, often with exacerbated symptoms in hot and humid conditions. Others, paradoxically, have similar issues with cold weather. It just goes to show that no two MSers are the same.Share your experiences and discuss ways to manage different temperature conditions with MSers from all around the world.

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@Duggles2000

21 Sep 2023 08:07Last reply 3 Oct 2023 18:22

Hot and Cold

I'm struggling with a coping mechanism at the moment. We are just going into Autumn and already I am freezing; I feel like I am just sitting out in the snow in shorts and t-shirt. I put the heating on or wrap up but then it makes me feel really tired. I know this early on in the year its only going...

Wolverhampton, UK

@Sheilamarie26

27 May 2025 22:29Last reply 29 May 2025 06:02

How did you find out?

Hi everyone! I have RRMS and I found out that I had MS after going completely numb on my left side. Even then the Doctor was still uncertain and chose to call it Tranverse Myelitis. 5 years later, same symptoms. Only this time, I was sensitive to hot and cold. I had an MRI, Spinal tap, and evoked po...

First posted on the Shift.ms app

@Daciana

20 Feb 2025 03:04Last reply 20 Feb 2025 14:37

Vertigo

Hi! I have pretty extreme vertigo. I have done therapy for it and it helped a lot but it comes and goes. I had a test done where they blow hot and cold air into your ears. And my left side had a much weaker response. I am still waiting to get into an ENT to figure that out. Anybody else have experi...

First posted on the Shift.ms app

@louiseeeee

2 Dec 2024 11:46 EditedLast reply 2 Dec 2024 22:29

New symptom 🤔

Update it has now started to go hot and cold? Like a slight burning sensation but not painful, nurse said it sounds like a new symptom 🤔 but I start my Plegridy for the first time Monday 😊 Good afternoon everyone 😊 I don't know if what I'm experiencing is a ms hug? I woke up and the right s...

, United Kingdom

First posted on the Shift.ms app

@Louise2424

13 Jan 2024 10:35

Started Kesimpta

Yesterday I had my first dose of kesimpta I was so worried and scared for weeks about starting it as I had anxiety about the side affects and feeling like a bag of poo for days! But I will be totally honest I didn't have any side affects! No hot and cold flashes no headache or anything! I only feel ...

Peterborough, UK

@AbbieG

4 May 2023 09:56Last reply 5 May 2023 20:46

MS hug

Just wondering if anyone has experienced the MS hug? I've had it a few times in the past but last night I had the worst I've ever had. It lasted about 1 hour or so and I was vomitting and had the shakes. I felt hot and cold, and struggled to find a position to breath comfortably. If you've experien...

@chloeautumnx

28 Feb 2023 16:03Last reply 13 Mar 2023 11:29

Is this MS hug?

Hi, Looking for some advice really. I have had MS for 8 years now and medics believe (after months of decline and no remission) that I have started on the path of secondary progressive. Since last summer, I became a full time wheelchair user due to a severe relapse leaving my left leg paralysed. Si...

@colemobrownees

30 Jul 2022 00:34 EditedLast reply 11 Feb 2023 18:00

Diagnosis Journey

Happy Friday! I’m new to this space. I’m currently in the process of ruling out what could be going on with me. This post will be a bit long but figured this is a safe space to get it all out. Late Jan 2021 was when I experienced some of my first symptoms. My left upper lip had some numbness. ...

@melmel1

3 Nov 2022 10:10

Pain

Morning all I have been for the last 2 weeks getting a weird feeling in my left arm shoulder it feels so cold then can feel like burning and starting to feel it in my other arm and sometimes the burning in back, is this normal of ms or something else, its a combimation of numbness, bit of weakness, ...

@TheDreamer

11 Mar 2022 12:32 Edited

Plegridy

Hi people. My name is Tivanya. I've been on Plegridy for the last 3yrs and wanted to know if anybody else is taking it and what's your experience, side effects on it. I really suffer when I take it,extreme body pain,hot and cold polar opposite temperatures. But so far its kept the lesions in check...

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