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I'm struggling with a coping mechanism at the moment. We are just going into Autumn and already I am freezing; I feel like I am just sitting out in the snow in shorts and t-shirt. I put the heating on or wrap up but then it makes me feel really tired. I know this early on in the year its only going...

Yesterday I had my first dose of kesimpta I was so worried and scared for weeks about starting it as I had anxiety about the side affects and feeling like a bag of poo for days! But I will be totally honest I didn't have any side affects! No hot and cold flashes no headache or anything! I only feel ...

Just wondering if anyone has experienced the MS hug? I've had it a few times in the past but last night I had the worst I've ever had. It lasted about 1 hour or so and I was vomitting and had the shakes. I felt hot and cold, and struggled to find a position to breath comfortably. If you've experien...

Hi, Looking for some advice really. I have had MS for 8 years now and medics believe (after months of decline and no remission) that I have started on the path of secondary progressive. Since last summer, I became a full time wheelchair user due to a severe relapse leaving my left leg paralysed. Si...

Happy Friday! I’m new to this space. I’m currently in the process of ruling out what could be going on with me. This post will be a bit long but figured this is a safe space to get it all out. Late Jan 2021 was when I experienced some of my first symptoms. My left upper lip had some numbness. ...

Morning all I have been for the last 2 weeks getting a weird feeling in my left arm shoulder it feels so cold then can feel like burning and starting to feel it in my other arm and sometimes the burning in back, is this normal of ms or something else, its a combimation of numbness, bit of weakness, ...

Hi people. My name is Tivanya. I've been on Plegridy for the last 3yrs and wanted to know if anybody else is taking it and what's your experience, side effects on it. I really suffer when I take it,extreme body pain,hot and cold polar opposite temperatures. But so far its kept the lesions in check...

I was taking Brabio for just under 3 months. In that period I had 4 occasions were 3 ish hours after injecting I would get hot and cold chills and a bit of a fever that I would sit through for a couple of hours. The last time I injected I noticed that the injection was going in slower than usual an...

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

Hi all, I’m new to this site but am excited to be here. Im 28 and was diagnosed with RRMS 2 months ago after over a year of numbness, tingling, fatigue and changes in my sense of hot and cold. Doctors suspected I may have Lyme disease so although they found spinal cord lesions in my first mri my dia...