#hot-and-cold - Shift.ms

30 Jul 2022 00:34 EditedLast reply 31 Jul 2022 15:28

Diagnosis Journey

Happy Friday! I’m new to this space. I’m currently in the process of ruling out what could be going on with me. This post will be a bit long but figured this is a safe space to get it all out. Late Jan 2021 was when I experienced some of my first symptoms. My left upper lip had some numbness. ...

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@TheDreamer

11 Mar 2022 12:32 Edited

Plegridy

Hi people. My name is Tivanya. I've been on Plegridy for the last 3yrs and wanted to know if anybody else is taking it and what's your experience, side effects on it. I really suffer when I take it,extreme body pain,hot and cold polar opposite temperatures. But so far its kept the lesions in check...

@worldunite193gmailcom

28 Nov 2021 20:49Last reply 29 Nov 2021 11:17

Brabio severe reaction - Is it likely with Tecfidera

I was taking Brabio for just under 3 months. In that period I had 4 occasions were 3 ish hours after injecting I would get hot and cold chills and a bit of a fever that I would sit through for a couple of hours. The last time I injected I noticed that the injection was going in slower than usual an...

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@Sharrona

23 Feb 2017 17:24Last reply 12 Jul 2021 08:27

Struggling in Limboland :-(

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

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@caseyjane

21 Jun 2018 16:54Last reply 27 Jun 2018 19:08

Newly diagnosed and worrying

Hi all, I’m new to this site but am excited to be here. Im 28 and was diagnosed with RRMS 2 months ago after over a year of numbness, tingling, fatigue and changes in my sense of hot and cold. Doctors suspected I may have Lyme disease so although they found spinal cord lesions in my first mri my dia...

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@samlex11

21 Apr 2017 11:59Last reply 23 Apr 2017 02:30

Advice. Help

Hi I only got diagnosed 2 weeks ago. I got diagnosed while in hospital and they just told me I had relapse and remission and sent me on my way and told me ill be seen in outpatients the waiting time is up to 10 weeks. I'm really confused and scared I don't understand what's happening what I'm suppos...

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@amvw

18 Nov 2015 20:35Last reply 28 Nov 2015 08:21

Opinions welcome...PLEASE!!!

Hi everyone..I need your help / advice please...loooong story so please bare with me. I have been experiencing severe tingling on my left side especially worse in my leg and arm...no facial tingling and no weakness whatsover. Oh yes and a little bit on my right leg for the last year and four months....

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@jman

3 Aug 2014 16:47Last reply 4 Aug 2014 09:56

Russel Square Picnic - Saturday 9th Aug

Xposted this to the London Group, but not sure if people get notified of posts, or it shows up when you log on to the speakeasy.. I would like to invite you to — Join the Outsiders Club for their August picnic, in Russell Square, Bloomsbury in the London Borough of Camden. Outsiders is a UK based ...

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@funnybank

30 Jun 2012 06:43Last reply 3 Jul 2012 05:29

new pain

it's been 2 months since my last relapse, which took motor skills from my right side, i didn't take steroids as i'm still breastfeeding. as the motor skills slowly returned the nerve pain i experienced went through the roof burning itching hyper sensitive to hot and cold. i thought things had platea...

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@GabiB

24 Sep 2022 22:24Last reply 24 Sep 2022 23:37

Temperature issues?

I've been recently diagnosed with PPMS and it seems that in recent weeks every MS symptom l've ever had had come back with a vengeance. Besides this, I seem to have really weird temperature issues. Sometimes I'll be reallv hot and all the 'hot' side effects that come with it then other times l'll b...

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@letha

24 Sep 2022 11:12Last reply 24 Sep 2022 14:51

Short covid story

Hi all, I had my covid booster on the 9th of September and my Kesimpta injection on the 10th. I tested covid +ve on the 23rd. Now it's easy to think that having both so close together is why I ended up with covid only; the day before, my partner had tested covid +ve (17th) we made love. He wasn't f...

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@Jaspreet_Johl

23 Sep 2022 15:24Last reply 23 Sep 2022 20:17

Insecure

I can't shake the feeling that im being a burden on others. For example, I don't like going out and about with groups as I'm conscious I'm slow and I get tired. I can't really walk great uphill and downhill is a bit tricky too People say they don't mind and I'm sure they don't but I feel sad

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@Clary

22 Sep 2022 08:17Last reply 22 Sep 2022 20:34

Cold with B cell depleter?

Just had my Ocrevus treatment, and now I have caught a cold off my child. Does anyone know what affect Ocrevus will have on a common cold? Will I have it for longer, or am I likely to be more unwell 🤧? Any advice much appreciated. Thanks everyone.

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@danielalopez

22 Sep 2022 19:50

Double vision

My first symptom was double vision, starting late June this year. The ophthalmologist dismissed me, said it would go away on its own, but one month later my vision was worse so she asked for a brain MRI. So I had to wait 6 weeks from symptom onset till my 3 day course of IV methylprednisolone and pr...

@WinchesterMark

5 Sep 2022 08:51Last reply 22 Sep 2022 17:42

Covid, Flu Vaccines and DMTs

Knowing just how clued up and generally very clever lots of people are on this site can someone help me to understand - Ive been ‘invited’ to have yet ‘another’ round of covid vaccines and the annual winter flu vaccine thingy. If I’m taking an immune system modifying treatment (Mayzent in my case)...

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@Charliegirl22

22 Aug 2022 18:31 EditedLast reply 22 Sep 2022 07:51

Symptoms

Hello, I’m new around here and haven’t officially being diagnosed with MS but the neurologist Iv been seeing has suggested that it is most likely that I do have MS he put me in touch with a nurse who told me about this page 😊. At my next appointment I will ask him this question too but thought I’d...

West Yorkshire, UK

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@Chanelle_1

21 Apr 2022 01:58Last reply 20 Sep 2022 00:11

Sleeping issues

For the past few months ive had awful troubles trying to nod off, i have tried sleeping tablets and they work great, but has anyone tried any over the counter medication to help?

Limerick, Ireland

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@Vannessa

19 Sep 2022 06:31

Pregabalin Withhrawal

Is there someone who are dependent on Pregabalin? I have had the worse night ever. Taking Lyrica (300mg) for approx 10 years every day in the afternoon you would think you will not forget to drink it..... I forgot! Only after 12:00 I fell ill with cold/hot chills, cold sweat, pain, shivers, not a pl...

@Cass9999

17 Sep 2022 02:05Last reply 17 Sep 2022 08:11

Sad but true

Copied a friend.. MY NAME IS MULTIPLE SCLEROSIS Hi, my name is MS and I'm an invisible chronic illness. I am now gorilla glued to you for life. Others around you can't see me or hear me, but YOUR body feels me. I can attack you anywhere and anyhow I please. I can cause severe pain, or, if I'm in a...

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@GabiB

14 Sep 2022 19:28Last reply 15 Sep 2022 16:26

Feel absolutely horrible.

Just over a month ago, I was diagnosed with MS after about a year of struggling with stuff going numb and a variety of other symptoms. Right now, my family are still getting to grips with the fact I have MS and aren't fully sure what they need to do. I got home from school last night feeling exhaus...

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