#lemtrada - Shift.ms

@Drago

9 Sep 2022 03:16Last reply 9 Sep 2022 22:14

Alemtuzumab (Lemtrada)

Is it worth the risk, any one tried

3

@Lucy93

11 Aug 2022 17:10Last reply 24 Aug 2022 20:15

Lemtrada

Hi, I have RRMS and have had to have a 3rd round of Lemtrada, I was told it wasn’t common to have a 3rd. Has anyone else out there had 3 rounds? I’m scared I’ll need a 4th l.

Cannock, United Kingdom

2

@mcrobbie7

15 Oct 2018 15:22Last reply 16 Jul 2022 14:26

Lemtrada hair loss

I’ve had both rounds of lemtrada and just recently a family member noticed I had bald patches at the back of my head could this be a side effect from the treatment?

6

@easycleanpress

15 Apr 2018 18:25Last reply 16 Jul 2022 14:23

As I was searching for this before my first round I thought I would add it for others in my situation. I experienced hair loss such as clearing my hair brush much more often and hairs on my clothes ect for about six weeks after round 1 which worried me as it kept happening so long after the treatm...

4

@eshostoimarop

15 May 2022 15:22Last reply 13 Jul 2022 07:26

How scared should I be after Lemtrada?

Hi all! About to start Lemtrada in 5 weeks and feeling pretty optimistic. I’m still getting mixed messages from the nursing team about shielding and the recovery process. I’m 27, otherwise healthy, and hate being stuck at home. I’m keen to get out as soon as I can afterwards, but will obviously not ...

London, United Kingdom

5

@eshostoimarop

20 Jun 2022 20:46

Lemtrada Day 1

Going strong- even cooked dinner. 4 more to go now! #fuckms

@TheQuietLady

26 Apr 2022 17:27Last reply 30 Apr 2022 10:19

Lemtrada or Mavenclad?

Hi, after being advised to come off Ocrevus because of Covid concerns, the MDT has approved me for either Lemtrada or Mavenclad. How do you choose between 2 very different treatments! Obviously Mavenclad is very attractive because taking tablets is very convenient compared to going into hospital for...

Harlow, United Kingdom

4

@laurabug

9 Jul 2018 05:51Last reply 15 Apr 2022 19:07

Lemtrada

so the journey begins today- sitting here waiting for my treatment to start- feeling positive only real concern is being away from my little girl (6 months old) for so long everyday!! I am hoping this will bring the ms to a halt for a long time and maybe even improve some symptoms. i know 3 people ...

37

@eshostoimarop

15 Apr 2022 15:54Last reply 15 Apr 2022 19:04

Lemtrada- here we go!

So after a less than illuminating meeting with my neurologist on the 5th I went for a chest X ray and (eventually) blood work. My JCV still wasn’t back but I was feeling really overwhelmed and didn’t know where to turn. I reached out to the nursing team and had a phone consultation yesterday. I expl...

1

@TheQuietLady

26 Mar 2022 17:37Last reply 28 Mar 2022 15:49

Switching from Ocrevus to Lemtrada

Hi on this beautiful Saturday! I got a call from my MS nurse just over a week ago saying that my neuro Dr Gnanapavan was advising people to switch from Ocrevus to Lemtrada as there has been some fatalities from Covid! I said yes, and now I have a blood test booked. Have got used to Ocrevus, had 5 i...

Harlow, United Kingdom

11

@Anca0290

25 Feb 2022 17:33

Anyone else who had a 3rd course of Lemtrada around here?

I was curious, because I had such a good outcome after my first 2 courses I am hoping for the best with my 3rd..Had a bad bad relapse with symptoms persisting for about a year now since I was pregnant.. Got me from working 3 long days a week as a nurse to using a cane.my walking was never exceptiona...

@deano

25 Feb 2022 14:01 Edited

lemtrada Monthly Bloods finally Done

After 2 rounds of Lemtranda my 5 year monthly Bloods draws are done. I was lucky no major side effects (apart from an infection) And the nurse who drew my bloods also had MS and was on the same treatment as me.

@Suzyahaa

24 Feb 2022 14:44

Lemtrada and pregnancy.

Hello, against advice from my neurologist I got pregnant in my second son while between first and second rounds of Lemtrada. If anyone wants to ask me about this situation no worries, anybody being offered Lemtrada and want to know more please contact. #we can do it

@JasFromTas

28 May 2015 05:16Last reply 3 Feb 2022 21:42

Lemtrada - how long off work?

Hi guys! Currently on day #2 of steroids for yet another relapse, which is a poop, but as my third relapse on Gilenya has the advantage of my Neuro now being happy to look at Lemtrada for me. I am having a workup in the next few months (Haematologist, Immunologist etc, as have some other factors in ...

4

@PV04

29 Dec 2015 15:33Last reply 9 Jan 2022 16:31

Lemtrada- immune system recovery?

My understanding of Lemtrada (in very simple terms) is that it kills part of your immune system so it cannot attack your brain / spinal cord, and when that part of your immune system grows back hopefully it stops attacking. Question I have is around how long (ball park) it would takes for your immu...

15

@loretta93

30 Dec 2021 05:33

Lemtrada & Covid

I had my first round of Lemtrada 3 weeks ago, and everyone around me has Covid. Friends, housemates, colleagues. I stayed off work for the last 3 weeks but going back to a hospitality job in 2 days..... Supposedly I have a very low immune system after treatment, yet I seem to be the only non-ill per...

@emcrossan

10 Dec 2021 14:38Last reply 11 Dec 2021 13:33

Lemtrada

Hey everyone, hope you're all having a nice Friday. I just wanted to pop on here and ask if anyone has any experience with Lemtrada? It being reccommended to me by my Neurologist on the basis of how effective it is and how active my disease is. I've read up on it and the side effects, if experience...

2

@Samantha_Jackson

16 Jul 2016 06:07Last reply 28 Nov 2021 13:18

Chicken pox and lemtrada - n

Hi I'm starting lemtrada in 3 weeks. Got friends over later for a bbq and one of them has chicken pox (child not adult). My boy needs to get it at some point. Is it a really bad idea to rub him over this child 3 weeks before my treatment? I've had chickenpox as a child. Thanks Sam

6

@KateB

6 Nov 2021 22:31Last reply 11 Nov 2021 20:32

Ocrevus compared to Lemtrada compared to Cladribine

Are there any scientists out there who can explain to me why when you take Lemtrada or mavenclad you expect your immune system to grow back and behave itself after two or three treatments, but with ocrevus you have to keep taking it?

8

@Josie999

8 Oct 2021 13:38Last reply 9 Oct 2021 16:01

Lemtrada

Hi, does anyone know of MS centres in London or the South East that are using Lemtrada (alemtuzumab). I know Barts would be one but any others? Also has anyone been offered it recently for highly active or rapidly evolving MS? Many thanks

2

Topics