#lemtrada - Shift.ms

19 Feb 2015 14:28Last reply 21 Dec 2020 01:28

Petition is up for Lemtrada

Hey all My petition to get Lemtrada available to all in uk has been approved. Please please please can you sign it. I need 100,000 signatures to get this talked about in parliament. If you go on number 10 petitions website, search Lemtrada then sign it, they will send an email, you just click on it...

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@TracyD

16 Apr 2015 08:29Last reply 9 Nov 2015 14:26

TracyD's Lemtrada Updates and Blog

I started it yesterday with 33 days to go. I'm doing a lot of proactive preparation before the treatment starts so I wanted to track that and my thoughts and feelings in the lead up to it. I hope that it can be helpful, informative and provide some support for people considering Lemtrada over the ne...

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@Baobab

2 Sep 2014 07:59Last reply 19 Oct 2015 18:01

Lemtrada- apparently the best in UK?

but what is it? (as Cat would say) I noticed US-Emma (I would tag but not sure how! sorry) in a different conversation stated that Lemtrada and one other medication are offered in the Uk for early cases and it's the best available. I am in the UK and have not been offered these, I am due to start Re...

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@Susanmayer81

30 Mar 2016 20:56Last reply 21 Oct 2016 18:57

Lemtrada (awwwww)

Hi everyone, I'm Susan and I'm new here. You can read my story on my page...making long story short I've been on Gylenia soon after my diagnosis in 2013. But still, two months ago turned out that my yellow/white friend is not enough for me. So my Neuro told me to try Lemtrada...well guys, I'm puzzle...

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@lilbird

8 Sep 2015 21:08Last reply 21 Sep 2015 04:29

so... why not choose Lemtrada?

I'm really just curious to know why those of you who have opted for other treatments passed on Lemtrada? It's starting to look to me like the most logical option & there are certainly many people on this site who strongly advocate it. I guess what I'm asking is, is there something I'm missing ...

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@Robaczek1

15 Oct 2015 17:00Last reply 10 Nov 2015 20:06

Lemtrada

Any news updates about lemtrada users plz ☺

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@laurabug

9 Jul 2018 05:51Last reply 15 Apr 2022 19:07

Lemtrada

so the journey begins today- sitting here waiting for my treatment to start- feeling positive only real concern is being away from my little girl (6 months old) for so long everyday!! I am hoping this will bring the ms to a halt for a long time and maybe even improve some symptoms. i know 3 people ...

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@AdeleCB

7 Aug 2016 11:40Last reply 8 Aug 2016 15:18

Pretesting for lemtrada

Hi all, Hope you are all ok this hot summer? I am awaiting for a date for lemtrada. Have already had s blood test and go back on the 19th of this month. Not sure what for. What does the prescreening/pretesting involve? I am with Addenbrookes. Thanks for all your support xxxx

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@Joanna

29 Feb 2016 15:11Last reply 24 Jul 2017 14:20

Lemtrada Course 2 & overactive thyroid

I had my first Lemtrada infusion in December 2014 and found that in the months after my walking improved, the pins and needles in my hands and feet were significantly reduced, my fatigue levels decreased and I could once again enjoy a hot shower. An MRI carried out in August 2015 found evidence of a...

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@tigerdes

20 Jan 2015 20:51Last reply 27 Oct 2016 12:56

How Lemtrada changed my life...

I feel blessed. A strange opening sentence from an MSer but I've been very fortunate with my diagnosis and treatment. I also love this site as this was most definitely what I needed when I was first diagnosed in 2008. Unfortunately it did not exist then and my diagnosis and the following weeks were ...

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@shopaholic84

8 Dec 2015 19:41Last reply 3 Jan 2016 20:45

Lemtrada - The ONLY drug worth taking?

I'm new to the site and MS. I was recently was diagnosed and am not currently taking any dmd through my choice. I am leading a pretty healthy lifestyle and have not had a relapse since my first in January which was light sensory loss in legs. My recent mri showed a signal change since January . I f...

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@anettauk

2 Aug 2015 04:00Last reply 23 Aug 2015 15:09

lemtrada experience

I've been reading about very positive experiences with Lemtrada treatment, which is very encouraging. I'm very interested to know if anyone has had a bad experience with Lemtrada? x

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@Anawith1n

25 Mar 2015 10:02Last reply 29 Mar 2015 21:04

On Gilenya ( fampyra or lemtrada)

HI it's me again seeing my neourologist on Friday im going to ask him to change my treatment. I'm on Gilenya now for nearly a year. I've just heard about these 2 drugs this week. Fampyra yes it's quite expensive here in Australia but I hear it gives you energy and u can walk better. Lemtrada well I...

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@schjo

17 Jan 2015 14:42Last reply 8 Mar 2015 14:42

Tysabri&lemtrada. Turning down treatment

Hi all, Just checking this site out properly for the first time. Hoping it will help to discuss things with other msers rather than feel kind of isolated with my condition. I also have a decision to make regarding treatment which talking about with others might help. I'm on gilenya which is not ...

30

@Monica2015

24 Oct 2015 15:19Last reply 24 Jan 2016 03:45

Post lemtrada

Returned home yesterday after 5 day stint receiving Lemtrada. Any advice/views/comments on what to expect/do/how to handle side effects (legs much worse, breathless, racing heart etc)? Have been drinking water but not really sleeping as finishing off Breaking Bad instead. Been advised to continue ...

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@Ahmed

6 Feb 2016 10:05Last reply 9 Mar 2016 11:33

Lemtrada D Day

Hi Guys and girls, I am due to start my Lemtrada infusion on Monday (Finally!) I am gonna be treated as an outpatient and go home at the end of the day. Looking out for infections will be important For the Lemmies out there, did you do anything out of the ordinary before your infusion? Did you sha...

28

@sunshineee

19 Mar 2018 14:25Last reply 25 Mar 2018 10:53

Lemtrada and thyroid issues

Hello guys, so my MS Clinic is thinking of switching me from Rituxan to Lemtrada. The only hesitation I have is the thyroid issue. From what I’ve read here and other places it seems that people with thyroid antibodies or thyroid issues before Lemtrada are most prone to developing thyroid autoimmunit...

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@Hannah015

12 Apr 2015 08:28Last reply 20 Apr 2015 15:02

Help please - Uk Lemtrada

Hi all Hope your all ok I went to see my neurologist on Friday and Lemtrada is still not available. I want to be referred to a hospital that does provide, so I need help to know which hospitals people have had Lemtrada that are fairly early in there diagnosis (1-2 years) I remember someone on here...

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@Carly

16 Feb 2015 00:41Last reply 27 Feb 2015 23:17

Lemtrada - Tell me, tell me

Hello, So I found this website because I needed support. Meanwhile found help and this help decided to push me towards Lemtrada. I was reading a post a couple of weeks back about how Lemtrada changed that person's life, and how it helped others and how others are going to fight to get it. So Questi...

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@gp14

8 May 2018 13:09Last reply 28 May 2018 13:06

Tecfidera or Lemtrada? Your thoughts?

Hi all, I was diagnosed with RMMS November last year and have been asked to decide between Tecfidera or Lemtrada. I wondered if anyone has any experience with either DMT? I am particularly concerned about the short term and long term side effects of Lemtrada (thyroid and liver problems). Also, ke...

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