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  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
  • Plegridy
  • Rebif
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Recent activityNewest posts

@MichaelJohn1977 

Last reply

MichaelJohn1977

Life after Lemtrada

I started Lemtrada June of 2018, completed May of 2019. It wasn’t an easy treatment. Ms for me began in 1995 (17 years old). Around 29 years of interferons…betaseron and then avonex. Then I stopped dmt’s and tried just diet…..bad idea.🤦🏼‍♂️. With my ms progressing and shouldering from RRMS to ...
Niagara Falls, ON, Canada
  • Treatment
  • Lemtrada
  • Diagnosis
  • Relapsing remitting
  • MRI
  • Which DMT
  • Diet
  • Healthy living
  • Avonex
  • Primary progressive
6

@tlh22 

Last reply

tlh22

Lemtrada

Hi all. I'm thinking about asking my neurologist about doing this treatment. Has anyone done it and if so has it been successful?
First posted on the Shift.ms app
3

@kayleigh92 

Last reply

kayleigh92

Ocrevus -> Lemtrada

Hello :) I’m wondering if I can get some feedback on those who have had Lemtrada? Unfortunately Ocrevus isn’t working in the desired way and more lesions have been noted. I have been offered Lemtrada but having some anxiety surrounding it. Please can I hear your feedback? The good and the bad! Th...
  • Lemtrada
  • Treatment
  • Diagnosis
  • Ocrevus
  • Symptoms
  • Mental health
  • MRI
First posted on the Shift.ms app
11

@M-Eve 

Last reply

M-Eve

Lemtrada

Hello, i am currently having my 1st round of alemtuzumab. I’m feeling rough on day 4 but not sure how to describe it. When people say they feel like they’ve been hit by a bus, do they mean pain?? And how is the datigue? Inability to get up or feeling no energy to do things?
First posted on the Shift.ms app
7

@M-Eve 

Last reply

M-Eve

Lemtrada: how to mentally prepare

Hi everyone. I am so glad this app exists and grateful for all of you who take the time to write. I have to decide between the 4 high efficacy treatments very soon and I'm leaning towards lemtrada. I am however a bit scared of the unknown, how am I going to react to the infusions, isolating the 1 m...
London, United Kingdom
  • Treatment
  • Lemtrada
  • Family and children
  • Work and play
  • Which DMT
  • Tysabri
  • Diagnosis
  • Ocrevus
First posted on the Shift.ms app
22

@SolisYoga 

EditedLast reply

SolisYoga

Life after lemtrada

Hi Everyone, I am in a pickle, I have had two courses of lemtrada, It was rough but I recovered fairly quickly and I've been living a great life, I have MS symptoms that are transient and they can come and go for an unknown amount of time but mostly I am well. For the last 3 or so months I have b...
London, United Kingdom
  • Lemtrada
  • Symptoms
  • Treatment
  • Work and play
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Family and children
6

@Lisac22 

Last reply

Lisac22

Lemtrada round 3

Need some advice! I was diagnosed with MS in 2014 I deteriorated quite quickly after being diagnosed! I was transferred to a different hospital and offered the chance of lemtrada The first session went really well and was back to work within a week, and for about 10 months after felt good but by th...
  • Diagnosis
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Relapses
  • Steroids
  • Treatment
  • Lemtrada
  • Work and play
  • Going out
  • Travel
  • MRI
5

@Pippa_Neilson_Blaikie 

Pippa_Neilson_Blaikie

Switching from Tysabri to either Lemtrada or Cladribine

I’ve been on Tysabri for the last year and found out I was highly JC virus positive in January. I’ve been advised to switch to another high efficacy DMT in the next year. The top choices I’ve been recommended are Lemtrada and Cladribine. I’d like to know from anyone who has had to make a similar cho...
London, United Kingdom
  • Treatment
  • Which DMT
  • Lemtrada
  • Tysabri
  • Research
  • Relapsing remitting
  • Diagnosis
  • Unlicensed
  • Mavenclad
  • Ocrevus

@Sophi21 

Last reply

Sophi21

After lemtrada advice

Hello all. I’m from uk. I had lemtrada in 2017 and 2018. All has been good since then. But my last MRI showed up new activity (which was evident in my legs that ms was active again). The hospital called me on a Friday to see me asap and had booked an apt for the Monday. I however flew to Sri La...
Jaffna, Sri Lanka
  • Treatment
  • Lemtrada
  • MRI
  • Diagnosis
4

@Sophi21 

Sophi21

After lemtrada advice

Hello all. I’m from uk. I had lemtrada in 2017 and 2018. All has been good since then. But my last MRI showed up new activity (which was evident in my legs that ms was active again). The hospital called me on a Friday to see me asap and had booked an apt for the Monday. I however flew to Sri La...
Jaffna, Sri Lanka
  • Treatment
  • Lemtrada
  • MRI
  • Diagnosis
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