#accessibility - Shift.ms

23 Jan 2017 12:59Last reply 23 Jan 2017 21:58

Lack of accessibility :(

I had an appointment today with the MS team, they were going to talk about how to self injection and etc. But unfortunately my morning appointment at 9am was cancelled due to no interpreter. They had an opening at 2pm which they confirm an interpreter will turn up. But on my arrival, I found out the...

Treatment

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@DominicS

30 Mar 2019 14:39Last reply 4 Feb 2020 07:48

A small victory for the UK MSers

Afternoon all. Some may have seen that I decided to take the Railcard folks to task as their website for Disabled Railcards was opaque and led to many with MS thinking they weren't entitled to a Disabled Persons Railcard. Good News - anyone that can show they have MS - a letter from your GP is fin...

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@PeterFrancis

16 Aug 2018 12:45Last reply 19 Aug 2018 09:12

Electric Wheelchair Assessment Passed.

Had my Electric Wheelchair Assessment for Home environment and accessibility, earlier today and I passed, Hurrah!. Now it's all a waiting game, as usual.

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@SusieT

5 Feb 2018 11:54Last reply 5 Sep 2018 09:45

MS wheelchair using travellers wanted!

Hello, Love travelling? Use a wheelchair? How about spending your time travelling vicariously, getting inspired and inspiring others? My name is Susie, I have MS and I am now in a wheelchair. But I love travelling and even though it is much harder now and way more complicated, I have found loa...

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@FrankyJack

26 Jul 2018 06:53Last reply 30 Jul 2018 13:25

Cruising trip

Morning folks. Hope everyone is keeping well. My mum has always wanted to go see the Northern Lights and all being well, we hope to go early next year with the P&O cruise liner My mum is wheelchair dependent so we thought it may be a bit difficult. Has anyone had any cruising trips while in a w...

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@Slinkygem

2 Nov 2016 11:10Last reply 8 Nov 2016 12:56

Northern lights trip advice

Hi all, I really want to travel and see the northern lights next year, but I am worried about accessibility. I don't use a wheelchair or sticks, but am struggling with fatigue and muscle weakness at the moment. In my minds eye, going to see the northern lights means my worst nightmares. Snow, wal...

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@tessa

4 Mar 2016 15:34Last reply 5 Mar 2016 10:10

Style and design

I thought this was worth a new post....although I have referred to it in a recent comment. As an interior designer and newly diagnosed with ms , I have been totally underwhelmed and depressed by all the grey utilitarian stuff on offer which seems so NHS and BORING I have found a really good onlin...

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@sturiley

17 Apr 2018 07:07Last reply 5 May 2018 06:04

My blogs

As a wheelchair user, have a look at my blog 'goabilitytravel.blogspot.co.uk' and see what you think. It's a combination of photos and artwork getting around London. I'm not on a pub crawl but I need the accessibility, step free etc, disabled toilet. Most new places are ok, I don't do old and quirky...

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@jman

14 Mar 2013 12:04

Traveling resources in London

useful stuff for traveling on public transport in or to London Accessible Guides from TFL.. for those in London A number of guides are available for download or order as print, in audio or black and white format . Large Print Guides are particularly useful for workspaces or offices, for puttin...

@watsoncraig

3 Nov 2020 15:15 EditedLast reply Today at 11:51

Things not to say to us

1. I hope you get better. 2. Jesus will heal you if you just keep praying. 3. My neighbor Amy has multiple sclerosis, do you know her? 4. Yeah, but you’re not actually properly disabled, are you? 5. H-E-L-L-O! HOWWWW ARE YOUUU? 6. Were you born that way? 7. You don’t look sick to me. 8. How do you ...

Falkirk, Scotland, United Kingdom

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@smurf69

5 Dec 2018 18:50Last reply 13 Mar 2019 20:14

I’m back

Doubt anyone remembers me but I’ve posted on here since 2016. Long story short but got CIS diagnosis in January 2017 and started on Rebif until December. Taken off due to low wbc meaning I couldn’t have elective surgery. Plan then was for 6 monthly mri/appointments and close monitoring. My case has ...

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@JasFromTas

26 Jul 2014 07:13Last reply 23 Oct 2014 09:41

Wheelchair....?

Ok, big breath… so… I am thinking about getting a wheelchair. I hate the idea – I have no intention of being parked in the corner of a room under a crocheted blanked sipping luke-warm tea and eating egg sandwiches, but I am sick of not having a life. I have now been using crutches for 5 months. My...

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@gpeps

18 Dec 2017 19:42Last reply 28 Oct 2018 11:30

Shift.ms facelift

Hi all We're always trying to make the experience better for our community to help connect with others who understand. Earlier in the year, we surveyed the community to find out how we could improve Shift.ms, and the latest version of the site is the result of that feedback. Users told us that the...

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@ZoeB

9 Jan 2019 06:28Last reply 2 Mar 2019 19:26

Local meet - Sheffield

Hi everyone We have a local meet for anyone and everyone who wants to come. It is in the Showroom Cafe on 3rd Feb at 12.30 and we have the whole venue booked for ourselves. At the moment there is about 20 of us going, some people who are new to Shift, some who are new to MS and some old familiars...

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@pottypete

3 Sep 2012 13:33Last reply 6 Sep 2012 07:58

Jokes

I met a bloke in a wheelchair today, his face was battered and bruised. "What happened to your face?" I asked. "I'm a Paralympian." He replied. "Boxing?" I enquired. "No..." He said, "...Hurdles."

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@tallritchie

24 May 2019 07:35Last reply 28 May 2019 12:58

FREE bus travel!

All MS patients are entitled to a disabled bus pass that gives them free bus travel Current symptoms and benefits are not considered, you just need to send a letter from your consultant that confirms your diagnosis and 2 passport pics. This do not apply to Scotland and all you need to do is cont...

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@Stumbler

31 Jan 2013 12:37Last reply 4 Jan 2018 10:19

DLA/PIP Reassessment. (for UK readers)

My MP had a letter of concern about the forthcoming reassessments. here is his reply :- http://www.timloughton.com/hottopics/circular_campaign_responses/item_2013_01_31__03_39_49.htm And, here is my further question to him on the issue:- "I read with interest your response to the constituent, ...

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@DominicS

15 Mar 2019 16:02Last reply 30 Jul 2019 16:56

Disabled Persons Railcard - update

We are getting somewhere: I spoke to the Rail Ombudsman just to ask for help about who to talk to they were *very* keen to get involved. If you are interested then read on. I have enclosed my summary for the ombudsman. It is pretty dull if you aren't thinking about a Disabled Persons Railcard. Th...

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@MarkP

9 Oct 2015 09:06Last reply 24 Oct 2015 10:11

Too stubborn for my own good about DMTs?

Hello everyone, I’ve been a member on here since 2008 after my neurologist recommended it to me but haven’t really been involved until now: I know there is not a full on correct answer to this- but I am revisiting the option of DMTs as my circumstances have changed- I’m all ears for any learned opi...

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@Tryingtostaypositive

12 Nov 2012 13:13Last reply 27 Jan 2014 16:58

Prognosis and MS severity

Hi all, Some of you may have read some of my (often incredibly long!) posts before, based around natural history studies. I am always curious to know (a) how my MS is compared to others and (b) what is likely to happen to me in the future! As you will know, MS is one of the most varied conditions...

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