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Receiving a multiple sclerosis diagnosis can affect the whole family. Many people in the community share their experiences and the ways that MS can affect their children, parents or siblings. Find out how other people have dealt with their issues below.There's more information on how MS can affect family life in our Women with MS series.

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@katanalexandra

13 Sep 2024 04:32 EditedLast reply 4 Apr 2025 01:54

Motivation

Is anyone else having a really hard time with trying to do better health wise. After my diagnosis of RRMS I got so depressed. It seems like I cannot find even an ounce of motivation to get me to eat better or exercise. I just don’t even understand. With everything else I have to deal with, kids, inj...

First posted on the Shift.ms app

@NiceCupOfTea

22 May 2023 17:39Last reply 26 Mar 2025 14:51

Who is your support network?

People often mention how important their support networks are. My partner is supportive but doesn't have anyone to add to the support. I have friends but only a couple of them live nearby, and they all have their own lives to deal with but they do help when they can. I have multiple conditions on to...

@Starmiss

4 May 2024 11:25Last reply 25 Feb 2025 13:15

Sexy time

I’m a lil upset as I just wrote a funny, meaningful post but there was an error :( I personally think it was the language I used. Anywho take 2 So I’m 37 female whose V has died. My OT says it’s my battery level and fatigue that’s causing me to feel this way. I want my sexy time back, life is grey...

Leicester, UK

@Liwia

26 Aug 2024 11:01Last reply 13 Feb 2025 18:51

How reliable is google with MS progression and symptoms ?

Hello. I have a partner with MS and we are both in our 20s planning a future together . He’s got RRMS for 9 years now and he’s got rare relapses with fatigue and balance being the main issues, only brain lesions. I was using Google to understand how our future would look with his MS journey. I was ...

First posted on the Shift.ms app

@oldmanjenks

12 Dec 2022 10:37Last reply 31 Jan 2025 09:19

HSCT

My birthday wish has come true, I should be having HSCT this year!! although it is over the Christmas period, I am still so grateful to be having it. LETS GOOOO

Sutton, United Kingdom

@bLeThEr89

13 Apr 2020 21:17Last reply 15 Jan 2025 18:37

Young-ish relationships?

I have been in a relationship with my partner for 9 years, we were together for about 1.5 years when the MS hit bad, he stuck through it, not without upset, but here we are 9 years later, when we get into arguments it always reverts back to “I stuck with you through your illness” which I take on bo...

@Ribbons

22 Jul 2013 11:56Last reply 13 Jan 2025 05:07

Rasing Money for MS

I don't know if it's cool to post on here but I'll do it anyway. My girlfriend feeling somewhat helpless about my ms has decided to jump out of an aeroplane with both a parachute and another man (hopefully a skydiving instructor) attached to her. She's doing it for the MS Society so I sincerely hop...

@Vixen

16 Oct 2018 16:55Last reply 13 Jan 2025 05:07

Us MSers, parliament and Ocrevus.

Hello friends, what a day I’ve had. My brother-in-law got me and him an appointment with an MP in Westminster today. It was about the decision by NICE to turn down Ocrevus for PPMS folk, like my sister. It was great to have the chance to talk about MS with someone who knew little about it, about our...

@Pires2005

14 Mar 2022 08:38Last reply 13 Jan 2025 05:06

Legalisation

I didn’t think MS could still humiliate me. I feel bad about how I’m effecting those around me and how I am going to be a greater burden on my family. I lost it and tore into my wife. I was in such a haze that I can’t remember what I said. I acutely remember the feeling of being mortified. Of c...

@jbacon28

27 Jul 2023 02:59Last reply 5 Jan 2025 04:26

lonely

I am in a small village in Wisconsin and there aren't that many people to befriend. I just lost a person that I was very close to and considered her and her family as my family. Unfortunately, she became a person I didn't want to be around due to her toxic and negative attitude. I tried talking to h...

Sussex, United States

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