My birthday wish has come true, I should be having HSCT this year!! although it is over the Christmas period, I am still so grateful to be having it. LETS GOOOO
I have been in a relationship with my partner for 9 years, we were together for about 1.5 years when the MS hit bad, he stuck through it, not without upset, but here we are 9 years later, when we get into arguments it always reverts back to “I stuck with you through your illness” which I take on bo...
I don't know if it's cool to post on here but I'll do it anyway.
My girlfriend feeling somewhat helpless about my ms has decided to jump out of an aeroplane with both a parachute and another man (hopefully a skydiving instructor) attached to her. She's doing it for the MS Society so I sincerely hop...
Hello friends, what a day I’ve had. My brother-in-law got me and him an appointment with an MP in Westminster today. It was about the decision by NICE to turn down Ocrevus for PPMS folk, like my sister. It was great to have the chance to talk about MS with someone who knew little about it, about our...
I didn’t think MS could still humiliate me. I feel bad about how I’m effecting those around me and how I am going to be a greater burden on my family.
I lost it and tore into my wife. I was in such a haze that I can’t remember what I said. I acutely remember the feeling of being mortified. Of c...
I am in a small village in Wisconsin and there aren't that many people to befriend. I just lost a person that I was very close to and considered her and her family as my family. Unfortunately, she became a person I didn't want to be around due to her toxic and negative attitude. I tried talking to h...
How do those who are single, get round the hurdle of dating, as soon as I tell a woman who I get chatting to that I've got ms, they just disappear, it can be so upsetting.
We all seem to be struggling a bit at the moment. Can you all give me one positive thing
It could be anything just one glimmer of light?
Mine is the local bakery had two bakewell croissants left this morning one for me and my daughter! Small victories every day.
I've had trigeminal neuralgia since 2015 when I was diagnosed. It's become a bit more prominent and a problem in my life since my MS diagnosis.
I was previously on tegretol (carbamazapine) for a period of time, unfortunately that stopped working even when increasing.
I was then given the option of...
I had my first child in February this year, and unfortunately within the first 3 months, we call danger zone for MS patients after pregnancy, I ended up relapsing. Hasn't been an easy ride for me as of late, although I'm very much on cloud 9 with my little family and the new role as mum
I had a rec...