#family-and-children

last Saturday at 01:17Last reply Today at 00:56

Newbie here ❤️

Hi everyone, new here. DX IN 2013. I struggle the most between Oct-may. The summer months are amazing for me. I hate the cold. And have at least 6 relapses during the winter. Thank god my 3 kids are all over 17 now. I have a hard time getting out of bed before 10:30 am. I have so many issues to ma...

North Vancouver, Canada

4

@Darrenjs28

Yesterday at 19:19

Life with MS

Well I’ve had PPMS for ten years now. Didn’t think much of it. Then got into a horrible truck and trailer accident. Thought my wife was dead caused me to go down hill fast. To the point I had to go on disability. On Ocrevus treatments has kept my MS stable. Didn’t make as much money so the wife left...

@Lulabella

last Friday at 21:51Last reply last Monday at 15:39

Support and understanding

I think my partner has said the most hurtful thing he could ever say he said "his hard earned money" as if I don't struggle every day with my progression and work for my disability money just by moving and keeping independent. I have a degree in Biomedical Science - since my diagnosis is still relat...

15

@Kanga

last Friday at 07:00Last reply last Monday at 08:06

Is this normal-Tysabri

Hey folks I started on Tysabri infusions. At the beginning of June. Literally, within 2 days I was like a new person. My cog fog pretty much vanished, my cognitive processing was sharp and my fatigue was gone! I completed things that I pretty much gave up any hope of doing. I was mindful though tha...

7

@ScarletDamsel

last Friday at 04:17Last reply last Sunday at 20:54

Now What?!

I'm still going through all the diagnosis, so I don't know which form of MS I have just yet. I have had quite a whirlwind of 2 weeks, I went to the Dr's complaining of numbness and tingling in my right leg, completely expecting him to say I've over done it mowing the lawn and to take some painkille...

London, United Kingdom

16

@Denique5

last Saturday at 15:44Last reply last Sunday at 17:43

Cortisone sucks

I was struck down a week ago with a lung infection. Boy it sucks! I can barely breathe and to make matters worse my GP gave me cortisone, like it's the miracle cure for everything under the goddamn sun. I have the shakes, the sour taste in my mouth, the acne on my neck, everything... I battle with s...

2

@pixxelated

15 Apr 2022 11:56Last reply last Saturday at 16:55

Footdrop?

So recently I've fallen over a LOT. Ironically the one time I don't think it was related to me being a klutz/having footdrop is in February when I slipped in some mud and fractured my wrist. However, friends/family etc are determined to put everything down to my MS. My question is, I don't have any...

Ireland

7

@MaryMG

last Friday at 17:00Last reply last Saturday at 10:05

When people ask "How are you"?

I ping pong between telling the truth or just saying "I'm fine, thanks"! I've found that colleagues and friends who are mostly health care workers like myself just can't help themselves! They invalidate how I'm actually feeling every single time! They'll say "have you considered stress, that you're ...

11

@flan30

4 Dec 2016 19:38Last reply last Saturday at 09:20

Pregnant on gilenya

Hi I am wondering could some one help me. I'm freaking out here. My period was late recently and I took a pregnancy test (actually took4) and it was positive. I was shocked (still am) cos my husband and I were not planning on having kids any time soon. I came off the pills a few months ago as I was ...

5

@MSmummy

last Thursday at 17:35Last reply last Friday at 09:47

Insurance cover

Hello everyone, I don’t know if this is relevant to this page but I desperately need some help or advice. I was diagnosed with RRMS in January this year which through me completely. As you all know it turns your life upside down! Luckily my partner and I had critical illness insurance to help us o...

6

@Teacherwithms

19 Jun 2022 11:37 EditedLast reply 20 Jun 2022 21:10

Tattoos and MS

Hello everyone, Has anyone had a large tattoo or sleeve on arm since being diagnosed? I'm on Tecfidera and my partner is worried about it bleeding too much or going bad due to my MS. It's worried me now :(

4

@BULLMAN

20 Jun 2022 17:44 Edited

Today’s post

A pensioner drove his brand new BMW to 100 mph, looking in his rear view mirror, he saw a police car behind him. He floored it to 140 , then 150, ... then 155, ... Suddenly he thought, "I'm too old for this nonsense !" So he pulled over to the side of the road and waited for the police car to ca...

@Jane2364

17 Jun 2022 12:30Last reply 19 Jun 2022 10:02

Clear the dead wood..

Hello. I'm really sorry, this is a long post, and have tried my best to cut it down. Before MS: I am a survivor of an unhappy childhood and mentally and physically abusive marriage of nearly 20 years. I remarried 6 years ago and felt so positive about things. Then wham! 5 years ago, I was diagn...

4

@lisamarieromy

16 Jun 2022 20:29 EditedLast reply 18 Jun 2022 12:57

:(

Hi So my fiancé and I have been living together for around 5 years. We’ve had such good and joyful times in the past but the last 2 years have just been.. not great. First I sank into depression and anxiety two years ago and once that cleared and I was looking forward to having fun again and not bei...

6

@hi-im-steve

15 Jun 2022 08:25Last reply 15 Jun 2022 17:02

Charring cross neurology

Absolutely shocking charring cross hospital - had a neurology appointment face to face for the first time in 2 1/2 years. M4 was buggered, was going to be late and chrisi was following behind so she can work after. called hospital after leaving the house at 7am to say ill be late but we are nearly t...

2

@BULLMAN

15 Jun 2022 10:20

Today’s post

When I have a headache I take 2 aspirin and keep away from children as the bottle suggests.

@Goran

28 Jan 2022 15:52Last reply 15 Jun 2022 09:19

Lyrica

I see many posts about Lyrica being dangerous and that several members had a very bad experience with it. I am total opposite in that matter. Without 300g Lyrica, i would be in very, very dark places (tried it, as my then-partner insisted while she was still around) Thing is, my bladder works bet...

Luxembourg, Luxembourg

3

@Ematt0426

14 Jun 2022 11:43Last reply 15 Jun 2022 07:35

Real vs psychosomatic symptoms?

Hello all! Has anyone experienced a worsening of a certain symptom or the creation of a symptom because you’ve fixated on it? I feel that’s happening with the spasms in my torso, but I can’t always tell when and why they happen. Also anyone thinking that MS makes them feel crazy? Sometimes meds wo...

4

@Lframe

9 Jun 2022 20:46 EditedLast reply 11 Jun 2022 08:55

Pain and swelling

Hi my mum has ms and in the last 3-4 weeks is really struggling to walk. She has swelling on her hip and knee. When I fee these areas the feel really hard compared to her other leg. Does anyone have any idea what is going on? I appreciate any feedback

2

@RebeccaR07

10 Jun 2022 07:23Last reply 10 Jun 2022 16:22

Ms nurses 🤦🏻‍♀️😐

Rant… So called my nurse took them 8 days to get back to me regarding my issue of lower back pain and falling over due to lose of power in my legs. Also I now have really week legs and that I keep stumbling. Then for them to tell me I have to go to the GP to rule out if it is a none MS related prob...

5

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