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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Receiving a multiple sclerosis diagnosis can affect the whole family. Many people in the community share their experiences and the ways that MS can affect their children, parents or siblings. Find out how other people have dealt with their issues below.There's more information on how MS can affect family life in our Women with MS series.

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Sort 4066 results by
Recent activityNewest posts

@Joycesimmons74 

20 Mar 2022 09:45 EditedLast reply 7 Jul 2025 12:12

Joycesimmons74

New on this platform and hoping to meet a buddy that shares the pain

I live alone in Cleveland Ohio with my dog, Never married and no kids, I was diagnosed in 2018 and it’s been really sad being alone with no one to comfort me or share my pain with, I often wonder if it’s best I’m alone so no one experiences how fatigued I get or how much pain I’m in when the pain co...
  • Pain
  • Symptoms
  • Newly diagnosed
  • Work and play
  • Diagnosis
  • Family and children
  • Meet ups
  • Relationships
8

@ettelrahs 

5 Jul 2024 14:19Last reply 3 Jul 2025 20:18

ettelrahs

Trigeminal neuralgia nerve block clinics stopped?!

I've had trigeminal neuralgia since 2015 when I was diagnosed. It's become a bit more prominent and a problem in my life since my MS diagnosis. I was previously on tegretol (carbamazapine) for a period of time, unfortunately that stopped working even when increasing. I was then given the option of...
Liverpool, United Kingdom
  • Diagnosis
  • Pain
  • Symptoms
  • Disclosure
  • Newly diagnosed
  • Relapses
  • Healthy living
  • Family and children
  • Exercise
  • Work and play
11

@bLeThEr89 

13 Apr 2020 21:17Last reply 23 Jun 2025 23:11

bLeThEr89

Young-ish relationships?

I have been in a relationship with my partner for 9 years, we were together for about 1.5 years when the MS hit bad, he stuck through it, not without upset, but here we are 9 years later, when we get into arguments it always reverts back to “I stuck with you through your illness” which I take on bo...
  • Work and play
  • Family and children
  • Relationships
14

@Sim1211 

3 Aug 2020 08:08Last reply 20 Jun 2025 05:43

Sim1211

How To Cope?

I have had MS for years -diagnosed 1999. My husband has Parkinsons Disease. It’s so hard to cope - I try to be positive - he is always negative! Any advice?
  • Newly diagnosed
  • Work and play
  • Relationships
  • Diagnosis
  • Positives of MS
  • Family and children
  • Symptoms
8

@ItsMewithMS 

3 Oct 2019 19:50Last reply 19 Jun 2025 18:50

ItsMewithMS

Genetics and MS...finally

After years of seeing reports of no genetic markers found or genetic ties it sounds like this is being looked into. I can't think of any of my relatives with MS but in this group there are constant references to a grandpa that had it or cousins, etc. For a disease that is relatively rare it seem lik...
  • Research
  • Work and play
  • Family and children
  • Cause
8

@FeFe1977 

18 Sep 2019 17:20Last reply 19 Jun 2025 16:13

FeFe1977

Coming to grips

I was diagnosed with Ms in May of this year. I had three mini seizures that month. Just one month after my hysterectomy. I confused them for strokes. That run hard on my mom's side of the family amongst the women. By the second seizure I promised my sister next time I'll go straight to the hospital....
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Healthy living
  • Exercise
  • Symptoms
  • Blurred vision
  • Dizziness
  • Work and play
  • Accessibility
  • Family and children
  • MRI
2

@calNFFC 

19 Aug 2018 22:41Last reply 19 Jun 2025 15:36

calNFFC

Very true words

When someone asks me about MS, if they know anything, it's usually that it affects a person's ability to walk. If only it was that simple....We (MSers) have a little of almost every disease to deal with. Think about it - the brain controls everything the body does. MS causes brain damage and causes ...
  • Symptoms
  • Pain
  • Spasticity
  • Mental health
  • Work and play
  • Fatigue
  • Bladder and bowel
  • Exercise
  • Family and children
  • Brain fog
35

@doubleo7HUD 

29 Jul 2018 10:58Last reply 19 Jun 2025 06:15

doubleo7HUD

Sun, Sea, Sand and a giant s***y mess

Ey up MSdebators This ones not for the faint hearted if your easyly offended or have a weak stomach please leave now 😂 This story started as a date in the diary but a month ago, Saturday 28th of July, what a lovely treat for the family, a wonderful day out at the seaside. I’m quite certain it wi...
  • Symptoms
  • Work and play
  • Relationships
  • Family and children
  • Healthy living
  • Exercise
  • Going out
  • Bladder and bowel
  • Blurred vision
  • Balance
39

@Liwia 

26 Aug 2024 11:01Last reply 10 Jun 2025 21:03

Liwia

How reliable is google with MS progression and symptoms ?

Hello. I have a partner with MS and we are both in our 20s planning a future together . He’s got RRMS for 9 years now and he’s got rare relapses with fatigue and balance being the main issues, only brain lesions. I was using Google to understand how our future would look with his MS journey. I was ...
  • Symptoms
  • Relapsing remitting
  • Balance
  • Diagnosis
  • Work and play
  • Fatigue
  • Family and children
  • Relationships
  • MRI
  • Relapses
First posted on the Shift.ms app
16

@mtprender 

19 Aug 2024 17:24Last reply 10 Jun 2025 20:56

mtprender

Symptoms?

I’m getting ready for a slew of tests. I know I have ddd in my lower back. I have so many symptoms that I now know are possible Ms. But, they could be also ddd. However, if I collectively think about all of the things I have happening currently and all the things I’ve had in the past… it’s hard to c...
  • Symptoms
  • Blurred vision
  • Dizziness
  • Diagnosis
  • MRI
  • Relapses
  • Numbness
  • Pain
  • Family and children
  • Travel
First posted on the Shift.ms app
4
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