#family-and-children

26 Nov 2022 13:52Last reply 26 Nov 2022 21:17

Hospitalized; struggling; train wreck

Randomly last month I started experiencing some wild neurological issues, really out of the blue. Skin/nerve pain, Abdomen and back skin sensitive to touch, Arm/hand pain /burning sensation, Tremors , Feet and lip “numbness”, Weird feeling in head like nerves firing /electrical shocks, Blurry vision...

Columbus, United States

3

@Gabriellab

23 Nov 2022 12:49Last reply 26 Nov 2022 21:05

I have finally had my diagnosis only took 11yrs !!!

Iso I have the strangest of feeling I have finally been diagnosed with relapsing and remitting MS which isn't obviously what I wanted to be told BUT I'm glad to finally have a tangible diagnosis and not to be looked at like I'm mad. F8nding it difficult as I have a very unsupportive partner who i...

8

@Amelia808

26 Nov 2022 01:35Last reply 26 Nov 2022 08:04

I’m so scared!

Hello all, I am new here and newly diagnosed. I am terrified. I don’t know anything. I am so scared, scared for my children and husband. I don’t know what to do…

4

@Katie_art

25 Nov 2022 22:01

Just a drug related question!

For 3yrs I've had bad back probs after a fall on ice my gp blames MS and says my nurse should send me for a scan, my nurse and neurologist say my gp should send me for a scan as i had a fall🤦‍♀️. Finally changed my nurse who's wonderful and she has referred me for a scan and demanded my gp helps me...

@ScarletDamsel

21 Oct 2022 18:18Last reply 25 Nov 2022 20:16

Starting Ocrevus. Petrified

I'm starting Ocrevus at the end of November. I'm bricking it, I always get side effects, I had the covid Jab last week and it knocked me about, needed a day off work! I'm a single mom of 3, eldest is 20 and at Uni, then I've got 14yo and 8yo boys, the youngest is autistic. I really don't know how I'...

18

@NerdyLizzie

25 Nov 2022 16:40Last reply 25 Nov 2022 18:25

Let's add to this crappy year

Yesterday I was in the worst car accident of my life! Had the odd bump in the past but a tanker went into my driver's side door yesterday going 50mph and I spun out, hit the central reservation, kept spinning. Luckily my side airbag protected my head from the window and I've got no serious injuries...

3

@billyshift

10 Aug 2022 09:28Last reply 24 Nov 2022 21:21

A brilliant podcast about MS and relationships that you need to hear

Hey everyone 👋 Before reading on, can I ask a favour. Can you comment down below with your relationship status? (Just one word will do)👇 It’d be cool to know so we can make more podcasts focused on what you need! I recently guested on the MS Trust podcast which explored how MS affects dating, rel...

27

@HeidiHelps

24 Nov 2022 21:10

Needs

Psychologist Abraham Maslow formulated a “Hierarchy of Needs”, which illustrates what an individual requires to survive. I see this hierarchy as a roadmap and a guide that I sometimes discuss with my clients to determine which of their needs are not being met. Where are you on this hierarchy? Which ...

Kamloops, Canada

@Desiree

24 Nov 2022 19:13

Family diner🥴

My family wanted to go to a restaurant at christmas....i don't, it's too noisy and i can't enjoy my diner because I choke and cough a lot...the solution is diner at my sisters home, but there are a lot disappointed people, just because I don't want to eat in a restaurant......pfffff 😮‍💨

Heerlen, Netherlands

@JennyM

23 Nov 2022 20:34Last reply 24 Nov 2022 18:52

Should I go to work with relapse?

Hi I am currently experiencing a relapse triggered by the immunisations I had to have to go on tecfidera. I haven’t started taking it yet. I have altered sensation and numbness in my left arm and left side of neck. Just also come down with a cough given to me by my children this week so have hd a f...

5

@Jeremy1955

20 Nov 2022 00:36Last reply 24 Nov 2022 11:10

Thinking I have MS

I am 26 years old and have been to the hospital 17 times in 2 years because of my left side of my chest always hurts and my left arm always hurts and feels numb to my fingers , having numbness in my forehead everyday , memory problems and recently my left eye started to feel like it's twitching and ...

12

@TamzG

17 Nov 2022 10:35Last reply 23 Nov 2022 20:22

MS & Relationships vs Single

Hi again. Are any Warriors on here single or divorced or having relationship issues. So I got divorced this year. But seperate last year after my diagnoses. Anyway it was long time coming. And he was not there for me at all, alcoholic narssisit. My question is this do you find that ms makes you ...

Alberton, South Africa

3

@Mandig99

23 Nov 2022 19:01

As always I can’t get into the Holiday spirit

Holiday spirit it’s hard to get into it anymore, seems like the family and friends are scared of multiple sclerosis I don’t know why but just don’t have the time To include someone that has such a confusing disease to them

@JMon

22 Nov 2022 19:34Last reply 23 Nov 2022 09:28

Ocrevus thoughts?

Newly confirmed member of the MS family. Been an intense 2 months. Neuro talking Ocrevus . Thoughts & feedback is appreciated

Galway, Ireland

4

@Hblatham

22 Nov 2022 12:55Last reply 22 Nov 2022 21:45

Waiting for a Diagnosis

Hi I e been getting symptoms for the last 4 months: burning sensations in both feet, crawling sensations in left leg, pins and needles in both hands. I have been referred to a Neurologist but it could be 26 weeks before I get an appointment to see someone never mind a diagnosis. I am terrified it co...

4

@Samg276

22 Nov 2022 18:14

Treatment decision

Hello I am currently on Tysabri but having tested positive for jvc last year now is the time to switch to something new. I am between Cladribine and Ocrevus but not sure which one to settle on. My consultant leans toward Ocrevus which makes me think this is the right option. He also told me that the...

@Slackmooyer2

22 Nov 2022 01:54Last reply 22 Nov 2022 14:16

Just a post…

So I am normally a happy go lucky kind of person-well I try to be. I am 33 years old (dx at 29). I honestly had a pretty crappy upbringing with my parents not accepting me as being gay. My mother was dx with MS when I was 9 years old, so I had to grow up pretty fast. I no longer have a relationship ...

Toronto, ON, Canada

3

@chezy17

21 Nov 2022 14:43Last reply 22 Nov 2022 03:07

Good news and bad news

Went to see my neuro today, got a checkup and I'm doing well as in my MS is stable and my reflexes are good. Hopefully shouldn't need meds till 2024, Cladribine worked 🎉! Now the bad news, I've got to start thinking of my future, I've got a really good chance of being ok well into my 60s. I know th...

5

@arabia

21 Nov 2022 22:43Last reply 22 Nov 2022 00:03

Hello everyone.

I am just happy to be here. I was diagnosed back in 2012 but my doctor believed that I had it most of my life. I am only treating the MS with vitamins and supplements. I used to be on Ocrevus for a few years. My health is doing well. I only struggle with pain and fatigue but they are being treated ...

2

@melissag

14 Jul 2022 18:34 EditedLast reply 21 Nov 2022 18:43

New podcast about life with MS!

Hi everyone! My friend Alex is on a new podcast with MS blogger Ardra Shephard (@MS_trippingonair on Instagram), who I’m sure some of you already follow! The podcast is all about life with MS, as well as the perspective of someone who’s partner has MS (this episode featuring be a nice shoutout ...

20

Topics