Shift.ms
Donate
  • Forum
  • Learn about MS
  • MS symptoms
  • MS diagnosis
  • MS treatment
  • Living with MS
  • Find MSers
  • Buddy Network
  • Films
  • Blogs
  • Get Involved
  • Volunteer
  • Fundraise
  • Donate
  • About us
  • Contact us
  • House rules
  • Terms of use
  • Privacy policy
  • Cookie policy
Sign in

We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2023 Shift.ms

  • Picked for you
  • Browse topics
  • Find MSers
No description set

Topics

  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
  • Plegridy
  • Rebif
  • Tecfidera
  • Tysabri
  • Unlicensed
  • Which DMT
  • HSCT
  • Browse all
Found 436 results

@elliefaye

28 Mar 2021 12:11Last reply 29 Mar 2021 19:07

elliefaye

Hair thinning Extavia

hello everyone :) I was wondering if anyone has experienced hair thinning on interferon beta 1b (I'm currently on Extavia) From what i understand/I have read it appears to be a rare-ish side effect of this type of medication, but I am interested to see if anyone personally has had this issue too, t...
  • Plegridy
  • Treatment
  • Rebif
  • Extavia
  • Betaferon
  • Vitamins and supplements
  • Avonex
  • Healthy living
2

@diegomontes16

31 Aug 2017 08:42Last reply 31 Aug 2017 16:08

diegomontes16

Extavia

Hey everyone back again I just went to my new specialist and received some good and bad news. Bad news is that im up from 10 lesions to about 20. And good news is that my spinal cord is clear. We're gonna try a new therapy called extavia is anyone on it and how is it? I was on aubagio and basically ...
  • Diagnosis
  • Treatment
  • Extavia
  • Aubagio
  • MRI
6

@cherish

1 Oct 2015 04:54Last reply 1 Oct 2015 08:22

cherish

Extavia......

Morning all. I think I've been on shift for around 4/5 months and never came across anyone on extavia? Is it bcoz it's known as another name too? Maybe it's also known as interferon? But havnt seen anyone on 'interferon' neither. Lol. Or is it the 'betaferon'?
  • Treatment
  • Rebif
  • Work and play
  • Betaferon
  • Extavia
  • Avonex
  • Symptoms
  • Plegridy
1

@EveryCloud

5 Apr 2013 07:35Last reply 8 Apr 2013 11:03

EveryCloud

Anyone have any experience with Extavia? I'm changing over from Avonex.

Three months in with the Avonex pen and I just can't do it anymore. It usually takes me a couple of hours to make myself do it and I dread it for days leading up to it. A couple of weeks ago I hit a nerve or something and it was painful further up my thigh from where I injected. This meant that l...
  • Research
  • Symptoms
  • Pain
  • Relapses
  • Treatment
  • Avonex
  • Work and play
  • Positives of MS
7

@lukezni

18 Apr 2020 08:25Last reply 19 Apr 2020 10:30

lukezni

Isolation letter from MS services

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...
  • Diagnosis
  • Treatment
  • Avonex
  • Betaferon
  • Gilenya
  • Lemtrada
  • Rebif
  • Tecfidera
  • Unlicensed
  • Which DMT
  • Plegridy
  • Extavia
  • Aubagio
  • MRI
  • Ocrevus
  • Mavenclad
5

@Nicola_Bell

17 Apr 2019 17:02Last reply 17 Apr 2019 18:38

Nicola_Bell

Changing Meds

Hello! So I'm looking for some advise or peoples experiences on meds. I've been on Copaxone for 8 months, however they think I'm now starting to react to it as I keep having hives. They've offered me: Aubagio, Avonex, Extavia, Plegridy or Rebif. Does anyone have any experience of these? I've ...
  • Treatment
  • Avonex
  • Copaxone
  • Rebif
  • Plegridy
  • Extavia
  • Aubagio
1

@Val31

8 Jan 2019 08:43Last reply 10 Jan 2019 12:35

Val31

Choice between Interferon beta

Hi everyone! I am a newly diagnosed member with MS, Secondary Type, since the end of September 2018. I saw the doctor in December and they have approved the Interferon beta injectable medication but I believe I will need to choose from Avonex, Extavia, Plegridy, Rebif. I have the appointment with...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Secondary progressive
  • Treatment
  • Avonex
  • Rebif
  • Plegridy
  • Extavia
8

@sjjones

13 Jun 2018 06:57Last reply 13 Jun 2018 16:12

sjjones

Drug choices

I got diagnosed in Feb this year and finally got to see consultant yesterday. I now have to choose the drug route I go down. As I have relapsing/remitting I have been offered DMDs so do I go down the less aggressive like Avonex, Extavia or plegridy. Or the more aggressive and more dangerous route of...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Treatment
  • Avonex
  • Which DMT
  • Plegridy
  • Extavia
10

@billybilo

20 Jun 2017 11:03Last reply 22 Jun 2017 06:03

billybilo

overdone it?

hello friends :) I've been reading shift.ms for a while now. I'm Sylwia from Poland. I have quite agressive MS - relapses every month now :( I've already tried Extavia, Gilenya - on the second one I had 2 relapses/year. But it was too much for Polish health law and they took that away from me. Soon...
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Relapses
  • Treatment
  • Gilenya
  • Lemtrada
  • Extavia
8

@cherish

25 Sep 2015 14:04Last reply 25 Sep 2015 15:33

cherish

Tegretol.......

Heya. Fit like folks? I don't have a fear of trying new pills, don't bother me too much but..... Tegretol L.P 200mg prolonged release? Anyone on these? I have to start on 2 a day. I usually bin the patient info leaflet for fear of me thinking I've got one of the terrible side effects, even if I ha...
  • Symptoms
  • Fun drugs
  • Plegridy
  • Work and play
  • Avonex
  • Extavia
  • Betaferon
  • Rebif
  • Mental health
  • Treatment
3

@cherish

8 May 2015 07:00Last reply 8 May 2015 14:10

cherish

Goodmorning All :)

Hi everyone. I've thouroughly enjoyed reading your posts. But first and foremost I'm not on gilenya, I'm on extavia (beta-interferon 1-b) but when I punch it in on the interweb it comes back mostly as gilenya? Is there a similarity? I inject every 2nd day. I actually started on it last April but pos...
  • Treatment
  • Gilenya
  • Rebif
  • Extavia
  • Plegridy
  • Betaferon
  • Avonex
  • Work and play
  • Copaxone
  • Going out
10

@jj5sim

4 Jul 2014 03:34Last reply 4 Jul 2014 07:10

jj5sim

Do you ever regret saying something?

It is almost exactly two years since I was diagnosed. This is the 6th high dose of steroids I have had 2day being the 1st day of most recent dose I stupidly said to a friend that Absolutly nothing stops me from sleeping including 1000mg of steroids or so I thought! (6.00am still awake and my mind is...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Symptoms
  • Blurred vision
  • Mental health
  • Pain
  • Relapses
  • Steroids
  • Treatment
  • Avonex
  • Betaferon
  • Copaxone
  • Rebif
  • Which DMT
  • Work and play
  • Family and children
  • Money
  • Relationships
  • Plegridy
  • Extavia
5

@hugmachine

6 Nov 2012 22:25Last reply 9 Nov 2012 08:56

hugmachine

Stopped treatment....feel fantastic...is this normal?

Hi everyone! So i was on Extavia for a year and had to come off it in september as it was damaging my kidneys. I was really worried about stopping the medication as i'd had various continuing symptoms for the whole year i was taking it and didnt want to relapse. However after 4 weeks of being ...
  • Diagnosis
  • Disclosure
  • Symptoms
  • Balance
  • Fatigue
  • Mental health
  • Relapses
  • Treatment
  • Avonex
  • Betaferon
  • Copaxone
  • Rebif
  • Which DMT
  • Work and play
  • Relationships
  • Plegridy
  • Extavia
6

@behnaz

12 Aug 2012 08:32Last reply 12 Aug 2012 09:27

behnaz

Interferon-1b and it's side effects on liver

I'm using Extavia(interferon-1b) for about 5 months.Now it affects my liver function. My doc told me it's not that serious. However, should I go on a special diet?
  • Healthy living
  • Diet
  • Treatment
  • Avonex
  • Betaferon
  • Rebif
  • Plegridy
  • Extavia
2

@Ken1975

20 Dec 2022 17:33Last reply 20 Dec 2022 17:40

Ken1975

Silent activity (DMT advice)

After recently having my yearly MRI scan, today I saw my neurologist. I’ve had stable scan results the last 5 years but today there was a new lesion picked up. He gave me three options going forward.. 1 Tecfidera tablets 2 Brabio injection 3 Extavia injection As I’ve never taken DMTs and only been ...
  • Treatment
  • Which DMT
  • MRI
  • Tecfidera
  • Diagnosis
  • Vitamins and supplements
  • Copaxone
  • Newly diagnosed
1

@SugarFud

27 Jul 2021 02:40Last reply 28 Jul 2021 22:44

SugarFud

Which treatment?

Hi, first time poster! Ive recently been diagnosed with RRMS and my neurologist wants me to start a DMT asap. Ive been sent home with information booklets, and think I'm leaning towards Betaferon or Extavia. Does anyone use these? Any pros and cons? The only thing im worried about is how fiddly ...
Edinburgh, Scotland, United Kingdom
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Which DMT
  • Symptoms
  • Work and play
  • Relapses
6

@jessica2996

18 Jan 2016 18:59Last reply 19 Jan 2016 22:17

jessica2996

Interferon B 1-B, any experience?

Hi! I've been diagnosed with ms a few months ago and i'm starting my treatment with betaferon or extavia (which both are interferons B 1-B). Does anyone have any experience in the meds? I'd like to know your story :)
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Betaferon
  • Which DMT
4

@lucinda76

13 Mar 2014 17:40Last reply 23 Jun 2014 16:42

lucinda76

Super confused which 1 to pick?

Which DMDs should I choose to start? I have to make a decision on which DMD to start and would really loved to hear what you all would recommend. My choices are Avonex, Rebif, Extavia, Copaxone, Tysabri or Gilenya
  • Treatment
  • Avonex
  • Copaxone
  • Gilenya
  • Rebif
  • Which DMT
11

@hugmachine

27 Aug 2012 18:46Last reply 27 Aug 2012 19:28

hugmachine

Switching treatment.....

I have been having kidney problems which i am convinced are being cause by extavia. after nearly a year the doctors agree with me and want to either switch my medication or stop my treatment entirely for a few months to see if the problems continue. Has anyone switched treatments before? can you go ...
  • Treatment
  • Which DMT
3

@laurenfster

24 Jan 2023 22:30 EditedLast reply 25 Jan 2023 21:31

laurenfster

Tysabri

Hi guys... I've been on two treatments since my diagnosis (Rebif and now Tysabri) Rebif didn't work out for me so changed to Tysabri and is working wonders for me. Tysabri is given intravenously but recently I have been given the opportunity to have the treatment through injections to speed up the...
  • Rebif
  • Treatment
  • Tysabri
  • Betaferon
  • Avonex
  • Copaxone
  • Plegridy
  • Extavia
  • Work and play
  • Which DMT
1
PreviousNext page