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Hey everyone back again I just went to my new specialist and received some good and bad news. Bad news is that im up from 10 lesions to about 20. And good news is that my spinal cord is clear. We're gonna try a new therapy called extavia is anyone on it and how is it? I was on aubagio and basically ...

hello everyone :) I was wondering if anyone has experienced hair thinning on interferon beta 1b (I'm currently on Extavia) From what i understand/I have read it appears to be a rare-ish side effect of this type of medication, but I am interested to see if anyone personally has had this issue too, t...

I feel like I have been in a weird place since being diagnosed in July. This interim period has definitely had its challenges. Just hoping that commencing some treatment may help me mentally move forward! Thanks for reading 😁

Three months in with the Avonex pen and I just can't do it anymore. It usually takes me a couple of hours to make myself do it and I dread it for days leading up to it. A couple of weeks ago I hit a nerve or something and it was painful further up my thigh from where I injected. This meant that l...

Relapses in MS are attacks where your immune system wrongly attacks important nerves inside your central nervous system (CNS) that means your brain, spinal cord, and the nerves connecting your eyes to your brain. These attacks cause damage that can lead to disability. The right treatments help stop...

After recently having my yearly MRI scan, today I saw my neurologist. I’ve had stable scan results the last 5 years but today there was a new lesion picked up. He gave me three options going forward.. 1 Tecfidera tablets 2 Brabio injection 3 Extavia injection As I’ve never taken DMTs and only been ...

Hi, first time poster! Ive recently been diagnosed with RRMS and my neurologist wants me to start a DMT asap. Ive been sent home with information booklets, and think I'm leaning towards Betaferon or Extavia. Does anyone use these? Any pros and cons? The only thing im worried about is how fiddly ...

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...

Hello! So I'm looking for some advise or peoples experiences on meds. I've been on Copaxone for 8 months, however they think I'm now starting to react to it as I keep having hives. They've offered me: Aubagio, Avonex, Extavia, Plegridy or Rebif. Does anyone have any experience of these? I've ...

Hi everyone! I am a newly diagnosed member with MS, Secondary Type, since the end of September 2018. I saw the doctor in December and they have approved the Interferon beta injectable medication but I believe I will need to choose from Avonex, Extavia, Plegridy, Rebif. I have the appointment with...