#extavia - Shift.ms

28 Mar 2021 12:11Last reply 29 Mar 2021 19:07

Hair thinning Extavia

hello everyone :) I was wondering if anyone has experienced hair thinning on interferon beta 1b (I'm currently on Extavia) From what i understand/I have read it appears to be a rare-ish side effect of this type of medication, but I am interested to see if anyone personally has had this issue too, t...

2

@diegomontes16

31 Aug 2017 08:42Last reply 31 Aug 2017 16:08

Extavia

Hey everyone back again I just went to my new specialist and received some good and bad news. Bad news is that im up from 10 lesions to about 20. And good news is that my spinal cord is clear. We're gonna try a new therapy called extavia is anyone on it and how is it? I was on aubagio and basically ...

6

@cherish

1 Oct 2015 04:54Last reply 1 Oct 2015 08:22

Extavia......

Morning all. I think I've been on shift for around 4/5 months and never came across anyone on extavia? Is it bcoz it's known as another name too? Maybe it's also known as interferon? But havnt seen anyone on 'interferon' neither. Lol. Or is it the 'betaferon'?

1

@elliefaye

24 Nov 2020 23:40Last reply 25 Nov 2020 21:45

Starting Extavia tomorrow

I feel like I have been in a weird place since being diagnosed in July. This interim period has definitely had its challenges. Just hoping that commencing some treatment may help me mentally move forward! Thanks for reading 😁

5

@EveryCloud

5 Apr 2013 07:35Last reply 8 Apr 2013 11:03

Anyone have any experience with Extavia? I'm changing over from Avonex.

Three months in with the Avonex pen and I just can't do it anymore. It usually takes me a couple of hours to make myself do it and I dread it for days leading up to it. A couple of weeks ago I hit a nerve or something and it was painful further up my thigh from where I injected. This meant that l...

7

@lukezni

18 Apr 2020 08:25Last reply 19 Apr 2020 10:30

Isolation letter from MS services

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...

5

@Nicola_Bell

17 Apr 2019 17:02Last reply 17 Apr 2019 18:38

Changing Meds

Hello! So I'm looking for some advise or peoples experiences on meds. I've been on Copaxone for 8 months, however they think I'm now starting to react to it as I keep having hives. They've offered me: Aubagio, Avonex, Extavia, Plegridy or Rebif. Does anyone have any experience of these? I've ...

1

@Val31

8 Jan 2019 08:43Last reply 10 Jan 2019 12:35

Choice between Interferon beta

Hi everyone! I am a newly diagnosed member with MS, Secondary Type, since the end of September 2018. I saw the doctor in December and they have approved the Interferon beta injectable medication but I believe I will need to choose from Avonex, Extavia, Plegridy, Rebif. I have the appointment with...

8

@sjjones

13 Jun 2018 06:57Last reply 13 Jun 2018 16:12

Drug choices

I got diagnosed in Feb this year and finally got to see consultant yesterday. I now have to choose the drug route I go down. As I have relapsing/remitting I have been offered DMDs so do I go down the less aggressive like Avonex, Extavia or plegridy. Or the more aggressive and more dangerous route of...

10

@billybilo

20 Jun 2017 11:03Last reply 22 Jun 2017 06:03

overdone it?

hello friends :) I've been reading shift.ms for a while now. I'm Sylwia from Poland. I have quite agressive MS - relapses every month now :( I've already tried Extavia, Gilenya - on the second one I had 2 relapses/year. But it was too much for Polish health law and they took that away from me. Soon...

8

@cherish

25 Sep 2015 14:04Last reply 25 Sep 2015 15:33

Tegretol.......

Heya. Fit like folks? I don't have a fear of trying new pills, don't bother me too much but..... Tegretol L.P 200mg prolonged release? Anyone on these? I have to start on 2 a day. I usually bin the patient info leaflet for fear of me thinking I've got one of the terrible side effects, even if I ha...

3

@cherish

8 May 2015 07:00Last reply 8 May 2015 14:10

Goodmorning All :)

Hi everyone. I've thouroughly enjoyed reading your posts. But first and foremost I'm not on gilenya, I'm on extavia (beta-interferon 1-b) but when I punch it in on the interweb it comes back mostly as gilenya? Is there a similarity? I inject every 2nd day. I actually started on it last April but pos...

10

@jj5sim

4 Jul 2014 03:34Last reply 4 Jul 2014 07:10

Do you ever regret saying something?

It is almost exactly two years since I was diagnosed. This is the 6th high dose of steroids I have had 2day being the 1st day of most recent dose I stupidly said to a friend that Absolutly nothing stops me from sleeping including 1000mg of steroids or so I thought! (6.00am still awake and my mind is...

5

@hugmachine

6 Nov 2012 22:25Last reply 9 Nov 2012 08:56

Stopped treatment....feel fantastic...is this normal?

Hi everyone! So i was on Extavia for a year and had to come off it in september as it was damaging my kidneys. I was really worried about stopping the medication as i'd had various continuing symptoms for the whole year i was taking it and didnt want to relapse. However after 4 weeks of being ...

6

@behnaz

12 Aug 2012 08:32Last reply 12 Aug 2012 09:27

Interferon-1b and it's side effects on liver

I'm using Extavia(interferon-1b) for about 5 months.Now it affects my liver function. My doc told me it's not that serious. However, should I go on a special diet?

2

@SugarFud

27 Jul 2021 02:40Last reply 28 Jul 2021 22:44

Which treatment?

Hi, first time poster! Ive recently been diagnosed with RRMS and my neurologist wants me to start a DMT asap. Ive been sent home with information booklets, and think I'm leaning towards Betaferon or Extavia. Does anyone use these? Any pros and cons? The only thing im worried about is how fiddly ...

Edinburgh, Scotland, United Kingdom

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@jessica2996

18 Jan 2016 18:59Last reply 19 Jan 2016 22:17

Interferon B 1-B, any experience?

Hi! I've been diagnosed with ms a few months ago and i'm starting my treatment with betaferon or extavia (which both are interferons B 1-B). Does anyone have any experience in the meds? I'd like to know your story :)

4

@lucinda76

13 Mar 2014 17:40Last reply 23 Jun 2014 16:42

Super confused which 1 to pick?

Which DMDs should I choose to start? I have to make a decision on which DMD to start and would really loved to hear what you all would recommend. My choices are Avonex, Rebif, Extavia, Copaxone, Tysabri or Gilenya

11

@hugmachine

27 Aug 2012 18:46Last reply 27 Aug 2012 19:28

Switching treatment.....

I have been having kidney problems which i am convinced are being cause by extavia. after nearly a year the doctors agree with me and want to either switch my medication or stop my treatment entirely for a few months to see if the problems continue. Has anyone switched treatments before? can you go ...

3

@scgirl29340

21 Sep 2022 06:08

Hi my name is Misty

Hi my name is Misty. I was diagnosed with MS in 2005. I have taken the injections been took off and given the oral medication and no I have been put back on the injections. All of this has been with 3 different Neurologist.

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