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hello everyone :) I was wondering if anyone has experienced hair thinning on interferon beta 1b (I'm currently on Extavia) From what i understand/I have read it appears to be a rare-ish side effect of this type of medication, but I am interested to see if anyone personally has had this issue too, t...

Hey everyone back again I just went to my new specialist and received some good and bad news. Bad news is that im up from 10 lesions to about 20. And good news is that my spinal cord is clear. We're gonna try a new therapy called extavia is anyone on it and how is it? I was on aubagio and basically ...

Morning all. I think I've been on shift for around 4/5 months and never came across anyone on extavia? Is it bcoz it's known as another name too? Maybe it's also known as interferon? But havnt seen anyone on 'interferon' neither. Lol. Or is it the 'betaferon'?

Three months in with the Avonex pen and I just can't do it anymore. It usually takes me a couple of hours to make myself do it and I dread it for days leading up to it. A couple of weeks ago I hit a nerve or something and it was painful further up my thigh from where I injected. This meant that l...

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...

Hello! So I'm looking for some advise or peoples experiences on meds. I've been on Copaxone for 8 months, however they think I'm now starting to react to it as I keep having hives. They've offered me: Aubagio, Avonex, Extavia, Plegridy or Rebif. Does anyone have any experience of these? I've ...

Hi everyone! I am a newly diagnosed member with MS, Secondary Type, since the end of September 2018. I saw the doctor in December and they have approved the Interferon beta injectable medication but I believe I will need to choose from Avonex, Extavia, Plegridy, Rebif. I have the appointment with...

I got diagnosed in Feb this year and finally got to see consultant yesterday. I now have to choose the drug route I go down. As I have relapsing/remitting I have been offered DMDs so do I go down the less aggressive like Avonex, Extavia or plegridy. Or the more aggressive and more dangerous route of...

hello friends :) I've been reading shift.ms for a while now. I'm Sylwia from Poland. I have quite agressive MS - relapses every month now :( I've already tried Extavia, Gilenya - on the second one I had 2 relapses/year. But it was too much for Polish health law and they took that away from me. Soon...

Heya. Fit like folks? I don't have a fear of trying new pills, don't bother me too much but..... Tegretol L.P 200mg prolonged release? Anyone on these? I have to start on 2 a day. I usually bin the patient info leaflet for fear of me thinking I've got one of the terrible side effects, even if I ha...