This is the first time I've ever joined a group or posted a question but I don't know where to turn anymore. I was diagnosed in 1986, the doctors figure I've had it since at least 1983 (possibly earlier) and have only had to take steroids per occurrence (which was roughly every 1 1/2 - 2 years). I...
does anyone else on here use aubagio please? I started it 2 weeks ago, haven't noticed anything YET but I assume it'll be building up inside me still and side effects may start.
After self-injecting Rebif for 13+ years I am finding it difficult to break my routine. Injection nigh...
I live in Wales but was just wondering whether anyone in the UK has been offered it yet? I asked at my last appointment and originally I was told it would be available from 22nd April but now I've been told it could be a few more months.
I am in the middle of trying to swap to a different medicine, I am currently on plegridy changing due to terrible side effects.
I was advised by my ms nurse to change to ocrevus but my neurologist advised no and said the only options are Aubagio and Tecfidera.
There are a lot of side effe...
I am starting on Aubagio tomorrow and wanted to ask peoples experience? I took Avonex for 10 years, ( luckily no progression? Just hated injecting myself so am giving Aubagio a go. My main concern is the hair loss, how thin does it get, I'm 40 and proud to have thick hair, sorry if that sounds vain.
Just wondering what peoples experiences are on Aubagio, as a little scared.
Copaxone caused a massive allergic reaction and I ended up in hospital, and tecfedira made me feel so ill.
Been off meds a few years but need to get back on something.
What was your experience on aubagio?
Thank you xxx
Hi all! I recently had a appointment with a new neurologist, my last MRI showed new lesions on right side of brain, makes sense my left side had been weaker but I just thought it was because I tired. I have secondary progression but she said because I have a new lesion she recommend I start dmd medi...
hello, everyone. about a year ago I tested positive for JCV & then the connections with Gilenya came out. I stopped taking the meds & went on Dr. Jelinek's "Overcoming MS Diet". I lost 30lbs in 6 months & felt great. I have not been so great with the diet over the past several months...
I started my treatment, aubagio and i knew I was nervous at the beginning but I finally came to terms with my MS. However, the kind of thoughts I am having are negative recently, I feel like this is the fresh start I needed, but I am struggling To feel normal? I feel different because I am drained ...
started one month ago and having some stomach/digestive issues. Posted list of side effects says this should pass in two weeks. Not my experience and asking others if they’ve experienced anything similar.
I’ve got really sore red skin on the underside of my toes, there are small cracks which are even bleeding a bit. It’s making wearing shoes / walking a little trying.
Anyone else get this? Is it MS-related? Something that happens with Aubagio?
Any advice welcome 😄
What can I expect from the wash out after being on Aubagio?
Is it going to disrupt my life? Am I going to be running to the loo all day at work? Should I expect vomiting and diarrhoea?
Any advice welcome.
Hi All, well it's been a year since diagnosis and I've finally been to see a neurologist (a different one who diagnosed me... they never sent me follow ups and referred me to a retired ms nurse so got lost in the system despite my regular chasing up). They have advised that I should start Aubagio or...
I just stopped Aubagio because I was having major bowel problems. I am having worse diarrhoea now, I told my MS nurse I stopped. Am I supposed to be taking something to help flush out the Aubagio?
It’s saturday di can’t ring nurse.
I have been on aubagio for 7 months now and I have had problems in the gut which includes diarrhoea, inconcience both bowel and bladder, and reflux. Now I have spoken to MS nurses and my neurologist, they all say it isn’t Aubagio but I think it is because I never had this before I started and one of...
Is anyone taking Aubagio and does it seem to work? I just signed up for this and I have NO IDEA how to respond or anything. If anyone has the time to help me figure this out, I would be so very appreciative!! Thank you in advance;)