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I am currently taking steroid tablets over 5 days at home. Those were prescribed by GP (it wasn't easy to get prescription) for very serious relapse - I wasn't able to walk. What is concerning, that my MS nurse advised me not to take them, only wait and see, maybe it will improve by itself! And that...

I’m stressing. I’ve had RRMS for 10 years. Both MS nurses resigned recently at my hospital. My Ocrevus treatment was never scheduled, luckily I rang to find out what was happening, so I’m a month late having the infusion. Now a relapse… Does anyone know if I should even consider steroids it being ...

So, next month I am going to a good friends wedding. Like the main event, meal and everything. I haven't told many people about my diagnosis and in an attempt to get my head around wtf is going on I have been a hermit. Therefore, a very small select group have seen me walk like Mr Soft or know I ...

So I’ve had my second flare up and did the bucket full of steroids this weekend to calm the flareup. Has anybody else had an issue with feeling like other things flare up as you come off of the steroid? Example right now my lower back has been numb all day, and I haven’t had that symptom before. It ...

Hi, I have just had a relapse after 4 years which has come as a shock as I’ve been super healthy and enjoying bootcamps and climbing mountains. I now am struggling to walk so the neurologist have given me steroids. Last time I had them 4 years ago I had memory loss, confusion, low pulse, felt sick...

After being diagnosed with RRMS earlier in the year, I'm just going through my most severe relapse whilst I've been waiting for my second scan. They've put me on IV steroids and I feel terrible: slightly less dizziness, slightly more stability, but absolutely exhausted. With both treatments the IV a...

Hi Everyone! I am very new here and living through the whirlwind. 10 days ago I suddenly lost vision in one eye, was diagnosed with optic neuritis, and then landed in the hospital for 6 days where additional testing (MRI and CSF) all points towards MS diagnosis. I did 5 days steroid infusion in th...

I’m in the middle of a relapse that is quite badly affecting my hands - numbness, stiffness, and pain that is making it very hard to work or cook or do anything for myself. I’ve just finished a 5-day course of steroids. Last time I took them they started working before I’d even finished the course, ...

Hi all, I've just finished a five-day course of methylprednisolone for a relapse, it's the first time I've used steroids. They didn't make much difference - I just had a bit more energy but that was offset by not sleeping. Now I've stopped taking them I think I'm experiencing the steroid 'crash' - ...

Hi, I'm new here & still trying to figure the website out so hope I've posted this correctly... Sorry if I haven't. This morning was day 4/5 of medrone to help treat a relapse & they're making me feel really rubbish :( does anyone know if I can skip the last day's dose? I think I needed the...

Hi everyone, I have noticed the crap gap everyone talks about in the lead up to my infusions. It’s really hard to know why it happens and that’s a whole post in itself. I am wondering though, does anyone feel much better after the infusion? I am wondering if it’s the pre med steroids… love to hear e...

Hi all, my son is due his 3rd full Ocrevus infusion at the beginning of February but is currently really poorly and going through the “crap gap” - debilitating fatigue, nausea, cog fog etc. has anyone here felt the crap gap and has anyone been treated with steroids to help them until the infusion is...

Hi! I'm currently on methylprednisolone and ugh, I can never stand the metal taste. It's so awful not even being able to drink water without being disgusted! What's your method of dealing with the taste? I keep mints in my pocket and snack on lemons when I can. Anyone have their own favourites for ...

I am currently on 5 days of Methylprednisolone because of optic neuritis in my good eye and they honestly make me feel awful. One question is I have had them before in february this year and I am having similar side effects now that I had back then. One being bad taste in mouth and nothing taste no...

So I started steroids for my relapse, but it’s been two months seen I started to become poorly. And I’ve been told I have to isolate for two weeks (when I started treatment yesterday. Don’t understand why? Could be something to do COVID maybe?

My mum is new to all this and had a relapse in February was in hospital for steroids and started on a pile of meds. Starts infusion in June. She has been home from hospital for eight weeks and things have taken a turn for the worst again her pain is through the roof her walking is extremely difficul...

I have been prescribed steroids for a relapse and been told I will need to isolate for the 5 days whilst I take them. Did anyone else have to do this?

Hi all..again 😄 So...I've had my first infusion of Tysabri a week ago...I obviously do not expect to suddenly be able to run a marathon (not that I ever would of prior to MS anyway 😄) but I just had a query about Tysabri and steroids.. If you do happen to have a terrible relapse whilst on Tysabr...

So I took my last steroids yesterday after been on them 1 week anybody had steroid come down and what should be expected don’t feel like any big changes as yet am I been too eager

Hi all I’m on first relapse we think what should I expect from steroids ?? Any help gratefull