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Hi everyone, hope all is good, I saw a palliative care physician a couple of days ago and gave me some steroids for better quality of life. My neurologist said no to it due soft bone disease but you don't get it when you get older. But it's OK tripping everyday, having no energy.

i HATE them. They make me shaky. Retain water weight. Give me horrible night sweats. Hurt my belly. Just make me feel really weird. However. Im so grateful for the pull back on the flare. I don’t realize how badly I actually feel until I relent and take them. Does anything help you fe...

So I have my results back from my MRI and it has shown new lessons. The consultant has advised steroids. Has anyone had any positive outcomes from steroids following a relapse please x

Do some of you get steroids a couple times a year?

This is simply just a random rant, why do I get a nauseating metallic taste in my mouth after treatment?! 🤮😡

So I’ve had my second flare up and did the bucket full of steroids this weekend to calm the flareup. Has anybody else had an issue with feeling like other things flare up as you come off of the steroid? Example right now my lower back has been numb all day, and I haven’t had that symptom before. It ...

Hi I was given a steroid infusion last week because I lost my vision. It was not at my usual or own neurologist. My Ms nurse called yesterday and said I would need to self isolate. She also said that although i had new lesions they were are not active so I shouldn't have had them. Can anyone give a...

I am due to start Ocrevus soon (my choice) but want to reject steroids. I have type 1 insulin dependent diabetes and managed through three flare ups without steroids. Apparently my first MRI was 'impressive' and last one just had this year showed a 'sizeable' lesion. Neuro offered steroids earlier t...

Hey there folks! Have been hanging around this site for a bit now and reading lots of the threads. I am waiting for my diagnosis in the next couple of weeks but woke up today with my second bout of ON. The GP admitted it wasn't her speciality but rang my neurologist. He said that steroids might ...

Hi, After the MS episodes I have been having my MS nurse has decided to put my on a one off 5 days dosage of steroids. I have never taken steroids or medication before my MS but I had to take 5 tablets each 100 mg but when I got to the 4th tablet I was unable to keep them down. I was wondering if ...