Would you self isolate after taking dose of steroids (medrol)? I don't know what to tell my employer, how long I need to work from home. My MS nurse doesn't answer 🙁
Hi all, I've just finished a five-day course of methylprednisolone for a relapse, it's the first time I've used steroids. They didn't make much difference - I just had a bit more energy but that was offset by not sleeping.
Now I've stopped taking them I think I'm experiencing the steroid 'crash' - ...
Hi, I'm new here & still trying to figure the website out so hope I've posted this correctly... Sorry if I haven't.
This morning was day 4/5 of medrone to help treat a relapse & they're making me feel really rubbish :( does anyone know if I can skip the last day's dose? I think I needed the...
Hi everyone, I have noticed the crap gap everyone talks about in the lead up to my infusions. It’s really hard to know why it happens and that’s a whole post in itself. I am wondering though, does anyone feel much better after the infusion? I am wondering if it’s the pre med steroids… love to hear e...
Hi all, my son is due his 3rd full Ocrevus infusion at the beginning of February but is currently really poorly and going through the “crap gap” - debilitating fatigue, nausea, cog fog etc. has anyone here felt the crap gap and has anyone been treated with steroids to help them until the infusion is...
Hi! I'm currently on methylprednisolone and ugh, I can never stand the metal taste. It's so awful not even being able to drink water without being disgusted!
What's your method of dealing with the taste? I keep mints in my pocket and snack on lemons when I can. Anyone have their own favourites for ...
I am currently on 5 days of Methylprednisolone because of optic neuritis in my good eye and they honestly make me feel awful.
One question is I have had them before in february this year and I am having similar side effects now that I had back then. One being bad taste in mouth and nothing taste no...
So I started steroids for my relapse, but it’s been two months seen I started to become poorly. And I’ve been told I have to isolate for two weeks (when I started treatment yesterday. Don’t understand why? Could be something to do COVID maybe?
My mum is new to all this and had a relapse in February was in hospital for steroids and started on a pile of meds. Starts infusion in June. She has been home from hospital for eight weeks and things have taken a turn for the worst again her pain is through the roof her walking is extremely difficul...
Hi all..again 😄
So...I've had my first infusion of Tysabri a week ago...I obviously do not expect to suddenly be able to run a marathon (not that I ever would of prior to MS anyway 😄) but I just had a query about Tysabri and steroids..
If you do happen to have a terrible relapse whilst on Tysabr...
So I took my last steroids yesterday after been on them 1 week anybody had steroid come down and what should be expected don’t feel like any big changes as yet am I been too eager
Hey guys!
I was diagnosed with MS two weeks ago and admitted to the hospital. In the first 2 days they took many blood samples, head and spinal cord MRIs, EEG, the eye sensory exam (not really sure what was is called) and a lumbar puncture. Then they started the IV steroid treatment. After 5 days th...
Hi
I was given a steroid infusion last week because I lost my vision. It was not at my usual or own neurologist. My Ms nurse called yesterday and said I would need to self isolate. She also said that although i had new lesions they were are not active so I shouldn't have had them. Can anyone give a...
I’m currently relapsing whilst on Ocrelizumab.
How bad do my symptoms have to be to take the risk of having steroids now, and further reduce my immunity?
Ugh! Had burning stabbing nerve pain in my right foot sat, sun, mon, (of course on the weekend, can't get ahold of any doctors). Felt like my foot was on fire!! started steroid infusions Tuesday, Wed, Thurs, then 2 weeks of oral meds. And I still have the numbness with occasional pain. I was only di...
Hello all,
I name is Heather, and I’m very new to MS. A quick version of my story is I woke up one day in July and couldn’t walk I had numb hands numb feet no strength in my legs just a total mess ended up in the hospital for five days. So that’s where this all starts but here we are 4 1/2 months la...