#steroids - Shift.ms

22 Jun 2022 17:50Last reply last Thursday at 20:08

Steroids self isolation

Would you self isolate after taking dose of steroids (medrol)? I don't know what to tell my employer, how long I need to work from home. My MS nurse doesn't answer 🙁

1

@omega-female

23 Apr 2018 14:43Last reply 17 May 2022 08:31

Coming off steroids - neck pain??

Hi all, I've just finished a five-day course of methylprednisolone for a relapse, it's the first time I've used steroids. They didn't make much difference - I just had a bit more energy but that was offset by not sleeping. Now I've stopped taking them I think I'm experiencing the steroid 'crash' - ...

7

@LadyKay

16 Jul 2016 22:21Last reply 17 May 2022 07:40

Steroids keeping me awake

Hi, I'm new here & still trying to figure the website out so hope I've posted this correctly... Sorry if I haven't. This morning was day 4/5 of medrone to help treat a relapse & they're making me feel really rubbish :( does anyone know if I can skip the last day's dose? I think I needed the...

69

@jforster

15 Feb 2022 08:54

Feeling good after steroids (post Ocrevus infusion)

Hi everyone, I have noticed the crap gap everyone talks about in the lead up to my infusions. It’s really hard to know why it happens and that’s a whole post in itself. I am wondering though, does anyone feel much better after the infusion? I am wondering if it’s the pre med steroids… love to hear e...

Melbourne, Australia

@Nursiepoos

21 Jan 2022 10:49Last reply 22 Jan 2022 20:38

Steroids - Crap Gap - Ocrevus

Hi all, my son is due his 3rd full Ocrevus infusion at the beginning of February but is currently really poorly and going through the “crap gap” - debilitating fatigue, nausea, cog fog etc. has anyone here felt the crap gap and has anyone been treated with steroids to help them until the infusion is...

5

@yuma

28 Nov 2015 16:59Last reply 9 Jan 2022 00:14

Coping with metal taste on steroids?

Hi! I'm currently on methylprednisolone and ugh, I can never stand the metal taste. It's so awful not even being able to drink water without being disgusted! What's your method of dealing with the taste? I keep mints in my pocket and snack on lemons when I can. Anyone have their own favourites for ...

13

@ettelrahs

12 Sep 2020 17:30Last reply 3 Jul 2021 21:33

Second relapse of the year, steroids...

I am currently on 5 days of Methylprednisolone because of optic neuritis in my good eye and they honestly make me feel awful. One question is I have had them before in february this year and I am having similar side effects now that I had back then. One being bad taste in mouth and nothing taste no...

6

@RebeccaR07

27 May 2021 10:53 EditedLast reply 27 May 2021 11:42

Methylprednisolone (steroids) 500mg a day

So I started steroids for my relapse, but it’s been two months seen I started to become poorly. And I’ve been told I have to isolate for two weeks (when I started treatment yesterday. Don’t understand why? Could be something to do COVID maybe?

2

@Lframe

16 May 2021 18:45Last reply 17 May 2021 03:34

Steroids and relapses

My mum is new to all this and had a relapse in February was in hospital for steroids and started on a pile of meds. Starts infusion in June. She has been home from hospital for eight weeks and things have taken a turn for the worst again her pain is through the roof her walking is extremely difficul...

1

@HayleyJC1988

6 May 2021 15:40Last reply 7 May 2021 18:30

Steroids and isolating

I have been prescribed steroids for a relapse and been told I will need to isolate for the 5 days whilst I take them. Did anyone else have to do this?

9

@Ancy

20 Feb 2021 01:12Last reply 6 May 2021 07:57

Tysabri and Steroids

Hi all..again 😄 So...I've had my first infusion of Tysabri a week ago...I obviously do not expect to suddenly be able to run a marathon (not that I ever would of prior to MS anyway 😄) but I just had a query about Tysabri and steroids.. If you do happen to have a terrible relapse whilst on Tysabr...

12

@Adeleck

15 Mar 2021 11:40Last reply 21 Mar 2021 19:54

Steroids come down

So I took my last steroids yesterday after been on them 1 week anybody had steroid come down and what should be expected don’t feel like any big changes as yet am I been too eager

3

@Adeleck

10 Mar 2021 11:15Last reply 13 Mar 2021 08:54

Steroids experience

Hi all I’m on first relapse we think what should I expect from steroids ?? Any help gratefull

12

@Kate_The_Imp

2 Nov 2020 10:08Last reply 27 Feb 2021 16:02

First round of steroids

Hey guys! I was diagnosed with MS two weeks ago and admitted to the hospital. In the first 2 days they took many blood samples, head and spinal cord MRIs, EEG, the eye sensory exam (not really sure what was is called) and a lumbar puncture. Then they started the IV steroid treatment. After 5 days th...

2

@julze22

9 Feb 2021 08:30Last reply 12 Feb 2021 16:00

Steroids

Hi I was given a steroid infusion last week because I lost my vision. It was not at my usual or own neurologist. My Ms nurse called yesterday and said I would need to self isolate. She also said that although i had new lesions they were are not active so I shouldn't have had them. Can anyone give a...

Birmingham, United Kingdom

8

@KatFlowers

30 Nov 2020 17:36Last reply 1 Dec 2020 16:58

Steroids - ok to take them at the moment?

I’m currently relapsing whilst on Ocrelizumab. How bad do my symptoms have to be to take the risk of having steroids now, and further reduce my immunity?

4

@Bridgett_Tadel

28 Sep 2019 01:11Last reply 16 Jun 2020 21:12

Steroids not helping

Ugh! Had burning stabbing nerve pain in my right foot sat, sun, mon, (of course on the weekend, can't get ahold of any doctors). Felt like my foot was on fire!! started steroid infusions Tuesday, Wed, Thurs, then 2 weeks of oral meds. And I still have the numbness with occasional pain. I was only di...

1

@KateB

27 May 2020 08:08Last reply 29 May 2020 00:56

Tecfidera and steroids question

Hi eeryone, Does anyone know if its Ok to take prednisolone whilst taking tecfidera?

6

@StudentandMS

3 Mar 2020 17:46Last reply 4 Mar 2020 05:40

Ocrevus and Steroids

Could someone tell me what the dose of steroid is before each ocrevus infusion? I can't seem to find that information out online. Thanks!

6

@Heather_Louise

5 Dec 2019 01:07Last reply 5 Dec 2019 18:50

Steroids...Im new and confused.

Hello all, I name is Heather, and I’m very new to MS. A quick version of my story is I woke up one day in July and couldn’t walk I had numb hands numb feet no strength in my legs just a total mess ended up in the hospital for five days. So that’s where this all starts but here we are 4 1/2 months la...

7

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