#newly-diagnosed - Shift.ms

22 Jun 2022 15:04Last reply 22 Jun 2022 15:23

newly diagnosed and reaching out

hello all. I'm newly diagnosed with either relapsing-remitting or primary progressive in febrary. I have several older lesions in both my brain and spinal cord and an active lesion in my brain. it has been a total whirlwind. Ive changed my diet, reprioritized my life and have started Aubagio abo...

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@chloe_tea

13 Mar 2022 19:35Last reply 20 Jun 2022 16:16

Which DMT - Newly diagnosed

Hi ! Just looking for a bit of advice or opinions on which DMT would be best or people's experience with them, and just to have a bit of a rant I suppose. I'm 29, just been diagnosed with highly active relapsing remitting MS, likely had MS for about 6 years. I've been offered Cladribine, Ocrevus, Ke...

Hamilton, United Kingdom

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@NC_MtnGirl

12 Jun 2022 12:07 EditedLast reply 12 Jun 2022 16:32

Newly diagnosed and new to the group

Hey y'all. I'm new here so I wanted to introduce myself. Hope y'all are well or at least hanging in there (as am I). I'm glad to have found this forum. #NewlyDiagnosed #MultipleSclerosis

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@DominicS

7 Jun 2022 10:50Last reply 9 Jun 2022 15:24

Newly Diagnosed? - 5 Tips from me and Dr Boster

Hi all, I was really lucky to interview my friend Dr Aaron Boster. Aaron runs a super YouTube channel for pwMS and he convinced me to start a patient-led channel just over a year ago. We just did a video together giving 5 tips from a patient (me!) and 5 tips from an MS neurologist (Aaron). Check ...

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@marcus62

29 May 2022 00:31Last reply 2 Jun 2022 00:31

newly diagnosed

just diagnosed 3 months ago with RRMS. Had numbness in legs and feet. It subsided but never went away completely. Has anyone had an episode of numbness/tingling last months and then go away?

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@Pattielee

24 Mar 2022 20:11Last reply 30 May 2022 12:07

Hi im newly diagnosed a month ago with MS

I take vitamin D and calcium I started PMS-Baclofen 1x at bed last week This week its 2x a day but it makes me feel horrible I would like to add magnesium vitamin but not sure how high of dose any recommendations of what anyone else takes

London, Canada

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@ERLCA92

27 May 2022 18:58Last reply 28 May 2022 21:25

Newly diagnosed

👋🏻 I’m a 29 y/o female. I was diagnosed just this week and still coming to terms with things, and waiting on various other tests and being allocated a team. I had cancer in 2019-2020 and had been putting recent symptoms down to post cancer fatigue. After having strange spasms, crawling sensations,...

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@Manxgal75

13 May 2022 07:28Last reply 13 May 2022 21:47

Newly diagnosed....

Hi, I was diagnosed with RRMS last August (2021). I've had symptoms for years, but no one believed me. Time & time again I was told I must have a virus. I'm glad I now finally have a diagnosis many years later. However I'm struggling to cope with work, and my worst symptoms which are fatigue & depre...

2

@GeorgeH

12 May 2022 15:50Last reply 12 May 2022 20:14

Newly diagnosed and being sent for more scans.

Hi, I was diagnosed with rrms, they think, 2 weeks ago after 18 months of symptoms and being pushed backwards and forwards between Gp and A &E. I have had 3 MRI’s, 2 of which were in the last few months and showed lesions on spine and in brain. After seeing the Neurologist a couple of weeks ago I w...

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@DanP

14 Apr 2022 08:26 EditedLast reply 10 May 2022 06:07

Newly diagnosed and wheelchair bound. How to??

Hi 31/m/UK here. I've recently been diagnosed and one of my first attacks has left me unable to move my legs and therefore in a wheelchair. I've started tysabri and had two doses so far. I sometimes I find it hard to commit to social events due to my current condition. In all honesty I don't want...

35

@MaryMG

1 May 2022 19:54Last reply 4 May 2022 15:45

Newly diagnosed and ruminating

Hi! Recently diagnosed after a seizure. It was a total shock. Do have sensory symptoms, brain fog and fatigue which have been going on for about 2 years but I thought were menopause symptoms. On reflection, there were 2 incidents of enuresis about 5 years ago that I explained away at the time as bei...

3

@LProvan

3 May 2022 23:04

Newly diagnosed - Jelly legs!

Hi I was diagnosed RRMS in Sept 21 and still coming To terms with this. Initial symptoms were vibrations in my legs when I stubbed a toe or knocked my leg. Then more symptoms like static electricity running through my legs from the soles of my feet up to my buttocks. Scans showed I had transverse my...

@kylin

17 Jan 2022 02:34 EditedLast reply 3 May 2022 17:06

Newly diagnosed at 23 in the pandemic

Hi! I'm new to shift.ms and I was diagnosed last June (2021). I feel very alone in my journey so far, even though Seattle is supposedly like, an MS capitol of the world. I think it is mostly because of being diagnosed during the pandemic. I have recently found a small online support group, but still...

6

@NatalieNoor

28 Apr 2022 22:14 EditedLast reply 1 May 2022 01:02

Newly diagnosed - copaxone or tecfidera for treatment?

I’m so grateful to you all! I was recently diagnosed (early April) and have found this forum a great relief and source of support. I’m currently working out meds with a couple of neurologists… Just wondering who has tried copaxone and or tecfidera? I’ve had my first isolated symptoms (numbness and ...

Sydney, Australia

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@taypark

13 Apr 2022 04:12Last reply 27 Apr 2022 11:12

Newly Diagnosed

Hi everyone. I was recently diagnosed with RRMS in February. I’m in my senior year of college working part-time and a track coach. I’ve always had a busy lifestyle between sports, school, work, and family time and ever since my diagnosis I need a good hour nap almost every day it seems. I know I nee...

11

@Clr1

26 Apr 2022 20:57Last reply 27 Apr 2022 09:28

Newly diagnosed

Hi everyone, I was diagnosed with spms late 2020. Not on any treatment as apparently we can’t get it within the nhs trust catchment that I’m in but siponimod is all that can be offered with spms or so my ms nurse has told me. I’m not going to lie I have struggled, struggled with coming to terms wit...

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@Keke

24 Apr 2022 19:25Last reply 24 Apr 2022 22:35

Newly diagnosed

Hi all, I was diagnosed with relapsing remitting in December of 2021. Feeling a bit abandoned after going through so many appointments and tests last winter to checking in once or twice a year going forward. I am on Ocrevus, next infusion is in August. I am grateful for the appointments and care ...

Northfield, MN, USA

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@Farmerswife

19 Apr 2022 19:45 EditedLast reply 20 Apr 2022 10:23

Newly diagnosed

Hi guys! I am new to the MS community. It all started last year 3 months after having my second baby. It started with legs going numb, then pins and needles, fatigue , slurred speech, tightness around stomach and like a vibration throughout body when I bend my head down. I had a emergency section o...

3

@TLauder87

17 Apr 2022 17:34Last reply 19 Apr 2022 01:07

Newbie and newly diagnosed

Hi all. Brief outline of my situation. 34 year old woman. Son 12 years old. Full time finance manager. Last October my left hand went numb. Doctor thought carpal tunnel. After about 5 weeks it recovered fully so I didn't go for the nerve conduction test. February - pins and needles in feet. Fatigu...

Daventry, United Kingdom

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@WinchesterMark

29 Mar 2022 15:57Last reply 3 Apr 2022 20:20

Newly Diagnosed Clinic

I'm attending a MS newly diagnosed clinic - nurse run clinic on Thursday afternoon at Southampton Hospital. Helpfully the letter from the hospital doesn't actually say what its for or what if anything will be done beyond 'its important that I attend'. So has anyone else attended a 'newly diagnosed c...

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