#brain-health - Shift.ms

22 Jan 2016 12:01Last reply 22 Jan 2016 15:35

Brain Health - Research Project

Hi all, We are a group of researchers at Trinity College Dublin who are developing online resources on brain health for people affected by Multiple Sclerosis. Everything we develop will be made freely available to the general public. We are looking for people living with MS, as well as people who w...

6

@sarahshift

1 Jun 2017 11:33Last reply 7 Jun 2017 10:22

Brain health questions???

Hey, It's a year since the Brain Health: Time Matters report was launched. Has anyone read it? Did it answer questions you had or leave you with more? If you have any questions about brain health that you'd like to ask a specialist in this area, let us know and the MS Reporters will get on the...

1

@Sewing-chick

18 Aug 2016 08:35Last reply 18 Aug 2016 10:01

Brain health guide for people with MS

This is a guide to brain health for people with MS. I'm not sure how different it is from the guide I already posted a link to, but I thought I'd put the link on for completeness. It's here: http://multiple-sclerosis-research.blogspot.com/2016/08/brainhealth-clinicspeak-brain-health.html

Research

1

@Sewing-chick

9 Jul 2016 09:42Last reply 15 Jul 2016 15:17

Best MS drugs soon after diagnosis

Should your neurologist be offering you the most effective MS drugs soon after diagnosis, before you have any evident disability? The opinion of doctors at Barts (a hospital at the forefront of MS treatment) is that they should. Here's what the doctor said on the Barts MS Blogspot today: " I was ...

10

@ugeary

10 Jul 2017 08:30Last reply 12 Jul 2017 11:27

Trinity College Dublin Research Project

Hi all! I'm working on a research project at Trinity College Dublin to evaluate some short, animated films about multiple sclerosis that we have developed. We are looking for people living with MS and their relatives, friends and loved ones to complete short surveys on the films in order to learn fr...

4

@DominicS

21 Mar 2019 11:01Last reply 22 Mar 2019 17:46

We've only got the one brain...

I just stumbled across a neat presentation, with great graphics, from Professor Gavin Giovaninni. It is good to see comparative images of the different expected outcomes depending on how your MS is treated, when and with what. Note: I know the Slideshare App is often rubbish when viewed through a...

4

@DominicS

15 Feb 2019 13:18Last reply 25 Feb 2019 18:43

Why take the most modern DMTs?

This post from the Barts MS blog stats it with science! Having had MS for 26y I feel that I have largely missed out on the brain health benefits of modern DMTs. In an odd sort of way I envy the younger and newly diagnosed people (not the MS part, that sucks) because of the increase in options and t...

4

@DominicS

31 Aug 2019 11:53Last reply 31 Aug 2019 14:04

Time matters - why take DMTs

I have seen several people asking quite recently - entirely legitimately - about whether they should take a DMT. This is my hobby horse though I am not a Doctor. However, everyone ought to read this. They are all heavyweight neurologists. https://multiple-sclerosis-research.org/ms-brain-health/

1

@sarahshift

8 Aug 2017 11:09Last reply 8 Aug 2017 13:15

Meet other MSers in Prague

Want a chance to meet other MSers from across Europe? Sign up to join Shift.ms and other members at MS Sessions in Prague. Hopefully you'll have seen by now the first MS Sessions is happening on 25th/26th November? MS Sessions aims to bring together MSers from across Europe to meet, share experien...

1

@ugeary

6 Aug 2017 08:03

Animated Films - Research project

Hi all! I’m working on a research project at Trinity College Dublin to evaluate some short, animated films about multiple sclerosis that we have developed. We are looking for people living with MS and their relatives, friends and loved ones to complete short surveys on the films in order to learn fr...

@Sewing-chick

28 Jul 2016 09:31

Important info to show your neurologist

Those lovely MS doctors at Barts have just posted a couple of downloadable resources for PWMS, talking about how important it is to treat MS early and monitor whether the treatment is keeping MS at bay. They suggest that people with less proactive neurologists might want to take these resources in ...

@harry12

9 Mar 2016 01:26Last reply 14 Mar 2016 13:21

Muscle weakness/atrophy

Hi all ☺️ Recently had a private neuro appt and she pointed out some right leg/calf atrophy. Since she's said it, it's all I can focus on! It's very obvious once pointed out. I also hunted down a neuro physio- he got me to do some right leg agility based exercises and at one point I felt like my kn...

35

@Pam1706

24 Sep 2017 16:03Last reply 28 Sep 2017 09:25

Is there anyone here I can talk to

Is anyone here that I can talk too Feeling sad

23

@Jacobo_Santamarta_Barral

2 Jan 2019 06:04Last reply 28 Aug 2019 11:18

Ocrevus and SPMS

Hi everyone, I was with my Neuro on Monday and shd told me that, given the evolugion of my symptoms lately my RRMS may had become already an SPMS. Thus she recommended me to start taking Ocrevus and leave the treatmenr I am on at the moment (I've been taking Tysabri for the last 8 years). I think ...

23

@mser79

17 Jul 2018 15:14Last reply 28 Jul 2018 03:26

Hidden- the staircase - symptoms

https://youtu.be/tveMmRDrkEM Hi guys, I'm Cathy, an MSer and a producer of Hidden, I worked on Hidden with a focus from development to edit on the representation of MS and its symptoms. One of the ideas I had early on generated from my own feelings of being newly diagnosed in an urban envi...

20

@nicholaschh

26 Apr 2016 17:49Last reply 2 May 2016 11:20

New User - hello!

Hi, I'm Nick and have SPMS, and am now wheelchair bound, having been diagnosed 16 years ago at the age of 42. I am married with three children, the youngest of whom is now 21. So the disease struck in the middle of their childhoods, which was the toughest part of it for me and my wife. We have been ...

17

@KZuehl

13 Aug 2017 13:21Last reply 17 Aug 2017 02:13

"Suicide Headaches"

Hi I was wondering if anyone has ever had their headaches labeled as "Suicide Headaches"? My old Neuro used that with me, as my headaches are God awful.

14

@Beefree

7 Sep 2018 20:45Last reply 9 Sep 2018 07:10

Brain lesion atrophy

Hi everyone The results from a recent MRI showed no new lesions and that several existing lesions had faded. I wasn't sure how common 'fading' lesions are and how to interpret the implications. I came across this article reporting on a five and ten year study, which found that lesion atrophy is a ...

13

@lara279

7 Feb 2018 14:27Last reply 27 Feb 2018 13:45

Blood order made - my treatment decision

Hello everyone, I joined this site back in November when I was diagnosed with RRMS. I didn't know anything about MS at the time so I had a lot to learn. I had a sensory relapse in November and an MRI identified a small number of silent lesions in my brain. Since then I have been reading everything ...

12

@MiaPi

12 Sep 2018 13:44Last reply 13 Sep 2018 05:13

Are you being monitored for these?

Hi all, During the past year (the year after my diagnosis), I have been reading a lot of research papers on MS. One important thing I noticed being mentioned in many papers is that in many trials and researches they take it one step further than just counting lesions on MRI in order to routinely ...

11