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Found 58 results

@ugeary

22 Jan 2016 12:01Last reply 22 Jan 2016 15:35

ugeary

Brain Health - Research Project

Hi all, We are a group of researchers at Trinity College Dublin who are developing online resources on brain health for people affected by Multiple Sclerosis. Everything we develop will be made freely available to the general public. We are looking for people living with MS, as well as people who w...
  • Symptoms
  • Brain fog
  • Work and play
  • Work and Study
6

@sarahshift

1 Jun 2017 11:33Last reply 7 Jun 2017 10:22

sarahshift

Brain health questions???

Hey, It's a year since the Brain Health: Time Matters report was launched. Has anyone read it? Did it answer questions you had or leave you with more? If you have any questions about brain health that you'd like to ask a specialist in this area, let us know and the MS Reporters will get on the...
1

@Sewing-chick

18 Aug 2016 08:35Last reply 18 Aug 2016 10:01

Sewing-chick

Brain health guide for people with MS

This is a guide to brain health for people with MS. I'm not sure how different it is from the guide I already posted a link to, but I thought I'd put the link on for completeness. It's here: http://multiple-sclerosis-research.blogspot.com/2016/08/brainhealth-clinicspeak-brain-health.html
  • Research
1

@Sewing-chick

9 Jul 2016 09:42Last reply 15 Jul 2016 15:17

Sewing-chick

Best MS drugs soon after diagnosis

Should your neurologist be offering you the most effective MS drugs soon after diagnosis, before you have any evident disability? The opinion of doctors at Barts (a hospital at the forefront of MS treatment) is that they should. Here's what the doctor said on the Barts MS Blogspot today: " I was ...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Blurred vision
  • Treatment
  • Lemtrada
  • Tysabri
  • Which DMT
  • Work and play
  • Fun drugs
  • MRI
10

@ugeary

10 Jul 2017 08:30Last reply 12 Jul 2017 11:27

ugeary

Trinity College Dublin Research Project

Hi all! I'm working on a research project at Trinity College Dublin to evaluate some short, animated films about multiple sclerosis that we have developed. We are looking for people living with MS and their relatives, friends and loved ones to complete short surveys on the films in order to learn fr...
  • Research
  • Work and play
  • Family and children
  • Work and Study
4

@DominicS

21 Mar 2019 11:01Last reply 22 Mar 2019 17:46

DominicS

We've only got the one brain...

I just stumbled across a neat presentation, with great graphics, from Professor Gavin Giovaninni. It is good to see comparative images of the different expected outcomes depending on how your MS is treated, when and with what. Note: I know the Slideshare App is often rubbish when viewed through a...
4

@DominicS

15 Feb 2019 13:18Last reply 25 Feb 2019 18:43

DominicS

Why take the most modern DMTs?

This post from the Barts MS blog stats it with science! Having had MS for 26y I feel that I have largely missed out on the brain health benefits of modern DMTs. In an odd sort of way I envy the younger and newly diagnosed people (not the MS part, that sucks) because of the increase in options and t...
  • Diagnosis
  • Newly diagnosed
  • Research
  • Symptoms
  • Treatment
  • Which DMT
  • Work and play
  • Money
  • Brain health
4

@DominicS

31 Aug 2019 11:53Last reply 31 Aug 2019 14:04

DominicS

Time matters - why take DMTs

I have seen several people asking quite recently - entirely legitimately - about whether they should take a DMT. This is my hobby horse though I am not a Doctor. However, everyone ought to read this. They are all heavyweight neurologists. https://multiple-sclerosis-research.org/ms-brain-health/
  • Research
  • Treatment
  • Which DMT
1

@sarahshift

8 Aug 2017 11:09Last reply 8 Aug 2017 13:15

sarahshift

Meet other MSers in Prague

Want a chance to meet other MSers from across Europe? Sign up to join Shift.ms and other members at MS Sessions in Prague. Hopefully you'll have seen by now the first MS Sessions is happening on 25th/26th November? MS Sessions aims to bring together MSers from across Europe to meet, share experien...
  • Diagnosis
  • Disclosure
  • Healthy living
  • Diet
  • Exercise
  • Work and play
  • Meet ups
  • Sex
  • Travel
  • Work and Study
1

@ugeary

6 Aug 2017 08:03

ugeary

Animated Films - Research project

Hi all! I’m working on a research project at Trinity College Dublin to evaluate some short, animated films about multiple sclerosis that we have developed. We are looking for people living with MS and their relatives, friends and loved ones to complete short surveys on the films in order to learn fr...
  • Research
  • Work and play
  • Family and children
  • Work and Study

@Sewing-chick

28 Jul 2016 09:31

Sewing-chick

Important info to show your neurologist

Those lovely MS doctors at Barts have just posted a couple of downloadable resources for PWMS, talking about how important it is to treat MS early and monitor whether the treatment is keeping MS at bay. They suggest that people with less proactive neurologists might want to take these resources in ...
  • Research
  • Treatment

@harry12

9 Mar 2016 01:26Last reply 14 Mar 2016 13:21

harry12

Muscle weakness/atrophy

Hi all ☺️ Recently had a private neuro appt and she pointed out some right leg/calf atrophy. Since she's said it, it's all I can focus on! It's very obvious once pointed out. I also hunted down a neuro physio- he got me to do some right leg agility based exercises and at one point I felt like my kn...
  • Symptoms
  • Brain health
35

@Pam1706

24 Sep 2017 16:03Last reply 28 Sep 2017 09:25

Pam1706

Is there anyone here I can talk to

Is anyone here that I can talk too Feeling sad
  • Balance
  • Bladder and bowel
  • Blurred vision
  • Brain fog
  • Fatigue
  • Hot and cold
  • Mental health
  • Numbness
  • Pain
  • Spasticity
  • Brain health
  • optic neuritis
23

@Jacobo_Santamarta_Barral

2 Jan 2019 06:04Last reply 28 Aug 2019 11:18

Jacobo_Santamarta_Barral

Ocrevus and SPMS

Hi everyone, I was with my Neuro on Monday and shd told me that, given the evolugion of my symptoms lately my RRMS may had become already an SPMS. Thus she recommended me to start taking Ocrevus and leave the treatmenr I am on at the moment (I've been taking Tysabri for the last 8 years). I think ...
  • Disclosure
  • Secondary progressive
  • Healthy living
  • Diet
  • Mind and body
  • Vitamins and supplements
  • Symptoms
  • Balance
  • Bladder and bowel
  • Fatigue
  • Mental health
  • Numbness
  • Spasticity
  • Treatment
  • Travel
  • Brain health
  • Myelin repair
  • Cause
23

@mser79

17 Jul 2018 15:14Last reply 28 Jul 2018 03:26

mser79

Hidden- the staircase - symptoms

https://youtu.be/tveMmRDrkEM Hi guys, I'm Cathy, an MSer and a producer of Hidden, I worked on Hidden with a focus from development to edit on the representation of MS and its symptoms. One of the ideas I had early on generated from my own feelings of being newly diagnosed in an urban envi...
  • Symptoms
  • Newly diagnosed
  • Diagnosis
  • Brain fog
  • Brain health
  • Numbness
  • Pain
  • Fatigue
  • Mental health
20

@nicholaschh

26 Apr 2016 17:49Last reply 2 May 2016 11:20

nicholaschh

New User - hello!

Hi, I'm Nick and have SPMS, and am now wheelchair bound, having been diagnosed 16 years ago at the age of 42. I am married with three children, the youngest of whom is now 21. So the disease struck in the middle of their childhoods, which was the toughest part of it for me and my wife. We have been ...
  • Relapsing remitting
  • Healthy living
  • Diet
  • Exercise
  • Mind and body
  • Symptoms
  • Mental health
  • Pain
  • Spasticity
  • Work and play
  • Accessibility
  • Family and children
  • Positives of MS
  • Relationships
  • Brain health
  • Repurposing
17

@pauley

25 Jul 2020 16:03Last reply 27 Jul 2020 22:57

pauley

Thankful

Hi there, I just finished my 1st cycle of Mavenclad treatment...free now for 4 weeks before the next lot No real side affects...just a little exhausted...more than the usual kind I could feel burning sensation while swallowing the medication..make sure anyone taking this medication has plenty of w...
  • Balance
  • Bladder and bowel
  • Brain fog
  • Fatigue
  • Hot and cold
  • Numbness
  • Steroids
  • Treatment
  • Brain health
  • Mavenclad
16

@KZuehl

13 Aug 2017 13:21Last reply 17 Aug 2017 02:13

KZuehl

"Suicide Headaches"

Hi I was wondering if anyone has ever had their headaches labeled as "Suicide Headaches"? My old Neuro used that with me, as my headaches are God awful.
  • Relapsing remitting
  • Mind and body
  • Symptoms
  • Blurred vision
  • Brain fog
  • Dizziness
  • Fatigue
  • Pain
  • Relapses
  • Brain health
14

@Beefree

7 Sep 2018 20:45Last reply 9 Sep 2018 07:10

Beefree

Brain lesion atrophy

Hi everyone The results from a recent MRI showed no new lesions and that several existing lesions had faded. I wasn't sure how common 'fading' lesions are and how to interpret the implications. I came across this article reporting on a five and ten year study, which found that lesion atrophy is a ...
  • Diagnosis
  • Symptoms
  • Work and play
  • Work and Study
  • MRI
  • Brain health
13

@lara279

7 Feb 2018 14:27Last reply 27 Feb 2018 13:45

lara279

Blood order made - my treatment decision

Hello everyone, I joined this site back in November when I was diagnosed with RRMS. I didn't know anything about MS at the time so I had a lot to learn. I had a sensory relapse in November and an MRI identified a small number of silent lesions in my brain. Since then I have been reading everything ...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Healthy living
  • Exercise
  • Research
  • Symptoms
  • Balance
  • Numbness
  • Relapses
  • Treatment
  • Lemtrada
  • Unlicensed
  • Which DMT
  • Work and play
  • Family and children
  • Work and Study
  • MRI
  • Brain health
  • Pregnancy
  • Trials
12
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