#brain-health - Shift.ms

1 Jun 2017 11:33Last reply 7 Jun 2017 10:22

Brain health questions???

Hey, It's a year since the Brain Health: Time Matters report was launched. Has anyone read it? Did it answer questions you had or leave you with more? If you have any questions about brain health that you'd like to ask a specialist in this area, let us know and the MS Reporters will get on the...

1

@Sewing-chick

18 Aug 2016 08:35Last reply 18 Aug 2016 10:01

Brain health guide for people with MS

This is a guide to brain health for people with MS. I'm not sure how different it is from the guide I already posted a link to, but I thought I'd put the link on for completeness. It's here: http://multiple-sclerosis-research.blogspot.com/2016/08/brainhealth-clinicspeak-brain-health.html

Research

1

@ugeary

22 Jan 2016 12:01Last reply 22 Jan 2016 15:35

Brain Health - Research Project

Hi all, We are a group of researchers at Trinity College Dublin who are developing online resources on brain health for people affected by Multiple Sclerosis. Everything we develop will be made freely available to the general public. We are looking for people living with MS, as well as people who w...

6

@AndreaG

16 Aug 2022 10:18

Brain healthy lifestyle

This article appeared in MS News today: https://multiplesclerosisnewstoday.com/news-posts/2022/07/25/brain-healthy-lifestyle-may-help-prevent-ms-disability-progression/?utm_source=facebook&utm_medium=organic_social&utm_campaign=new_image&utm_content=15082022100000&fbclid=IwAR3zOftxD7G6Ybi_P78GqHycy...

@DominicS

31 Aug 2019 11:53Last reply 31 Aug 2019 14:04

Time matters - why take DMTs

I have seen several people asking quite recently - entirely legitimately - about whether they should take a DMT. This is my hobby horse though I am not a Doctor. However, everyone ought to read this. They are all heavyweight neurologists. https://multiple-sclerosis-research.org/ms-brain-health/

1

@DominicS

21 Mar 2019 11:01Last reply 22 Mar 2019 17:46

We've only got the one brain...

I just stumbled across a neat presentation, with great graphics, from Professor Gavin Giovaninni. It is good to see comparative images of the different expected outcomes depending on how your MS is treated, when and with what. Note: I know the Slideshare App is often rubbish when viewed through a...

4

@DominicS

15 Feb 2019 13:18Last reply 25 Feb 2019 18:43

Why take the most modern DMTs?

This post from the Barts MS blog stats it with science! Having had MS for 26y I feel that I have largely missed out on the brain health benefits of modern DMTs. In an odd sort of way I envy the younger and newly diagnosed people (not the MS part, that sucks) because of the increase in options and t...

4

@sarahshift

8 Aug 2017 11:09Last reply 8 Aug 2017 13:15

Meet other MSers in Prague

Want a chance to meet other MSers from across Europe? Sign up to join Shift.ms and other members at MS Sessions in Prague. Hopefully you'll have seen by now the first MS Sessions is happening on 25th/26th November? MS Sessions aims to bring together MSers from across Europe to meet, share experien...

1

@ugeary

6 Aug 2017 08:03

Animated Films - Research project

Hi all! I’m working on a research project at Trinity College Dublin to evaluate some short, animated films about multiple sclerosis that we have developed. We are looking for people living with MS and their relatives, friends and loved ones to complete short surveys on the films in order to learn fr...

@ugeary

10 Jul 2017 08:30Last reply 12 Jul 2017 11:27

Trinity College Dublin Research Project

Hi all! I'm working on a research project at Trinity College Dublin to evaluate some short, animated films about multiple sclerosis that we have developed. We are looking for people living with MS and their relatives, friends and loved ones to complete short surveys on the films in order to learn fr...

4

@Sewing-chick

9 Jul 2016 09:42Last reply 15 Jul 2016 15:17

Best MS drugs soon after diagnosis

Should your neurologist be offering you the most effective MS drugs soon after diagnosis, before you have any evident disability? The opinion of doctors at Barts (a hospital at the forefront of MS treatment) is that they should. Here's what the doctor said on the Barts MS Blogspot today: " I was ...

10

@Sewing-chick

28 Jul 2016 09:31

Important info to show your neurologist

Those lovely MS doctors at Barts have just posted a couple of downloadable resources for PWMS, talking about how important it is to treat MS early and monitor whether the treatment is keeping MS at bay. They suggest that people with less proactive neurologists might want to take these resources in ...

@Alitasbuffalo

15 Sep 2022 20:10Last reply 17 Sep 2022 16:03

Neuro appointments

I wanted to know, what are your experiences when meeting your neurologist like? Do you feel confused about your MRI results, clueless about the implications of some lesions, or do you feel comfortable and calm with the information your neuro gives you? I live in the Netherlands and doctors here are ...

9

@Heathclips

2 Sep 2021 12:43Last reply 17 Sep 2022 15:51

Mold toxicity misdiagnosed as MS

I was diagnosed in Nov 2020 as having MS by two MS experts. Unfortunately, they never considered mold toxicity. About 3 months ago, at the advice of two functional medicine doctors, I finally was tested for mold toxicity and my numbers were off the charts. The recovery is slow, but I am making pr...

Bonita Springs, United States

9

@shiftms-films

26 Jan 2000 11:34Last reply 15 Sep 2022 03:21

Do You Get Vision Issues From MS? | Animated Symptoms series

In one in four cases of Multiple Sclerosis, the first noticeable symptom is a problem with one of your eyes. MS can affect vision in different ways including optic neuritis, uncontrolled eye movements, and double vision. Kirsty shares the experience of her first symptom in our latest Animated Sympto...

7

@shiftms-films

26 Jan 2000 11:13Last reply 28 Jul 2022 18:50

Do You Get Sensory Issues From Your MS? | Animated Symptoms series

Sensory problems are often one of the earliest symptoms of Multiple Sclerosis and occur in 20 to 50% of MSers. Grace shares her experiences of sensory issues in our latest Animated Symptoms Video. How do you manage sensory issues as a result of your MS? Share your tips for the rest of the commun...

2

@itasara

14 Jul 2022 08:04Last reply 15 Jul 2022 18:30

Started Copaxone within 3-4 months

I was dx October 2005. I knew it was correct but I went for a 2nd opinion. It was getting toward holiday time of year and my appt was later than I expected. I started the medication in February of 2006. I can't remember the details now. but I think the start date was longer do to vacations, maybe th...

1

@Missmonkey

25 Jan 2022 16:44Last reply 25 Jan 2022 17:42

Annual review and brain atrophy

Hi all, I had my annual review this morning. Bit of background: diagnosed in 2010, 5 years of tsyabri followed by lemtrada last dose 2017. I haven’t felt well recently and my neurologist plans to do a spinal tap to check for inflammation. My MRI shows no new lesions but there is evidence of atrophy ...

1

@Vili

12 Sep 2021 22:18Last reply 20 Sep 2021 17:48

brain aneurysm and MS

Hi! Im 34 years old. I was officially diagnosed with RRMS two months ago even though the symptoms started 10 years ago. I was not particularly shocked as I knew something was wrong with my nerves. I ignored the disease until I got optic neuritis for the second time and started limping. In addition ...

4

@Hayley_Norton

17 Sep 2020 13:21Last reply 19 Sep 2020 16:15

Symptoms but no lesion MRI?

Hello all, I still get daily symptoms with no diagnosis. I have IIH, cerebral atrophy and cerebellar atrophy but no lesions. How long and how many MRIs did it take to get a diagnosis for you? Was there no lesions on the first but some on another? Interested to hear others journey of diagnosis plea...

3

Topics