Looking for
something specific?

Does anyone else find that they rarely have totally symptom free days, which are worsened by (extra!!) tiredness or stress? And during relapses, 'old' symptoms tend to flare up, too?

Hi, I was diagnosed with MS summer 2019. At that point I had had some minor symptoms such as numbness in my hands and feet and some blurred vision. Optic neuritis led to my diagnosis. Since then my day to day experience has got progressively worse. I have struggled to walk any distance at times and ...

Any advice? Generally I have relapses - one every three years, and I am not on DMT. This year, my left leg slowly fades away. Stairs, walking for a longer period now becomes a challenge.

Hey friends! So I am just wondering what peoples experience and/or knowledge of cold sores is with regards to MS relapses? I can feel my first cold sore brewing since my diagnosis and I’m feeling super fatigued. Not sure if the cold sore is a symptom of me being a bit run down, or if the cold sore i...

I've got a soft diagnosis of "very likely RRMS". They've done the lumbar puncture and two MRIs and Ive got an appointment to go through all the results on Monday with neurology. It's all happened since February (though I now recognise first relapse was December) so still getting to grips with it al...

I'm relatively new to MS, diagnosed in 2020 initially with "very mild benign RRMS" when actually by 2022 new MRI shows 2 legions on the spine and 2 on the brain (the spine were there originally in 2020 and missed). I've been wary of "everything becomes MS" from the diagnosis and I tend to avoid "bo...

As part of #WorldMSDay 2019 Shift.ms released #Relapses24x24 - 24 stories of relapses as told by MSer's. We've stitched these stories together so you can see the various stages MSer's go through with relapses. What we learnt from these stories is that if you're experiencing symptoms that are not nor...

Hi! Not sure if anyone else has experienced this but before my first relapse I had the most horrific headache, photophobia - unable to move for 24 hours and then relapsed approx 2 weeks later. I’ve just been discharged from hospital as I had another one this week and they kept me in overnight, CT s...

An article which appeared MS News Today: A substantial amount of disability worsening happens independently of relapses in people with multiple sclerosis (MS), including those in earlier stages of relapsing-remitting disease, a study in a large patient database reported: https://multiplesclerosisnew...

I was just wondering - if there's a case like mine. I get on average 1 relapse every 3 years but there is still a progression. Especially with my left leg. Not on treatment.

Questions about next step treatment options! I am currently on Copaxone (2017-present excluding pregnancy) and relapsed October 2020 after I finished nursing my 1 year old. A new symptom came on which caused chronic pain in my hands and legs. It is only starting to subside slightly and I think it ...

I am wondering if there is anyone like me out there. I have always has mild relapses and pretty much ignored them, putting it down to tiredness, early menopause, going out too much etc so that when my MS was discovered the damage was immense. Innumerous lesions all over my brain and all over my C an...

I have been going through a terrible time last couple of weeks with my mobility and have been really struggling with everything so I told my ms nurse and they sent me straight for an mri got my mri results this morning and because there has been no change from the last one they said it isn’t a relap...

My mum is new to all this and had a relapse in February was in hospital for steroids and started on a pile of meds. Starts infusion in June. She has been home from hospital for eight weeks and things have taken a turn for the worst again her pain is through the roof her walking is extremely difficul...

Had another relapse yesterday where my arms became so numb and my legs too its unreal. I was rushed to A and E and was given gabapentin for the pain. Can anyone recommend any remedies to help with the pain

I’ve been searching for a long time to figure out if my relapses are normal. Typically I have various symptoms(leg weakness, hand weakness, tingling, buzzing and fatigue) that come and go when my relapse starts. Normally the symptoms last a few days and then move to a different body part. This g...

Sorry for the rant in advance but lately I’ve been stressing over symptoms and what they could mean for how my ms is progressing. When i was first diagnosed 4 years ago i had a crazy burning sensation all over my body and a completely numb left side for months and since then i’ve had no way to tell...

My first relapse that started all my investigations for a diagnoses was due to slurred speech, no balance and no coordination. Are all future relapses going to be the same or will they be different symptoms? The balance and coordination problems I could cope with but the speech problem really got t...

Are relapses always new lesions ? Or can old symptoms crop up and it's them that become inflamed. Thanks

Hi, so I had my last dose of Lemtrada in 2016 and since then have only had ‘exasperation’s of existing symptoms’ which never constituted as a relapse. However, I’ve had a numb patch in the middle of back since May, ignored it for a bit to see what happened. I went to see a neurologist in the clinic ...