#relapses - Shift.ms

6 May 2022 06:49Last reply 6 May 2022 21:32

So many relapses, will it ever slow down?

I've got a soft diagnosis of "very likely RRMS". They've done the lumbar puncture and two MRIs and Ive got an appointment to go through all the results on Monday with neurology. It's all happened since February (though I now recognise first relapse was December) so still getting to grips with it al...

Kent, UK

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@remys

4 May 2022 10:27 EditedLast reply 4 May 2022 21:10

Should I report relapses to the NHS?

I'm relatively new to MS, diagnosed in 2020 initially with "very mild benign RRMS" when actually by 2022 new MRI shows 2 legions on the spine and 2 on the brain (the spine were there originally in 2020 and missed). I've been wary of "everything becomes MS" from the diagnosis and I tend to avoid "bo...

9

@shiftms-films

26 Jan 2000 10:14Last reply 30 Mar 2022 16:42

Relapse Stories By MSers | How you identify your own relapses

As part of #WorldMSDay 2019 Shift.ms released #Relapses24x24 - 24 stories of relapses as told by MSer's. We've stitched these stories together so you can see the various stages MSer's go through with relapses. What we learnt from these stories is that if you're experiencing symptoms that are not nor...

1

@Bryony

19 Mar 2022 18:54

Severe Headaches and Relapses

Hi! Not sure if anyone else has experienced this but before my first relapse I had the most horrific headache, photophobia - unable to move for 24 hours and then relapsed approx 2 weeks later. I’ve just been discharged from hospital as I had another one this week and they kept me in overnight, CT s...

@AndreaG

16 Mar 2022 15:43Last reply 16 Mar 2022 17:05

Worsening Disability in Absence of Relapses ‘Underestimated’ in MS

An article which appeared MS News Today: A substantial amount of disability worsening happens independently of relapses in people with multiple sclerosis (MS), including those in earlier stages of relapsing-remitting disease, a study in a large patient database reported: https://multiplesclerosisnew...

1

@dipetar

9 Mar 2022 13:55Last reply 9 Mar 2022 15:03

Rarely get relapses, but there is a progression

I was just wondering - if there's a case like mine. I get on average 1 relapse every 3 years but there is still a progression. Especially with my left leg. Not on treatment.

2

@Hollyp

17 Aug 2021 19:20

Advancing symptoms, no new relapses?

Hi, I was diagnosed with MS summer 2019. At that point I had had some minor symptoms such as numbness in my hands and feet and some blurred vision. Optic neuritis led to my diagnosis. Since then my day to day experience has got progressively worse. I have struggled to walk any distance at times and ...

@alexthebrave

30 Jul 2021 02:41 EditedLast reply 1 Aug 2021 17:06

Changing DMTs to Ocrevus, relapses, and pregnancy questions

Questions about next step treatment options! I am currently on Copaxone (2017-present excluding pregnancy) and relapsed October 2020 after I finished nursing my 1 year old. A new symptom came on which caused chronic pain in my hands and legs. It is only starting to subside slightly and I think it ...

4

@Fizzybanana

16 Jun 2021 12:50Last reply 17 Jun 2021 14:03

Mild relapses, heavy disease burden

I am wondering if there is anyone like me out there. I have always has mild relapses and pretty much ignored them, putting it down to tiredness, early menopause, going out too much etc so that when my MS was discovered the damage was immense. Innumerous lesions all over my brain and all over my C an...

6

@ant87

2 Jun 2021 11:32Last reply 7 Jun 2021 15:53

Relapses

I have been going through a terrible time last couple of weeks with my mobility and have been really struggling with everything so I told my ms nurse and they sent me straight for an mri got my mri results this morning and because there has been no change from the last one they said it isn’t a relap...

9

@Lframe

16 May 2021 18:45Last reply 17 May 2021 03:34

Steroids and relapses

My mum is new to all this and had a relapse in February was in hospital for steroids and started on a pile of meds. Starts infusion in June. She has been home from hospital for eight weeks and things have taken a turn for the worst again her pain is through the roof her walking is extremely difficul...

1

@SamO

7 May 2021 08:12

Relapses

Had another relapse yesterday where my arms became so numb and my legs too its unreal. I was rushed to A and E and was given gabapentin for the pain. Can anyone recommend any remedies to help with the pain

@Ron636

21 Apr 2021 21:23Last reply 23 Apr 2021 21:08

Are my relapses normal?

I’ve been searching for a long time to figure out if my relapses are normal. Typically I have various symptoms(leg weakness, hand weakness, tingling, buzzing and fatigue) that come and go when my relapse starts. Normally the symptoms last a few days and then move to a different body part. This g...

3

@Renee_dc_

23 Feb 2021 06:57Last reply 23 Feb 2021 16:56

Relapses / symptoms

Sorry for the rant in advance but lately I’ve been stressing over symptoms and what they could mean for how my ms is progressing. When i was first diagnosed 4 years ago i had a crazy burning sensation all over my body and a completely numb left side for months and since then i’ve had no way to tell...

4

@Kazzy73

7 Nov 2020 20:35 EditedLast reply 8 Nov 2020 06:11

Are all relapses the same ?

My first relapse that started all my investigations for a diagnoses was due to slurred speech, no balance and no coordination. Are all future relapses going to be the same or will they be different symptoms? The balance and coordination problems I could cope with but the speech problem really got t...

Glenrothes, Scotland, United Kingdom

2

@twiggy3

3 Jul 2020 15:04

Relapses

Are relapses always new lesions ? Or can old symptoms crop up and it's them that become inflamed. Thanks

@chloeautumnx

16 Sep 2019 07:09

Relapses after Lemtrada

Hi, so I had my last dose of Lemtrada in 2016 and since then have only had ‘exasperation’s of existing symptoms’ which never constituted as a relapse. However, I’ve had a numb patch in the middle of back since May, ignored it for a bit to see what happened. I went to see a neurologist in the clinic ...

@DoxieLover

7 May 2019 19:21Last reply 8 May 2019 08:23

Relapses

What do those of you with relapsing remitting define as a relapse? Since my diagnosis in Sept 2018 after developing optic neuritis I have been plagued with different symptoms on pretty much a fortnightly basis and i'm becoming so disheartened and unwilling to allow myself to be in certain situations...

7

@IAMGEYSER

21 Jan 2019 08:38Last reply 3 May 2019 15:56

2nd line treatment with only 2 relapses

Lovely people, thanks for listening! My story started a year ago with only 2 minor relapses, like numbness in my hands and legs and later on I lost my left eye-sight for a while. This was followed with a 1st line treatment (Copaxone) for the last year or so, and I fully recovered from those relaps...

8

@melmel1

14 Jan 2019 10:37Last reply 16 Jan 2019 15:10

RELAPSES

Hi everyone recently diagnosed and just wondering,can you be unaware you have ms and you start with a first visable relapse such as optic neuritis,it clears up then have nothing major apart from odd tingiling and numbness for the next ten years then bang out of blue start havin symptomss such as sp...

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