#ocrevus - Shift.ms

21 Jun 2022 10:03Last reply 22 Jun 2022 23:37

Ocrevus to Kesimpta

Hi everyone, I spoke to my neurologist today and I am swapping to Kesimpta in July from Ocrevus after 2.5 years. I am swapping because Ocrevus leaves me feeling so wiped out pre and post infusion. I’ve also been getting chest pain and I think it has stemmed from Ocrevus. I also got infusion reaction...

Melbourne, Australia

7

@drr45drr

10 Apr 2022 10:51Last reply 21 Jun 2022 13:53

Ocrevus and Evusheld

In early February, I received my 2-step Ocrevus infusion. Happily. I had no significant problems. Last week, the doctor's office called to offer me Evusheld injections to support my immune system which could have been compromised by the Ocrevus therapy. Once again, no significant post injection affe...

6

@HelenD

18 Jun 2022 10:58 EditedLast reply 20 Jun 2022 13:51

Ocrevus & progression

For those of you well established on Ocrevus, has it ever exasperated your symptoms in any way or presented anything new? I recently had an infusion following a 7 month delay and am now experiencing bladder incontinence (new), leg tremors (not new, but much worse), a funky eye brow tremor and a ge...

14

@HelenD

18 Jun 2022 10:58

Ocrevus & progression

For those of you well established on Ocrevus, has it exasperated your symptoms in any way or present anything new? I recently had an infusion following a 7 month delay and am now experiencing bladder incontinence (new), leg tremors (not new, but much worse), a funky eye brow tremor and a general ...

@libi89

13 Jun 2022 16:48Last reply 17 Jun 2022 15:57

Choosing between Ocrevus & Kesimpta

Hi everyone, I am newly diagnosed with relapsing-remitting MS (April 2022) and my doctor has given me the choice between 4 medications, I have narrowed it down between Ocrevus and Kesimpta. Just wondering if anyone has any experience to offer in taking either of these drugs. Appreciate any insight ...

21

@k4t134nn3

15 Jun 2022 00:14Last reply 15 Jun 2022 10:42

Ocrevus side effects??

Need some advice please, I have an awful memory and as ocrevus is 6 months apart I'm finding it hard to remember my symptoms from before etc. I had my infusion on Monday and I had a infusion reaction while at the hospital so my ears and throat got really itchy and my throat got kinda tight so they ...

2

@oldmanjenks

7 May 2021 17:49Last reply 14 Jun 2022 05:44

Ocrevus

Hello everyone, I am getting my first dose of Ocrevus in October and I am quite scared. I am wondering if anyone else is on it and can tell me their experience? The good the bad the ugly, I wanna hear it all :)

Sutton, United Kingdom

35

@Claire45

13 Jun 2022 12:54Last reply 13 Jun 2022 13:41

Ocrelizumab (Ocrevus)

Hi I'm new to this site, it was recommended by my MS nurses. I've been given the option of Ocrelizumab (Ocrevus) as a new medication and am wondering if anyone has experience or advice about this medication. I've been diagnosed 14 years and have previously had Alamtuzamab, Rebif and Interferon bet...

Sheffield, United Kingdom

1

@Nola83

6 Jun 2022 21:36Last reply 9 Jun 2022 12:33

1st full Ocrevus infusion today

Had my 1 st full Ocrevus infusion today, all went well home and resting now. Took around 6 hrs from start to finish.

11

@ScarletClarke

30 May 2022 20:19Last reply 31 May 2022 22:04

Ocrevus side effects?

Hello all! I had my first relapse in January and my MRI showed some new changes, so they have changed my medication and I have my first dose of Ocrevus on the 8th of June. I was previously on Plegridy and would react quite badly for 24 hours after the injection - body aches, joint stiffness, heada...

6

@Emzjb84

31 May 2022 06:40Last reply 31 May 2022 19:20

First Infusion of ocrevus

Hello lovely MS family! I have Active Relapsing Remitting MS, In a couple of weeks I will be getting my first infusion of Ocrevus. Just wondering what people's experiences were? I am also aware that it's going to be a long day and plan to take some art stuff to do while getting treatment. Is this a...

Edinburgh, United Kingdom

7

@lucyg80

30 May 2022 15:42Last reply 30 May 2022 21:17

Ocrevus

I haven't been on here for a very long time and just wanted to share my experience of Ocrevus for those of you who are about to start it. Ocrevus is the first treatment I have had since being diagnosed with RRms in 2018. I have been having it now for nearly 4 years I think. For me it has been absolu...

6

@molly89

29 May 2022 07:38

Gilenya to Ocrevus

Can anyone who has moved from Gilenya to Ocrevus share how long it was from when they were told to stop Gilenya before their first infusion? I'm in the 'waiting period' ....and waiting for my infusion date (am off meds)

London, United Kingdom

@Spencerman1

23 May 2022 15:41Last reply 23 May 2022 16:16

After Ocrevus

Does anyone else feel worse after their Ocrevus infusion? Just had my 1st full dose and feeling rubbish! It happened a bit with the 1st two but quickly settled!! Hope this is the case?

London, United Kingdom

2

@StevenH67

11 Aug 2020 16:00Last reply 22 May 2022 13:35

1st Ocrelizumab / Ocrevus experience

Hi, just thought I'd share my experience of my 1st half doze from earlier today in order that someone else may get some use from it. 1st half doze completed today in Glasgow. So far, so good. I got out about 330pm. I was given lots of advice by lots of people. Seems to have worked well. Few sweets, ...

54

@Abwoli

21 May 2022 14:29 EditedLast reply 21 May 2022 19:27

Ocrevus

I am starting this treatment on Monday, I don't know of anyone who is using this medication. They need to escalate my medication and this was one of the 4 I was told about to consider. Obviously with Covid I have not had much contact with anyone to be able to ask questions

6

@Magillz

17 May 2022 10:44Last reply 17 May 2022 13:28

Tysabri to Ocrevus

Hi all this is my first post and have been quietly in the background…interested in other’s thoughts or opinions…so I’ve had a conversation with my neurologist yesterday as after 12 months of tysabri I am experiencing quite bad flares ups post infusion for at least 7 days afterwards we did discuss go...

Bridgwater, United Kingdom

2

@Bone2pick

11 May 2022 18:24Last reply 12 May 2022 14:51

So its Ocrevus or HSCT...

Hello all, In a nutshell my finacee was diagnosed with MS 5 years ago at 20, following his first and so far ONLY relapse - he was given tecfedera (this did not delay progression); he was then offered lemtrada which he did 2 rounds of but with a delay in between due to covid and finished in May 2021...

2

@doyles2

19 Apr 2022 20:22Last reply 9 May 2022 19:54

Ocrevus and moving (back) to the Republic of Ireland

Hi everyone. Have you moved or do you know someone who moved to the Republic of Ireland after being diagnosed with MS in a different country? If yes, then I'd be grateful for any info you can put in the comments or by private message about the hoops you needed to jump through to access treatment. ...

5

@Klynnly

8 May 2022 19:55Last reply 8 May 2022 20:04

Ocrevus side effects????

Just wondering if anyone has had bad side effects from the Ocrevus treatment? I did my first infusion on Thursday (half dose) and my symptoms of the numbness in my feet and legs are really bad. I have been trying to drink lots of water and rest as much as I can (I have a 3year old so it’s difficult)...

2

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