#ocrevus - Shift.ms

@Klynnly

19 Sep 2022 21:27Last reply 26 Nov 2022 11:31

Fampyra and Ocrevus

Has anyone been on these 2 meds at the same time?

1

@ScarletDamsel

21 Oct 2022 18:18Last reply 25 Nov 2022 20:16

I'm starting Ocrevus at the end of November. I'm bricking it, I always get side effects, I had the covid Jab last week and it knocked me about, needed a day off work! I'm a single mom of 3, eldest is 20 and at Uni, then I've got 14yo and 8yo boys, the youngest is autistic. I really don't know how I'...

18

@Ms_Flipflopino

22 Nov 2022 22:22 EditedLast reply 24 Nov 2022 19:59

Excited for my 1st Half Ocrevus Infusion

Hello MSrs not so new here but have been observing from a distance but also getting the bottle to post here! So have finally got round to filling out my Bio feel free to read and see how my journey began. Also very excited to be getting the 1st Half of my Ocrevus infusion this Thursday 24th at 8am a...

14

@katied278

24 Nov 2022 11:25Last reply 24 Nov 2022 18:45

Ocrevus crap gap

Hi everyone, I have had my two half doses of Ocrevus and getting my first full dose in a couple of weeks. The past week I have been so fatigued and a lot of headaches - it feels almost unmanageable. I wondered if this is the crap gap people talk about? Has anyone else experienced something similar?

5

@JMon

22 Nov 2022 19:34Last reply 23 Nov 2022 09:28

Ocrevus thoughts?

Newly confirmed member of the MS family. Been an intense 2 months. Neuro talking Ocrevus . Thoughts & feedback is appreciated

Galway, Ireland

4

@Emz17

16 Nov 2022 20:19Last reply 22 Nov 2022 07:41

Ocrevus and working in the nhs

Today I've had the list of dmds I can have. I really want to go in hard and I'm eligible for ocrevus. Or maybe kesimpta Does anyone else work in patient facing roles and also on dmd. Do you worry your more at risk then someone who isn't in health care? What did you choose if not ocrevus. Pros ...

Kent, UK

13

@Fayebellina

19 Nov 2022 22:04Last reply 20 Nov 2022 14:52

First Half Dose Ocrevus Side Effects

Hey everyone, had my first half dose #Ocrevus 3 days ago and I had some reactions during. Scratchy throat and widening throat (weirdly 😂), sneezing, watery eyes, runny nose. Nothing that wasn’t fixed by an extra dose of antihistamines. Thing is, I’m absolutely exhausted. Head feels really thick and...

4

@Mceesquared

6 Nov 2022 10:39Last reply 18 Nov 2022 11:30

Ocrevus longer term

Hi all, Has anyone here been on ocrevus longer than a couple of years. If you are OK tlaking about it, how are you finding it. Is your consultant happy with your disease being stable on it?? Thanks in advance.e. Maria x

11

@Jessicac

1 Nov 2022 12:44Last reply 13 Nov 2022 21:20

Tingly feeling after Ocrevus infusion

Hi, I have recently been diagnosed with Relapsing Remitting MS and have had my first dose of Ocrevus, receiving my next dose this Friday. I just wondered if anyone after theirs had a really strange tingly feeling in their face and limbs after having it? I haven’t spoken to my MS nurse yet but I’m th...

2

@Elixir

30 Oct 2022 07:03Last reply 12 Nov 2022 10:50

Post Ocrevus Nausea?

I had my first Ocrevus infusion on Friday, there were no infuse reactions at all and I just felt super drowsy from the antihistamines. Ever since though, I have completely lost my appetite and have nausea. Has anyone else had this, or know if this is normal?

4

@hellohallie

15 Feb 2022 01:58Last reply 8 Nov 2022 19:15

Living with Endemic Covid on Ocrevus/Rituxan

Hi guys! I’m wondering where everyone’s thoughts are on continuing with your anti-CD20 meds given the world just kind of pretending like Covid no longer exists at this point. Do you plan to continue and just roll the dice with Covid? Switch to another medication? Lock yourself inside your house for ...

4

@Soccermom

5 Nov 2022 18:52Last reply 6 Nov 2022 18:17

Psuedo Flare from Ocrevus Allergic Reaction

I’m having rough time as my Ocrevus infusion Caused A severe late onset allergic reaction .. I ended up hospitalized and needed three days IV steroids for Psuedo flare ( did have MRI and no new lesions). I’m home, beat up, exhausted, and dealing with steroids' side effects and symptoms still flaring...

Atlantic City, United States

3

@MsHyno

1 Nov 2022 08:35Last reply 1 Nov 2022 10:59

Progression/Relapse on Ocrevus

I Have been on Ocrevus for almost two years and throughout this treatment I have never felt better! The only thing I did notice was that I would start to feel sluggish in the lead up to the next infusion. I am currently recovering from a horrible relapse, for which I spent over a week as an inpati...

2

@Nachantis

14 Oct 2022 12:45 EditedLast reply 31 Oct 2022 12:03

Ocrevus

So I have been on Ocrevus for almost two years now, however I wondered if this problem might be due to the infusion or not. My first infusions was in November 2020 and in Dec 2020 I got an abscess that wouldnt go even with antibiotics. It was extremely painful and within a week the hospital had to...

2

@TenTSneed100219

29 Oct 2022 20:10 EditedLast reply 30 Oct 2022 04:41

Ocrevus

Anyone doing Ocrevus infusions? I'm about to transition to start the infusions. How is it working for you? How was the first infusion experience? I'm really scared about it but I trust my MD.

4

@oldmanjenks

7 May 2021 17:49Last reply 27 Oct 2022 18:21

Ocrevus

Hello everyone, I am getting my first dose of Ocrevus in October and I am quite scared. I am wondering if anyone else is on it and can tell me their experience? The good the bad the ugly, I wanna hear it all :)

Sutton, United Kingdom

48

@Jades641

25 Oct 2022 17:55Last reply 27 Oct 2022 02:27

First ocrevus treatment done 😊

I had my first treatment today. Feeling a bit tired now. Had a itchy neck for about 30mins during treatment and a sore throat... nurses gave Me salt and vinegar crisps which they said for some reason helps with the sore throat and it totally cleared it!! Haha who knew?! Mines took about 5.5 hours bu...

Edinburgh, UK

5

@Andra

28 Sep 2022 19:43Last reply 25 Oct 2022 21:31

Ocrevus versus Mavenclad

Hello everybody. I am on Ocrevus since 2019 with no new lessions but i feel the worsening of my symptoms (pain, muscle spams, diplopia since i started Ocrevus, heat and cold intolerance, and more others. My neurologist said to me about Mavenclad. Has anybody passed from Ocrevus to Mavenclad? What wa...

7

@MarkC73

20 Oct 2022 13:30Last reply 24 Oct 2022 06:53

Ocrevus

5th infusion yesterday. Had me going crazy before but the last couple really level me out and help some symptoms. Anyone felt a drop off in how they felt towards the next infusion coming? I go downhill about 3 weeks before

Sunderland, United Kingdom

12

@emnuss

16 Dec 2019 17:35Last reply 23 Oct 2022 21:50

Ocrevus and hair loss?

I've completed my first 2 infusions with Ocrevus and have had no complaints, with great results! But I have been noticing way more hair coming off in my brush and in the shower. Anyone else experience anything like this?

7

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