#ocrevus - Shift.ms

11 Aug 2020 16:00Last reply 5 Apr 2021 10:02

1st Ocrelizumab / Ocrevus experience

Hi, just thought I'd share my experience of my 1st half doze from earlier today in order that someone else may get some use from it. 1st half doze completed today in Glasgow. So far, so good. I got out about 330pm. I was given lots of advice by lots of people. Seems to have worked well. Few sweets, ...

38

@Stumbler

10 Sep 2018 11:51Last reply 30 Sep 2018 16:02

UK: Ocrevus Declined by NICE for PPMS

This is hot off the press and has upset people in the medical profession, as well as UK PPMSers. There's already a campaign to contest this decision :- https://signup.mssociety.org.uk/page/30088/petition/1

38

@oldmanjenks

7 May 2021 17:49Last reply last Saturday at 11:19

Ocrevus

Hello everyone, I am getting my first dose of Ocrevus in October and I am quite scared. I am wondering if anyone else is on it and can tell me their experience? The good the bad the ugly, I wanna hear it all :)

Sutton, United Kingdom

27

@Robyn_C

6 Mar 2020 10:03Last reply 13 Mar 2020 15:34

Ocrevus stopped due to COVID19

I was supposed to have my first Ocrevus infusion today but it has been deferred in light of the coronavirus outbreak and I will be treated with Brabio for the time being instead. I had emailed some concerns to my hospital (The National Hospital for Neurology and Neurosurgery in London) as I was worr...

25

@CitizenK

17 Dec 2019 17:34Last reply 5 Apr 2021 09:45

Drum Roll for Ocrevus tomorrow...

So, tomorrow I go in for my first Ocrevus infusion after five or so years on Tecfidera, which is no longer working for me "too many relapses in recent times" I'm kinda nervous if I'm honest more so for a rejection or bad reaction to the change in DMT? Any tricks or tips for a brother, about to brea...

24

@Tanya_Trenholm

27 Apr 2020 14:37Last reply 5 May 2021 14:52

Ocrevus: delaying v shielding

This is a long post, so I apologise in advance. I was due to have my first full dose of ocrevus at the end of March. Having made contact with my MS team in the weeks leading up to this to check that I should still go ahead in the current climate (Coronavirus), I repeatedly got the answer back that m...

22

@DominicS

2 Jan 2019 10:21Last reply 4 Jan 2019 17:40

Ocrevus - Friday if all goes to plan!

I am scheduled for my first dose of Ocrelizumab this Friday. It has been a long campaign to get this. Am happy to share in DM's but don't want to subject y'all to an unsolicited shaggy-dog story about it. As with most things MS related, it is relevant to me but there are few details that can be take...

21

@coralellis

14 Jul 2020 16:20Last reply 17 Jan 2021 18:53

Ocrevus

Hey guys. Havnt posted for acouple of months. I have finally had my first half dose of ocrevus and feel amazing!!! Been postponed since march because of covid. Also I was apparently the first patient to receive it at my hospital, which got the green light in January that they can start doing it!!! ...

21

@hollylb10

3 Feb 2020 21:12Last reply 7 Feb 2020 14:55

Ocrevus - what to take with me!

So I am hoping to be approved for ocrevus and was told it takes quite a long time to have the infusion, could take all day. So of course my mind is over thinking and I wondered if there is anything I should take/want when I’m there? Will I want to eat, or will I not have an appetite? I can imagine ...

19

@nobodyin

21 Mar 2020 23:50Last reply 4 May 2020 18:50

Ocrevus and Covid 19

Hi all, was due to receive Ocrevus on April 6th but, in light of current situation have put it back to May. Having PPMS I can't afford too many delays any advice?

18

@KateB

3 May 2021 07:06Last reply 3 Jul 2021 10:56

Ocrevus and covid vaccine

I am really interested in hearing from anyone on Ocrevus who has had the covid vaccine, as I keep being told different things from my health profresionals! Has anyone actually caught covid whilst on Ocrevus? Or been exposed to it?

18

@alephbet

19 Sep 2017 13:29Last reply 17 Aug 2018 17:45

Ocrevus vs Tysabri

Good morning, everyone, I spoke with my MS nurse about possibly switching from Tysabri to Ocrevus later this year. My neurologist isn't inclined for me to switch since "Tysabri is working so well for you." Meanwhile, I just read this morning that the neurology director at my hospital, Dr. Anthony ...

17

@Cathie16

11 Jul 2019 18:01Last reply 7 Apr 2020 20:14

I’m told NO to ocrevus

Not sure how I’m feeling but found out today I don’t fit the criteria for ocrevus because no new lesions since last scan even though my PPMS symptoms are worsening. Feeling pretty rubbish. Busy mum of 3 with job and doing a masters and everything feels so uncertain. Also got refused for blue badge t...

17

@Vixen

16 Oct 2018 16:55Last reply 22 Oct 2018 11:29

Us MSers, parliament and Ocrevus.

Hello friends, what a day I’ve had. My brother-in-law got me and him an appointment with an MP in Westminster today. It was about the decision by NICE to turn down Ocrevus for PPMS folk, like my sister. It was great to have the chance to talk about MS with someone who knew little about it, about our...

17

@Mlgilber1

11 Sep 2018 19:37Last reply 12 Nov 2018 13:50

1st Ocrevus infusion

I have my first half dose of ocrevus tomorrow. I’m super excited and nervous at the same time!

17

@cazsmith

30 Sep 2019 18:20Last reply 17 Oct 2019 18:52

First dose Ocrevus experience

Just posting my experience of my first half doses of Ocrevus, as I found reading other people’s experience really helpful when I was deciding treatment! The infusions went smoothly! Once the cannula is in, you have a dose of steroids and antihistamines which can make you feel sleepy. The Ocrevus in...

17

@mattltsmith

27 Jun 2021 12:26Last reply 29 Jun 2021 21:14

Ocrevus and Covid Immunity

I had my assessment appointment with my MS nurse yesterday for Ocrevus and I just wanted to query something with fellow MSers to see if there might be anymore info. I have been fully vaccinated with Pfizer, but my nurse informed me yesterday that there is a chance the Ocrevus infusion could wipe out...

16

@Bing15

20 Jun 2019 16:23Last reply 3 Jul 2019 10:46

Ocrevus first infusion

Had my first infusion of ocrevus today, all went really well until the last 10 mins when I developed a rash on my face, they immediately stopped the drip and abandoned the last drop and gave me extra antihistamines, 3 hours later I’m home and seem fine, fingers crossed I can continue with my second...

16

@Murray

23 May 2020 06:57Last reply 30 Jun 2020 14:28

Ocrevus

Hi Has anyone had any news regarding DMT treatments in the UK now? My MS nurse is waiting to hear when they might be able to re-start, and I am on the list for the initial Ocrevus infusion - hoping this will be soon, of course.. Wishing you all well.

16

@Lucy41

13 Mar 2020 13:49Last reply 14 Mar 2020 15:15

Covid-19 Ocrevus and work

Are there any other people who have very recently had Ocrelizumab or similar and work in the public sector? Given the current situation with Covid 19 are you continuing to do so? I am contemplating what I should do going forward. I work in an infants school and I was banking on schools closing for a...

16