#symptoms - Shift.ms

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Symptoms worsening‼️

I just recently had my baby and feel like my symptoms have been getting worse especially in my feet.. Any other new moms that have experienced this or something similar??

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@justmelove

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Symptoms with no apparent cause

Most of the time I have a bunch of symptoms but every time I have a good MRI. Like, I'm so happy the MRI looks good but why do I always feel so crappy? Just complaining

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@julie1975

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I have new symptoms starting now. Constipation is bad so now on a sachet of powder a day to make me go and vibrations in my toes, as well as my legs. On a good note Ocupational Therapy is coming Thursday to see if I can have a seat over my bath so i can sit to have a shower. It will be bliss.

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@Windwatcher

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What was your first symptom or cluster of symptoms?

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@Stumbler

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Describing your MS Symptoms

I've seen this list before, but it may be useful. What living with MS feels like..:- When We say we can’t do something because we don’t feel well, put yourself in our shoes by using the examples of our symptoms below… Painful Heavy Legs: Apply Tightly 20 LB ankle weights and 15 LB thigh wei...

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@calm_life521

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I'm new here, trying to start making those connections with MSers so I can get ahead of having an idea what this whole MS thing is about and how I can of course deal with, the changes, adjustments, treatment etc. My grandmother had MS before she passed and seeing myself today, I kind of think I just might have MS, not completely sure yet because what I think might be the symptoms could just be something normal I'm dealing with at the time, it goes away and sometimes I get to feel those twitches, fatigue, brain fog and sleepless nights a few times. Open to learning about people who have been on this journey and how their everyday living is handled it…. Look forward to meeting great minds and kind people

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7

@nkinley

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I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

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4

@Vaughn

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Stress and symptoms

I’m newly diagnosed so I’m still learning. Question: If something stressful happens, it seems like I can get an almost immediate response with symptoms. Meaning my symptoms become much more noticeable almost immediately after something stressful happens. By immediate I mean 10-15 minutes. Is this co...

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@MsIrene

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Hey friends! Anyone else’s lesions just don’t show up on their follow up MRI’s ?? Good news ! But I still have symptoms, that have slowly started to “quiet” down but still symptoms, no lesions , is this common? Is this remission? Curious

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7

@Bbacker

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Hey ladies! Advice on MS symptoms during your cycle.

Hey ladies! I am on Month two since my diagnosis on April9th and I have noticed that my symptoms seem to be much worse during the four days before my cycle. Is this in my head or does anyone else handle this? Would birth control help? Love to hear what everyone thinks.

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