#hsct - Shift.ms

@lindhsie

13 Nov 2022 09:22Last reply 13 Nov 2022 13:43

HSCT

Hi! I’m I’m Lindah from Sweden. I’m new here so haven’t really figured out what this is all about.

2

@Donnaflack

30 Oct 2022 09:08

Hi, new to this site so reading lots but keen to know if anyone has received this treatment. Been diagnosed 20+ yrs so a long story here, I’ll try and cut it short. Failed the new drug plegridy, then on tysabri for 5 yrs, loved this drug but failed it when my blood test came back high risk JC virus ...

@Scosta

3 Aug 2022 04:10Last reply 3 Aug 2022 10:12

Hsct

Hello just wondering if anyone had hsct and what your experience was like

3

@Kizzey65

1 Aug 2022 21:30

HSCT

Just an update in 2017 I had a stem cell transplant at Hammersmith hospital in London, after a resent consultation with my neurologist and MRI scan there are no new lesions to be seen. Seems to be doing the job fingers crossed it will stay like that.

@oldmanjenks

21 Jul 2022 08:33Last reply 29 Jul 2022 07:23

HSCT

Hi, I hope you are well, I could potentially be allowed to have HSCT on the NHS and I am wondering if you have had it or know anyone who has had stem cell transplant? I would love to hear your experience on it :-) Cheers, CJ

Sutton, UK

4

@Magdoni

23 Oct 2021 15:27Last reply 19 Jul 2022 16:00

Hsct

Hey all, Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani. I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada) Once he’d assessed...

13

@wildthing

13 Apr 2019 07:21Last reply 15 Jun 2021 02:44

HSCT

I've just had hsct (stem cell therapy) to try and halt the progression of my secondary progressive MS. I've been at home recovering for nearly 2 weeks now, mostly concentrating on the physio exercises I was given and trying to retrain my bladder after the onslaught known as chemotherapy. It was qui...

11

@Ron_S_Perrin

28 Jun 2019 15:58Last reply 23 Jul 2019 17:33

HSCT

Are there any ms’rs on here that have had the hsct treatment? I’m planning to get it done. I want to hear some suggestions, do’s and dont’s. Etc. Was it a success for you? What is your life like now? What was it like before? Is it worth the money?

7

@raztafa

8 Aug 2018 12:55Last reply 8 Aug 2018 15:52

HSCT!

Heyyy! Has anyone been through or is thinking about stem cell therapy? I myself will be having it done, and just wanted to talk :)

1

@paulmorrison

11 Jun 2018 13:38Last reply 13 Jun 2018 16:29

HSCT

Hi everyone. Not been on here for a while, I have been busy raising money, obtaining visas for my hsct in Moscow. Unbelievably I have raised over forty grand in two months! Not bad for a 46 year old man that lives in rural southern Spain and hasn't spent his years being a people pleaser. Any way the...

8

@paulmorrison

20 Mar 2018 11:55Last reply 20 Mar 2018 13:35

HSCT

Hi everybody. Looking into hsct, I won't get this on the nhs as I don't fit the criteria as I am only on first line dmt even though I have had ms for fifteen years. Does any body know of a reputable clinic that offer this privately? Thanks Paul

3

@Cruella

17 Feb 2018 13:52Last reply 18 Feb 2018 08:54

HSCT

Hello, is there anyone out there who has had this treatment? I'm contemplating on having this procedure. CD

Treatment

2

@HarryS

3 Nov 2017 08:49Last reply 26 Jan 2018 11:38

HSCT

Hi. I am a 2 on the EDSS disability scale. I am being tested for consideration for this aggressive treatment. i want to know what you all think about it. Should i go for it or are the side effects to risky? Does it work to keep me walking for a bit longer?

16

@Frankenstein

12 May 2017 14:48Last reply 12 May 2017 21:32

HSCT

Hello, I was wondering where I can find a good source of debate/arguments for pro-HSCT and those against? Maybe here is a good place? What are your thoughts on the topic? Does it worth a try or not? Should we wait more, for those who can, until the treatment protocols become safer? Thank you, and h...

Treatment

2

@Abhishiv90

2 Apr 2017 10:04Last reply 16 Apr 2017 14:23

HSCT?

Hi peeps. So I was going through the news today and noticed that stem cell transplant therapy for multiple sclerosis started in my country yesterday. I really don't know anything too deeply about this treatment, so I was wondering if anyone here has any direct /indirect connection to it and did you ...

Treatment

9

@Ankitkukreja

9 Jul 2015 09:36Last reply 11 Jul 2015 07:19

HSCT

Frnd whats your say on Hsct, is the risk worthy, kindly help

4

@Rudy

14 Nov 2022 18:41

HSCT who did a crowdfunding to pay those expenses

Hi, I'm Rudy in need a HSCT treatment but I'm trying to let work a crawdfunding and I'm looking for someone who did this before. Thanks for the answers.

@DominicS

14 Oct 2022 12:26Last reply 14 Oct 2022 19:09

Hamish has his Stem Cells back! HSCT for MS

Hamish picks up from Round 2 of the chemo and takes us through the rest of the HSCT treatment he has just had in Mexico. Though he doesn't use Shift I will pass on any questions you have. Check out his story here: https://youtu.be/76HzvqOjOFI

4

@DominicS

3 Sep 2022 14:51

Hamish starts chemo today #HSCT #Mexico

Hamish is sharing his stemcell journey for MS with theMSguide.com. If you want to watch it unfold, understand what is involved, what it costs, what it is like then subscribe to theMSguide.com and ring the bell to stay informed. Hamish can see the comments on the video (not here!) so if you want t...

@DominicS

28 Aug 2022 14:05 EditedLast reply 28 Aug 2022 17:03

Follow Hamish as he gets HSCT in Mexico

Hamish decided he wanted HSCT for his MS sooner rather than later. Rather weirdly the current protocol in Scotland requires that he get worse - irrecoverably worse - before he can have HSCT. Upon further digging he found out that in Scotland this 'path' was theoretical, even non-existent. It's stil...

2

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