#hsct - Shift.ms

23 Oct 2021 15:27Last reply 30 Jan 2022 21:22

Hsct

Hey all, Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani. I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada) Once he’d assessed...

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@wildthing

13 Apr 2019 07:21Last reply 15 Jun 2021 02:44

HSCT

I've just had hsct (stem cell therapy) to try and halt the progression of my secondary progressive MS. I've been at home recovering for nearly 2 weeks now, mostly concentrating on the physio exercises I was given and trying to retrain my bladder after the onslaught known as chemotherapy. It was qui...

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@Ron_S_Perrin

28 Jun 2019 15:58Last reply 23 Jul 2019 17:33

HSCT

Are there any ms’rs on here that have had the hsct treatment? I’m planning to get it done. I want to hear some suggestions, do’s and dont’s. Etc. Was it a success for you? What is your life like now? What was it like before? Is it worth the money?

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@raztafa

8 Aug 2018 12:55Last reply 8 Aug 2018 15:52

HSCT!

Heyyy! Has anyone been through or is thinking about stem cell therapy? I myself will be having it done, and just wanted to talk :)

1

@paulmorrison

11 Jun 2018 13:38Last reply 13 Jun 2018 16:29

HSCT

Hi everyone. Not been on here for a while, I have been busy raising money, obtaining visas for my hsct in Moscow. Unbelievably I have raised over forty grand in two months! Not bad for a 46 year old man that lives in rural southern Spain and hasn't spent his years being a people pleaser. Any way the...

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@paulmorrison

20 Mar 2018 11:55Last reply 20 Mar 2018 13:35

HSCT

Hi everybody. Looking into hsct, I won't get this on the nhs as I don't fit the criteria as I am only on first line dmt even though I have had ms for fifteen years. Does any body know of a reputable clinic that offer this privately? Thanks Paul

3

@Cruella

17 Feb 2018 13:52Last reply 18 Feb 2018 08:54

HSCT

Hello, is there anyone out there who has had this treatment? I'm contemplating on having this procedure. CD

Treatment

2

@HarryS

3 Nov 2017 08:49Last reply 26 Jan 2018 11:38

HSCT

Hi. I am a 2 on the EDSS disability scale. I am being tested for consideration for this aggressive treatment. i want to know what you all think about it. Should i go for it or are the side effects to risky? Does it work to keep me walking for a bit longer?

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@Frankenstein

12 May 2017 14:48Last reply 12 May 2017 21:32

HSCT

Hello, I was wondering where I can find a good source of debate/arguments for pro-HSCT and those against? Maybe here is a good place? What are your thoughts on the topic? Does it worth a try or not? Should we wait more, for those who can, until the treatment protocols become safer? Thank you, and h...

Treatment

2

@Abhishiv90

2 Apr 2017 10:04Last reply 16 Apr 2017 14:23

HSCT?

Hi peeps. So I was going through the news today and noticed that stem cell transplant therapy for multiple sclerosis started in my country yesterday. I really don't know anything too deeply about this treatment, so I was wondering if anyone here has any direct /indirect connection to it and did you ...

Treatment

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@Ankitkukreja

9 Jul 2015 09:36Last reply 11 Jul 2015 07:19

HSCT

Frnd whats your say on Hsct, is the risk worthy, kindly help

4

@DominicS

last Thursday at 20:41Last reply last Friday at 13:30

A very brave video just after HSCT

Rachel Teasdale takes stock of things the afternoon after her stem cells were reinfused back. It is an emotional film that took a lot of guts to make. it has been a privilege o be able to share these with the wider MS community. Thank you to shift.ms for allowing me to share Rach's story with you. ...

3

@DominicS

9 Jun 2022 16:41 EditedLast reply 12 Jun 2022 14:59

Would you like to follow Rach's HSCT/Stemcell journey?

I met Rachel Teasdale (@rachteasdale on Twitter and IG) through shift.ms She is having HSCT for her MS and in an incredibly honest (and brave) move she has documented her entire journey to date with theMSguide. It is all in a playlist if you'd like to see it completely from the human side. Rach h...

4

@EKEK

17 May 2022 20:08

HSCT India - Artemis Hospital

Has anyone had HSCT treatment at HSCT India - Artemis Hospital? https://hsctindia.com/

@Bone2pick

11 May 2022 18:24Last reply 12 May 2022 14:51

So its Ocrevus or HSCT...

Hello all, In a nutshell my finacee was diagnosed with MS 5 years ago at 20, following his first and so far ONLY relapse - he was given tecfedera (this did not delay progression); he was then offered lemtrada which he did 2 rounds of but with a delay in between due to covid and finished in May 2021...

2

@dagamundo

27 Mar 2022 19:40

HSCT Pay It Forward

Hi, haven't been here a lot, as I have started a project to help those with MS who are seeking to have HSCT to halt progression. It is on Facebook, which I rejoined. https://www.facebook.com/groups/680731903353520... It's a private group, so if you are interested, my real name is Anna Mosca and yo...

@Domi

2 Mar 2022 20:22Last reply 3 Mar 2022 10:10

HSCT and cats

Hiya everyone As my MS and general well-being has gotten worse over the last several months, I'm thinking about asking my neuro about getting HSCT. However, the only thing that's been keeping me somewhat sane during the past two years are my three cats. Does anyone know for how long I'd have to isol...

2

@gates1989

26 Feb 2022 08:22Last reply 26 Feb 2022 10:43

Have you recently received HSCT?

Hey everyone, I was hoping I could speak with someone who has recently received HSCT. I am being put forward for it but have some questions! If you have had it recently, and you can reach out to me, I’d be incredibly grateful! Thank you 💜

1

@nobodyin

1 Dec 2021 14:49Last reply 30 Jan 2022 21:33

HSCT and PPMS

Does anyone on here have experience of HSCT in a case of PPMS. I have PPMS, diagnosed in 2018, and have so far received 4 Ocrevus infusions. My disability and discomfort have worsened considerably of late and am thinking of any options available to help me. HSCT costs £40,000 in Mexico, about my ret...

13

@nobodyin

1 Jan 2022 15:57Last reply 2 Jan 2022 00:40

Regarding HSCT

Have realised two things. First I can't get my residual share of the house in London until 2028. Secondly why on earth did I not use the monies I did get from it to go to Mexico for HSCT to stop the rot in 2018. I believed erroniously from literature I'd read that PPMS wouldn't be helped by HSCT. I...

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