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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Topics

  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
  • Plegridy
  • Rebif
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  • Tysabri
  • Unlicensed
  • Which DMT
  • HSCT
  • Browse all
Found 174 results

@MiloBear

Last reply

MiloBear

HSCT?

I've recently got diagnosed with RRMS and I've stumbled across some information about HSCT. I was wondering if there any people here who have had the treatment, their experience with it and if you'd recommend it. I'm considering asking my specialist about it, I'm interested in the treatment if it's ...
Wales, UK
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Which DMT
  • Lemtrada
  • Work and play
2

@andrewm

Last reply

andrewm

HSCT

Hi guys, I've just been diagnosed with RRMS last week after previously having a clinically isolated syndrome about a year prior. I feel I've got off pretty lightly so far (numb left foot and pins and needles in my fingers) but I've been reading up on treatments etc. The MS nurse is currently recom...
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Numbness
  • Symptoms
  • Which DMT
  • Tecfidera
  • Betaferon
  • Rebif
13

@Kizzey65

Last reply

Kizzey65

HSCT

Just an update in 2017 I had a stem cell transplant at Hammersmith hospital in London, after a resent consultation with my neurologist and MRI scan there are no new lesions to be seen. Seems to be doing the job fingers crossed it will stay like that.
  • MRI
  • Diagnosis
  • Work and Study
  • Work and play
  • Treatment
  • Unlicensed
  • Symptoms
1

@Magdoni

Last reply

Magdoni

Hsct

Hey all, Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani. I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada) Once he’d assessed...
  • Treatment
  • Research
  • Symptoms
  • Relapses
  • Diagnosis
  • Work and play
  • Family and children
19

@oldmanjenks

Last reply

oldmanjenks

HSCT

My birthday wish has come true, I should be having HSCT this year!! although it is over the Christmas period, I am still so grateful to be having it. LETS GOOOO
Sutton, United Kingdom
  • Diagnosis
  • Symptoms
  • Family and children
  • Treatment
6

@lindhsie

Last reply

lindhsie

HSCT

Hi! I’m I’m Lindah from Sweden. I’m new here so haven’t really figured out what this is all about.
  • Diagnosis
  • Treatment
  • Symptoms
2

@Donnaflack

Donnaflack

HSCT

Hi, new to this site so reading lots but keen to know if anyone has received this treatment. Been diagnosed 20+ yrs so a long story here, I’ll try and cut it short. Failed the new drug plegridy, then on tysabri for 5 yrs, loved this drug but failed it when my blood test came back high risk JC virus ...
  • Treatment
  • Diagnosis
  • Ocrevus
  • Newly diagnosed
  • Tysabri
  • Which DMT
  • Secondary progressive
  • Relapsing remitting
  • Lemtrada
  • Plegridy

@Scosta

Last reply

Scosta

Hsct

Hello just wondering if anyone had hsct and what your experience was like
  • Diagnosis
  • Symptoms
  • Treatment
3

@oldmanjenks

Last reply

oldmanjenks

HSCT

Hi, I hope you are well, I could potentially be allowed to have HSCT on the NHS and I am wondering if you have had it or know anyone who has had stem cell transplant? I would love to hear your experience on it :-) Cheers, CJ
Sutton, UK
  • Treatment
  • Stem cells
  • Symptoms
  • Research
  • Diagnosis
  • Unlicensed
4

@wildthing

Last reply

wildthing

HSCT

I've just had hsct (stem cell therapy) to try and halt the progression of my secondary progressive MS. I've been at home recovering for nearly 2 weeks now, mostly concentrating on the physio exercises I was given and trying to retrain my bladder after the onslaught known as chemotherapy. It was qui...
  • Symptoms
  • Secondary progressive
  • Steroids
  • Diagnosis
  • Bladder and bowel
  • Stem cells
  • Research
  • Treatment
11

@Ron_S_Perrin

Last reply

Ron_S_Perrin

HSCT

Are there any ms’rs on here that have had the hsct treatment? I’m planning to get it done. I want to hear some suggestions, do’s and dont’s. Etc. Was it a success for you? What is your life like now? What was it like before? Is it worth the money?
  • Work and play
  • Money
7

@raztafa

Last reply

raztafa

HSCT!

Heyyy! Has anyone been through or is thinking about stem cell therapy? I myself will be having it done, and just wanted to talk :)
  • Research
  • Stem cells
1

@paulmorrison

Last reply

paulmorrison

HSCT

Hi everyone. Not been on here for a while, I have been busy raising money, obtaining visas for my hsct in Moscow. Unbelievably I have raised over forty grand in two months! Not bad for a 46 year old man that lives in rural southern Spain and hasn't spent his years being a people pleaser. Any way the...
  • Treatment
  • Work and play
  • Money
8

@paulmorrison

Last reply

paulmorrison

HSCT

Hi everybody. Looking into hsct, I won't get this on the nhs as I don't fit the criteria as I am only on first line dmt even though I have had ms for fifteen years. Does any body know of a reputable clinic that offer this privately? Thanks Paul
  • Healthy living
  • Exercise
  • Treatment
  • Which DMT
3

@Cruella

Last reply

Cruella

HSCT

Hello, is there anyone out there who has had this treatment? I'm contemplating on having this procedure. CD
  • Treatment
2

@HarryS

Last reply

HarryS

HSCT

Hi. I am a 2 on the EDSS disability scale. I am being tested for consideration for this aggressive treatment. i want to know what you all think about it. Should i go for it or are the side effects to risky? Does it work to keep me walking for a bit longer?
  • Healthy living
  • Exercise
  • Treatment
  • Work and play
16

@Frankenstein

Last reply

Frankenstein

HSCT

Hello, I was wondering where I can find a good source of debate/arguments for pro-HSCT and those against? Maybe here is a good place? What are your thoughts on the topic? Does it worth a try or not? Should we wait more, for those who can, until the treatment protocols become safer? Thank you, and h...
  • Treatment
2

@Abhishiv90

Last reply

Abhishiv90

HSCT?

Hi peeps. So I was going through the news today and noticed that stem cell transplant therapy for multiple sclerosis started in my country yesterday. I really don't know anything too deeply about this treatment, so I was wondering if anyone here has any direct /indirect connection to it and did you ...
  • Treatment
9

@Ankitkukreja

Last reply

Ankitkukreja

HSCT

Frnd whats your say on Hsct, is the risk worthy, kindly help
4

@andrewm

Last reply

andrewm

Recently diagnosed with RRMS, decided to go straight for HSCT

So just sharing my story as it might be helpful for other folk in a similar position. About (roughly) 2 years ago I noticed my feet and left leg started feeling a bit numb and also had a strange sensation around my waist (which I'd later learn is an MS Hug) - felt a bit like wearing boxer shorts th...
Scotland, UK
  • Which DMT
  • Treatment
  • Symptoms
  • Numbness
  • Healthy living
  • Exercise
  • Diagnosis
  • Newly diagnosed
  • Relapses
  • Tysabri
2
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