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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@oldmanjenks 

Last reply

oldmanjenks

HSCT

My birthday wish has come true, I should be having HSCT this year!! although it is over the Christmas period, I am still so grateful to be having it. LETS GOOOO
Sutton, United Kingdom
  • Diagnosis
  • Symptoms
  • Family and children
  • Treatment
15

@MiloBear 

Last reply

MiloBear

HSCT

I've recently started ocrelizumab, I had a MRI a couple of months after and I had two new lesions. When I received my letter about it they stated it was probably from before my treatment. I'm not convinced, I'm sure I had a relapse afterwards. I have an appointment with my nurse next month and I'm t...
Bridgend, United Kingdom
  • Treatment
  • MRI
  • Diagnosis
  • Relapses
  • Symptoms
  • Which DMT
  • Ocrevus
  • Lemtrada
6

@Mmwint 

Last reply

Mmwint

HSCT

Has anyone had HSCT and feel like it didn't work or do anything for you, I'm struggling; the Chemo took my hair and my taste so in my head I'm yelling WTF
  • Work and play
  • Symptoms
First posted on the Shift.ms app
3

@Kizzey65 

Last reply

Kizzey65

HSCT

Just an update in 2017 I had a stem cell transplant at Hammersmith hospital in London, after a resent consultation with my neurologist and MRI scan there are no new lesions to be seen. Seems to be doing the job fingers crossed it will stay like that.
  • MRI
  • Diagnosis
  • Work and Study
  • Work and play
  • Treatment
  • Unlicensed
  • Symptoms
3

@MiloBear 

Last reply

MiloBear

HSCT?

I've recently got diagnosed with RRMS and I've stumbled across some information about HSCT. I was wondering if there any people here who have had the treatment, their experience with it and if you'd recommend it. I'm considering asking my specialist about it, I'm interested in the treatment if it's ...
Wales, UK
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Which DMT
  • Lemtrada
  • Work and play
10

@lindhsie 

Last reply

lindhsie

HSCT

Hi! I’m I’m Lindah from Sweden. I’m new here so haven’t really figured out what this is all about.
  • Diagnosis
  • Treatment
  • Symptoms
4

@M_S_Positive 

Last reply

M_S_Positive

HSCT

Hi Everyone. I'm from the US looking into the cost of HSCT in different countries. How much does it cost in England?
10

@Magda 

Magda

HSCT

Year post!!good news no new lessons and old one get smaller!Hard year….but monster it’s holds for now!!!!

@andrewm 

Last reply

andrewm

HSCT

Hi guys, I've just been diagnosed with RRMS last week after previously having a clinically isolated syndrome about a year prior. I feel I've got off pretty lightly so far (numb left foot and pins and needles in my fingers) but I've been reading up on treatments etc. The MS nurse is currently recom...
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Numbness
  • Symptoms
  • Which DMT
  • Tecfidera
  • Betaferon
  • Rebif
13

@Magdoni 

Last reply

Magdoni

Hsct

Hey all, Massive gratitude to the NHS and the wonderful Neurologist Prof. Gavin Giovannani. I experienced a particularly bad relapse of my MS in early September and was called into the Royal London for a consultation with Mr Giovannani the following day. (Last drug was Lematrada) Once he’d assessed...
  • Treatment
  • Research
  • Symptoms
  • Relapses
  • Diagnosis
  • Work and play
  • Family and children
19
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