I was initially diagnosed with very active RRMS in 2018. I was given an EDSS of 4.5. As I understand it, I am unlikely to recover any disability sustained over the 17 years since CIS in ‘01. I then had a different neurologist, and as if by magic, my EDSS has now dropped to 3.5. Excellent news, right...

Just curious, how old are y'all when you were first diagnosed???

Hi all, Long time since I've been here! So, my recent MRI is showing new activity and it's been suggested that I look into new treatment options. My Neurologist suggested Mavenclad which until recently I knew very little about as it wasn't around when I did all my research the first time (where ha...

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Alright lads (and legends), Quick one… thought I’d take it easy the other day… next minute I’m basically trying to escape Heathrow on a treadmill 😅✈️ So here’s the crack: 6 minutes. Treadmill. How many metres can you cover? That’s it. No overthinking, no fancy rules. Just hit start and survive....

Is anyone else suffering from weak bladder do to your Ms ? if yes , what is it that you do so you won't smell like pee?

both of my test came back with demyelinating process such as multiple sclerosis. they other one is chronic small vessel ischemia, or an inflammatory/demyelinating process. Dr wants to see me asap.. Is there anything I should be asking her