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MS, You Haven’t Had the Last Laugh 💚

Having MS doesn’t give any of us a free pass to be horrible to everyone. Life is hard enough without spreading bitterness around. I’ve been very fortunate to speak to so many talented MSers—a lawyer, a nurse, a chemist, and people from all walks of life. Some have fewer physical limitations; others...

@lindina 

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lindina

Looking for MS doctor and neuro-physiotherapist in London

I can barely walk after first dose of Mavenclad and it lasts for 7+months. Do you recommend any experienced neurological physiotherapist and neurologist/MS experienced doctor? With my doctor, we’re looking for “second opinion”.

@jessicajane 

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jessicajane

Struggling to decide on what treatment to choose.

I’m really struggling to decide which treatment to go with. Honestly, I have no idea where to start! My neurologist recommended four different options, but I’ve narrowed it down to two that I’m leaning towards: Ocrevus or Kesimpta. For those of you who have been on either (or have tried both), whic...

Using my phone less has helped

I bought a watch recently because every time I was looking at my phone to tell the time it would lead to more screen time. I’ve noticed my right hand tingles and fatigues a lot less since picking up the phone less. My average screen time a day is around 2 hours now where it used to be 4 hours. The ...

@pearhouse 

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pearhouse

Is everyone offered a DMT?

Hi all, I’m in England (I know other countries it seems to work a little differently, that’s what I’ve picked up on this app anyway) I’m curious to know your thoughts. I received a letter today from my MS nurse that states my bloods were done in preparation for ‘potential treatment’ does this mean ...

@Mondaygirl22 

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Mondaygirl22

My mind

What mind wants me to do and eat and what my body wants me to do are two different things. I try to listen to my body because that’s where all the pain is more than my mind, but it is a struggle some days for sure.MS is a horrible disease!!!

@paulwilliam7 

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paulwilliam7

I'm struggling to decide which treatment to choose. My neurologist has given me a few options, but I'm leaning towards Ocrevus or Kesimpta.

If you've tried either, which did you choose and why? How have the side effects been, and have you noticed an improvement? Would you recommend it? I'd really appreciate hearing your experiences. ❤️

DMT’s.

What’s everyone’s thought on DMT’s. My neurologist has suggested a few. From being tablet form to self injections. He also said about Cladribine

@well well well 

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well well well

Moving Your Head

Hi folks. Do you deal with a dizzy feeling specifically when you move your head too far back or too fast from side to side and up / down? I’ve had some disabling dizziness and vertigo in the past and it’s acting up after a few years off. I’m looking for strategies others have used to lessen the p...