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@KetaQueen610 

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KetaQueen610

When it rains...

When it rains sporadically does anyone else start to have muscles spasms? I'm talking like when the rain goes from 1 to 100 in like 2 seconds if that makes sense.

@laurenlucyjane 

EditedLast reply

laurenlucyjane

Ocrevus subcut vs infusion etc

Hi all, I’ve been on Ocrevus for almost 6 years now, it’s been great fir my disease progression etc. However my last treatment about 5 months ago, I received the subcut instead of infusion. And tbh I’ve feel like I’ve just never bounced back from the pre treatment crap gap. I wanted to go back on t...

@St1gzy 

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St1gzy

🐝 Right, I’m going to kick the fucking beehive with this one…

MS, meat, dairy and restrictive diets. What’s your 10p? I’ve been thinking about how many of us get diagnosed with MS and suddenly food starts disappearing from the menu. Meat goes. Dairy goes. Gluten gets escorted from the building. 😂 There is some interesting MS data around this. One Australian...

@Julnarlia 

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Julnarlia

bladder

Hello I wanted to ask you about bladder problems? Does anyone has any? And could you share it?

@ashia2013 

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ashia2013

Family History/Genetics

Just wondering how many of you have a family history of Multiple Sclerosis like we do in my family. My big sister was first diagnosed with MS, then myself in 2011, followed by my big brother in 2021. Sadly we all watched the disease take my Mum in 2023 which was utterly terrifying. My twin has Lupus...

@Ice 

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Ice

Walker/wheelchair

I have been using an upright walker for the past 10 years. I am now at that stage in my progression where i dont feel as stable as i used to. A good friend of mine's step father just passed away and he gave me his step fathers powered wheelchair. It was basically brand new. His step father hadnt eve...

@SSendling 

EditedLast reply

SSendling

Kesimpta

Hi everyone! Just a quick question, any of you felt like your syptoms got worse after starting treatment? Or is it just me? Since I started my treatments back in June I’ve developed foot drop and my legs seem to never stop aching now. Just curious if anyone else has dealt with anything like this. Ho...
Kingwood, United States

@paddymac999 

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paddymac999

Disheartening

I have PPMS and my physio tells me that its all the same how much I exercise. My disability will not improve one bit. I really hope that she is wrong