I was telling someone about my MS diagnosis, saying that it has been lifechanging for me. Briefly listed up some symptoms eg weakness in legs, poor balance, fatigue. Her comment: I have exactly the same, it comes with menopause and ageing, we all have to go through it. Anyone recognises this? And w...

Does anyone take probiotics? After my steroid and 1st briumvi infusion I am feeling drained, constipated and bloated +++. Ive ordered a month's worth of probiotic drinks to see if it helps because I am so uncomfortable in my skin right now!

Hey! I am struggling with my neurologist team. Ive been chasing my mri results for my 6 month check in since 1st march but getting nowhere! Also my ms nurse said i need my 6 months bloods etc but doesn’t book me on yet my mum called up n got one for next week!! I am loosing my patience.. surely it ...

I was diagnosed and started Kesimpta a little Over 3 years ago. When I was diagnosed I was still driving still traveling still working. The DMT is supposed to help and slow things down a bit I guess? However in just 3 years I no longer drive no longer travel no longer work I am damn near homebound. ...

Hi, long time no post. So much has happened since my last post but I’m here because of a recent diagnosis. Periodontal disease 🙄 has anyone taking Ocrevus been diagnosed with this dental disease? I think there’s a link. I won’t stop Ocrevus if so but man…

Cold plunges have been an absolute lifesaver in this UK heatwave. They cool your core down fast and can leave you feeling refreshed for a while afterwards. Just don't go full polar bear and freeze your nuts off. 😅 A few minutes is plenty. Cool enough to beat the heat, not audition for a frozen fish...

How do I ask for reasonable adjustments at work? As the time has passed I think I am getting worse than I was before. So I feel the need to ask for some adjustments at work. (I was working for the same place before I was diagnosed) I work in a bakery shop and I work as a cook. I don’t really know ho...

Has anyone here added palliative care to their team for helping with stress and symptom management? I have an outstanding neurologist. My PCP is great. I have good mental health support. But I am navigating some anemia and nutrition issues (about to start with a hematologist and a nutritionist) and ...