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@Eylem7990 

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Eylem7990

Diagnostic

What age did you get diagnosed with MS. I was 30 and you?

@LadyButterfly 

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LadyButterfly

How is Ocrevus working for you?

I finally decided to start Ocrevus. A start date is TBD. I am aware of the blood work I need to give prior to starting this infusion. I understand day one is filled with observation after the infusion is given. I’m just curious how it went for others in the beginning? Side effects? I pray it’ll be...

New diagnosis 22 year old

Hey I hope you all are doing ok , I was recently diagnosed just 2 days ago with MS . I am having this constant headache and also diziness . I am unsure what to do and I live by myself. Is there any tips or advices or something I should be mindful about. Also would like to understand what changes wer...
Oxford, United Kingdom

@bexyorks 

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bexyorks

EHS

I'm wondering if anyone else has experienced EHS / Exploding Head Syndrome (very appropriate name!) Since I had the relapse that led to my diagnosis in 2023, whenever I get very stressed, I experience this condition and it's when I'm falling asleep and it sounds like an explosion or someone loudly b...

@Laur3n89 

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Laur3n89

Anyone have crohns/ colitis as well as MS?

I got diagnosed with ulcerative colitis in 2019, after years of battling with flares it’s now managed well with an injection for Ustekinumab. I’ve been in remission for over a year with little symptoms. I then got diagnosed with MS in September last year and have been told there are limited DMTs av...

@Angie03 

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Angie03

Capibilty Meeting…

Hey.. Im panicking a little!! I have a capibilty meeting regarding my sickness next week… i am my final warning 🙈🙈🙈. Reason for my absent since my last meeting with work… First one: allergic reaction to new medication 2nd:was in hospital for days with a flare up. ( before i got diagnosed) 3...

@applejacks 

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applejacks

MS or getting old!?

So yesterday I went to Disneyland. The weather was perfect. On the chilly side, but the sun was out so it was nice. After 4 rides, I felt hella nauseous. I felt hot. I felt like I couldn’t breathe. It was weird. Relaxed a little. Ate. Drank. Went on one more ride & I was physically done. I usually c...

First flight after Ocrevus

First flights today after my initial Ocrevus injection. Masks and desinfection spray in my pocket. 🛵😎