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@colejbaker 

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colejbaker

Age

Just curious how old yall are. I’m 32 and was diagnosed just before turning 32.

@david95004 

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david95004

is anyone else the only one in their family with MS

wondering if anyone else in the only one? curious to hear from you guys. only just joined!

@justlikeyandi 

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justlikeyandi

#1 Dreaded Comment

“But you don’t look like you have MS!” How many people get tired of hearing this?

@jackieo66 

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jackieo66

Down Day

Do you ever have a day that just feels sad like remembering all the things you could’ve done differently knowing you can’t change anything but you just cry? Well I’m having one of those days not feeling sorry for myself but some decisions were made because I couldn’t keep going and I needed a break....

@NTKhasMS 

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NTKhasMS

“Seizures Aren’t Always Visible”

Not all seizures look the same. Mine can start with sudden déjà vu.Then sounds, lights, and smells become overwhelming.My ears ring, I get dizzy, and feel disconnected from my body. Sometimes my lips or tongue move on their own, and it can lead to shaking. Afterward, I’m exhausted, foggy, and som...

any useful MS apps?

hey guys, wondering if there are any useful apps for managing MS? i have tried bearable and human but found them pretty difficult. my friend told me about juno and guava but i haven't tried them yet

@Justme2012 

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Justme2012

Tips

Hey!! This has probably been discussed before but I wanted to bring it up since it’s Spring and Summer will be coming soon. What are your tips/suggestions/ go to items for helping you beat the heat??

@courtney1196 

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courtney1196

Kesimpta

Hey everyone. I started kesimpta yesterday for the first time after being diagnosed in September 2025. After 4 hours I kept fainted, was dizzy and sick and ended up getting taken into hospital in an ambulance. Has anyone else experienced this ?

@jennybarbiems 

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jennybarbiems

Spinal Tap?

My friend is trying to get a diagnosis and the doctor wants to give him a spinal tap. I asked my ChatGPT about it, and it’s not used a lot for people anymore if it is saying it’s it’s the the last resort if they don’t have any other complications happening to having a spinal tap.
Chicago, United States

@momokovo 

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momokovo

Just having a tough day today.

Hey all, Today is not the best, my hands have been such a barrier for alot of things lately especially with work or when I want to just lay down and scroll on Tik Tok or even just text my family. Do you all ever get hand pain? It's like a weird pain, but when i am texting or touching SOMETHING s...