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@rooneyleoni 

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rooneyleoni

Checking in on my fellow chronic illness warriors tonight.

How is your body feeling as we wind down? Drop a emoji in the comments that matches your current vibe, whether it's 🛋️, 🔋, or 🌧️. No pressure to be okay.

@Trevor 

Last reply

Trevor

Be your own advocate !!

I had HSCT for Multiple Sclerosis here in the UK. I was discharged from Hospital 11 years ago this Christmas. I have been in remission ever since, despite the MS Society UK telling me among others ‘not to do it, because the treatment was dangerous.’ Their actual words to me were ‘Don’t do it, it’s d...

@Beans9985 

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Beans9985

What is ms?

I was diagnose November 2025. At the age of 40. I think I’m still in shock. Sometimes i get the feeling that everything is ms but i also know it can’t be.

@Beans9985 

Last reply

Beans9985

Engery

What do you guys do to keep your engery up?
Breinigsville, United States

@LeonidS 

EditedLast reply

LeonidS

Has anyone with similar circumstances tried Fampridine (Fampyra)?

Hi everyone, I would really appreciate hearing from anyone in this group who has experience with Fampridine 10 mg, particularly those who have obtained it privately. I have been living with MS for approximately 12 and a half years and currently have an EDSS score of 6.5. Interestingly, although ...

Wellbutrin for energy

My doctor had me on Wellbutrin 15mg XL for a month and he said it would help with stimulation and energy. He had me increase to 300mg XL and I’ve been having the worst headache

Sleep Apena

I did a sleep study back in May, I got my results and was diagnosed with Obstructive Sleep Apnea ( mild ). It was a lot to adjust to with having a sleep apnea machine, and needing to wear a CPAP mask. It took a couple tries to find the right CPAP mask. I got one where the tubing connection is on th...

@SherryCLE01 

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SherryCLE01

One little thing

What’s one little thing you do for yourself to find a bit of joy while managing MS? For me, it’s watching a funny movie or comedy special — laughing always lifts my spirits. I’d love to hear about your little joys.
South Euclid, United States

@sleepyalex 

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sleepyalex

Struggling to adjust to diagnosis

Is anyone else struggling to adjust (or did struggle) to their diagnosis? I was diagnosed with RRMS back in March of this year and I’m feeling low about it all, especially now I’m having to start to use a stick and my right leg is getting worse. I’m having to think of things like grab rails around...