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@josielouisemat 

Last reply

josielouisemat

Help deciding which DMT

Hello! I am new here. I got diagnosed with MS two days ago and just taking it all in. It’s very overwhelming and emotional. I am in the process of learning everything I can about this disease as 3 months ago (before my first symptoms/flare) I didn’t even know what MS was really! I have been given ...
First posted on the Shift.ms app
4

@Marcovio 

Last reply

Marcovio

Tightening muscles

Well, today out of nowhere, my forearms started to feel Tightening like a cramp or Charlie horse. But then goes away. It’s starts on and off. Hopefully some medication will help.
First posted on the Shift.ms app
3

@Azqz 

EditedLast reply

Azqz

Pain

Hi Everyone, So i know Everyone's MS is different on Everyone. I was wondering does anyone have more severe pain on 1 leg. I started getting pain on my right leg by my groin. I have gotten an Mri and they say its inflammation. But I have the problem when I try to step my leg wants to give out and im...
First posted on the Shift.ms app
4

@nkinley 

Last reply

nkinley

I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

First posted on the Shift.ms app
5

@mrwarlockdark 

Last reply

mrwarlockdark

Life sucks atm

Just when you thought it was safe to go back in the water I'm having a massive Ms attack and it's really screwing with my autonomic dysfunction as well had to do the 111 thing and they've got a doctor coming out and apparently an ambulance as well at some point but then again I should have gone a fe...
First posted on the Shift.ms app
1

@SarahLaine 

Last reply

SarahLaine

Newly diagnosed, what am I in for?

Just diagnosed in the last week or so (36yo first and only known symptoms Dec 25). I’m feeling OK about it because Drs have basically said “with DMTs symptoms will be minimal” so by all accounts not expecting much to change. Without putting the fear of god in me 😂, how accurate is that? Just wonder...
First posted on the Shift.ms app
60

@kaylouise 

Edited

kaylouise

PIP assessment last week

Good morning all, I had my pip assessment on Thursday it was around an hour long over the telephone - the assessor then called me back a few hours later and told me she had spoken with her manager and my case is quite complex and that they wanted to get it right for me - I’m guessing complex becaus...
First posted on the Shift.ms app

@littleladybug1 

Last reply

littleladybug1

Looking to start Ocrevus soon. What is your experience?

My neurologist is looking to start me on Ocrevus soon. I was diagnosed with MS about six weeks ago. Today my neurologist and I discussed what DMT I am going to start. She wants me to start on Ocrevus IV infusion depending on approval from insurance which hopefully will happen within the next two wee...
First posted on the Shift.ms app
14

@Tcowart21 

Last reply

Tcowart21

No medicine

I have stop the zepoisa to treat the ms because my insurance wants 500 dollars for. That was 2 months ago. I have noticed some things happening. Now I’m worried
First posted on the Shift.ms app
11