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@shiftms-polls 

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shiftms-polls

Poll 📊 Did your HCP mention progression at diagnosis?

Last month we reached out with an opinion check and asked you if healthcare professionals should discuss progression at diagnosis. While 17% of you said you’d prefer to be told later on, around 75% said yes, you would prefer to be told about progression at diagnosis. In the second of our progressi...

Are HCPs talking about progression at diagnosis?

Total answers: 187

@Kristenp 

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Kristenp

Ocrevus

Hello, I will be starting Ocrevus next week. I was previously on Tysabri but tested positive for JCV. I’m pretty nervous now. My neurologist said this is safer, but I know there is still a possibility for PML. Anyone have a similar experience?

@samanthad 

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samanthad

Wrote a poem about diagnosis, what do you think?

STILL ME by Samantha Derry Yes, yes, I’ve been diagnosed with MS, But I am still me, I must impress. Still the same person I have always been, My spirit, my soul, want to be seen. Please don’t look at me with pity, and don’t be sad, Yes, life will be different now, but it’s not all that bad. Othe...

@StacyJG 

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StacyJG

Itching

Does anybody deal with itching? I mean like all over from head to toe. Sometimes I actually get hives in a rash other times. There is nothing you can see. I was originally diagnosed with MCAS but I’m wondering if it’s MS related. I take hydroxyzine and I’m also on ketotifen, but sometimes neither o...

@samanthad 

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samanthad

Just diagnosed yesterday, what to expect?

Hi, I got told by Neurologist yesterday I have MS. I’m feeling a bit lost and confused and worried about how different my life will look now I have this condition. I’d be grateful to know if there are any things people wish they knew when they were first diagnosed that may help? I’ve just finish...

Home eeg

Well get my 3 days of being hooked up and watched today lol doing a at home eeg where they study my brain and have 2 cameras to watch me to see wtf I was doing when they got spikes in brain activity

@ecnerolf 

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ecnerolf

Wetsuit

Anyone feel like they are wearing a cold wetsuit all day long, maybe a couple of sizes too small?

@anthonyenglish 

EditedLast reply

anthonyenglish

Who all is on Ocrevus Zunovo?

I'm starting it soon and I'm really worried and scared because I don't know what to expect. I'm really not good with medication so I'm kind of freaking out.

@JayJay10 

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JayJay10

Coffee is a good friend

Whether it helps MS or not, I’d always have some as my body craves it. ☕️