If you could go back in time, what is one piece of advice you would give yourself when you first got your MS diagnosis?

Struggling a lot recently with lonliness, it’s not the same talking to people online, there’s no connection that feels enough to fill that space of really having someone there for you. Not sure where to go or who to turn to and i struggle to make friends as is without the added no energy and other M...

Had a physio appointment today at my hospital in central London so obviously I asked about Fampridine. Here are a few things which may be relevant for other people in England: - Yes everyone is asking for it! - As it’s just gone off patent it will be the generic version and will take a while for pr...

I’ve been on Kesimpta for almost 4 years and its been spot on for me as a DMT. Last year I got diagnosed with microscopic colitis and during a recent flare of that I had a pseudo relapse of MS. My consultant is thinking to take me off Kesimpta and I’m feeling a bit apprehensive about what the altern...

Hey. I am working with a practioner who suggested making friends with other MSers with either bowel or bladder urgencies (I seem to have both). Sharing stories. Normalise the topic. Understanding each other. And so on. Anyone?

Just trying to renew my passport, filled out the form and sent it off. But now I’m questioning myself whether I did it right or not. I was so stressed and anxious at the time I forgot to get my partner to double check everything. Now I’m worried it’s all gone wrong…everything’s a bit off a blur. 😭�...

I don't know who needs to hear this but the National MS Society in the US is absolute garbage! If I could share pics, I'd show the proof !! Over two years ago I was banned from the NMSS Facebook group over RELIGION*! When I talked to the group administrator, he spoke to me very disrespectfully, ref...

Right… I went out last night n got chatting to a guy.. exchanged numbers etc. We have spoken all day n just facetimed.. He then asked questions etc about why dates having been going well n i just said things have changed for me etc n he oh what isit etc… i said i would tell him when the times right ...

How is everyone coping with a non existent energy level? I think I have either had or am having a relapse and its absolutely killing me. I have pain in my legs and back and my walking is completely destroyed. Ive been so independent for the last 8 years since diagnosis that im really struggling to c...