I'm extremely frustrated with my neurologist rn. I went to orthopedic to have pain in my arm checked out. They did an MRI and said there was nothing they could do for the pain it seems to be MS related but I could follow up next month and have a look at my shoulder to see if they could maybe help wi...

I know it’s a thing when once you buy a car you start to see it everywhere. That’s what I’ve been seeing with MS. After being diagnosed with MS I’ve started to see it every show/movie. I know it happens but it’s still weird seeing it everywhere. Anyone else feel the same?

Even ice packs are turning into heat packs 🔥

I was thinking about my journey today because I met a friend who is in the process of hunting for a diagnosis. She had been mentioning symptoms that I ignored in myself in my earlier days. It dawned on me how those of us who’ve had this things for time, and in my case 10 years, speaking up to tell o...

Feeling a little stuck, I work in a coffee shop and I have my own pottery business, I feel ground down from both and my fatigue isn’t going away. I don’t know how to help balance things. With self employment if it’s not you doing it it won’t get done, the money won’t come in, the cafe is busy someti...

So during the heatwave it's a bit weird but I can sense how hot it is outside and comparing to how cool inside and it's setting my tingles off. Anyone else experiencing this?

So 2day I saw my neurologist to talk about using new treatment for my MS but it was extremely annoying. It seemed like he didn't want 2 talk 2 me about trying anything new. FYI: I HAVE BEEN ON MY LAST TREATMENT PLAN FOR 10 YEARS. It felt like he was preoccupied wit other things and he just wanted me...

I start briumvi today. Nervous!! What do i need to expect? Gimme the good, bad and ugly!