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@MSLIFESUCK 

Edited

MSLIFESUCK

OVER LOOKED!

Current MS wearables often focus on tracking steps, gait, activity, symptom data, monitoring. NeuroPulse’s vision is intervention → helping the person in the moment with things like stiffness, muscle activation, fatigue, and mobility challenges. That’s a big difference: “Don’t just tell me...

@Jack123 

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Jack123

Crap gap

Hi everyone. Im starting to feel very fatigued lately and im getting my next infusion in September. Any tips or tricks on how to deal with the crap gap?

@tusagni 

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tusagni

Wearable tracker use

Who wears a tracker for things like fatigue and such? Visible? Apple Watch app? Hume? Garmin? Fitbit? What device and programs work best for MS? I’m so sick of listening to the Visibie commercial and knowing it costs a stupid amount a month subscription but it sound super cool for chronic illness sp...

@bless1karl 

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bless1karl

Going on a date...

Should I tell her I have this disease?...it is the least most interesting thing about me...

@arzusko 

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arzusko

anyone using a sensor

Hi shiftms fairies🧚🏻‍♀️ I’m an Electrical Engineering student, and I’ve been diving deep into how sensor technology can help with MS symptoms like balance or walking issues. I’m really curious about what’s happening in the real world outside of my textbooks. If you use any wearables (smartwatches,...

Wearables and MS: The Tiny Coach That Lives on Your Wrist

Twenty years ago your doctor asked, "How are you feeling?" Now your watch answers before you do. 😂 Wearable devices aren't a cure for MS, but they're brilliant for spotting patterns. Fatigue, poor sleep, stress, low activity... sometimes your watch notices you're having "one of those days" before...

@Purps 

EditedLast reply

Purps

Navigating the NHS

I got and MRI last October, after 4 years of my opthalmologist pushing for one. Then saw a non-specialist neurologist in June who said my demyelination was most likely due to MS. And now I'm just waiting for a referral on to another MRI and specialist MS neurologist. How long did everyone else hav...

@Donnalew 

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Donnalew

Swimming

Been swimming for the first time tonight since my really bad flare up in March and my diagnosis in July and I used to do between 30 and 50 lengths but could only manage 4 lengths and I'm exhausted