@username
Please wait...
For a better experience get the Shift.ms app
Sort by

Sick of laying in bed all day 😒😣

Hey MS family, am I the only one that gets sick and tired of laying in bed all day due to MS relapses/flares? I'm in so much, I've been crying 😭 and I just want it all to stop. I don't know how much more of this I can take. 💯 Lord please help me!! 🙏🏻✝️🫶🏻👑

@LadyButterfly 

EditedLast reply

LadyButterfly

How is Ocrevus working for you?

I finally decided to start Ocrevus. A start date is TBD. I am aware of the blood work I need to give prior to starting this infusion. I understand day one is filled with observation after the infusion is given. I’m just curious how it went for others in the beginning? Side effects? I pray it’ll be...

@Cameron1986 

Last reply

Cameron1986

Ocrevus

Hi, been on the dx journey for 8yrs, finally dx after a flare up a couple of months ago. I've been offered about 6 DMT's and am swaying towards ocrevus. I have an appointment with my MS nurse on Thursday to talk through my options some more. I have been offered both the one through the stomach injec...

@St1gzy 

Last reply

St1gzy

🎬 Right Then... I Accidentally Started an MS Podcast 😂

A little while ago I threw an idea out on here. What if there was something where people with MS could just talk honestly about what living with MS is actually like? Not doctors. Not neurologists. Not someone reading a leaflet explaining fatigue to people who've been fucking exhausted since Tues...

Product that “might” help

It’s all natural, and takes some dedication and time to get used to…but I started out on the pills 20+ years ago, and now I mix in with my Metamucil every morning! Product is from a company called Mannatech, produce recommend from their long list of products is Anmbrotose!

@crybaby_Saraxo 

Last reply

crybaby_Saraxo

Is it just me or...?

Hey guys, does anyone pee every hour on the hour or is it just me? It gets really annoying 😭

@paddymac999 

Last reply

paddymac999

Disheartening

I have PPMS and my physio tells me that its all the same how much I exercise. My disability will not improve one bit. I really hope that she is wrong

@Maria70 

EditedLast reply

Maria70

Vent Frustrated

It’s not until now….. since hubby can’t drive me to and from work that I realize how much MS has affected my legs. I’m independent I can take the train to and from work 👀 LAWWDDD… the tiredness just to go up the MTA stairs is soooooo DRAIINNINNG. Not all stations have elevators or escalators to ...

@MCt30 

Last reply

MCt30

Doctors

Hi, I live in Chafford Hindred Essex & am looking for a good MS doctor. I don’t mind NHS or private. Can anyone please suggest or advise? Thanks Maeve