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@ashaustin 

Last reply

ashaustin

Lesions

Is there anyone on here that doesn’t have any spinal lesions?
First posted on the Shift.ms app
11

@Lucibugg10 

Last reply

Lucibugg10

Hear yeee hear yeee

Hello ! I was diagnosed with ppms October 28 of 2025. I'm coming up on the 1 year. I have a great support system but it's oh so much they get. I mean I don't get myself everyday honestly. I'm here to meet friends of like minds ❤️ 💙 thank you in advance
First posted on the Shift.ms app
1

@nkinley 

Last reply

nkinley

I was diagnosed with RRMS over 10 years ago, but only recently started experiencing what seem to be flares and relapses. I’m meeting with a neuroimmunologist tomorrow and would appreciate hearing from others who have been through something similar.Was anyone initially misdiagnosed or told their MRI findings were unclear? My MRI only shows a few white matter lesions/scars, and I also have a history of Traumatic Brain Injury, which makes it difficult to know which symptoms are coming from MS versus TBI.Some of the symptoms I’m experiencing include:• Blurry vision, double vision, impaired color vision, and eye pain• Muscle weakness, stiffness, balance problems, dizziness, tremors, and difficulty walking• Numbness, tingling, heat intolerance, and possible Lhermitte’s sign• Brain fog, memory issues, concentration difficulties, depression, and mood changes• Bladder urgency and bowel issuesFor those with RRMS:Were you ever misdiagnosed before receiving a definitive MS diagnosis?Did your MRI show only a few lesions initially?What questions do you wish you had asked your neurologist early on?Which treatments have helped you most with fatigue, brain fog, mobility issues, vision problems, or relapses?Have any affordable medications or infusion therapies worked well with insurance coverage?Thank you for sharing your experiences and insights. I’m still learning how to navigate this journey and appreciate any advice.Questions I’d ask your neurologist tomorrowDo I meet the current diagnostic criteria for RRMS, or is further testing needed?Could any of my symptoms be related to my TBI, migraines, vascular changes, or another neurological condition rather than MS?Do my MRI findings show active inflammation, old lesions, or evidence of progression?Should I have MRI scans of my cervical and thoracic spine if they haven’t been done recently?Would a spinal tap (lumbar puncture) or additional testing help confirm the diagnosis?How can we tell whether what I’m experienced recently are true relapses versus symptom fluctuations?Am I a candidate for a disease-modifying therapy (DMT), and if so, which one do you recommend and why?What are the risks, benefits, and expected effectiveness of oral medications versus infusion therapies?What can be done specifically for fatigue, brain fog, pain, bladder issues, vision symptoms, and mobility problems?Given my family history, TBI history, and concern about possible CADASIL, are there additional tests you recommend?Common MS Treatments to Ask AboutDisease-modifying therapies (to reduce future relapses and new lesions) often include:Oral medicationsTecfideraVumerityAubagioMavencladInfusion therapiesOcrevusBriumviTysabriKesimpta (monthly self-injection rather than infusion)Many insurance plans cover these, and manufacturers often have copay assistance programs. Your neurologist’s office typically has staff who help obtain prior authorizations and financial assistance.One thing I’d specifically tell the neuroimmunologistBring up:Your history of MS diagnosis 10+ years agoRecent worsening symptomsHistory of TBI and cerebral contusionCognitive changes and memory issuesVision symptomsFamily history of stroke/CADASIL concernsAny heat intolerance and bladder symptomsThose details may help them determine whether there is one diagnosis explaining everything or whether multiple conditions are contributing to your symptoms.I’ll hoping tomorrow’s appointment gives me some clear answers and a concrete treatment plan. A neuroimmunologist is exactly the kind of specialist who can help sort through complicated situations like MS and my other neurological conditions.

First posted on the Shift.ms app
2

@Rocco10 

Last reply

Rocco10

MS Hug?

New to this diagnoses but have had crazy things going on for awhile. Can you have an MS hug around your waist/hips that makes it hard to sit, then hard to stand-walk? Im trying to blow it off and do a lot of stretching, but, it doesn't really relieve it, sometimes makes it worse.. TIA
First posted on the Shift.ms app
3

@applejacks 

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applejacks

Netflix recs!!

I’m scheduled for my Ocrevus infusion this coming Friday! Counting down the days for it since I’ve been not feeling the best. I did the two half doses last December, so now I’m doing my first full dose! I’m assuming it’s going to be a long ass appointment, so if you guys have any recs on what to wat...
First posted on the Shift.ms app
31

@Sanchez85 

Last reply

Sanchez85

longest you’ve gone without a flare up?

Just curious.. what is the longest you have gone without a flare up?
San Marcos, United States
First posted on the Shift.ms app
1

@pablo55 

pablo55

Tip of the tongue

I have problems coming up with words to articulate what trying to get across. Should I be concerned? I wonder if it is all in my head. Thank you everyone. Good night.
First posted on the Shift.ms app

@Lyndsaym 

Last reply

Lyndsaym

Briumvi

Has anyone had luck with briumvi infusions? If so how long/ how many until you got relief or improvement?
First posted on the Shift.ms app
1

@ChefDean 

Last reply

ChefDean

Can't believe other app is gone

The other app I used for discussing my MS is gone. BelongMS Refugee I am
First posted on the Shift.ms app
11