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@ashia2013 

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ashia2013

Family History/Genetics

Just wondering how many of you have a family history of Multiple Sclerosis like we do in my family. My big sister was first diagnosed with MS, then myself in 2011, followed by my big brother in 2021. Sadly we all watched the disease take my Mum in 2023 which was utterly terrifying. My twin has Lupus...

Changing from Kesimpta to Ocrevus, Briumvi or Mavenclad

I've been on Kesimpta for 8 or so months and really struggled with feeling 'hungover' and fatigued on and off since the big crash of the loading doses. My nurse has agreed I need to change and has asked me to consider Briumvi, Ocrevus or Mavenclad while she chats to my neuro. If anyone has any exper...

@S_777 

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S_777

Disclosure of ms

Do you tell your colleagues at work? My manager in a meeting tried to tell me she thinks I should let them know. They are a small team we're all girls. They seem nice But when I began my role I did state I wanted my diagnosis confidential. I think some of my colleagues may already know. It is awkwar...

@St1gzy 

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St1gzy

🐝 Right, I’m going to kick the fucking beehive with this one…

MS, meat, dairy and restrictive diets. What’s your 10p? I’ve been thinking about how many of us get diagnosed with MS and suddenly food starts disappearing from the menu. Meat goes. Dairy goes. Gluten gets escorted from the building. 😂 There is some interesting MS data around this. One Australian...

@KevaW 

EditedLast reply

KevaW

Flu

Did anyone get their flu shot yet?...I was told that I had to wait 1 to 2 weeks after I took my Kesimpta injection,I get my flu shot every year..but I did just get diagnosed last year in September with MS

@amydf 

Last reply

amydf

Questions on diagnosis

My regular neurologist diagnosed me with ms in August based on my MRIs, blood work and lumbar puncture. I have more than 5 bands, blood work excludes everything else and my MRIs only show a lesion in my cervical spine and lesion in my brain. There were a couple other things in my brain that were not...

@ducky 

EditedLast reply

ducky

Quick onset and progression- starting Tysabri immediately for Xmas

Hi all, In six weeks I’ve grown three more lesions in brain and spine and finally met criteria 🙄 this is all in under 6 months and it’s progressing fast. Lesions (multiple) in left and right brain along with c2+3. I’ve been told they a perm damage now? :( Symptoms are getting harder by the day. Nu...

@ilovems 

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ilovems

Drug trial anyone?

I signed up for a MS drug trial and it is turning out to be a full time job. Going back to hospital again tomorrow (every week). They need more blood and stuff. I hope it’s worth the hassle. I would probably not live to see the full benefits of the new drug but hope that volunteering my body to s...