I have been asked to speak about how MS has changed my life . From the day of my diagnosis almost 14 years ago, I made myself a promise that I would never let it define me. I was in a very responsible job and could have easily given it all up but no way. If I tell you I have run 14 marathons since d...

Hey all you good people hope you're as well as you can be. Now I've been on Tecfidera since 2021 which doesn't work anymore as new lesions have appeared on my brain and I need to know how effective Mavenclad is??

It's been a while.. on Thanksgiving night was rushed to the hospital had trouble breathing with chest pain, scans were done ended up with pneumonia and with an enlarged heart. Seen a cardiologist had a CTA scan of heart .. 2 days ago I get a call from the cardiologist telling me he found a 4.5mm no...

I used to feel bad saying no. I used to go above and beyond for others, even when I didn’t have the resources to take care of myself. Now, I don’t feel guilty, if I can’t or won’t show up to certain things, or if I need time away from constant communication. For me, that level of energy output is a ...

I wish I would've got that doctor name i felt disrespected

I was upgraded to SPMS a month or two ago. I got diagnosed with MS in 2017, but I really think I have had it for at least 30 years. This is a disease that none of us asked for and has been placed on us. I get it and understand that things could be worse. But at times I get soo PISSED OFF!! This ...