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@ody0585

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ody0585

Medication Gilenya

Soo .. let’s just say I have been drinking Gilenya for about 7 years now , the generic just came out like a couple of months ago. All of the sudden a generic came out and the pharmacy/ insurance gave me a battle to get the name brand. It was a night mare ! Anyone else have this issue :/ thank god ...

@Klynnly

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Klynnly

Plasma exchange therapy

I am wondering if anyone has done this who has MS and if so what were the benefits or complications? Please tell me everything I’m thinking of having it done.

@ody0585

ody0585

Medication Gilenya

Soo .. let’s just say I have been drinking Gilenya for about 7 years now , the generic just came out like a couple of months ago. All of the sudden a generic came out and the pharmacy/ insurance gave me a battle to get the name brand. It was a night mare ! Anyone else have this issue :/ thank god ...

@My03loves

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My03loves

Neurologist referral finally!!!

So, I finally my doc said she was referring me to a Nero!!! Im excited and nervous at the same. I want to get to the bottom of my migraines! And all the other crap! The harder I try to concentrate it's the more I feel I'm losing my mind. I just want answers, I stay to myself as much as possible, bc ...

@kittyc

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kittyc

Frustration with NHS

When I read that people are quickly getting treatment (I understand it might not feel quick to them) and I'm still waiting 8 months and 3 "severe" relapses later, I feel pretty isolated. Has anyone else had to push for treatment? How do you do this to get heard? I've had what I now know are symptoms...

@Snail-train

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Snail-train

MS Relay Race- **DON’T drop the baton**

Ok people- let’s do something mad here.. we’re going to create the BIGGEST RELAY RACE OF ALL TIME!! **The Challenge** do not drop the baton! This is a virtual relay race. You will do an exercise (any exercise) and then you’ll pass the baton by adding a comment, and so on —> GOAL- is to regi...

@Mwsurviver

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Mwsurviver

Taking a break

Hi, I'm going to take a break from here, Thank you for everything and the support, no idea when I'll return after Christmas, so Merry Christmas and Happy New year 2023, again Thank you for everything and the support, don't worry about Me, I will okay, take care 🫂

@Rebecca90

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Rebecca90

What were your symptoms pre diagnosis?

Hi, I'm not diagnosed just to start off. I've had what I think are symptoms for the past 6 years on and off. I had a CT and MRI at the beginning but normal results. I can go a few months with no symptoms at all and my last gap was nearly a year! It's now back and I just wanted to share to see if any...

@ChiMum

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ChiMum

Appointment!

Las month I had a CT scan which showed a large lump on my brain and an infection. After a week in hospital and on a drip every 8 hours, I had an MRI with and without contrast which showed lesions on my brain, neck and spine. I had many blood tests which showed that there was nothing else going on....

@vicemars

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vicemars

MRI

I’m going to have my first MRI after 1 year from my diagnosis and the beginning of the treatment. I’m so nervous 😞