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@DDuke1 

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DDuke1

I’m new here 🤣

Hey, I was just got told on Monday by my gp I have MS but not seen a neurologist or had any medication yet. I feel my symptoms are getting worse and I am freaking out a little and would appreciate any help or guidance on what I should be doing while waiting the MONTHS on my appointment? Any advice w...

@Swannie 

EditedLast reply

Swannie

Too crippled at 35

Edit: My mum is also disabled, she suffered a stroke a while ago and can no longer use her left side like “normal”. She tries to stay active and moves around. But I don’t think she understands that my illness is different. Not all illnesses/disabled people are the same. There’s also a bit of a langu...

@YogaLady 

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YogaLady

Fitness 🧡

I’m off to my normal Pilates class this morning as I haven’t been for 3 weeks lol. As been to the hotel with mum doing classes.
Braunton, United Kingdom

@St1gzy 

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St1gzy

🐝 Right, I’m going to kick the fucking beehive with this one…

MS, meat, dairy and restrictive diets. What’s your 10p? I’ve been thinking about how many of us get diagnosed with MS and suddenly food starts disappearing from the menu. Meat goes. Dairy goes. Gluten gets escorted from the building. 😂 There is some interesting MS data around this. One Australian...

Shift map

Am i correct in thinking the map is no longer working? Ive tried plotting myself on the map multiple times and cant even view anyone on the globe map that has MS?

@justmelove 

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justmelove

Menstrual related question for the ladies

Has anyone ever heard of MS causing problems with your periods? I have had an irregular cycle my entire life but since turning 30 it's... different. I've been having more urinary urgency around my cycle, but only then. It scares me because I know that's an MS symptom, too. (I have only 48 HOUR cycl...

@AlexH 

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AlexH

Weather change

Hey 👋🏼 Does anyone else find their MS symptoms get worse when the weather changes, especially when it suddenly gets cooler after a hot summer?

@Janehou 

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Janehou

Flu jab

Just need some advice had a message from drs advising me to get a flu vaccine what are peoples thoughts on this

@nwethy 

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nwethy

First loading Dose

Administered my first of 3 loading doses of Kesimpta yesterday. Anyone else take this and experience side effects afterwards? The body aches were pretty intense. What side effects did you experience or do you experience when you give yourself your shot.