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Heat

Anyone else listen to the weather forecast this morning (uk) and immediately shout ‘oh for fucks sake’ at the radio??? 😂😂

@vleonte 

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vleonte

Being thankful

Looking back at your MS story, what’s one thing are you grateful for? Me: I am grateful for my family who supports me daily in the MS struggle. I’ve had MS for more than 20 years. I am also grateful to this community where I learn from my brothers and sisters on how to best deal with this monster (...

Crappy crap gap

This is gonna be a rough one. My next infusion isn’t untill Aug but crap gap already started. Such horrible pain just rolling over in bed. Any movements causing pain kinda like the hug but instead of a squeeze I feel like the beast Eddie hall is punching me in the body.

@SamieC 

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SamieC

Olfactory Episodes

Hey, just wondering if anyone else here has Olfactory Episodes - where you smell smells that aren’t there… I smell old cigarette smoke - like Dunhill. Since being on pregabalin it’s stopped but recently had a relapse and was smelling the smell on and off for a week or so beforehand. Then 2 weeks of ...

@Dess32 

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Dess32

New meds

I'm going to see my neurologist tomorrow about using a new MS treatment. I out of no where I got advice from family about treatments and medication I should try. I've been fighting this disease since I was nineteen and now at thirty three I think my family might see me as a bother or complainer. May...

@yazmin11 

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yazmin11

The UK heatwave!

Keeping cool! What are people’s tips?

Infusion vs Injection

So I off for a beautiful day hooked up for my ocrevus infusion (in the uk) has anyone tried the injection form? How was it? Any side effects etc?

Anyone in Ireland with PPMS?

Is there anyone here in Ireland with PPMS?

@mschadk 

Last reply

mschadk

Heat

The UK is in heat hell. Anyone else struggle to sleep last night? I’m in work today and so underslept. I have an aircon unit but our apartment block is small and we all tend to stop all noise around 10pm… hosing sticking outside windows is noisy as hell!