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Drug trial anyone?

I signed up for a MS drug trial and it is turning out to be a full time job. Going back to hospital again tomorrow (every week). They need more blood and stuff. I hope it’s worth the hassle. I would probably not live to see the full benefits of the new drug but hope that volunteering my body to s...

@ADinosaur 

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ADinosaur

Issues wth intimacy

Does anyone else have issues with being intimate due to spinal lesions? When I’m having sex I can’t feel what’s going on properly and I’m struggling to enjoy it because I can’t feel it the same way. Looking for a) any tips if they exist and b) just solidarity if it’s an issue other people have

@YogaLady 

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YogaLady

Family situation

Has anyone had a time that you didn’t speak to your family or a family member for a long time!!!!? You feel like something is stopping you inside you? feels like it’s your Ms brain? I don’t get along with my Ms dad!!! Hope I’m not all alone with this one!

@KevaW 

EditedLast reply

KevaW

Flu

Did anyone get their flu shot yet?...I was told that I had to wait 1 to 2 weeks after I took my Kesimpta injection,I get my flu shot every year..but I did just get diagnosed last year in September with MS

@Heavan_angel 

EditedLast reply

Heavan_angel

Depression

As I get older while having this disability I’m starting to realize that the depression part is really in it.im waking up wanting to cry, not do anything not even wanting to talk to people about it because i already know what they gonna say like my dad he’s gonna say that’s not true or just fully di...

@les 

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les

Leg pain trying to sleep

Anyone else get leg pain whilst sleeping, I wake up every 30-40 mins and have to turn over, then it’s back in the other leg 😩 nuro doc prescribed me 200mg gabapentin for 1 each night, anyone any experience if this will help? Getting seriously run down and tired all the time

@laurenlucyjane 

EditedLast reply

laurenlucyjane

Ocrevus subcut vs infusion etc

Hi all, I’ve been on Ocrevus for almost 6 years now, it’s been great fir my disease progression etc. However my last treatment about 5 months ago, I received the subcut instead of infusion. And tbh I’ve feel like I’ve just never bounced back from the pre treatment crap gap. I wanted to go back on t...

@Ice 

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Ice

Walker/wheelchair

I have been using an upright walker for the past 10 years. I am now at that stage in my progression where i dont feel as stable as i used to. A good friend of mine's step father just passed away and he gave me his step fathers powered wheelchair. It was basically brand new. His step father hadnt eve...