Hi all! After 6 years, I’ve finally found a consultant who will prescribe Fampridine for me! I live Liverpool, UK where it is not available on the nhs so I’m paying privately! Don’t get me started on the postcode lottery of this!!!! Anyway, thankfully, other than the initial consultation fee I am ge...

My days have been quite painful since summer’s start. As a result I’m asleep soon after and the days now become nights 😅 the fun find is that I’m darn near pain free all night until the sun comes up. So freaking weird! I can tell the sun has come up by the tightening of my leg muscles as well as ...

Hey peeps, I've noticed that my symptoms increase/worsen when there are rapid or drastic changes in the atmospheric pressure. When the pressure starts rising rapidly or gets above 1025mb I feel awful. Start experiencing worse vertigo and headache. Does anyone else check the pressure and notices ...

I feel like every since my diagnosis I've been limiting myself mentally with what I can do. Prior to being diagnosed I knew something was wrong and I just kinda pushed through everything and dealt with it. Now im quicker to relax and not push myself which is good, but my problem is I've lost most of...

I’m not sure if uncaring is the title I really want for this rant/observation but I started thinking of the years since my diagnosis (2002) my family members even my grown children I don’t think any one of them has really been curious enough to read about my symptoms the things I deal with daily and...

I'm so fatigued that I have to go back to bed!! This morning I woke up, said my morning prayers and then decided I'm going to go out before the heatwave hits hard at 12pm. I'm still here fatigued knackered like a cream cracker in the sahara🤣 I have to laugh ad I have no energy to cry!! I have an ...

Just curious, how old are y'all when you were first diagnosed???

After MS Taking so much away from me (Job, independence, being able to ride motorcycles, aspects of relationships etc) I often think about what I am grateful for. Being late onset (diagnosed at age 57) I have been lucky enough to be able to see my sons grow into men. I have not been paralysed from ...

Does anyone take choline supplements and does it help with your MS