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@Trishnak 

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Trishnak

I have been set an EDSS score of 1 for years

I didn't even know what it meant, but I spoke to Swiss medica a couple of months ago regarding stem cell treatment as I limp, can't walk distance and am always dizzy when out in the "wild", wild is my word for outdoor where I watch every steps incase I fall etc, and then they told me from my letters...

@SmoothJoes 

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SmoothJoes

Up all night every night peeing

I stop drinking by 4 pm go to sleep by 10, wakes up every 2 hours sometimes every hour to go. Anybody else experience this?

@rooneyleoni 

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rooneyleoni

Can we talk about the absolute comedy of MS brain fog?

Today I walked into the kitchen, stood there staring into space for a full minute, and completely forgot why I left my room. If anyone needs me, I'll be retracing my mental steps for the next three hours. What’s the funniest thing brain fog has made you do lately? 😂

@St1gzy 

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St1gzy

Anyone else got a brain like an Etch A Sketch?

Anyone else got a brain like an Etch A Sketch? One sneeze and the whole fucking thing’s wiped clean. 😂 Walk into the kitchen. Forget why. Open the fridge anyway—maybe the answer’s next to the cheese. I’ve made a song about it: “Who Shook My Brain?” 🧠🪕 Have a listen and tell me if it sounds fam...

Unseen suffering: when defending yourself becomes a burden and you barely have the energy to speak.

Invisible illness is learning to advocate for yourself when you barely have energy to speak. ×××××××××××××××××××××××××××××××××××××××× المرض الخفي هو تعلم كيفية الدفاع عن نفسك عندما بالكاد تملك الطاقة للكلام.

@sleepyalex 

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sleepyalex

Struggling to adjust to diagnosis

Is anyone else struggling to adjust (or did struggle) to their diagnosis? I was diagnosed with RRMS back in March of this year and I’m feeling low about it all, especially now I’m having to start to use a stick and my right leg is getting worse. I’m having to think of things like grab rails around...

@Ice 

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Ice

Wrecking the house

I fall so much now a days that I am starting to tear things up trying to catch myself. My wife seems more concerned with her material things then my health. She hears a noise and asks what i broke this time. I feel bad, but there is not much I can do Do any of you guys have the same experience? And...

@rooneyleoni 

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rooneyleoni

Hey everyone. I wanted to officially step into this space and say hi.

I was diagnosed with RRMS back in August 2025, and I’m still very much figuring out what this new chapter looks like. If you're also navigating DMTs, energy pacing, or just trying to make sense of a chronic diagnosis, I see you. Glad to be here.🥰

Support group meeting?

I’m just wondering how many people would benefit from a support group of People with MS such as myself obviously were from all around the world so it would be like a zoom meeting where we can all talk and get advice and reach out to each other. I know we have this platform, but sometimes we’re miss...