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@adavison 

Last reply

adavison

Dealing with heat

My husband has MS and is really struggling with the heat. Says he feels like he’s going to be sick and can’t feel his hands properly. Does anyone else experience these symptoms? And does anyone have any advice for dealing with the heat?

Pregnancy and MS.

I’m curious about peoples experiences with pregnancy and MS. Tell me the good and the bad.

@deano 

Last reply

deano

After PIP review , i was awarded 6 more years

No phone interview , just based on the form and evidence I submitted Decision was made within 8 days of form being scanned at the DWP. Then a further 2 weeks before I knew the outcome via post. I have SPMS

@Cupcake79 

Last reply

Cupcake79

FUNNY NEW TURN 🤗😅

My days have been quite painful since summer’s start. As a result I’m asleep soon after and the days now become nights 😅 the fun find is that I’m darn near pain free all night until the sun comes up. So freaking weird! I can tell the sun has come up by the tightening of my leg muscles as well as ...

@Khadigarehab 

Last reply

Khadigarehab

Heat & High heart rate

Does anyone suffer from a high heart rate while in enclosed areas with heat and no ventilation? My heart rate usually goes up could reach up to 130/140 on my watch I feel nauseous and as if I will faint Is that only me or a common MS thing?

@ColettePage 

Last reply

ColettePage

Fampridine

Hi all! After 6 years, I’ve finally found a consultant who will prescribe Fampridine for me! I live Liverpool, UK where it is not available on the nhs so I’m paying privately! Don’t get me started on the postcode lottery of this!!!! Anyway, thankfully, other than the initial consultation fee I am ge...

@Tiffcorpus 

Last reply

Tiffcorpus

Magic mushrooms

OK guys so I am basically guinea piging Myself with magic mushrooms. I’ve heard a lot about people micro dosing to help them with all kinds of stuff, but I do have a high Tolerance so I will not be micro dosing. This is my first time and it’s all in hopes that it helps with neuroplasty. Has anyone ...

@CameronS 

Last reply

CameronS

Hypervigilance 🤪

I feel like every since my diagnosis I've been limiting myself mentally with what I can do. Prior to being diagnosed I knew something was wrong and I just kinda pushed through everything and dealt with it. Now im quicker to relax and not push myself which is good, but my problem is I've lost most of...

@Sanchez85 

Last reply

Sanchez85

Anyone from central tx?

I been apart of a couple MS pages and events and I can’t seem to know anyone around near by… sometimes it’s just annoying when others don’t understand what you feel or go through .. I’m just blah 😑

@baru 

Last reply

baru

Treatment

First post here. I've been going through a flare up for over a month now but been told I can't be given steroids as I'm waiting to start treatment, waiting being the key word here since no one seems to know what's going on it feels like. I've been dealing with hand numbness and spasticity and other ...