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Trigeminal Neuralgia 🙈

I finished work for the summer on Friday and the night before I started getting shocks in my face. I came off meds for this in May and made a big fuss about cancelling my repeat prescription. The shocks are getting more frequent and it's unbearable! Do you think this is a sign that my MS is progres...

@nickram 

EditedLast reply

nickram

Walking

What’s the furthest you guys can walk? After my briumvi I’m able to walk a mile but get very tired and have to take a nap

@ShellDemo87 

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ShellDemo87

New/worsening symptoms

Looking for a little advice please? I have had worsening of some of my ongoing symptoms like numbness/tingling and loss of taste and I've gained some new areas of numbness, pain, headaches and some dizziness. The last time I contacted the MS nurse regarding this type of thing I felt like I was buggi...

Clemastine

Hi, everyone. I hope you are doing well. Has anyone tried Clemastine/tavigyl for remyelination? What were the outcomes and for how long

@elliot7686 

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elliot7686

creatine?

Does anyone use creatine and find it helps?

@Angie03 

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Angie03

Dating with ms…

Right… I went out last night n got chatting to a guy.. exchanged numbers etc. We have spoken all day n just facetimed.. He then asked questions etc about why dates having been going well n i just said things have changed for me etc n he oh what isit etc… i said i would tell him when the times right ...

@ShawtyL54 

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ShawtyL54

Eye Pain

Do anyone experience throbbing eye pain? I'm in pain right now it hurts so bad. I get worried when my eye pain gets worser. In 2012 I lost my vision in one eye & the other eye was real blurry like a film was covering it the Neurologist had test ran & told me I had MS and I lost my vision from optic...

@Historicus 

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Historicus

Health Advocates?

My social media feeds have been littered with adverts for a health advocate org. (US). My medical team is great and I do have good insurance, but managing communication between my 11 doctors and dealing with insurance on the pharmacy side of things is exhausting. I have an appointment with a palliat...