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@SarahLaine 

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SarahLaine

Newly diagnosed, what am I in for?

Just diagnosed in the last week or so (36yo first and only known symptoms Dec 25). I’m feeling OK about it because Drs have basically said “with DMTs symptoms will be minimal” so by all accounts not expecting much to change. Without putting the fear of god in me 😂, how accurate is that? Just wonder...

@lfw90 

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lfw90

DMT timeline from first NHS appointment?

Hi everyone, I was diagnosed with MS in November last year. Because the referral went through privately, the wait to be seen by the MS team at UCLH has been very long. I finally have my first appointment tomorrow. I’m wondering what sort of timeframe I might be looking at before I can start on a DMT...

@Historicus 

EditedLast reply

Historicus

Non-alcoholic wine and mocktails?

Anyone else here like to enjoy the occasional drink with dinner but need to cut or eliminate alcohol for medical reasons? My inflammation load is high and I'm dealing with a flare so I'm not even drinking my one glass of wine at dinner on Friday night now. I have tried a number of dealcholized wine ...

@PriyaC 

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PriyaC

Fatigue (Amantadine vs modafanil)

My neurologist has suggested that these medications may help me with fatigue. Have to take daily naps so need some help. Anyone have any experience of either of the 2 medications above- positive/ negative experiences and side effects? Any advice much appreciated :)

@itsemma 

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itsemma

Most annoying thing about MS?

I think a lot about my diagnosis.. the physical stuff is bad, the mental stuff is bad, people don’t seem to understand. What’s on the top of your list?

@itsemma 

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itsemma

School and fatigue

I’m so close to finishing my degree.. My MS causes me so much fatigue that I want to drop everything. I feel like a failure and I do really want to finish but it’s so hard to push through. I’m in a very good school and I don’t want to switch to something online.. commuting is exhausting and also I w...

@Livchi 

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Livchi

Coffee ☕️

Does anybody’s symptoms get worst after drinking coffee? I stopped drinking coffee couple months ago, ever sonce every time i drink a cup, i feel like electricity running all over my body and my footdrop comes out…. is it just me? Also, with or without coffee… My lips feels very tingly lately… like ...

@shellyEd 

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shellyEd

Working Fully Remote

Asking if anyone has ever asked their employer to grant working fully remote because of health issues and was denied. Even though everything done on site can be done at home. Please Share experiences or laws concerning disability in the workplace that you are aware of. I am in the state of MA.

Chest pain and breathing difficulty

Hi, does anyone gets chest pain and breathing difficulty, more like congested particularly when you are stressed or emotional.