The VA called. Told me that I will have to wait an extra month to get my MS infusion. The neurologist that I had in Palo Alto retired. And I can only have it prescribed by another Neurologist. Which won’t be available until next month. And only after my appointment with the a new neurologist. * Mi...

Do people have ocrevus subcutaneously or IV?

My neuro told me today dont get stem cell and to reaserch car T cell and it might be a game changer anyone heard the same?

What do you guys do for heat tolerance with summer approaching???

Dear kind people. I don't really know what my question is. I guess I long to lower the terror my Neurologist instills in me. She is very hard, cold, reactive and dismissive. I usually leave feeling deeply humiliated and gaslight. Tomorrow will be about reviewing how Mavenclad is going for me by look...

Has anyone else experienced this? After walking for around 5 minutes, sometimes even less, I start leaning towards my right side and feel a strong urge to get to my destination quickly or sit down. I'm not sure if it's fatigue, balance issues, or something else. I'd appreciate hearing from anyone wh...

What are people taking for chronic back pain? I’m currently not taking anything as nothing has worked. I have been prescribed a few things already but not worked. Paracetamol, Codeine, Amitriptyline, Naproxen and Pregablin. The docs are maybe suggesting another neuropathic drug, maybe Gabapentin. An...

I took my first loading dose of Kesimpta last Thursday and it’s Monday today and I have felt so so tired & fatigued. Basically even with like lots of sleep I feel like a zombie struggling to get anything done. It seems worse than my MS fatigue. Has anyone else experienced this strange feeling on Kes...

Got my MRI results today. Kesimpta is doing it’s job. My brain lesions are stable and there is no new activity. I was nervous to get my results, it’s been 2 years since my last MRI so I really didn’t know what the results would bring.