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@jackieo66 

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jackieo66

Uncaring

I’m not sure if uncaring is the title I really want for this rant/observation but I started thinking of the years since my diagnosis (2002) my family members even my grown children I don’t think any one of them has really been curious enough to read about my symptoms the things I deal with daily and...

@DeSelby 

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DeSelby

Story about the start of my MS journey

I don't know if I'd call it a funny story, but it's certainly a bit odd. So I had my first relapse in 2012 (although I think I had symptoms predating that with hindsight). Anyway it's 2012, I'm on a year out from university, and when I'm not studying Physics in preparation for my final year I was r...

@serenawolf 

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serenawolf

Occupational therapy

So my doctor recommended I try OT again for my hands. I have a lot of numbness and tingling and weakness has been increasing. Since I still have to work full time and am waiting on an actual diagnosis put in my chart, I need my hands. Orthopedic OT said it's nerve issues, suspicions of MS, so Im to...

@Donnalew 

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Donnalew

Vitamin d

My neurologist said I need to take vitamin d tablets alongside my treatment, do you take vitamin d tablets and if so which ones 😊

@ruari 

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ruari

Non dairy people

Hey guys how do you make sure you get enough calcium when you don’t consume dairy products? I recently switched to an oat milk that tastes great with both tea and coffee (which is rare) but I realised it didn’t actually contain any calcium carbonate. I’m going to switch back to one that does. I ea...

@Tiffcorpus 

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Tiffcorpus

Magic mushrooms

OK guys so I am basically guinea piging Myself with magic mushrooms. I’ve heard a lot about people micro dosing to help them with all kinds of stuff, but I do have a high Tolerance so I will not be micro dosing. This is my first time and it’s all in hopes that it helps with neuroplasty. Has anyone ...

@SChaudhry 

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SChaudhry

🤔

Just a question that's been on my mind 🤔 How do those of you with MS who live in hot countries manage your day to day life? Does the heat make your symptoms worse or have you found ways to adapt? Love to hear your experiences, routines and any tips that help you cope.

@pockets 

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pockets

Damned feet and hands

I usually suffer from pins and needles together with numbness, but I now have a new one to add. It itches INSIDE and it’s driving me mad. Nothing I do relieves the sensation.

@Ashlees0777 

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Ashlees0777

Gave myself my first injection of copaxone!

I did my first injection of copaxone. I had a lot of anxiety. I was suppose to do it last night but slept on it and was finally able to do it this morning. This is a huge accomplishment since I didn’t have anything to help me inject.

@HollyB 

EditedLast reply

HollyB

Shift work (incl nights 😴)

Hi It's been a couple of years since I posted in here. For the most part, my MS has been well behaved. A couple of cheeky flare ups due to stress, but Ocrevus seems to be holding the disease at bay for now. For the last 3 yrs I have had an agreed working arrangement with my employer that I think has...