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@ashia2013 

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ashia2013

Stopping Fingolimod to change DMT, weird side effects?

Really random but I’m switching from Fingolimod (Gilyena) to Cladribine. Been off Fingolimod a couple of weeks and feel extremely weak, light headed and just zero energy. Proper strange and thought it would stay in my system for four weeks. Is this normal or just me being paranoid

Family situation

Has anyone had a time that you didn’t speak to your family or a family member for a long time!!!!? You feel like something is stopping you inside you? feels like it’s your Ms brain? I don’t get along with my Ms dad!!! Hope I’m not all alone with this one!

Ocrevus Subcut

Hello Question for the people on O/S I’ve been given a date for my ocrevus delivery. It’s getting delivered to my house this week but I’ve not heard anything from the nursing team. The nursing team come to my house to administer it. Is this normal? Delivery is Wednesday. I tried to call them tw...

@Krowens 

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Krowens

Body jerks? Newly diagnosed

I am very newly diagnosed. I have started experiencing more body jerks. It’s my upper torso and legs, sometimes including my shoulders and arms at the same time. I’ve always had my legs do it, but now it’s getting more aggressive and moving in my stomach and upper body. It’s quick and very annoying....

@St1gzy 

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St1gzy

Brain buffering. Fingers freelancing. Production at risk. 😂

Metaphorically speaking, I needed to hit the ground running at work this morning. Instead, I tripped over and skidded into Monday on my fucking face. 😂 I don’t know what it is today, but I just cannot be peopling. Unfortunately, work requires people, and apparently “please leave me alone until my...

@Terauda 

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Terauda

Dealing with Chronic Facial Nerve pain

Hi everyone 👋. Hope each and everybody is having a good day. Question.. can anyone suggest tips to ease the pain you get from facial pain, my right side has been hurting more than usual this recent week 😔. Thanks

@Sammythomp 

EditedLast reply

Sammythomp

Newly Diagnoised

Ive just been diagnosed severel weeks ago. Im waiting to find out the best treatment for me I've been told it could be Ocrevus, Kesimpta or Cladribine. Anyone had experiance with any of these? Side effects ect

@itsemma 

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itsemma

Jewelry and MRIs

I got permanent bracelets and I have to remove them every time. Sometimes they told me that if it’s gold it’s fine but I don’t even know what kind of gold. Any experience with that?

@ruari 

Last reply

ruari

PIP assessment next week.

I’ve finally got an assessment over the phone next week and don’t know what to expect. Could anyone shed any light? How long will it take and what will they be asking? Bit nervous about it.

@Ice 

Last reply

Ice

Walker/wheelchair

I have been using an upright walker for the past 10 years. I am now at that stage in my progression where i dont feel as stable as i used to. A good friend of mine's step father just passed away and he gave me his step fathers powered wheelchair. It was basically brand new. His step father hadnt eve...