Just curious, how old are y'all when you were first diagnosed???

I was rejected AGAIN... I was rejected initially & I appealed with neuro & ms & dr letters! I even had a fall recently with bruising to knees& bled & I sent my neuro's new recent letter update about new lesion & a MRI & images following my fall... They still rejected me for the disability badge App...

MYELIN MANN – EPISODE 1: THE SIGNAL Marcus was just an ordinary guy trying to make it through the day. Then one morning, his legs felt like concrete. His vision blurred. His body wasn’t listening. Doctors gave it a name: Multiple Sclerosis. But what they couldn’t see was the battle happening insi...

Hey. I am working with a practioner who suggested making friends with other MSers with either bowel or bladder urgencies (I seem to have both). Sharing stories. Normalise the topic. Understanding each other. And so on. Anyone?

“God, I have a burden and a vision, but I need You to connect me with the people You’ve already prepared!”

I want to take a moment to say a prayer for Phyllis Motta from the National MS Society. Lord, I pray that You guide Phyllis and lead her to the right people, the right connections, and the right opportunities to help move ideas that can make a difference for people living with MS. Give her wisdom,...

Has anybody got or enquired about having fampridine privately? I am on a waiting list since Friday but my walking is becoming worse and my EDSS is 6.5 and I’m worried if I wait I won’t be eligible as l ll probably be 7 when it’s available on nhs

Has anyone had to stop getting a ocrevus infusion due to a lung infection? Wondering if it is protocol or just a neurologist being worried

So my ms nurse has just called me back. I asked about fampradine on Friday. She has been inundated with calls. It could still be 6/7 months as the neurologist needs to assess you. I am on the list! It is not available and the press always announce to soon that is the QE in Birmingham. X