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@sleepyalex 

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sleepyalex

Struggling to adjust to diagnosis

Is anyone else struggling to adjust (or did struggle) to their diagnosis? I was diagnosed with RRMS back in March of this year and I’m feeling low about it all, especially now I’m having to start to use a stick and my right leg is getting worse. I’m having to think of things like grab rails around...

@rooneyleoni 

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rooneyleoni

The Invisible Illness

People often ask how I'm doing, and it's hard to explain that I look fine on the outside while my internal battery is sitting at 4%. Invisible illness is a masterclass in masking. How do you usually describe your energy levels to people who just don't get it? 🔋

@rooneyleoni 

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rooneyleoni

Hey everyone. I wanted to officially step into this space and say hi.

I was diagnosed with RRMS back in August 2025, and I’m still very much figuring out what this new chapter looks like. If you're also navigating DMTs, energy pacing, or just trying to make sense of a chronic diagnosis, I see you. Glad to be here.🥰

@AVFCotterill 

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AVFCotterill

Any MS’rs run?

Hi all, I was diagnosed in 2015, hit rock bottom in 2022 and couldn’t walk more than 100m. Ocrevus changed my life and I ran my first 10k yesterday. Any other MS’rs run? Looking for inspiration to do a half marathon and to spread a bit of positivity that if I can do it, anyone can! I’m not fixed bu...

Here to connect and help the best I can

If anything wants to just chat about their life or their past experiences with having ms or even just someone don't be afraid to reach out we're all in this together and I'm happy to help anyway that I can! ❤️

@carmenrivera 

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carmenrivera

Relationships/marriage

Has anyone ended up getting/considered a breakup after getting diagnosed? Did anyone’s partner just stopped caring after seeing some type of improvement? In my case when I first got ny diagnosis I told my husband that if he wanted I would sign the divorce papers (I’m 28 he’s 40, Im the one who work...

@Nephthys 

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Nephthys

Hate my neurologist, anyone else not like theirs?

This guy just brushs off everything I say.tell him, i stuck my hand in a 160° water couldn't feel it. My right leg is 2 inches bigger around then my left leg. I'm in constant pain, oh and i have episodes where i cant breathe and need oxygen. His response? Oh, your scans are fine so you're just fine...

@ChristyStook81 

EditedLast reply

ChristyStook81

Dense fascia

Has anyone heard about research that suggests MS patients are found to have dense fascia throughout their bodies that is causing our pain, essentially the "other part" to this disease. The reason we can have MRI's that suggest no change but our bodies are still feeling like we're moving in the wrong...