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@pikilily 

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pikilily

Fampyra and Seizures

Does anyone know, if you are unlucky and have a seizure is any risk of further seizures reduced/eliminated as soon as you stop taking the drug, or are you left with a residual heightened risk of repeated seizures?. My ms team are keen for me to try Fampyra and I am looking at the pros and cons. Fo...

DKA

So I was just in the hospital for a few days for DKA (diabetic keto acidosis). I also have PPMS I feel a thousand times worse in my body than I did before this unfortunate incident. By chance has this happen to anyone and it there any hope in getting better.

@Jamie_S 

EditedLast reply

Jamie_S

I need insight/help

Today I had a flare up ive never had before (if it even is a flare up?) I didn't feel right the first half of the day and was weak, light headed, small pains etc. I go to the bathroom to cool off cus of that and I started not feeling well, and it led to some kind of fit? I don't have epilepsy but I...

@TheDogtor 

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TheDogtor

Compounded GLP1?

Has anyone tried some of the compounded GLP1 medications? If so, how did you feel? I've heard there's some research on GLP1s and MS too.

@MichaelaPena 

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MichaelaPena

I had to switched medicine.

I was on kesemptia for 7 months and it was considered a medication failure. So I started Ocrevus last Thursday, my first infusion and thia coming Thursday I go back for another one. Cheers yall, fuck MS

💙 HAPPY FATHER'S DAY 💙

As a father living with Primary Progressive Multiple Sclerosis, I want to help my son. He is participating in a contest, and I would greatly appreciate your vote 🗳️ of support, as my health situation prevents me from helping in other ways. Voting is open for 10 consecutive days and there are only...

@mschadk 

Last reply

mschadk

Heat

The UK is in heat hell. Anyone else struggle to sleep last night? I’m in work today and so underslept. I have an aircon unit but our apartment block is small and we all tend to stop all noise around 10pm… hosing sticking outside windows is noisy as hell!

@yazmin11 

Last reply

yazmin11

The UK heatwave!

Keeping cool! What are people’s tips?