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Feelings

It’s been a while since I’ve been here. I got my first MRI results since being on Kesimpta for 5 months. Good things, no new lesions and the inflammation seems smaller. But I didn’t leave feeling better. I feel foggy, forgetting words in the middle of sentences. Trying to figure out what will make i...

@YogaLady 

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YogaLady

Illnesses

I have Multiple sclerosis and learning disability needs too 😢😤 Find that frustrating!!!! What other illness have you got with your Ms if any has?

@elev 

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elev

Tricks for getting up and out of bed in the morning ?!?!

I have such a hard time getting up in the mornings. No joke I spend and hour or two just delaying out of bed. Luckily my job isn’t strict about getting in at a certain time but still. Does anyone have any tricks to help get moving in the morning? Or night time tricks that help your mornings? I’ve t...

TN pain

Hi everyone Was wondering if anyone suffers with trigeminal neuralgia both sides of face? I get spasms of shooting sharp pains deep in my head both sides and general numbness, aching in my cheeks. I've started to get deep ear pain on & off too both sides especially after sleeping. Tinnitus has j...

Extended Fasting...

Hi 👋 It's one of those rare occasions i speak, normally i'm just a watcher 😉. I have been intermittent fasting for 14 months now, it really works for me. I did a 40 hour fast last year and decided to go longer this week. On holiday from work so perfect opportunity. I did a 60 hour water fast and ...

Slipping out of eating routine on holiday

First get away abroad with the little one and my partner and it’s really hard to eat my usual balanced diet so I’ve just let my hair down. Cheese, Greek yoghurt and a load of bread and some beer. Tingles and numb hands galore but it’s been nice to stuff my face with some treats! Will get back on the...

@stephaniesteph 

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stephaniesteph

Kesimpta challenges

Hello I’ve recently changed DMT from Tecfidera to Kesimpta. Since the switch I’ve been experiencing sore eyes, mouth, very dry skin and regular bouts of cold sores. My face basically feels like it’s about to fall off (slight exaggeration, but it’s very unpleasant). I wondered if anyone else ha...

@Hollyjayne88 

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Hollyjayne88

Newbie

Hey 👋 Ive recently been diagnosed out of the blue and its a complete shock to me. I started with pins and needles in my feet that progressed to numbness below the waist. A few MRIs and a lumbar puncture later and here we are. Waiting for a neuro appointment next week. I guess I dont know how im fee...

@Adventures6Dogs 

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Adventures6Dogs

Falls …

I fell HARD today … twisted my ankle, pulled all kinds of muscles, hit my head really hard on my front door … I’m dreading what it’s going to feel like tomorrow … Anyone have any advice on what I can take for all this? I took Ibuprofen PM … but I know tomorrow is gonna be rough …

@ilovems 

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ilovems

Everything trembles

Twitching, tremors, trembles. Arm trembles, the thighs twitch. It is never stopping. I think my limbs are morse code communicating 😵‍💫