I have been seriously Donald Ducked by a recent relapse. As a result of a new lesion, I have pretty much lost the use of my right hand. I can't write, can't draw, can't paint, can't even do my ruddy shoe laces up anymore. So given a choice between giving up and learning to use my left hand, I am ...

Hi everyone! So my last neurology visit, my Dr. tells me he is concerned that there may be a misdiagnosis, and or just want to be sure I am on the right track of my treatment plan so he ordered me to get this (Multiple Sclerosis Disease Activity Test) which I go in and get bloodwork done. I was hol...

Good morning, I had my first dose of Kesimpta yesterday. The nurse came to my house and showed me how to do it, she was lovely and it was easier than expected. Last night was awful, headaches like I’ve never had before, chills, nausea, weakness, just feeling generally unwell, and I’m pretty sure I s...

I’m not sure if uncaring is the title I really want for this rant/observation but I started thinking of the years since my diagnosis (2002) my family members even my grown children I don’t think any one of them has really been curious enough to read about my symptoms the things I deal with daily and...

So all my ms people i has be bladder stem implanted in my back n its not working any longer... they got me on fully cath for 3 weeks n either i have to have surgery get implant removed or surgery try n fix it...but now theyre talking about a permenant cathater and I'm not sure how i feel about it......

So this week I went for my pip assessment and I sat there explaining how I feel and how everyday can be so hard and then it sunk in I have Ms. I'm very strong minded and kept putting on a brave face and just carrying on even with all the struggles I face, I walk looking like I have had 50 pints and ...

I've been at the hospital all morning and had lots if info thrown at me and I've seen my brain and spine scans, I've had blood taken, urine test and chest xray. I'm going to start Ocrevus as soon as possible and I've got some pregabalin. Advised to up my vitamin D intake to 4 times my current dose...

I am advocating for my MS warriors... hearing that statement delayed my diagnosis... leading to leaving a job I loved. Fighting to work again and the reality that my mind and body cannot handle it. My memory is declining. Do not accept these statements we know what we feel and yes my energy to fight...