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@ashaustin 

Last reply

ashaustin

Covid 💉

Does anyone think the Covid vaccine n being diagnosed with MS have any links to one another? Just curious.

@diney 

Last reply

diney

Fotgottem

I think the neuto dept at my hidpital forgot about me. I havent seen a dr for Iover a year coning to 2 and ok they've had some changes my Dr retired but its been so long since I've had an appointment. :/

@royt 

Last reply

royt

Thanks dev team.

Not sure when they did it but can finally delete all the spam messages outta inbox now for all the deleted spam accounts. Thanks very much for giving us this ability has been a huge hatred of mine every time I go to messages and got 5000 deleted spam accounts in there

@nwethy 

Last reply

nwethy

Anyone taking Dalfampridine?

I was recently diagnosed with RRMS and was prescribed Dalfampridine. Anyone else taking this and are you seeing good results? What kind, if any, side effects are you having?

@RJC123 

Last reply

RJC123

Flare up munchies

Does anyone get the munchies once a flare up subsides? I've had a few bad flare ups recently when I e experienced major neuro fatigue. Once my body stops feeling like death warmed up, I'm extremely ravenous.

@Swannie 

Last reply

Swannie

MR unsuccessful!

I have not yet received my letters with the PIP MR decision, so I rang them and they gave me the decision and they told me it was unsuccessful. 😞That’s put me down. I was hoping something. I just don’t know what to do now. How “ill/disabled do I need to be? I hate this…

@Angie03 

Last reply

Angie03

Game on… 👌🙏

I received my appeal outcome letter… an absolute shit show!!! I sent it to this legal guy who works with the MS society law side and got a call yesterday. He was very angry with the outcome letter and explained my case is very strong! My ET1 is filled in ready for court 👌👌. I am ready for anyt...

@Rozillaro 

Last reply

Rozillaro

Time for Disability

Hiya everyone, I have just filed for disability for the first time. I was told many people get turned down. After spending 70 minutes on hold, a woman told me my case had already been decided and it was being checked by Quality Review. Has anyone had this issue? Any help would be great Thanks

@skezz 

Last reply

skezz

Shingles vaccine

Anyone been invited to get the shingles vaccine? It’s usually only for over 65s but also for immunosuppressed people, had it on Monday and I’ve been absolutely floored with horrid body aches, joint pain, fever and migraines. I’m wondering do vaccines affect people worse if they are immunosuppressed?

Wearable tracker use

Who wears a tracker for things like fatigue and such? Visible? Apple Watch app? Hume? Garmin? Fitbit? What device and programs work best for MS? I’m so sick of listening to the Visibie commercial and knowing it costs a stupid amount a month subscription but it sound super cool for chronic illness sp...