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@msOrangepeel 

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msOrangepeel

First Briumvi Infusion - any advice?

I have my first Briumvi infusion tomorrow. They didn’t call to set it up, I just got a text to confirm my appt (bizarre). Does anyone have any advise for me, or would like to share their experience after their first infusion? I’m not sure what to expect. I know that the internet says I might be si...

@paddymac999 

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paddymac999

Disheartening

Being told that no matter how much you exercise and what you do. Nothing will improve and its gonna slowly get worse and worse is very disheartenin, ain't it

Venting about incontinence

I knew that something like 80% of Masers had urinary and bowel issues at some point, but I’ve had my disease for so long and not had issues that I thought it wasn’t affecting me, or wouldn’t for a while. Part of this recent flare though has been a combo of retention and incontinence, so has been ent...

@Angie03 

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Angie03

How long does it take for your ms team to get back to you?

Hi, i am loosing my mind!! I emailed my ms team two weeks ago with no reply!! I feel i am having a relapse since my flu jab with new symptoms… i honestly don’t know what to do 😔

@hectorpinojr 

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hectorpinojr

@applejacks 

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applejacks

Dogs or cats!?

Let’s take a break from all this MS ish! Where are all my dog ppl and cat ppl? I wanna know who’s a dog person & who is a cat person on here. I have always been a dog person, but I just recently got a cat & I never really cared for cats, but I’m so in love with her 🥰

Myelin trials

I here that scientists are on phase 2 now on trials for fixing damages Myelin. They have moved on to human trials now. Fingers crossed it goes well

Sensitive to the cold 🥶

Okay, so I’ve been doing a bit of research, and I’ve realised that I don’t actually seem to have any issues with heat or heat intolerance. Mine is quite the opposite! I’m constantly cold, even when everyone else is comfortable. I genuinely feel about 10 times colder than everyone else in the room. ...