#work-and-play - Shift.ms

7 Sep 2017 18:19Last reply 21 Sep 2017 16:20

Work and play

You know that thing with MS where they tell you not to overdo chores ETC? Well I think I have over done it...BLAHHHH :o/

13

@ashia2013

28 Oct 2017 17:14Last reply 18 May 2022 15:59

Anyone else get a dreaded brown envelope arrive on the doormat and think 'great another fight to face!' I think the endless reviews of Personal Independence Payment for those of us with MS is absolutely disgusting! I mean did I miss something? Or is there suddenly a cure for Multiple Sclerosis that ...

9

@Cbarker

13 Feb 2021 08:46Last reply 13 Feb 2021 12:39

Any MS diets?

Does anyone follow/recommend any sort of special anti-inflammatory diet for those with MS? I'm pretty healthy don't drink, don't smoke and practice very low impact yoga. I just wondered if anyone on here swears by a specific diet. Thank you x #diet #workandplay #nystagmus #tremor #yoga

4

@BULLMAN

Today at 10:06Last reply Today at 12:40

Today’s post

Starting tomorrow whatever life throws at me, I’m ducking,, so it hits someone else.

1

@SheenArtist

Today at 12:01Last reply Today at 12:27

Crazy fast tiredness - is this MS

Hi everyone! I’m new here (new to all of it really!). I have a quick question to ask - I’m a very busy person (busy Mom, artist and I workout 4-5 times a week etc).I was diagnosed in January this year with RRMS. I have recently finished my second month of Cladribine treatment. My question is about t...

2

@chloeautumnx

Today at 11:35Last reply Today at 11:58

Blackouts and MS

Hi, I have mobility issues- I struggle to walk. I have had MS for 7.5 years. I was washing up this morning, I turned around (not fast as my legs don't allow) and the next thing, my husband is picking me up from the floor. He said I didn't shout out, I just went down with my eyes open. I didn't respo...

1

@Tantan

Today at 01:06Last reply Today at 09:05

Water and sun

Switching to Tecfidera after getting off avonex this weekend and was wondering if I can lay out in the sun. I heard that a lot of sun is not good for you when you have MS. As with avonox I was to drink lots of water, stay hydrated. Do I need to do that as well with tecfidera?

2

@supermum1983

Yesterday at 17:16Last reply Today at 08:53

Drinking

I've not had a drink in a while, I had a blow out the other week.. I feel it's really set me back even over a week later, I know it can cause internal damage brain shrinkage. I don't like the hangovers or really going out. I'd rather do something in the day time. Think my clubbing days are over, but...

4

@Snail-train

last Sunday at 13:33Last reply Today at 08:37

Wheelchair- when?

To the people on here using wheelchairs, please can I ask you when did you know that was the time? I just did a trip to my local shop… a 10 min slow walk. I recently bought a walking stick to help me balance as my right leg is the weaker one. But todays trip I really really struggled with. Kept ha...

8

@Jamielynn

last Saturday at 01:17Last reply Today at 00:56

Newbie here ❤️

Hi everyone, new here. DX IN 2013. I struggle the most between Oct-may. The summer months are amazing for me. I hate the cold. And have at least 6 relapses during the winter. Thank god my 3 kids are all over 17 now. I have a hard time getting out of bed before 10:30 am. I have so many issues to ma...

North Vancouver, Canada

4

@MrsR

10 Jun 2022 20:33Last reply Yesterday at 20:43

Mavenclad / Kesimpta

Any positive / negative for the above two DMDs? Thanks xx

3

@Darrenjs28

Yesterday at 19:19

Life with MS

Well I’ve had PPMS for ten years now. Didn’t think much of it. Then got into a horrible truck and trailer accident. Thought my wife was dead caused me to go down hill fast. To the point I had to go on disability. On Ocrevus treatments has kept my MS stable. Didn’t make as much money so the wife left...

@Kanga

last Monday at 12:05Last reply Yesterday at 18:02

I hate it when.......

When I am struggling with my cog fog and unable to remember what I was going to say or find the right words, it sucks but I can just about cope with it. but what I really really hate is when the other person feels they have to minimise my difficulty or make me feel better by likening my difficultie...

9

@Jades641

21 Jun 2022 16:37Last reply Yesterday at 17:12

Diet and MS

Hey, been reading overcoming MS which talks about how diet can really affect the progression of MS. Is anyone noticed a change in there MS after changing there diet esp after going dairy free?? Xx

16

@BULLMAN

Yesterday at 10:26 Edited

Today’s post

You know you’re grown up when a nap is no longer a punishment but more a reward

@Reene

last Monday at 14:02Last reply Yesterday at 06:14

Well thanks guys I’m carina I’m new had ms 23 years was dx at 24 now s

Hi guys thanks for adding me I’m carina had ms 23 years now have secondary progressive ms stopped treatment last September cos I had covid but not on anything now feel like I need to be on something first time in 15 years not on treatment xxx

4

@Gortz

last Saturday at 13:00 EditedLast reply last Monday at 19:37

Blue Radar Key, i had never heard of it

Last night i got introduced to the RADAR key which is used to unlock accessible bathrooms in the UK and is frequently used in stadiums and other large venues. Very useful if your bladder and bowels are as anarchic as... mine. Has anyone had experience with these, at a fiver this seems a good invest...

10

@Lulabella

last Friday at 21:51Last reply last Monday at 15:39

Support and understanding

I think my partner has said the most hurtful thing he could ever say he said "his hard earned money" as if I don't struggle every day with my progression and work for my disability money just by moving and keeping independent. I have a degree in Biomedical Science - since my diagnosis is still relat...

15

@Tantan

last Monday at 12:49Last reply last Monday at 15:01

Medication switch

Switching to Tecfidera on Saturday from Avonex was wondering if anyone has had bad side affects from Tecfidera? I’m a bit nervous about it. Didn’t really have any side affects with Avonex just an inconvenient when it came to travelling with it. One other question I have is how do you know if you hav...

2

@BULLMAN

last Monday at 11:19Last reply last Monday at 13:26

Today’s post

Batteries don’t make electricity, they store it. Produced elsewhere. By coal, uranium or gas powered generators. So to say that an electric vehicle is a zero emission vehicle is not all that valid.

2

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