#work-and-play - Shift.ms

7 Sep 2017 18:19Last reply 21 Sep 2017 16:20

Work and play

You know that thing with MS where they tell you not to overdo chores ETC? Well I think I have over done it...BLAHHHH :o/

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@ashia2013

28 Oct 2017 17:14Last reply 29 Oct 2017 19:24

Anyone else get a dreaded brown envelope arrive on the doormat and think 'great another fight to face!' I think the endless reviews of Personal Independence Payment for those of us with MS is absolutely disgusting! I mean did I miss something? Or is there suddenly a cure for Multiple Sclerosis that ...

6

@Hannah015

19 Feb 2015 14:28Last reply 21 Dec 2020 01:28

Petition is up for Lemtrada

Hey all My petition to get Lemtrada available to all in uk has been approved. Please please please can you sign it. I need 100,000 signatures to get this talked about in parliament. If you go on number 10 petitions website, search Lemtrada then sign it, they will send an email, you just click on it...

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@Finn15

20 Sep 2019 10:25Last reply 2 Mar 2020 10:51

Leeds Meet-up

Hi Everyone It’s been a while since last Leeds Meet-Up but I’m thinking October 12th or 26th..? Both are Saturdays, thinking 11am ish maybe Any thoughts..

103

@cherish

8 Jan 2016 12:46Last reply 13 Jan 2016 14:23

Georgy.......

It's yo birthday We gona party like it's yo birthday We gona sip Bacardi like it's yo birthday!............ HAPPY 21st Son ? ? xxxxx Love shorty xxxx

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@watsoncraig

3 Nov 2020 15:15 EditedLast reply last Monday at 11:51

Things not to say to us

1. I hope you get better. 2. Jesus will heal you if you just keep praying. 3. My neighbor Amy has multiple sclerosis, do you know her? 4. Yeah, but you’re not actually properly disabled, are you? 5. H-E-L-L-O! HOWWWW ARE YOUUU? 6. Were you born that way? 7. You don’t look sick to me. 8. How do you ...

Falkirk, Scotland, United Kingdom

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@Stumbler

28 Jul 2012 12:20Last reply 1 Dec 2020 18:36

Describing your MS Symptoms

I've seen this list before, but it may be useful. What living with MS feels like..:- When We say we can’t do something because we don’t feel well, put yourself in our shoes by using the examples of our symptoms below… Painful Heavy Legs: Apply Tightly 20 LB ankle weights and 15 LB thigh wei...

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@melissag

14 Mar 2017 15:59Last reply 3 Jul 2020 12:51

Positivity thread!

Hi everyone, I know that it just isn't possible to stay positive all the time in the face of MS, and we shouldn't be expected to, sometimes it's tough and we just need to let ourselves feel how we do in that moment. BUT I would really love it if from time to time we could all share something that w...

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@DesN

17 Aug 2020 19:09Last reply 22 Aug 2020 09:56

Understanding!

Hey all 🙂 im hoping this is common with others suffering MS.... people just dont seem to understand anything about it or what you might be going through! Friends... family and work colleagues see you looking normal and presume everything is fine.... I never want to come across dramatic but sometime...

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@Kylie1982

23 Dec 2013 01:19Last reply 5 Jul 2015 15:42

Tecfidera reviews wanted! Anyone else on this?

Just wondering if anyone else out there has made the switch to Tecfidera? I used to be on Copaxone but hated the needles so have switched to the pills! They're not going so well at the moment! I'm on week 3 and have terrible cramping in my stomach, nausea, headaches, bloating, indigestion and reflux...

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@smurf69

5 Dec 2018 18:50Last reply 13 Mar 2019 20:14

I’m back

Doubt anyone remembers me but I’ve posted on here since 2016. Long story short but got CIS diagnosis in January 2017 and started on Rebif until December. Taken off due to low wbc meaning I couldn’t have elective surgery. Plan then was for 6 monthly mri/appointments and close monitoring. My case has ...

71

@DominicS

30 Mar 2019 14:39Last reply 4 Feb 2020 07:48

A small victory for the UK MSers

Afternoon all. Some may have seen that I decided to take the Railcard folks to task as their website for Disabled Railcards was opaque and led to many with MS thinking they weren't entitled to a Disabled Persons Railcard. Good News - anyone that can show they have MS - a letter from your GP is fin...

68

@atlantic

24 Jul 2012 14:37Last reply 30 May 2016 16:34

Difficulty achieving an orgasm.

Hi all, sorry if this post seems a little crass. I’m a male and as part of my symptoms I’m having real difficulty achieving an orgasm. My girl friend doesn’t seem to mind too much. But it’s driving me mental. I’ve only managed to about 3 times this year. Does any one have any tips? I’ve already trie...

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@pottypete

7 Jul 2012 14:37Last reply 13 Jul 2012 13:25

The joke section!

I was out clubbing last night, and saw a fat bloke chatting up a fat girl. She turned him down though. I think she was worried he was just trying to get into her Snickers.

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@Clare80

16 Mar 2020 22:51Last reply 14 Jan 2021 11:59

We've got this...

It struck me this weekend that people with MS are actually probably particularly well equipped to deal with the coronavirus outbreak. Compared to the rest of the population, we are all used to: - Being stuck in limbo, nobody can ever tell us how long something will last and if it will be permanent,...

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@chris

3 Nov 2012 14:52Last reply 29 Nov 2012 23:15

When were you born

My birthday is in April and I know a few ms'ers who were also born in the early spring (mothers pregnant during winter no summer sun low vitamin D) wonder how this fits with everyone on here. Cheers Chris.

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@katfight

27 Feb 2014 20:37Last reply 6 Mar 2014 16:31

need to moan about me!!

So I posted couple weeks back about my life. I didn't tell the whole truth tho so here it goes, im gay so my partner who has just left me is a woman. So ive struggled recently dealing with tge new diagnosis, then the relationship ended and this week my ex girlfriend who has only ever had girlfrie...

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@George4321

6 Apr 2016 11:47Last reply 7 Apr 2016 14:56

Some Midweek Funnies

SAVE money on doorbell batteries by removing them and simply popping to the door every two minutes to see if anyone is there.

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@LaVosa

6 Jan 2016 11:23Last reply 24 Jan 2016 08:33

Drop out of college due to ms?

Hey there :) I'm a 22-year old student from Germany and I've been diagnosed with MS in 2015. I've had two relapses until now but I recovered rather well. While I'd not been able to read even texts in German, I'm now able to work through English specialist literature again. Nevertheless, I'm tainted...

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@RachaelLouise

7 Sep 2018 12:28Last reply 10 Sep 2018 14:59

Really not happy with my medical team ..

I’m having a bad time at the moment had relapse and steroids a few weeks ago . I’m just fed up of being treated badly . It’s like they think we have all the time in the world - we have lives or want to have a life Just because my body got sick doesn’t mean I don’t want a life They Just mess arou...

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