#avonex - Shift.ms

13 Jan 2023 21:49

Avonex

After almost six years of being on Tecfidera I am being moved to a weekly injection called Avonex. The change is due to low white blood count. Having read through the booklet it seems straight forward. Has anyone any experience of Avonex?

@beth_rose

27 Dec 2022 12:40Last reply 7 Jan 2023 19:12

Missed Avonex

Need advice - flight got cancelled yesterday which is my normal day for taking my injection. Tried to get hold of my MS nurse but no luck today. Do I take my missed injection today then carry on as normal on Monday or do I miss this week entirely?

7

@Frog2

2 Sep 2022 15:45Last reply 2 Sep 2022 17:02

Best time for Avonex

I've been on Avonex since May and started off quite well but I am finding that it gives me awful sleeplessness as well as a fever and flu like symptoms. Ive been having my injection at around 8.30pm because the advice was to take it late and sleep through the worst of the side effects, but I'm not s...

1

@JoMaccy24

13 May 2022 15:34 EditedLast reply 10 Jul 2022 16:48

Bad Reaction to Plegridy / Avonex Experiences

Hi, Hoping to get some advice about some recent reactions I've had to taking Plegridy. The last two times I've taken the injection I've had a really intense neurological 'episode' a few hours afterwards: sudden drop in body temperature (33.8 degrees on the thermometer) whole body shaking because of...

4

@RichJ

30 Jun 2022 16:07Last reply 30 Jun 2022 19:29

Plegridy or continue with Avonex

Hello, I have been on Avonex for 5 years and have got used to the flu like symptoms I feel for 24-36 hours. However, I have really struggled for over a year to inject myself and both thumbs are now weak/ damaged. Sometimes it can take 10 minutes of hard pressing (and serious sweating!) to inject. I ...

London, United Kingdom

10

@Ragamuf63

22 Apr 2022 17:10Last reply 22 Apr 2022 17:55

Avonex

Hello! Is anyone on Avonex? Did the horrible side effects eventually subside after taking the injection for a while?

1

@Boop

18 Mar 2022 21:23Last reply 19 Mar 2022 03:31

Avonex pen air bubbles (fizzy pen??)

Okay so, a few times now I've gotten that purpley-blue and white bad boy out, set it all up, and when I look in the window for any anomalies, my pen looks.. fizzy? I've been told a few big air bubbles up top is normal, but these have had three big bubbles up top and loads of tiny little ones suspend...

1

@Winchy2022

12 Jan 2022 19:05Last reply 15 Jan 2022 22:03

Avonex and what to expect

Hi All , Just wondering if anyone on here is on Avonex. I have been on it for 8 weeks. Looking for your experiences of side effect and what to expect. Look forward to hearing back from any of you

Edinburgh, United Kingdom

5

@Rhianhughes83

21 Dec 2021 23:10

Avonex

Hi all, my husband has been using avonex for approx 10 years now, however on Sunday night the injection didn't go well, he was tense but it wasn't until Monday early evening his leg started to cease up, he is now in agony with it, and also a splitting headache, anyone else has similar? Thanks

@zyildiz

9 Sep 2021 10:51Last reply 15 Sep 2021 07:37

I use Avonex since 17th Dec 2020 need your feedback about St. Marys

Hi all I will have MRIS at St. Marys next month need advice about Charing Cross and St. Marys.. Which hospital you think is better at MS? Thank you

1

@Lucy1971

25 Aug 2021 14:19Last reply 25 Aug 2021 19:01

Avonex and Covid vaccine - same day?

Hi, my daughter has an appt for her Covid vaccine on Friday which is the same day she usually takes her Avonex jab. I've left a message for her doctor at the hospital but I am thinking it can't be good to take both on the same day. Any thoughts?

1

@Emilyvizza

11 Aug 2021 00:11Last reply 20 Aug 2021 01:32

New Meds: Rebif Vs Avonex

Hey guys! It’s been a long time since I’ve posted on here. Truthfully I haven’t been well, I was on copaxone and that wasn’t working for me so I came off of it in April. Now my neuro wants me to choose between Rebif and Avonex. Does anyone have experience with either of those DMTs?

6

@Clary

5 Jun 2021 09:45Last reply 5 Jun 2021 20:19

Stressing out, Avonex auto injection

Hi all, just need a rant. I can’t manage my Avonex pen. I have tried to take it numerous times without success. My husband has helped, but to no avail 😞. Should I call my consultant or my MS nurse on Monday 🤷‍♀️? My anxiety is through the roof. I don’t want to delay. Sorry everyone, I think I am s...

10

@Clary

16 Apr 2021 20:01Last reply 17 Apr 2021 07:10

Avonex

Hi everyone, I have just taken Avonex for the first time on my own. When I injected I think some liquid squirted out on my hand. When I looked I couldn’t find any evidence of a leak. I had a difficult time getting the auto injection to work. The button wouldn’t depress for about half an hour. I thin...

3

@Kimmy122

11 Apr 2021 20:15Last reply 13 Apr 2021 17:21

Avonex

Been on avonex since jan this year was on needle and syringe and was struggling with it so was given the avonex pen and ive been having reactions every week i use it end up with a big red mark that doesnt seem to fade has anyone else experienced this? Ive seen MS nurse and she pulling me in in may t...

13

@Clary

3 Apr 2021 11:00Last reply 3 Apr 2021 17:37

Blood test before starting Avonex

Should I have a FBC and liver function test before starting Avonex, so I have a baseline? I was wondering because I start Avonex soon and wondered if I should ask. I am concerned about my liver!

3

@Clary

28 Feb 2021 17:02Last reply 1 Mar 2021 20:39

Side effects of Avonex

Just wondering if anyone has any information about taking Avonex and hypothyroidism?Does Avonex effect the Liver function? Just trying to find out because I think I read somewhere that regular blood tests are needed to check Liver and Thyroid. I am going to check with my nurse, but just wondering if...

2

@Twink

27 Oct 2020 08:23 EditedLast reply 26 Dec 2020 03:24

Does Avonex effect anyone else this way?

I took my avonex last night now I’m off my legs and my fingers feel a bit numb, hoping I will feel stronger as the day goes on, lots to do at work today, which I cycle too, just a mile away. Thinking about it, did have my flu jab last Thursday evening.

4

@laurianne25

5 Oct 2019 18:57Last reply 7 Sep 2020 14:21

To those with Avonex experience

I took my first 1/4 dose yesterday around 6 pm. For awhile, I didnt feel anything. Around 5 hours later, I woke up with violent shaking chills, but managed to sleep off and on. A couple hours later, I woke up very nauseous and vomited a couple times. I went back to sleep, and when I woke up this mor...

14

@Rich1976

1 Feb 2020 22:37Last reply 3 Feb 2020 21:17

Plegridy vs avonex

What are the views on these 2 treatments. Appreciate that it is personal but I need to make a decision in the next couple of weeks thanks

7

Topics