After almost six years of being on Tecfidera I am being moved to a weekly injection called Avonex. The change is due to low white blood count. Having read through the booklet it seems straight forward. Has anyone any experience of Avonex?
Need advice - flight got cancelled yesterday which is my normal day for taking my injection.
Tried to get hold of my MS nurse but no luck today. Do I take my missed injection today then carry on as normal on Monday or do I miss this week entirely?
I've been on Avonex since May and started off quite well but I am finding that it gives me awful sleeplessness as well as a fever and flu like symptoms. Ive been having my injection at around 8.30pm because the advice was to take it late and sleep through the worst of the side effects, but I'm not s...
Hi,
Hoping to get some advice about some recent reactions I've had to taking Plegridy. The last two times I've taken the injection I've had a really intense neurological 'episode' a few hours afterwards: sudden drop in body temperature (33.8 degrees on the thermometer) whole body shaking because of...
Hello,
I have been on Avonex for 5 years and have got used to the flu like symptoms I feel for 24-36 hours. However, I have really struggled for over a year to inject myself and both thumbs are now weak/ damaged. Sometimes it can take 10 minutes of hard pressing (and serious sweating!) to inject. I ...
Okay so, a few times now I've gotten that purpley-blue and white bad boy out, set it all up, and when I look in the window for any anomalies, my pen looks.. fizzy? I've been told a few big air bubbles up top is normal, but these have had three big bubbles up top and loads of tiny little ones suspend...
Hi All , Just wondering if anyone on here is on Avonex. I have been on it for 8 weeks. Looking for your experiences of side effect and what to expect.
Look forward to hearing back from any of you
Hi all, my husband has been using avonex for approx 10 years now, however on Sunday night the injection didn't go well, he was tense but it wasn't until Monday early evening his leg started to cease up, he is now in agony with it, and also a splitting headache, anyone else has similar? Thanks
Hi, my daughter has an appt for her Covid vaccine on Friday which is the same day she usually takes her Avonex jab. I've left a message for her doctor at the hospital but I am thinking it can't be good to take both on the same day. Any thoughts?
Hey guys!
It’s been a long time since I’ve posted on here. Truthfully I haven’t been well, I was on copaxone and that wasn’t working for me so I came off of it in April. Now my neuro wants me to choose between Rebif and Avonex. Does anyone have experience with either of those DMTs?
Hi all, just need a rant. I can’t manage my Avonex pen. I have tried to take it numerous times without success. My husband has helped, but to no avail 😞. Should I call my consultant or my MS nurse on Monday 🤷♀️? My anxiety is through the roof. I don’t want to delay. Sorry everyone, I think I am s...
Hi everyone, I have just taken Avonex for the first time on my own. When I injected I think some liquid squirted out on my hand. When I looked I couldn’t find any evidence of a leak. I had a difficult time getting the auto injection to work. The button wouldn’t depress for about half an hour. I thin...
Been on avonex since jan this year was on needle and syringe and was struggling with it so was given the avonex pen and ive been having reactions every week i use it end up with a big red mark that doesnt seem to fade has anyone else experienced this? Ive seen MS nurse and she pulling me in in may t...
Should I have a FBC and liver function test before starting Avonex, so I have a baseline? I was wondering because I start Avonex soon and wondered if I should ask. I am concerned about my liver!
Just wondering if anyone has any information about taking Avonex and hypothyroidism?Does Avonex effect the Liver function? Just trying to find out because I think I read somewhere that regular blood tests are needed to check Liver and Thyroid. I am going to check with my nurse, but just wondering if...
I took my avonex last night now I’m off my legs and my fingers feel a bit numb, hoping I will feel stronger as the day goes on, lots to do at work today, which I cycle too, just a mile away.
Thinking about it, did have my flu jab last Thursday evening.
I took my first 1/4 dose yesterday around 6 pm. For awhile, I didnt feel anything. Around 5 hours later, I woke up with violent shaking chills, but managed to sleep off and on. A couple hours later, I woke up very nauseous and vomited a couple times. I went back to sleep, and when I woke up this mor...