#treatment - Shift.ms

22 Nov 2022 18:14

Treatment decision

Hello I am currently on Tysabri but having tested positive for jvc last year now is the time to switch to something new. I am between Cladribine and Ocrevus but not sure which one to settle on. My consultant leans toward Ocrevus which makes me think this is the right option. He also told me that the...

@AdeleD

11 Nov 2022 16:30Last reply 14 Nov 2022 20:40

Starting new treatment soon

Hey everyone. I have active RRMS, have been on Tecfidera for 5 months, but it's not effective enough for me now. I'm signing some paperwork on Monday so I can start Ocrevus soon. I'm sure the nurse will tell me what to expect etc, but can anyone fill me in, even briefly? I have major anxiety about a...

6

@Rhia_Rebel

14 Nov 2022 01:21Last reply 14 Nov 2022 01:59

Treatment

Hi MS warriors! I’m a newbie on here and to the world of MS. Was diagnosed in June this year with RRMS. I have received 4 rounds of Tysabri (Natalizumab) this treatment caused me ongoing seizures, to be bed bound and crippled. I tested positive to JC Virus. The cocktail of both can cause PML / brain...

Melbourne, Australia

1

@Rhia_Rebel

14 Nov 2022 01:21

Treatment

Hi MS warriors! I’m a newbie on here and to the world of MS. Was diagnosed in June this year with RRMS. I have received 4 rounds of Tysabri (Natalizumab) this treatment caused me ongoing seizures, to be bed bound and crippled. I tested positive to JC Virus. The cocktail of both can cause PML / brain...

Melbourne, Australia

@lindhsie

13 Nov 2022 11:19Last reply 13 Nov 2022 19:04

Treatment

Anyone else here that’s had a stem cell transplant? I hade mine almost 5yrs ago now. Before that I hade Mabthera.

Västerås, Sverige

Treatment

3

@shiftms-polls

13 Sep 2022 14:54Last reply 3 Nov 2022 19:09

Poll: What was your main consideration when choosing an MS treatment?

Hey peeps 👋 Billy from Shift.ms here. I wanted to get your thoughts and opinions as we've had lots of new members join us recently. I feel like I got quite lucky with picking my MS treatment. My neurologist in London recommended three DMTs to me (Ocrevus, Tysabri, Tecfidera) and patiently explaine...

54

@Katherine93

2 Nov 2022 14:17Last reply 2 Nov 2022 22:01

Treatment options

Hey! I have been given four options: tysabri injections, kesimpta, ocravus and cladribine. I’m still struggling to choose one and keep changing my mind. I would love to hear peoples opinions, pros and cons of these medications please 😃

9

@Jades641

25 Oct 2022 17:55Last reply 27 Oct 2022 02:27

First ocrevus treatment done 😊

I had my first treatment today. Feeling a bit tired now. Had a itchy neck for about 30mins during treatment and a sore throat... nurses gave Me salt and vinegar crisps which they said for some reason helps with the sore throat and it totally cleared it!! Haha who knew?! Mines took about 5.5 hours bu...

Edinburgh, UK

5

@Jet12

23 Oct 2022 18:32Last reply 23 Oct 2022 22:06

Which treatment?

Hey everyone! I have relapsing remitting MS that is currently active. I've been recommended x2 treatments to decide one either Ocrevus infusion or Kesimpta injections? What does everyone think? My story.. I was diagnosed mid 20's when I woke up and the right side of my face was numb.. as if someone...

4

@Preetachu

20 Oct 2022 08:39Last reply 22 Oct 2022 04:36

Hey there! Treatment question!

I am new here, but have been diagnosed for over 10years - having been diagnosed at the age of 17 with highly aggressive relapsing remitting MS. This was after, from what I remember, my first relapse at 14 years old. I am here to learn more about MS! My treatment on Tysabri is no longer working due...

7

@tleaf

11 Dec 2021 16:00 EditedLast reply 18 Oct 2022 21:50

Undecided about treatment - Is Aubagio good?

Hello everybody, just found out about this site and very relieved it exists. So, I will begin by saying that I’m 20 and I was diagnosed with RRMS November last year. My neurologist decided to put me on Tecfidera. Unfortunately, I couldn’t cope with the side effects (burning stomach). However, my MS ...

Brighton, UK

8

@Lisaperks

15 Oct 2022 15:56Last reply 15 Oct 2022 16:38

Treatment

Has anyone been given duloxetine 30mg for numbing, tingling and burning pain for ms? I’m awaiting diagnosis following my mri two weeks ago and the doctor has prescribed these for now, until confirmed. The numbing, tingling, burning pain is constant.

1

@Beatak

12 Oct 2022 14:02Last reply 13 Oct 2022 10:59

Treatment questions

Hello, I’m 58 and diagnosed recently with ms, I probably had symptoms, but doctors misdiagnosed those. Now the neurologist wants to put me on Rituximab, but as I was reading about it, some side effects scared me and I need some feedbacks to let me know if anyone has been treated with rituximab and h...

3

@Beatak

12 Oct 2022 14:02

Treatment questions

Hello, I’m 58 and diagnosed recently with ms, I probably had symptoms, but doctors misdiagnosed those. Now the neurologist wants to put me on Rituximab, but as I was reading about it, some side effects scared me and I need some feedbacks to let me know if anyone has been treated with rituximab and h...

@Firey

10 Oct 2022 19:14Last reply 11 Oct 2022 14:27

Treatment

Is there anyone here that is on Mavenclad?

Royal Hillsborough, UK

4

@Aleg33

10 Oct 2022 04:52Last reply 10 Oct 2022 08:56

Treatment

I've always been terrified of needles/injections. So it's not strange to overthink everything before injecting myself with Avonex. I've skipped a few injections simply because I am terrified of them. Anyone have good tips on how to control this dear of mine?

3

@RoxanaM

7 Oct 2022 16:28 EditedLast reply 8 Oct 2022 11:33

Switching treatment😶‍🌫️ OCREVUS vs KESIMPTA

Hi everyone, I need some advice please🙏... So ..I was diagnosed with RRMS in 2020..I've been on Tysabri for last 2 years.. my very first treatment after diagnosis.. Unfortunately i tested positive for JCV. Had my MRI done in august as my consultant suspected a relapse after a bad vertigo attac...

Doncaster, United Kingdom

5

@Leahdanielle

5 Oct 2022 18:44Last reply 6 Oct 2022 00:24

How is treatment decided?

Would anybody be able tell me how it is decided what medications would work best? Is it based on where you live, local authorities? I have seen lots of the named medications and the MS nurses suggested I started on Terimflouride, but from posts today I can see there are a range of options. In two y...

2

@shiftms-films

21 Jan 2022 16:26Last reply 2 Oct 2022 16:20

Does your MS treatment make you feel like s**t?

We’ve just released episode 3 of ‘Do All MSers Think The Same?’. Four Shift.ms members cut straight to the controversial opinions around the options we have with MS treatments and how hard it can be to get a change of treatment if one isn't working for you. Let us know in the comments, what treatme...

5

@Stephy

28 Sep 2022 21:42Last reply 29 Sep 2022 05:52

Treatments

Does everyone take a treatment for MS? If so, which one? I take Kesimpta once every month. Ever since I started it, my legs had been extremely weak & can barely do anything.

Anaheim, United States

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