#disclosure - Shift.ms

@George1960

15 Jun 2017 16:16Last reply 21 Jun 2017 03:55

Diagnosis disclosure

Hi, I know it's fiction but has anyone seen Coronation Street? A character in the program has just been diagnosed with MS. He has reluctantly told his Daughter but only because she witnessed some symptoms, he said he doesn't want anyone else to know. Is this reaction usual? I myself have been to see...

13

@oskar

16 Jun 2013 08:52Last reply 18 Jun 2013 02:41

Disclosure

This is a perennial issue for everyone, but for me, it has become a difficult one to side-step. I have recently started a new job, new that is as it's with new colleagues. My MS was well known to previous colleagues as I was working with them when I was off sick for months and diagnosed. My new col...

13

@novemberrain

7 Apr 2018 13:25Last reply 10 Apr 2018 07:00

Equality Act 2010 Disclosure for employm

Hi I could do with some help please! I am filling out a job application and it asks "Do you have a disability as defined by EA 2010?" I can say yes, no or refused. I am cautious about this. I have had benign MS for 20 years and temporal lobe epilepsy for 5 (caused by demyelinating lesions). I have n...

13

@Stefski

14 Feb 2013 10:51Last reply 16 Feb 2013 10:03

Disclosure?

Hi, I'm in the process of being made redundant and I'm a bit worried about disclosing my m.s on application forms for new jobs. My ms nurse is confident that the disability discrimination act should ensure there wouldn't be discrimination and tells me I need to disclose that I have it. Just wonder...

12

@londonlad

23 Aug 2017 12:47Last reply 26 Aug 2017 06:11

job interviews/ disclosure

hi everyone, I hope your day is going well! so I am pretty happy, as I have the first interview for a new role, next week.. i have been looking for a new job for some time, so to get the interview feels like an achievement itself. i am trying to concentrate on preparing for the role as i would n...

6

@T

2 May 2014 11:21Last reply 2 May 2014 11:59

Disability and disclosure at work

Saw this on the BBC website, looking at disability and disclosure at work. http://www.bbc.co.uk/news/blogs-ouch-27193964

1

@RebeccaArmstrong

8 Aug 2018 10:56

Disclosure - When to tell your employer?

Hey everyone, I have to say i havent been as active on here as I wanted but I am here to remedy that. I am one of the reporters and I was also recently interviewed as part of the MS & Work Reporters series, you can see the videos on the Shift.MS facebook and website. One of the videos tackles...

@stevedomino

14 May 2009 09:10Last reply 14 May 2009 09:10

Work disclosure

I've done a longer post about this - follow the link below. Finished my three days of steroids and came back to two phone message from my boss. The rest of the Management Team have been getting lots of questions from other staff members and they think it might be time for full disclosure. Thoughts?!

1

@DominicS

14 Aug 2020 10:18Last reply 15 Aug 2020 07:02

Your help needed- UK MS Register

Hi, - This is entirely without judgement and for UK MSers. It involves a few min of your time, no money ;) - I am interested to know who has ever been told about the UK MS Register? - https://ukmsregister.org/ (check this out as well if you like https://www.youtube.com/watch?v=s10osAwugO0&list...

38

@gpeps

28 May 2014 07:57Last reply 19 Jun 2014 06:23

Circle of Truth - new film from Shift.ms

Please have a watch our new film about the challenges of disclosure in the workplace. We hope you like! https://shift.ms/workfilms/ Thanks

22

@lissaxox

26 Jan 2018 04:58Last reply 18 Feb 2018 11:41

it's got me thinking...

I moved at the beginning of the month and I went to my local auto insurance broker to update my address on my license and the woman behind the counter asked, "Do you have any conditions that affect your ability to operate a motor vehicle?" Without thinking I said no, up until this point I had been e...

13

@StephZ

24 Jul 2017 16:39Last reply 25 Jul 2017 16:55

Keeping track of MS

How do you keep track of your symptoms, triggers, factors, meds treatments? I use a combination of a paper journal & apps and then combining it with excel data sheets for analysis...(disclosure: I'm a research scientist) I wrote about my system here: https://stephaniezihms.wordpress.com/2017/07/...

8

@Vinny

8 Jun 2014 09:02Last reply 12 Jun 2014 14:07

Discloser to DVLA

I notice on applying for an updated driving licence, that you need to say if you have MS. I can drive a normal car OK (at least for the time being), so I'm a bit worried that this disclosure will mean I then need to tell my insurance company too. This will in turn, I suspect, lead to £100s extra for...

7

@Emma_Louise

25 Jul 2019 12:20Last reply 11 Aug 2019 17:08

The dating game

Hi everyone. I'm looking for advice with regards to dating and how and when you should discuss having M.S. I have been single now for about 18 months and want to get back out there ha ha. I have RRMS. Still work full time but struggle with my balance and fatigue. I was dating a guy recently and told...

4

@beky

25 Jan 2019 19:43Last reply 26 Jan 2019 07:53

Insurance claim

Hi all, Sorry to lower the tone talking money. Just wondering if anyone has had any success appealing a refused insurance payout? They havnt said a definite no yet but have told me it will most likely be denied on the grounds of 'non disclosure' I intend to appeal but wondering if anyone has gone th...

4

@kristina

5 Jun 2014 12:45Last reply 10 Jun 2014 09:39

MS and visual arts

Hi there!! I have just discovered this website!! I just want to say that social networks really worked for me when I was diagnosed with MS (that was 2 years ago). Accepting it wasn't easy job but being in touch with people in the same situation was very helpful, specially when family lives in a dif...

3

@supersmileygal

2 Aug 2018 16:42

New MS & Work Video!

Hi everyone! You might have seen that Shift have recently released new videos as part of their Work & MS. Michelle and I were part of the one below, as well as a few others you'll see as part of Series 1. I really hope you'll find them useful, particularly if you're still in the deciding sta...

@Will_Berard

10 Aug 2021 10:58Last reply 26 Aug 2021 14:52

Podcast guests wanted: Dating & MS

Hello my shifties! I'm producing podcasts for the MS Trust. They recently ran this piece: https://mstrust.org.uk/research/research-updates/210802-multiple-sclerosis-dating-romantic-relationships and that one: https://mstrust.org.uk/news/dearbhlas-story-dating-and-ms We'd like to do a podcast epi...

8

@mschronic

22 Feb 2012 23:00Last reply 23 Feb 2012 20:42

Rant!

I am so tired of being told it's gonna be ok by ppl who have no clue. I know they are saying it from a good place but the day after I inject sometimes my body feels like crap and I have to work and I just wanna lie down. I'm so exhausted. I couldn't carry my laptop upstairs. Disclosure doesnt cont.

2

@Beki

14 Feb 2012 23:00

Fatigue, dating, treatments & a bairn

Here's an update of what's on the Mag: let me know what you think! Gav's written splendidly about a fatigue management course. Dating & disclosure is pondered over by Gus. Dr Simon (of the curly hair) explains MS treatments of the past & future in a vid. And Marlo's got a really cute baby!