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Hey everyone, I have to say i havent been as active on here as I wanted but I am here to remedy that. I am one of the reporters and I was also recently interviewed as part of the MS & Work Reporters series, you can see the videos on the Shift.MS facebook and website. One of the videos tackles...

Hi I could do with some help please! I am filling out a job application and it asks "Do you have a disability as defined by EA 2010?" I can say yes, no or refused. I am cautious about this. I have had benign MS for 20 years and temporal lobe epilepsy for 5 (caused by demyelinating lesions). I have n...

hi everyone, I hope your day is going well! so I am pretty happy, as I have the first interview for a new role, next week.. i have been looking for a new job for some time, so to get the interview feels like an achievement itself. i am trying to concentrate on preparing for the role as i would n...

Hi, I know it's fiction but has anyone seen Coronation Street? A character in the program has just been diagnosed with MS. He has reluctantly told his Daughter but only because she witnessed some symptoms, he said he doesn't want anyone else to know. Is this reaction usual? I myself have been to see...

Saw this on the BBC website, looking at disability and disclosure at work. http://www.bbc.co.uk/news/blogs-ouch-27193964

This is a perennial issue for everyone, but for me, it has become a difficult one to side-step. I have recently started a new job, new that is as it's with new colleagues. My MS was well known to previous colleagues as I was working with them when I was off sick for months and diagnosed. My new col...

Hi, I'm in the process of being made redundant and I'm a bit worried about disclosing my m.s on application forms for new jobs. My ms nurse is confident that the disability discrimination act should ensure there wouldn't be discrimination and tells me I need to disclose that I have it. Just wonder...

Four people with multiple sclerosis react to a film about the challenges that people with MS face when deciding whether or not to reveal their diagnosis. Disclosure is different for everyone and every situation. What lessons (good or bad) have you learnt about disclosure from you time with MS? L...

Do people find that hiding the condition far more exhausting than disclosing it? I’m trying my hardest to hide every symptom and avoiding certain situations without explanation.

I’ve had MS for 28y now and have written this opinion piece for the Barts MS Research Blog. I think it is nigh impossible to give a definitive notice answer. I do know that whenever it is you have to be (more) comfortable in your own head. That is job 1! https://multiple-sclerosis-research.org/20...

I've done a longer post about this - follow the link below. Finished my three days of steroids and came back to two phone message from my boss. The rest of the Management Team have been getting lots of questions from other staff members and they think it might be time for full disclosure. Thoughts?!

When's the right time to disclose Multiple Sclerosis at work? How do you tell your boss you have MS? And should you even have to? 🤔 Did you have a difficult disclosure experience? Share what you learned for others in the community to learn from in the comments below ⬇️ https://www.youtube.com...

Hello I've been having difficulties and pain with my lower back for years . Following an XRay they found arthritis in my lower spine and osteopenia in my spine and hips. In the last few months I've been having difficulty standing on my right leg after sleeping or sitting for a while. I told my Gp ...

Hi, - This is entirely without judgement and for UK MSers. It involves a few min of your time, no money ;) - I am interested to know who has ever been told about the UK MS Register? - https://ukmsregister.org/ (check this out as well if you like https://www.youtube.com/watch?v=s10osAwugO0&list...

Hi everyone. I'm looking for advice with regards to dating and how and when you should discuss having M.S. I have been single now for about 18 months and want to get back out there ha ha. I have RRMS. Still work full time but struggle with my balance and fatigue. I was dating a guy recently and told...

Hi all, Sorry to lower the tone talking money. Just wondering if anyone has had any success appealing a refused insurance payout? They havnt said a definite no yet but have told me it will most likely be denied on the grounds of 'non disclosure' I intend to appeal but wondering if anyone has gone th...

Hi everyone! You might have seen that Shift have recently released new videos as part of their Work & MS. Michelle and I were part of the one below, as well as a few others you'll see as part of Series 1. I really hope you'll find them useful, particularly if you're still in the deciding sta...

I moved at the beginning of the month and I went to my local auto insurance broker to update my address on my license and the woman behind the counter asked, "Do you have any conditions that affect your ability to operate a motor vehicle?" Without thinking I said no, up until this point I had been e...

How do you keep track of your symptoms, triggers, factors, meds treatments? I use a combination of a paper journal & apps and then combining it with excel data sheets for analysis...(disclosure: I'm a research scientist) I wrote about my system here: https://stephaniezihms.wordpress.com/2017/07/...

Please have a watch our new film about the challenges of disclosure in the workplace. We hope you like! https://shift.ms/workfilms/ Thanks