#unlicensed - Shift.ms

12 Apr 2016 10:05Last reply 6 Jul 2016 19:37

Cladribine

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

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@emmad1988

7 Aug 2017 08:21Last reply 17 Aug 2017 12:10

Cladribine advice

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

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@loulou

12 Nov 2012 13:11Last reply 2 Aug 2021 17:56

Would you all help with this?

Hi there My husband and I are writing a letter to David Cameron highlighting the importance of Multiple Sclerosis research and the fact that MS does not seem to get as much resources and funding as other illness's and to expediate research in particular stem cell. If we write a letter and post ...

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@beccygreeneyes

10 Aug 2012 09:30Last reply 20 Aug 2012 11:29

FATIGUE HELL! PLEASE HELP?

Hey so im a newbie here but was wonderin if u guys have any thoughts. I got my second relapse in May which resulted in my diagnosis. I had optic neuritis. My vision is coming back slowly and is now 20/30 but colour vision is still nowhere to be seen. My fatigue has been awful. Anytime i exert myself...

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@AngeShiftMS

20 Mar 2013 10:03Last reply 30 Sep 2013 16:01

Anyone RRMS and DMD Free?

Is anyone a relapsing remitter and DMD free? I've been having large and itchy site reactions with Copaxone, which last for weeks. I look like a battered woman when going to the swimming pool as I have all of these purple marks on my legs where the reaction hasn't fully gone...High dose antihistami...

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@ClareEloise

28 Jun 2021 16:00 EditedLast reply 27 Sep 2021 14:36

A diary of Cladribine / Mavenclad

Hi everyone! I’ve been here for a few months having been diagnosed in January but this is my first post! I started day one of cladribine today, so far so good! I wondered if it would be useful to anyone considering the medication if I made a post each day on how I’m doing with it :) All the posts ...

Hampshire, England, United Kingdom

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@loulou

19 Jul 2012 16:59Last reply 1 Aug 2012 04:20

Has anyone acually had CCSVI?

This continues to interest me, has anyone here actually had CCSVI England or abroad, I am yet to read of any real success stories, anyone had the jugular Dopla test?

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@KateB

19 Jun 2021 08:57Last reply 23 Aug 2021 05:47

LDN Anyone?

@Nicky13 I have started this new post as you have got me interested, and I have started reading about it. From what I can find out, it has helped alot of people so it's strange that we don't have access to it. It also apparently helps psoriasis which I have also got, so I am doubly interested. Anyon...

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@ahelps

5 Sep 2016 08:02Last reply 30 Jan 2021 04:07

Stem cells

Hi everyone, I received a call from my nuro this morning to say they have accepted me for stem cell therapy. I'm both excited and slightly terrified. Has anyone else had stem cell therapy? Looking for advice on success and experience really. Thanks x

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@sunnydaylover

10 Aug 2014 14:13Last reply 14 Aug 2014 07:33

supermoon

Well, i'm gona go outside and chant some new cell mantra under tonights supermoon and tomorrow I'll be my old self again....won't i?

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@Beki

13 Jun 2012 12:30Last reply 29 Jun 2012 19:55

Ask your questions about sex

Folks: the new People's Hot Topic has been decided. Outscoring cannabis and CCSVI by ruddy loads; it is sex. Please ask your questions on this form: https://shift.ms/2012/06/ask-your-questions-about-sex/ The name you use will be read out by our expert when answering your question on video....

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@Eliot-S

3 Sep 2021 17:11Last reply 20 Sep 2021 05:31

Thoughts, experiences, advice wanted, please.

My husband has secondary progressive multiple sclerosis (SPMS). He has tried Tecfidera, Ocrelizumab & Natalizumab. He had terrible reactions to the first two. He became so ill and experienced no benefits. He had no side effects with Natalizumab but didn't feel as though there were any benefits eithe...

Cardiff, United Kingdom

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@sunnydaylover

5 Jul 2014 06:12Last reply 21 Jul 2014 09:34

Beliefs

I have a very special friend, who is a fantastic counsellor/art therapist, but yesterday, she was telling me about a friend of hers who is a hypnotherapist and how she believes in power of the mind and that every day if we just believe in our ability to believe we have new cells every day, or words ...

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@Katie_Harrison

24 Jul 2018 16:45Last reply 15 Aug 2018 12:57

Newbie!

Hello! My name is Katie Harrison and I live in a remote town called Consett, County Durham in the UK. I am 28 years of age (soon to be 29). I'd like to share my story of how I came to be diagnosed. In the July of last year, I experienced a burning sensation in my left foot. A week later it star...

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@jennyO

31 Jan 2018 18:19Last reply 19 Feb 2021 18:40

Cladribine

Hello I wanted to comment on cladribine. I had my first infusion September of 2016. In March 2017 I starting noticing my foot not working correctly(footdrop). I ended up on prednisone in May with no major benefit. I ended up doing another round of cladribine in October 2017. It is now January 2018....

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@Sewing-chick

21 May 2016 12:23Last reply 4 Jul 2017 16:26

My Cladribine experience

I wanted to describe my experience of being given Cladribine. This is a treatment that may stop MS activity. It is given on three separate occasions. The first time the person with MS has three sets of injections of Cladribine. A month later their lymphocyte count is checked and, depending on wha...

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@Clary

21 Aug 2021 07:07Last reply 25 Aug 2021 19:01

Immune suppressant?

Hi everyone, I am due to see my neurologist in a couple of months, and I had decided to try to convince my neurologist to prescribe me Ocrevus. Now I am having 2nd thoughts because of the fact it suppresses the immune system. If you are on this drug, is it being an immune suppressant a concern duri...

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@KrisP

16 Apr 2015 05:07Last reply 17 Apr 2015 07:33

Stem cell therapy PPMS

What is everyone's opinion of this? I look like Im going to be diagnosed with PPMS and fast progression at that. I have researched everything and the only thing with an ounce of chance is stem cell therapy. With active inflammation it has a 60-70% chance of stopping disease, without inflammation s...

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@Flygirl

8 Jun 2017 09:43Last reply 11 Jul 2017 11:45

Cladribine side-effects

Hi everyone, I will be starting a course of Cladribine next year and am interested in hearing stories from other users. Did you suffer any side effects, particularly in the weeks after the initial course of injections? I have seen posts by @agnieszka-legierska and @sewingchick but wonder if there ...

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@laurenrose

18 Jun 2019 15:26Last reply 22 Jul 2019 05:23

cladribine/mavenclad experiences pls!

hi! i completed my first year of treatment in jan + feb this year and sadly, i'm not having the best experience. i'm keen to hear from anyone else who has been on cladribine and what sort of side effects you had. thank you! lauren

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