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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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@emmad1988 

Last reply

emmad1988

Cladribine advice

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Unlicensed
5

@agnieszka-legierska 

Last reply

agnieszka-legierska

Cladribine

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...
  • Diagnosis
  • Disclosure
  • Treatment
  • Unlicensed
15

@Louisbear 

Last reply

Louisbear

Myelin repair clinical trial - a new one

Hello all. An update on my adventures in the land of myelin repair clinical trials: I started a new one this week. This one is called Taurus 2 and uses electrical stimulation of the brain (external, painless) for 15 minutes a day for 20 days to try to get the oligodendrocytes moving. They're a type ...
Melbourne, Australia
  • Research
  • Work and play
  • Brain fog
  • Symptoms
  • Work and Study
  • Unlicensed
  • Myelin repair
  • Treatment
1

@TomDonahue 

TomDonahue

HSCT for MS and Autoimmune Disorders

If you're interested in learning more about Hematopoietec Stem Cell Transplantation (HSCT) please visit Facebook and search the below: In the UK: UK HSCT for MS and Autoimmune Disorders (Point of Contact: Gwen Higgs is a lovely person). Worldwide: HSCT Haematopoietic Stem Cell Transplantation fo...
Chicago, United States
  • Stem cells
  • Treatment
  • Symptoms
  • Unlicensed
  • Work and play
  • Diagnosis
  • Research

@TomDonahue 

TomDonahue

HSCT for MS and Autoimmune Disorders

If you're interested in learning more about Hematopoietec Stem Cell Transplantation (HSCT) please visit Facebook and search the below: In the UK: UK HSCT for MS and Autoimmune Disorders (Point of Contact: Gwen Higgs is a lovely person). Worldwide: HSCT Haematopoietic Stem Cell Transplantation fo...
Chicago, United States
  • Stem cells
  • Treatment
  • Symptoms
  • Unlicensed
  • Work and play
  • Diagnosis
  • Research

@Kizzey65 

Last reply

Kizzey65

HSCT

Just an update in 2017 I had a stem cell transplant at Hammersmith hospital in London, after a resent consultation with my neurologist and MRI scan there are no new lesions to be seen. Seems to be doing the job fingers crossed it will stay like that.
  • MRI
  • Diagnosis
  • Work and Study
  • Work and play
  • Treatment
  • Unlicensed
  • Symptoms
2

@BillySmith 

Last reply

BillySmith

Stem Cell Transplant More Effective for SPMS Than Medications: Study

Hey SPMS crew 👋 I've got some interesting news for anyone living SPMS! A recent study has found that stem cell transplants are more effective at slowing down the worsening of disability than many current treatments. In fact, they may even provide a slight improvement in symptoms! The procedure, ...
  • Secondary progressive
  • Research
  • Diagnosis
  • Work and Study
  • Work and play
  • Treatment
  • Cause
  • Stem cells
  • Fun drugs
  • Unlicensed
14

@BillySmith 

Last reply

BillySmith

‘Mini-brain’ models point to poorer oligodendrocyte growth in PPMS

Hey PPMSers 👋 I came across an interesting article that delves into how genetics may affect the onset and progression of MS. The article discusses a recent study that used stem cells derived from people with MS to develop cerebral organoids, also known as "mini-brains," to better understand the ce...
  • Primary progressive
  • Research
  • Work and Study
  • Work and play
  • Diagnosis
  • Myelin repair
  • Cause
  • Brain fog
  • Symptoms
  • Unlicensed
1

@Alesia_Poilova_Madni 

EditedLast reply

Alesia_Poilova_Madni

Blood test

Hi. I had blood test and got answer that white blood cells r low . I am on Gilenya. Did enyone had / have that prob? What to do?
  • Treatment
  • Gilenya
  • Unlicensed
11

@Alesia_Poilova_Madni 

Last reply

Alesia_Poilova_Madni

Blood test

Did anyone had low white cells? How to boost?
  • Treatment
  • Unlicensed
1
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