#unlicensed - Shift.ms

@emmad1988

7 Aug 2017 08:21Last reply 17 Aug 2017 12:10

Cladribine advice

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

5

@agnieszka-legierska

12 Apr 2016 10:05Last reply 6 Jul 2016 19:37

Cladribine

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

15

@foldpaper

5 May 2022 15:29 EditedLast reply 24 Nov 2022 09:07

Mavenclad / Cladribine and cancer — would you?

Need some advice. I was diagnosed with RRMS in June, discussions w neuro led to Mavenclad. I like the efficacy it promises, and is something that my hospitalisation insurance will likely be able to cover. Daily meds… would not. However! Bc life is sometimes a cosmic joke, I also found out in Oct tha...

9

@Samg276

22 Nov 2022 18:14

Treatment decision

Hello I am currently on Tysabri but having tested positive for jvc last year now is the time to switch to something new. I am between Cladribine and Ocrevus but not sure which one to settle on. My consultant leans toward Ocrevus which makes me think this is the right option. He also told me that the...

@bamelia

27 Feb 2013 18:31Last reply 11 Nov 2022 11:00

LDN

I know that this topic has come up before, but I looked 10 pages back and couldn't find it :( I went to see a new neurologist today and I am very confident with him! He metioned LDN and possibly switching from Rebif to Tysarbi. Nothing in the immediate future, it will probably happen within the ne...

13

@Mart63

11 Nov 2022 09:07

MS hug and Nausea

Hi 👋, I finished year 1 week 2 of Cladribine Aug, since then I have has a stay in hospital where they said I had a clinical Relapse. the MRI showed no significant changes 🤷‍♀️ I had weakness of right leg ,and also reduced bowel sensation. In the last 4 weeks I've had Nausea and the MS hug 🫂 bot...

@Chelle82

4 Nov 2022 21:03Last reply 8 Nov 2022 19:17

Hello lovely people 😊

Hi all, new to shift ms. I was diagnosed in 2017 with RRMS. I tried a few DMT's but was 3rd time lucky with Cladribine (mavenclad) I'm now going into my second year pill free and so far so good, I still have new lesions but they are much fewer and I've not had any major relapses since beginning Clad...

9

@Katherine93

2 Nov 2022 14:17Last reply 2 Nov 2022 22:01

Treatment options

Hey! I have been given four options: tysabri injections, kesimpta, ocravus and cladribine. I’m still struggling to choose one and keep changing my mind. I would love to hear peoples opinions, pros and cons of these medications please 😃

9

@iain73

24 Oct 2022 14:43

Neurofilament levels tested / oligoclonal bands

Has anyone had the levels of their NFL - spinal neurofilaments - tested and/or retested for oligoclonal bands? I had mine a few years ago - three times - to help decide treatment and because I had low NFL levels and OB- I decided on a relatively lower-risk treatment option (Cladribine). But just wo...

@Dtoste77

28 Sep 2022 05:00Last reply 16 Oct 2022 10:55

Anyone taking Aubagio?

For context I’m on the Gemini trial. I’m either taking Aubagio, or Tolebrutinib (not fda approved). I’m curious if anyone here takes aubagio and if so, what have been you biggest side effects?

1

@DominicS

14 Oct 2022 12:26Last reply 14 Oct 2022 19:09

Hamish has his Stem Cells back! HSCT for MS

Hamish picks up from Round 2 of the chemo and takes us through the rest of the HSCT treatment he has just had in Mexico. Though he doesn't use Shift I will pass on any questions you have. Check out his story here: https://youtu.be/76HzvqOjOFI

4

@Firey

13 Oct 2022 01:14Last reply 13 Oct 2022 14:20

White Blood Count

Hi 👋 I got told by my MS nurse that my White Blood Cells are very low Has anyone else had this? Is there anything to boost them?

Royal Hillsborough, UK

6

@HeidiHelps

10 Oct 2022 22:42

When death is actually a good thing...

There are five diseases that damage the brain: epilepsy, Parkinson’s disease, Huntington’s disease, multiple sclerosis, and Alzheimer’s disease. (Pinel 2018). All of these diseases activate apoptotic programmed brain cell death. This is not as bad as it sounds: apoptosis is considered a vital compon...

Kamloops, Canada

@jazminfannon

9 Mar 2022 11:02Last reply 9 Oct 2022 12:39

Cladribine

I took my last Cladribine Friday gone, any ideas if I’m okay to drink alcohol this Saturday? I won’t have had a pill for a week by then…

2

@Graham100

17 Jul 2014 15:20Last reply 9 Oct 2022 12:09

Body cures itself, (cell repair)?

Iv been reading about the human body cells repairing themselves for thousands of years before medicine, and no one died of ms, just 10yrs less life expectancy because of the drugs stopping our own imune system being able to do its job, when the body repairs itsself, doctors call it remission. When ...

16

@Adiba24

8 Oct 2022 18:18Last reply 9 Oct 2022 10:47

Shifting from Tysabri?

Hey guys, I’m new here. I was diagnosed with MS when I was 19 in 2018, and have been on Tysabri since because my JC virus was negative. Now it has become indeterminate and we have to switch to another medicine. Has anyone here done this? How was your experience and what did you switch to? And did an...

4

@londonlad

23 Aug 2021 20:43Last reply 9 Oct 2022 09:52

Cladribine journey - dose 1 / year 1

Evening all, I started my cladribine journey a few weeks ago and want to share my experience. @Shorty2021 - I read you just started, and I hope this helps you. @ClareEloise and others - many thanks for answering my questions - it helped massively and is why this site is such a great resource. I ...

10

@SheenArtist

23 Sep 2022 22:07

Flu vaccine

Hello all I’m looking for some advice. It’s been 6 months since my first Cladribine treatment and I’m wondering, is it ok for me to get my flu shot?

@Mandeeleew

19 Sep 2022 03:03Last reply 22 Sep 2022 22:20

Low dose naltrexone

Anyone out there tried low dose naltrexone (LDN)? Or heard of it’s benefits for autoimmune health? I’ve gone to a naturopathic doctor for a few years and she keeps recommending this.

4

@Chady

16 Sep 2022 15:24

LDN

Hi Anybody taking LDN for their MS?

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