#unlicensed - Shift.ms

These are treatments which have not obtained a license to treat multiple scleriosis, but have been suggested by some as having benefits to people with multiple sclerosis. Why not share your thoughts with the Shift.ms community and read what others have to say about unlicensed treatments?

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@NickEady

25 Jan 2024 12:02Last reply 25 Jan 2024 12:26

Dmt.

I've been bad this year, disability has got much worse, no DMT at present, largely down to circumstances conspiring against me, waited a year for bloods to improve enough to start the Chariot Trial, then had a heart attack, so got rejected before I started 😞 was finally offered an unlicensed in Wal...

Newport, United Kingdom

@emmad1988

7 Aug 2017 08:21Last reply 17 Aug 2017 12:10

Cladribine advice

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

@agnieszka-legierska

12 Apr 2016 10:05Last reply 6 Jul 2016 19:37

Cladribine

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

@PaulX

14 Oct 2016 12:28Last reply 15 Apr 2025 05:35

Low Dose Naltrexone (LDN)

I have been taking LDN for quite a few years now. 4 to 5 years or so. In the first year or so I was convinced it was helping. I felt I was getting worse less quickly and it helped with the legs. Now several years on I am not so sure. I would need to stop and take note to see if symptoms get worse ...

@Mandeeleew

19 Sep 2022 03:03Last reply 15 Apr 2025 05:33

Low dose naltrexone

Anyone out there tried low dose naltrexone (LDN)? Or heard of it’s benefits for autoimmune health? I’ve gone to a naturopathic doctor for a few years and she keeps recommending this.

@Laura92

7 Sep 2024 13:39Last reply 6 Apr 2025 14:18

New here + Mavenclad

Hi everyone! I’m new here so just saying hi I’ve been offered Mavenclad and not sure what to do, it seems a bit too good to be true Has anyone taken it?? How effective has it been and how are the side effects?? Tnx, Laura

Southampton, UK

@Louise_Baker

5 Oct 2021 10:36Last reply 3 Feb 2025 22:25

Brabio injections why waiting for lymphocytes to go up for Mavenclad

Hi everyone had anyone been on these injections with waiting for lymphocytes go up? Not been on DMD since beginning of July and no increase in levels to be able to start cladribine 3 injections a week.. any advice or experience would love to here it!! No body gets it and having fellow MSers that do ...

@Rikki

19 Jun 2024 22:22Last reply 14 Dec 2024 03:09

Stem Cell Therapy

Hi MS Gang … has anybody on here had stem cell therapy or know anyone that’s had stem cell therapy? if so is it any good? … any feedback or information would be appreciated, thank you 🧡

March, UK

@Kfis

2 Feb 2024 22:07Last reply 31 Oct 2024 10:33

Ms & psoriasis - any experiences??

Anyone else have both psoriasis and ms?? What treatment did you opt for? Have been offered kesimpta but read the b cell depleting therapies can exacerbate psoriasis and don’t want it to get worse… Also read that it appears having psoriasis slows down ms progression…think it’s something to do with th...

London, United Kingdom

@wildstarfish

22 Jun 2023 16:47 EditedLast reply 23 Sep 2024 09:05

Any irish out there with RRMS thinking about stem cells or done it?

Hi there, I've had RRMS for almost 20 years, am seriously thinking about stem cells, mesemchemal ones, prices seem to vary and experience feedback too... Anyone here had done it already or thinking about it? I've checked out a few options in Antigua, Costa Rica and Romania/Russia, my neuro says ther...

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