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I've been bad this year, disability has got much worse, no DMT at present, largely down to circumstances conspiring against me, waited a year for bloods to improve enough to start the Chariot Trial, then had a heart attack, so got rejected before I started 😞 was finally offered an unlicensed in Wal...

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

Hi everyone! I’m new here so just saying hi I’ve been offered Mavenclad and not sure what to do, it seems a bit too good to be true Has anyone taken it?? How effective has it been and how are the side effects?? Tnx, Laura

Anyone else have both psoriasis and ms?? What treatment did you opt for? Have been offered kesimpta but read the b cell depleting therapies can exacerbate psoriasis and don’t want it to get worse… Also read that it appears having psoriasis slows down ms progression…think it’s something to do with th...

Hi there, I've had RRMS for almost 20 years, am seriously thinking about stem cells, mesemchemal ones, prices seem to vary and experience feedback too... Anyone here had done it already or thinking about it? I've checked out a few options in Antigua, Costa Rica and Romania/Russia, my neuro says ther...

I have narrowed down to two DMTs and have some questions for anyone who’s ever taken Kesimpta and/or Mavenclad: 1. Did you "feel better" (i.e. did some symptoms become less noticeable) after taking either Kesimpta or Mavenclad? How significant were the improvements? I appreciate DMTs are designed t...

Hi, everyone. I went into a Holland & Barrett health food shop the other day and asked a lady if they sell Vitamin B12 tablets. I told her I have MS and been advised to take B12 by my MS nurses, and that I have been taking 10 micrograms (µg) as I haven’t been advised on any particular dose. My nu...

Hi everyone. Just very worried. I have Relapse Remitting MS. I have tried a few dmd’s (I’ve had tysabri , lemtrada & now ocrevus.) Initially I tend to be ok. But then I have had a big relapse on them. I’m just wondering what if history repeats itself. Where do I go to after having ocrevus? I asked ...

I have a strange story to tell. I got drunk one time, yelled at some kid, said a bunch of horrifying things about my autistic father, and now I think narcissistic people are trying to get revenge on me by dismantling my life and my family. I think that they are trying to imitate me and make my word ...