#unlicensed - Shift.ms

12 Apr 2016 10:05Last reply 6 Jul 2016 19:37

Cladribine

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

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@emmad1988

7 Aug 2017 08:21Last reply 17 Aug 2017 12:10

Cladribine advice

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

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@loulou

12 Nov 2012 13:11Last reply 26 Nov 2012 14:53

Would you all help with this?

Hi there My husband and I are writing a letter to David Cameron highlighting the importance of Multiple Sclerosis research and the fact that MS does not seem to get as much resources and funding as other illness's and to expediate research in particular stem cell. If we write a letter and post ...

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@beccygreeneyes

10 Aug 2012 09:30Last reply 20 Aug 2012 11:29

FATIGUE HELL! PLEASE HELP?

Hey so im a newbie here but was wonderin if u guys have any thoughts. I got my second relapse in May which resulted in my diagnosis. I had optic neuritis. My vision is coming back slowly and is now 20/30 but colour vision is still nowhere to be seen. My fatigue has been awful. Anytime i exert myself...

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@AngeShiftMS

20 Mar 2013 10:03Last reply 30 Sep 2013 16:01

Anyone RRMS and DMD Free?

Is anyone a relapsing remitter and DMD free? I've been having large and itchy site reactions with Copaxone, which last for weeks. I look like a battered woman when going to the swimming pool as I have all of these purple marks on my legs where the reaction hasn't fully gone...High dose antihistami...

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@loulou

19 Jul 2012 16:59Last reply 1 Aug 2012 04:20

Has anyone acually had CCSVI?

This continues to interest me, has anyone here actually had CCSVI England or abroad, I am yet to read of any real success stories, anyone had the jugular Dopla test?

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@sunnydaylover

10 Aug 2014 14:13Last reply 14 Aug 2014 07:33

supermoon

Well, i'm gona go outside and chant some new cell mantra under tonights supermoon and tomorrow I'll be my old self again....won't i?

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@chezy17

13 Feb 2018 17:56Last reply 20 Feb 2018 09:54

Confused!!

Ok, here's a question, if you've got a good prognosis and you're apparently handling and managing the MS well, then why the need to suddenly start hitting it with a stronger drug? I've got to have another MRI but regardless of whether there's any new lesions, they're suggesting Cladribine and Tec? ...

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@Beki

13 Jun 2012 12:30Last reply 29 Jun 2012 19:55

Ask your questions about sex

Folks: the new People's Hot Topic has been decided. Outscoring cannabis and CCSVI by ruddy loads; it is sex. Please ask your questions on this form: https://shift.ms/2012/06/ask-your-questions-about-sex/ The name you use will be read out by our expert when answering your question on video....

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@sunnydaylover

5 Jul 2014 06:12Last reply 21 Jul 2014 09:34

Beliefs

I have a very special friend, who is a fantastic counsellor/art therapist, but yesterday, she was telling me about a friend of hers who is a hypnotherapist and how she believes in power of the mind and that every day if we just believe in our ability to believe we have new cells every day, or words ...

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@Katie_Harrison

24 Jul 2018 16:45Last reply 15 Aug 2018 12:57

Newbie!

Hello! My name is Katie Harrison and I live in a remote town called Consett, County Durham in the UK. I am 28 years of age (soon to be 29). I'd like to share my story of how I came to be diagnosed. In the July of last year, I experienced a burning sensation in my left foot. A week later it star...

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@Sewing-chick

21 May 2016 12:23Last reply 4 Jul 2017 16:26

My Cladribine experience

I wanted to describe my experience of being given Cladribine. This is a treatment that may stop MS activity. It is given on three separate occasions. The first time the person with MS has three sets of injections of Cladribine. A month later their lymphocyte count is checked and, depending on wha...

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@jennyO

31 Jan 2018 18:19Last reply 26 Mar 2018 11:20

Cladribine

Hello I wanted to comment on cladribine. I had my first infusion September of 2016. In March 2017 I starting noticing my foot not working correctly(footdrop). I ended up on prednisone in May with no major benefit. I ended up doing another round of cladribine in October 2017. It is now January 2018....

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@KrisP

16 Apr 2015 05:07Last reply 17 Apr 2015 07:33

Stem cell therapy PPMS

What is everyone's opinion of this? I look like Im going to be diagnosed with PPMS and fast progression at that. I have researched everything and the only thing with an ounce of chance is stem cell therapy. With active inflammation it has a 60-70% chance of stopping disease, without inflammation s...

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@Flygirl

8 Jun 2017 09:43Last reply 11 Jul 2017 11:45

Cladribine side-effects

Hi everyone, I will be starting a course of Cladribine next year and am interested in hearing stories from other users. Did you suffer any side effects, particularly in the weeks after the initial course of injections? I have seen posts by @agnieszka-legierska and @sewingchick but wonder if there ...

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@laurenrose

18 Jun 2019 15:26Last reply 22 Jul 2019 05:23

cladribine/mavenclad experiences pls!

hi! i completed my first year of treatment in jan + feb this year and sadly, i'm not having the best experience. i'm keen to hear from anyone else who has been on cladribine and what sort of side effects you had. thank you! lauren

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@US-Emma

27 Mar 2015 20:20Last reply 6 Sep 2015 18:13

My Lemtrada Experience

Many people have asked about my lemtrada story and I have answered many questions. Today I wrote a synopsis of my story on another thread here. I am reposting it because so many people still have questions about Lemtrada- or might even be unaware of the Lemtrada option. Here is that reposting of th...

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@US-Emma

28 Jan 2015 03:55Last reply 28 Nov 2019 19:58

Need Help Understanding Stem Cell Therap

I am all confused about stem cell therapy. Does anyone have a good reference to read up on the options and outcomes? It seems to be coming up more and more on the MSRBlog out of Barts but I cant get all the options and results straight. I also read this might not be a 'one and done' therapy. Is tha...

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@Bas76

15 Oct 2018 19:09Last reply 24 Oct 2018 16:55

Cladribine -flu jab or not? Help please!

Hi everyone, So I have recently finished my 1st year of Cladrbine meds (7th Sept) and no symptoms thankfully. I have asked my Neuros p.a to ask the neuro if he would support or advise me getting the flu jab and if this would be okay with cladribine. Didn’t get a response for 2 weeks and ask when I a...

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@FXMS

22 Sep 2018 23:21Last reply 31 Oct 2018 02:09

Biotin for progressive forms of MS

MedDay Pharmaceuticals is developing high-dose pharmaceutical biotin for treatment of progressive forms of MS. Currently in phase III development, there is an ongoing clinical trial in Europe and the US named SPI2. Some articles I've read argue that this treatment can stop progression and has induc...

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