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Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

Hi. I had blood test and got answer that white blood cells r low . I am on Gilenya. Did enyone had / have that prob? What to do?

Did anyone had low white cells? How to boost?

Hello everyone, I got an idea. I am an instructor of Qigong/Tai chi and I think it's going to be beneficial if couple times a week we can exercise together. Some small sessions, to benefit our physical and emotional levels. Online (l will find platform). Text, if you are interested 🙏 We are got ...

Damn, what a rollercoaster of a journey...

Hey everyone, I hope all of you had a good day! I read that microdosing LSD or shrooms could be neurological benificial. On the ms subreddit on Reddit there were posts about it too. Some people that did it or tried it noticed a positive difference and a slight decrease in their complaints. So I was...

Hi everyone👋🏻 I’m new in this community, but I felt an imminent need to share my ms story with other people. I was diagnosed with a relapsing-remitting ms at the age 19. But I had first symptoms a long time ago. My name is Elisa, I’m Italian and I study primary education sciences at university. My...

So I was offered a couple of dmts or to apply for the trial. After do my own due diligence and lots of talks with the husband I applied for the trial and after a few bumps and plenty of hoops to get through. I was accepted onto the trial and randomised onto the stem cell arm. Meeting with the team ...

Does anyone know how much it might cost to get a stem cell therapy in Germany?

Hi Everyone. My WBC has been very low for the past 8 months and my Doctor said it is due to my medication, Gilenya. She has decreased my dosage and I am currently on the lowest dosage. If my WBC doesn’t go up in the next month I will have to switch medications (which I really don’t want to do) jus...

Hi Everyone. My WBC has been very low for the past 8 months and my Doctor said it is due to my medication, Gilenya. She has decreased my dosage and I am currently on the lowest dosage. If my WBC doesn’t go up in the next month I will have to switch medications (which I really don’t want to do) jus...

Hi friends! I’ve recently been approached by my neurologist to consider the Star MS trial which involves possible randomisation to aHSCT (stem cell transplant). I’m really struggling with whether I want to join the trial. My symptoms really aren’t that bad and was surprised when I was given an actua...

Editing to add- I completed my second round of treatment in 2020, and had some mild side effects but now it is out of my system, my lymphocytes are at a ”normal” level, and I’m being considered stable! Hi all! I’m looking into changing from Gilenya to Mavenclad, and I’m just a bit confused! I’m se...

Is anyone on Ocrevus and LDN? I’ve been taking LDN since 2009 with no side effects. Recently I’ve been experiencing more numbness in my feet and wonder if taking Ocrevus would help. I have PPMS

Just an update in 2017 I had a stem cell transplant at Hammersmith hospital in London, after a resent consultation with my neurologist and MRI scan there are no new lesions to be seen. Seems to be doing the job fingers crossed it will stay like that.

Hello I am due to switch from tysabri to either ocrevus or cladribine in the new year. I was wondering how these drugs affected everyday life in relation to it's immunosuppressive nature. Do you still socialise the same? Do you still go in to big crowds? Is work affected. I also have a new born and...

I found out some key dates today from the research team. On the 8th Feb, I find out if I am having the stem cell transplant or the high efficacy drugs (Kesimpta). If I get the transplant then I will have my first round of chemo on 25th Feb and my stem cells will be harvested on 6th March. It's al...

Hi all, Hope you are doing well. A few questions for anyone who has taken this drug and can help. Did you get the shingle/ chicken pox vaccine or not before taking this drug? i haven't been told i need to. Also - how did you find year 2 compared to first year? similar, worse , anything else? be goo...

I am about to start mavenclad year 2. I was wondering if anyone could tell me if the side effects are worse than year 1. Thank you.