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Hi all, After a recent (just before Christmas) 6 days in hospital with uro-sepsis I have now found myself having to self catheterize due to urine retention! Following on from that I am now also finding it more and more difficult to naturally empty my bowels as I'm constantly feeling constipated! Do...

Hi I’m a newbie here currently stuck in hospital with not being able to pee or poop properly how is everyone

Sorry for a rather crude set of questions.........but...... I'm having a lot of difficulty getting the muscles to relax so I can go to the toilet......l'm pretty much numb down there.......any experience of this out there..........??

Does anyone else suffer from what I like to call ‘toxic poops,’ as I have no better way to describe them? I suffer from bladder and bowel incontinence, like most of you. When I have to go, I have to go. Sometimes I have seconds to make it to the toilet. Sometimes my bowel movements are normal. Ot...

When someone asks me about MS, if they know anything, it's usually that it affects a person's ability to walk. If only it was that simple....We (MSers) have a little of almost every disease to deal with. Think about it - the brain controls everything the body does. MS causes brain damage and causes ...

Hello. I’m new here but not new to MS. I’m one of those who also has a bunch of other diagnoses, of the sort which often along with MS. Most of them predated it. Bipolar disorder, narcolepsy, fibromyalgia, psoriatic arthritis. My mobility is not noticeably affected, although I know what’ll happ...

Hi all! I am new to group and newly diagnosed. Haven't been told what type of MS, but after researching myself, looks like PPMS. Not on any prescribed medication yet. My main symptoms are numb feet, pins and needles and general weakness in legs as well as attacks of fatigue, partial loss of control ...

Hi everyone! I was diagnosed with MS August of this year, being only 16 years old. It has been a real emotional rollercoaster and I’m still adjusting to this new reality. Anyone else coping with MS and school? (I’m doing A-levels). The worst is definitely the bladder and bowel issues, but every mon...

Hey, I'm new here and just wanted to vent and get some advice. My journey started May 1st 2016 after a very long hot day out in the sun at my eldests first footie tournament. The next day my hands and feet were tingling and everything was spinning so I put it down to too much sun and prescribed my...

Last night i got introduced to the RADAR key which is used to unlock accessible bathrooms in the UK and is frequently used in stadiums and other large venues. Very useful if your bladder and bowels are as anarchic as... mine. Has anyone had experience with these, at a fiver this seems a good invest...

Having bladder and bowel issues again, which is causing lack of sleep and causing fatigue and so being off work... annoying as already on trans-anal irrigation (periston) for the bowels, but continuing to have problems, speak to the specialist on Monday about options which may inc stoma? Anyone els...

It seems a lot of my symptoms point to MS. I know I shouldn't google my symptoms as it may be false but I wanted to know what is wrong and google can mislead. Im worried sick. Fatigue, spine problem, Bladder and Bowel problem (this has gone now) Losing balance, cant walk properly in straight line, f...

Hello all. Just wondering if anyone else can relate with having a partner whom also has an autoimmune disease? I have RRMS and my partner is currently going through the tests etc with suspected IBD. They haven’t been to work for coming up to 5 weeks now because they are having problems leaving the h...

After a period of burning pain which turned into abdominal numbness in November last year, spreading as far up as my collarbone, I saw a private neuro 15th Jan. Brain and C-spine scans 29th Jan which both came back clear, no evidence of inflammation or demyelination. Neuro said hopefully symptoms wi...

This is what I posted in some Facebook MS groups this morning...... Morning everyone, looking for some advice/ comments about symptoms I’m experiencing of late...... For about a month now I have been having severe headaches behind my eyes and feel dizzy (out of sorts). I am also sweating profusely...

Hi, Niche request but am talking at a neurology conference re my own experience having a sensitive op recently (Suprapubic catheter, eek), but also wanting to feed back other MSer’s experience, good or bad. Topic would be support you have (or haven’t!) received during lockdown on all things bladder ...

Hello all, I'm wondering if other people get confusing messages from bladder and bowel, i.e. 'need to go... don't need to go' once you get to the toilet. Very frustrating from the effort it takes me to get up/down & jeans off/on again. My husband says it's all in my mind, but I'm pretty sure it'...

Hey everyone I am just writing to enquire about whether or not my symptoms are being treated by lemtrada I had lemtrada 3 months ago it seems to have made me more awake but I still have problem with my bladder and bowels my optic neuritis is also still bad and my right hand still gets tremors that ...

Hello, so I have been to see my neurologist yesterday after having a 6 month MRI follow up. according to the neuro no new activity so far.... all good. here is a quick run up to what I am dealing with: in June 2017 had MRI done and found 6 non active lesions on my Brain in July 2017 had MRI of my ...

I had the day from hell on Saturday. I've been really poorly with a chest infection for about three weeks. Due to being on Fingolimod my immune system is very weak. It wouldn't seem to shift even with antibiotics. Then last Monday I developed numbness in my lower back accompanied by some severe nerv...