#bladder-and-bowel

19 Aug 2016 20:19Last reply 24 Aug 2016 13:04

Bladder and bowel troubles ?

Sorry for a rather crude set of questions.........but...... I'm having a lot of difficulty getting the muscles to relax so I can go to the toilet......l'm pretty much numb down there.......any experience of this out there..........??

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@ashia2013

18 Sep 2017 08:58Last reply 20 Sep 2017 09:20

Feeling like I want to end it all

I had the day from hell on Saturday. I've been really poorly with a chest infection for about three weeks. Due to being on Fingolimod my immune system is very weak. It wouldn't seem to shift even with antibiotics. Then last Monday I developed numbness in my lower back accompanied by some severe nerv...

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@calNFFC

19 Aug 2018 22:41Last reply 22 Aug 2018 04:40

Very true words

When someone asks me about MS, if they know anything, it's usually that it affects a person's ability to walk. If only it was that simple....We (MSers) have a little of almost every disease to deal with. Think about it - the brain controls everything the body does. MS causes brain damage and causes ...

19

@DrWendy

28 Jan 2020 11:10Last reply 16 Mar 2020 16:56

Mixed messages

Hello all, I'm wondering if other people get confusing messages from bladder and bowel, i.e. 'need to go... don't need to go' once you get to the toilet. Very frustrating from the effort it takes me to get up/down & jeans off/on again. My husband says it's all in my mind, but I'm pretty sure it'...

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@RobWelsh

27 Nov 2016 02:43Last reply 29 Nov 2016 10:08

Afraid To Eat

MS comes with bladder and bowel problems, but lucky dude, I also get severe pain and sometimes vomiting due to my intestine getting obstructed or partially obstructed. Any help?

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@MarkWebb

1 Dec 2020 12:21Last reply 6 Dec 2020 03:43

‘Continence Service’ experience in lockdown?

Hi, Niche request but am talking at a neurology conference re my own experience having a sensitive op recently (Suprapubic catheter, eek), but also wanting to feed back other MSer’s experience, good or bad. Topic would be support you have (or haven’t!) received during lockdown on all things bladder ...

6

@mschronic

4 Nov 2016 08:48Last reply 7 Nov 2016 09:22

Dear MS

Dear Multiple Sclerosis, I am angry at you. We've been riding the wave easily for about five years and although it hasn't been easy it's been ok. But then BAM! This year you've decided to hit me hard and unexpectedly. Three, THREE MRI's relapse after relapse. Urinating my pants and having to run t...

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@RooW

9 Jun 2016 16:30Last reply 21 Jul 2016 11:17

MRI has come back normal

Hi, I'd really appreciate some advice please. I have had strange symptoms for over a year now (although also have a history of migraines and vertigo going back at least 10 years). Last May (15) I experienced painful hands and feet (both sides) with tingling and what felt like swelling (but never ...

5

@pj887

22 Jun 2018 14:51Last reply 1 Oct 2018 13:34

Help on my ms and lemtrada

Hey everyone I am just writing to enquire about whether or not my symptoms are being treated by lemtrada I had lemtrada 3 months ago it seems to have made me more awake but I still have problem with my bladder and bowels my optic neuritis is also still bad and my right hand still gets tremors that ...

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@pikilily

4 Mar 2017 10:20Last reply 7 Mar 2017 21:31

Hi, Dipping my toe into the limbo pool

I am 55 yrs old, and have had a ‘interesting’ life… I am a practicing nurse, but also have a very creative streak…in my previous career I had a stained glass studio working on architectural stained glass. I now do wet felt paintings, make rag rugs, repair cane and rush chairs and have taught myself...

3

@RooW

2 Aug 2016 19:23Last reply 16 Jul 2017 16:59

Pregabilin weight gain

Help! I am still in limbo land in terms of a diagnosis (clear MRI but neurologist has ordered LP as have lots of ongoing symptoms and recently had optic neuritis) but have been put on Pregabilin as I was finding it difficult to bare on my foot and experiencing lots of neuropathic pain. The Pregabil...

3

@Christy

24 Jun 2016 09:27Last reply 27 Jun 2016 18:54

FODMAP Diet-anyone tried it?

St Mark's Bowel hospital who are treating me with nerve stimulation to improve bladder and bowel (fingers crossed-supposed to help 75%....), have suggested the FODMAP diet to help bowel. Anyone tried it-looks tough, seems to work for IBS but I don't think I have that I wondedr if it helps MS problem...

3

@Jeff_Berry

6 Feb 2021 17:29Last reply 7 Feb 2021 17:36

It’s another ugly day......even without a mirror handy.

This is what I posted in some Facebook MS groups this morning...... Morning everyone, looking for some advice/ comments about symptoms I’m experiencing of late...... For about a month now I have been having severe headaches behind my eyes and feel dizzy (out of sorts). I am also sweating profusely...

Winnipeg, Canada

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@matus82

9 Feb 2018 14:49Last reply 9 Feb 2018 16:22

follow up update

Hello, so I have been to see my neurologist yesterday after having a 6 month MRI follow up. according to the neuro no new activity so far.... all good. here is a quick run up to what I am dealing with: in June 2017 had MRI done and found 6 non active lesions on my Brain in July 2017 had MRI of my ...

1

@TwinMumma81

15 Feb 2021 16:08

Should I request further MRI scans?

After a period of burning pain which turned into abdominal numbness in November last year, spreading as far up as my collarbone, I saw a private neuro 15th Jan. Brain and C-spine scans 29th Jan which both came back clear, no evidence of inflammation or demyelination. Neuro said hopefully symptoms wi...

@watsoncraig

3 Nov 2020 15:15 EditedLast reply 25 Jan 2021 11:51

Things not to say to us

1. I hope you get better. 2. Jesus will heal you if you just keep praying. 3. My neighbor Amy has multiple sclerosis, do you know her? 4. Yeah, but you’re not actually properly disabled, are you? 5. H-E-L-L-O! HOWWWW ARE YOUUU? 6. Were you born that way? 7. You don’t look sick to me. 8. How do you ...

Falkirk, Scotland, United Kingdom

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@cherish

16 Jul 2015 04:27Last reply 4 Aug 2015 11:12

ISC.....

Can anyone help with this plz? Just a few months ago I started peristeen irrigation and although it's not enjoyable- if it has to be done then that's that. Now my bladder is failing and I'm about to (next week) begin Intermittent self catheterization. For the 1st time in my life I'm terrified as I c...

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@Gav

5 May 2012 12:47Last reply 25 May 2012 17:49

Bladder on 'red alert' query

I get short notice of needing to pee sometimes, and when my bladder 'alarm' starts going off, it seem to send the rest of my MS symptoms a bit crazy, I was just wondering what other peoples experiences were?

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@SusieQ

2 Oct 2012 07:46Last reply 11 Oct 2012 18:16

Sorry - bit personal

Hi all, I hope this isn\'t too personal a question, but: I have had ms for six years and over those six years I have totally lost interest in sex. Has this happened to anyone else? How do I get interested again? I\'ve a husband I\'d like to make happy but I don\'t know how to when I just seem to hav...

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@isaacson72

22 Apr 2016 13:02Last reply 27 Jun 2016 20:34

Inability to control body temperature?

I'm just curious if this is something you all deal with? Not sure if it's MS related or not. From time to time, I get very cold, and can't warm myself back up. I sleep under an electric blanket on high, wearing long johns, thick socks & a sweatshirt, and don't sweat (not every night, just th...

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