#bladder-and-bowel

19 Aug 2016 20:19Last reply 24 Jul 2022 23:18

Bladder and bowel troubles ?

Sorry for a rather crude set of questions.........but...... I'm having a lot of difficulty getting the muscles to relax so I can go to the toilet......l'm pretty much numb down there.......any experience of this out there..........??

12

@calNFFC

19 Aug 2018 22:41Last reply 22 Sep 2022 06:49

Very true words

When someone asks me about MS, if they know anything, it's usually that it affects a person's ability to walk. If only it was that simple....We (MSers) have a little of almost every disease to deal with. Think about it - the brain controls everything the body does. MS causes brain damage and causes ...

33

@samanthajayne

25 Aug 2022 15:17 EditedLast reply 27 Aug 2022 18:23

Living in limbo

Hey, I'm new here and just wanted to vent and get some advice. My journey started May 1st 2016 after a very long hot day out in the sun at my eldests first footie tournament. The next day my hands and feet were tingling and everything was spinning so I put it down to too much sun and prescribed my...

8

@Anasta

1 Aug 2022 18:44Last reply 2 Aug 2022 07:40

Alternative treatments?

Hi all! I am new to group and newly diagnosed. Haven't been told what type of MS, but after researching myself, looks like PPMS. Not on any prescribed medication yet. My main symptoms are numb feet, pins and needles and general weakness in legs as well as attacks of fatigue, partial loss of control ...

London, United Kingdom

2

@Gortz

25 Jun 2022 13:00 EditedLast reply 1 Jul 2022 15:35

Blue Radar Key, i had never heard of it

Last night i got introduced to the RADAR key which is used to unlock accessible bathrooms in the UK and is frequently used in stadiums and other large venues. Very useful if your bladder and bowels are as anarchic as... mine. Has anyone had experience with these, at a fiver this seems a good invest...

15

@R-F-J

4 Jun 2022 13:38

What next... its all happening

Having bladder and bowel issues again, which is causing lack of sleep and causing fatigue and so being off work... annoying as already on trans-anal irrigation (periston) for the bowels, but continuing to have problems, speak to the specialist on Monday about options which may inc stoma? Anyone els...

Corsham, UK

@brianthemann

25 Mar 2022 17:20Last reply 25 Mar 2022 21:00

Have I MS?

It seems a lot of my symptoms point to MS. I know I shouldn't google my symptoms as it may be false but I wanted to know what is wrong and google can mislead. Im worried sick. Fatigue, spine problem, Bladder and Bowel problem (this has gone now) Losing balance, cant walk properly in straight line, f...

1

@Nomii

5 Aug 2021 10:45Last reply 5 Aug 2021 15:13

Relatable?

Hello all. Just wondering if anyone else can relate with having a partner whom also has an autoimmune disease? I have RRMS and my partner is currently going through the tests etc with suspected IBD. They haven’t been to work for coming up to 5 weeks now because they are having problems leaving the h...

2

@TwinMumma81

15 Feb 2021 16:08

Should I request further MRI scans?

After a period of burning pain which turned into abdominal numbness in November last year, spreading as far up as my collarbone, I saw a private neuro 15th Jan. Brain and C-spine scans 29th Jan which both came back clear, no evidence of inflammation or demyelination. Neuro said hopefully symptoms wi...

@Jeff_Berry

6 Feb 2021 17:29Last reply 7 Feb 2021 17:36

It’s another ugly day......even without a mirror handy.

This is what I posted in some Facebook MS groups this morning...... Morning everyone, looking for some advice/ comments about symptoms I’m experiencing of late...... For about a month now I have been having severe headaches behind my eyes and feel dizzy (out of sorts). I am also sweating profusely...

Winnipeg, Canada

2

@MarkWebb

1 Dec 2020 12:21Last reply 6 Dec 2020 03:43

‘Continence Service’ experience in lockdown?

Hi, Niche request but am talking at a neurology conference re my own experience having a sensitive op recently (Suprapubic catheter, eek), but also wanting to feed back other MSer’s experience, good or bad. Topic would be support you have (or haven’t!) received during lockdown on all things bladder ...

6

@DrWendy

28 Jan 2020 11:10Last reply 16 Mar 2020 16:56

Mixed messages

Hello all, I'm wondering if other people get confusing messages from bladder and bowel, i.e. 'need to go... don't need to go' once you get to the toilet. Very frustrating from the effort it takes me to get up/down & jeans off/on again. My husband says it's all in my mind, but I'm pretty sure it'...

11

@pj887

22 Jun 2018 14:51Last reply 1 Oct 2018 13:34

Help on my ms and lemtrada

Hey everyone I am just writing to enquire about whether or not my symptoms are being treated by lemtrada I had lemtrada 3 months ago it seems to have made me more awake but I still have problem with my bladder and bowels my optic neuritis is also still bad and my right hand still gets tremors that ...

5

@matus82

9 Feb 2018 14:49Last reply 9 Feb 2018 16:22

follow up update

Hello, so I have been to see my neurologist yesterday after having a 6 month MRI follow up. according to the neuro no new activity so far.... all good. here is a quick run up to what I am dealing with: in June 2017 had MRI done and found 6 non active lesions on my Brain in July 2017 had MRI of my ...

1

@ashia2013

18 Sep 2017 08:58Last reply 20 Sep 2017 09:20

Feeling like I want to end it all

I had the day from hell on Saturday. I've been really poorly with a chest infection for about three weeks. Due to being on Fingolimod my immune system is very weak. It wouldn't seem to shift even with antibiotics. Then last Monday I developed numbness in my lower back accompanied by some severe nerv...

19

@RooW

2 Aug 2016 19:23Last reply 16 Jul 2017 16:59

Pregabilin weight gain

Help! I am still in limbo land in terms of a diagnosis (clear MRI but neurologist has ordered LP as have lots of ongoing symptoms and recently had optic neuritis) but have been put on Pregabilin as I was finding it difficult to bare on my foot and experiencing lots of neuropathic pain. The Pregabil...

3

@pikilily

4 Mar 2017 10:20Last reply 7 Mar 2017 21:31

Hi, Dipping my toe into the limbo pool

I am 55 yrs old, and have had a ‘interesting’ life… I am a practicing nurse, but also have a very creative streak…in my previous career I had a stained glass studio working on architectural stained glass. I now do wet felt paintings, make rag rugs, repair cane and rush chairs and have taught myself...

3

@RobWelsh

27 Nov 2016 02:43Last reply 29 Nov 2016 10:08

Afraid To Eat

MS comes with bladder and bowel problems, but lucky dude, I also get severe pain and sometimes vomiting due to my intestine getting obstructed or partially obstructed. Any help?

10

@mschronic

4 Nov 2016 08:48Last reply 7 Nov 2016 09:22

Dear MS

Dear Multiple Sclerosis, I am angry at you. We've been riding the wave easily for about five years and although it hasn't been easy it's been ok. But then BAM! This year you've decided to hit me hard and unexpectedly. Three, THREE MRI's relapse after relapse. Urinating my pants and having to run t...

6

@RooW

9 Jun 2016 16:30Last reply 21 Jul 2016 11:17

MRI has come back normal

Hi, I'd really appreciate some advice please. I have had strange symptoms for over a year now (although also have a history of migraines and vertigo going back at least 10 years). Last May (15) I experienced painful hands and feet (both sides) with tingling and what felt like swelling (but never ...

5

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