#betaferon - Shift.ms

13 Jun 2022 17:00

I am quiting the betaferon :(

Since i am on a full dose my blood pressure and heart rate is too high. And it`s happening every other day i am injecting the medicine. Even i`ve seen my cardiolog and changing the pills it`s the same. I can`t take it anymore. .... Anyone with simptoms like mine?

@AddyBG

2 Jun 2022 04:42 EditedLast reply 2 Jun 2022 16:34

Trouble sleeping after Betaferon injection

Hi, i am inejcting betaferon arround 10 pm. and went to sleep everytime, but i wake up way too early on the other day and i am feeling asleep whole day. There is some trouble sleeping... Do you have any problems like mine? Any suggestions? This is my first month from starting the drug.

3

@AddyBG

27 May 2022 20:09

Betaferon injection areas

I am at second week of rotation and it`s terrible about these 48 spots you have to inject the drug. Do you guys inject every time in the area you have to? I mean before injection i have at least 30 min. of preparation - drawing on my skin with a pen the spot i have to inject the drug, combining the ...

@AddyBG

17 May 2022 16:43

How did you feel after the first injection of Betaferon?

Yesterday it was my first injection of Betaferon. Firstly it was 0,25 and they told me how to gradually increase the dose. They gave me the injection around 13:00 and i had temperature like ... 37,1 arround 20:00. Today i am fine but i have same temperature arround 37,1 - 37,2 degrees celsius. I don...

@AddyBG

6 Apr 2022 14:53Last reply 6 Apr 2022 15:12

Waiting for Betaferon - i am little scared

Hello, after my country health officials denied my first prescribed medication - Copaxone and the reason was lack of proof for MS now i`ll try again with another papers and new prescribed medication - Betaferon. How are you feeling after taking the medication? Is everything allright with it? I read ...

2

@Cel17

18 Mar 2021 12:26Last reply 22 Mar 2021 12:28

Treatment advice/ experiences on Betaferon or Glatiramer acetate

Hi, Just wondered if anyone has thoughts or experiences, side effects, affecting of daily life of either Glatiramer acetate or Betaferon. I have been given the option of these two above or Ocrelizumab.... cannot choose!! Thanks!

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@lorag

17 Apr 2019 12:37Last reply 18 Apr 2019 00:16

Starting betaferon

I just picked up my prescription for betaferon and I just read this medication is recommended for secondary progression MS as well. I’m a little annoyed with the neurologists I have been seeing for over 20 years and have been SPMS for over 10yrs have never ever mentioned this med to and I have been ...

2

@Syrenna13

4 Aug 2017 09:35Last reply 8 Aug 2017 07:22

Betaferon vs Lemtrad

Disease modifying drugs Betaferon vs Lemtrad Pros and cons??

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@mari365

31 May 2016 06:11Last reply 1 Jun 2016 03:16

Betaferon

Hi all, Very newbie post but I'm very new to all of this, just diagnosed 3 weeks ago. Still trying to get my head around the whole thing. I have decided to start medication and have gone with Betaferon. I'm starting tomorrow and was just wondering if anyone else has used it and what sort of experie...

6

@Phillip

4 Oct 2015 19:02Last reply 29 Oct 2015 13:53

Rebif v Betaferon

Hi, I was diagnosed with MS just over 2 weeks ago. I was given the option of 6 treatments. I then narrowed it down to three: 1) rebif, 2) tecfidera and 3) betaferon. I just ruled out tecfidera because of the link to PML. From your own experience would you recommend rebif or betaferon? They both see...

15

@hkittypink

6 Aug 2014 06:44Last reply 7 Oct 2015 09:17

Thinking of just stopping Betaferon

I've been taking Betaferon for over 4 years now and to tell you the truth I'm sick and tired of the way it rules my life! I have no side effects apart from bruising, but am just fed up of the injections which I hate doing and don't particularly want to go onto another drug. I have MS, it will get ...

7

@meg

2 Mar 2013 17:01Last reply 5 Mar 2013 20:06

Betaferon and contortion

It is suggested that you should avoid injecting into the same place twice in a row and the patient diary suggests 8 injection areas: upper arms, stomach, thighs and buttocks, left and right side of each, proposing rotating through each area 6 times before you get back to the same square 48 injection...

2

@MarkP

8 Dec 2009 18:15Last reply 21 Dec 2009 12:09

Betaferon Yay or Nay?

Been steered towards Betaferon. Now I've read the books and seen the DVD. The choice is of course mine. I know which way I am leaning but any advise,or comments positive or negative would be greatly appreciated. Many thanks...

3

@lukezni

18 Apr 2020 08:25Last reply 19 Apr 2020 10:30

Isolation letter from MS services

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...

5

@lorag

13 Nov 2019 14:30

Anxiety freezing injecting needles

Does anybody else Start to freeze and get panic attacks when injecting themselves with medication? I’ve been on betaferon for over 6 months now and have started to freeze when using a auto injector. This has happened to me before when I was in Avonex and Rebif. I have been on tablet meds 3 differe...

@micheleg63

12 Jan 2018 09:22Last reply 23 Feb 2019 23:59

Progressing on Lemtrada

Hello everyone. I was diagnosed with MS at the end of 2014. And have tried betaferon and tysabri but due to being jc positive I began Lemtrada in September 2016 and had round 2 in September last year. Apart from a week about a month after round 1 in which I felt amazing (probably due to steroids) I ...

9

@FXMS

12 Sep 2018 06:18Last reply 12 Sep 2018 20:34

βIFN-1a/1b while waiting Ocrevus?

Hey! My neurologist thinks Ocrevus is the best choice for my early PPMS. Because of insurance paperwork, I have to wait until march-june 2019 to get it though. Is there any benefit in starting treatment with βIFNs (Rebif or Betaferon/Betaseron) for less than a year? Or would you wait to start Ocr...

2

@paulmorrison

2 Dec 2017 15:36Last reply 26 Dec 2017 12:43

Neurologist visit in January

Hi everybody, my name is paul and I live in the south of Spain. I got diagnosed with rrms in April this year. Spent two years having physio and back scans,thinking that the symptoms were caused by a back problem! Eventually I was hospitalized in may, and put under a ms specialist. Ive lost strength ...

12

@mari365

4 Jul 2016 06:05Last reply 4 Jul 2016 14:09

DMT Side Effects

Hi guys, I started Betaferon 4 weeks ago. Quarter dose for 2 weeks, half doses for 2 weeks and now I am on 3 quarters of a dose. The first 4 weeks were fine but with the 3 quarters, not so fine. I took my injection at 8:45pm last night, it's now 9am and I can't get out of bed. My head is exploding ...

13

@slockha2

20 Jun 2016 04:29Last reply 24 Jun 2016 21:41

Tecfidera - 7 month wait

Hello. My neurologist has recommended I swap to Tecfidera (been on Betaferon for 13 months but it's not working very well). I've just been told I have to wait 7 months to see the MS nurse to talk about the drug and will get it a month after that. Apparently there is a long waiting list for it. 7 mon...

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