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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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  • Aubagio
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@mari365 

Last reply

mari365

Betaferon

Hi all, Very newbie post but I'm very new to all of this, just diagnosed 3 weeks ago. Still trying to get my head around the whole thing. I have decided to start medication and have gone with Betaferon. I'm starting tomorrow and was just wondering if anyone else has used it and what sort of experie...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Treatment
  • Betaferon
6

@Cherb21 

EditedLast reply

Cherb21

Hi fellow clumsy folks! I am 30 years old and was diagnosed in October of 2020. I live in South Africa and have been on 3 different DMT's. 1st was Betaferon, second Fingolimod, currently on my 3rd(Kesimpta - Ofatumumab - in S.A we call it Bonspri), but there are signs of another flair, more activity and new lesions on my brain - waiting to see my Neurologist on the 4th of February. Can someone offer some insight to what my options are from here? If they have had a similar journey perhaps? Also, any advice regarding questions to ask my doctor would be much appreciated!

First posted on the Shift.ms app
11

@AddyBG 

AddyBG

Problem with the betaferon injection

Hello, today i had trouble with the beta injector. My shot was at the bottom cheeks and when the injector started it stopped and a little of the drug was used. I tried by hand to put my shot but the needle came out sprying the drug and it form something like a knob. Very little from the drug was ins...
Sofia, Bulgaria

@AddyBG 

Edited

AddyBG

Accidentally got 2 days in a row of Betaferon injection

Hello, I unintentionally put myself on 2 consecutive days Betaferon. I can't get through to the MS nurse on the phone. What is going to happen now? Is it a problem? Has it happened to anyone?
Sofia, Bulgaria
  • Symptoms
  • Treatment
  • Diagnosis

@AddyBG 

AddyBG

Betaferon and influenza

Hello, i have influenza and my ms nurse said i have to stop taking it while i am sick. I will, but i was wondering if i don`t get few shots, after i start taking it again, the flu-like symptoms of betaferon will starts appear again... My fever is not so high, so should i continue with the betaferon?...
  • Symptoms
  • Betaferon
  • Treatment
  • Diagnosis
  • Which DMT
  • Rebif
  • Healthy living
  • Relapses
  • Copaxone
  • Extavia

@AddyBG 

AddyBG

I am quiting the betaferon :(

Since i am on a full dose my blood pressure and heart rate is too high. And it`s happening every other day i am injecting the medicine. Even i`ve seen my cardiolog and changing the pills it`s the same. I can`t take it anymore. .... Anyone with simptoms like mine?
  • Work and play
  • Fun drugs
  • Symptoms
  • Treatment
  • Betaferon
  • Diagnosis

@AddyBG 

EditedLast reply

AddyBG

Trouble sleeping after Betaferon injection

Hi, i am inejcting betaferon arround 10 pm. and went to sleep everytime, but i wake up way too early on the other day and i am feeling asleep whole day. There is some trouble sleeping... Do you have any problems like mine? Any suggestions? This is my first month from starting the drug.
  • Betaferon
  • Symptoms
  • Treatment
  • Copaxone
  • Work and play
  • Avonex
  • Mental health
  • Plegridy
  • Extavia
  • Fatigue
3

@AddyBG 

AddyBG

Betaferon injection areas

I am at second week of rotation and it`s terrible about these 48 spots you have to inject the drug. Do you guys inject every time in the area you have to? I mean before injection i have at least 30 min. of preparation - drawing on my skin with a pen the spot i have to inject the drug, combining the ...
  • Treatment
  • Betaferon
  • Copaxone
  • Symptoms
  • Avonex
  • Extavia
  • Plegridy
  • Rebif
  • Going out
  • Which DMT

@AddyBG 

AddyBG

How did you feel after the first injection of Betaferon?

Yesterday it was my first injection of Betaferon. Firstly it was 0,25 and they told me how to gradually increase the dose. They gave me the injection around 13:00 and i had temperature like ... 37,1 arround 20:00. Today i am fine but i have same temperature arround 37,1 - 37,2 degrees celsius. I don...
  • Betaferon
  • Treatment
  • Rebif
  • Copaxone
  • Extavia
  • Plegridy
  • Avonex
  • Diagnosis
  • Symptoms
  • Disclosure

@AddyBG 

Last reply

AddyBG

Waiting for Betaferon - i am little scared

Hello, after my country health officials denied my first prescribed medication - Copaxone and the reason was lack of proof for MS now i`ll try again with another papers and new prescribed medication - Betaferon. How are you feeling after taking the medication? Is everything allright with it? I read ...
  • Mental health
  • Copaxone
  • Symptoms
  • Treatment
  • Betaferon
  • Diagnosis
  • Rebif
  • Extavia
  • Gilenya
2
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