#betaferon - Shift.ms

4 Oct 2015 19:02Last reply 29 Oct 2015 13:53

Rebif v Betaferon

Hi, I was diagnosed with MS just over 2 weeks ago. I was given the option of 6 treatments. I then narrowed it down to three: 1) rebif, 2) tecfidera and 3) betaferon. I just ruled out tecfidera because of the link to PML. From your own experience would you recommend rebif or betaferon? They both see...

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@Syrenna13

4 Aug 2017 09:35Last reply 8 Aug 2017 07:22

Betaferon vs Lemtrad

Disease modifying drugs Betaferon vs Lemtrad Pros and cons??

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@hkittypink

6 Aug 2014 06:44Last reply 7 Oct 2015 09:17

Thinking of just stopping Betaferon

I've been taking Betaferon for over 4 years now and to tell you the truth I'm sick and tired of the way it rules my life! I have no side effects apart from bruising, but am just fed up of the injections which I hate doing and don't particularly want to go onto another drug. I have MS, it will get ...

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@mari365

31 May 2016 06:11Last reply 1 Jun 2016 03:16

Betaferon

Hi all, Very newbie post but I'm very new to all of this, just diagnosed 3 weeks ago. Still trying to get my head around the whole thing. I have decided to start medication and have gone with Betaferon. I'm starting tomorrow and was just wondering if anyone else has used it and what sort of experie...

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@lorag

17 Apr 2019 12:37Last reply 18 Apr 2019 00:16

Starting betaferon

I just picked up my prescription for betaferon and I just read this medication is recommended for secondary progression MS as well. I’m a little annoyed with the neurologists I have been seeing for over 20 years and have been SPMS for over 10yrs have never ever mentioned this med to and I have been ...

2

@meg

2 Mar 2013 17:01Last reply 5 Mar 2013 20:06

Betaferon and contortion

It is suggested that you should avoid injecting into the same place twice in a row and the patient diary suggests 8 injection areas: upper arms, stomach, thighs and buttocks, left and right side of each, proposing rotating through each area 6 times before you get back to the same square 48 injection...

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@MarkP

8 Dec 2009 18:15Last reply 21 Dec 2009 12:09

Betaferon Yay or Nay?

Been steered towards Betaferon. Now I've read the books and seen the DVD. The choice is of course mine. I know which way I am leaning but any advise,or comments positive or negative would be greatly appreciated. Many thanks...

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@trace75

12 Jan 2013 14:37Last reply 13 Jan 2013 12:14

Low white blood sells on DMD's

Hi All, Does anyone have experiences with low white blood cells (wbc) when on DMD's? I started betaferon sept 2012 but had to stop again before xmas due to wbc dropping well below normal. A little diappointing when you are getting used to all that goes with these treatments. Neurologist asked me t...

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@mari365

4 Jul 2016 06:05Last reply 4 Jul 2016 14:09

DMT Side Effects

Hi guys, I started Betaferon 4 weeks ago. Quarter dose for 2 weeks, half doses for 2 weeks and now I am on 3 quarters of a dose. The first 4 weeks were fine but with the 3 quarters, not so fine. I took my injection at 8:45pm last night, it's now 9am and I can't get out of bed. My head is exploding ...

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@slockha2

20 Jun 2016 04:29Last reply 24 Jun 2016 21:41

Tecfidera - 7 month wait

Hello. My neurologist has recommended I swap to Tecfidera (been on Betaferon for 13 months but it's not working very well). I've just been told I have to wait 7 months to see the MS nurse to talk about the drug and will get it a month after that. Apparently there is a long waiting list for it. 7 mon...

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@trace75

8 Jul 2012 11:41Last reply 10 Jul 2012 22:13

DMD's decisions decisions

Hi guys. I am a newbe. I have had a clinically isolated syndrome early this year and my MRI shows both acute and chronic lesions.Still not yet diagnosed with ms but think it is only time. I am coping fairly well with this as i have a great boyfirend supporting me every step of the way and the neurol...

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@paulmorrison

2 Dec 2017 15:36Last reply 26 Dec 2017 12:43

Neurologist visit in January

Hi everybody, my name is paul and I live in the south of Spain. I got diagnosed with rrms in April this year. Spent two years having physio and back scans,thinking that the symptoms were caused by a back problem! Eventually I was hospitalized in may, and put under a ms specialist. Ive lost strength ...

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@Anawith1n

21 Jan 2016 07:20Last reply 24 Jan 2016 19:40

Rejected for stem cell treatment

This lady got rejected in Australia to do stem cell cause she is 47 years old. Sorry her gylenya wasn't doing the job anymore. Now that's do disappointing. I HAVE MS NOW FOR nearly 17 years. Been on betaferon 1 month Also gylenya for 1 year Copaxone 1 month and half Steroids tablets 1 week and hal...

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@micheleg63

12 Jan 2018 09:22Last reply 23 Feb 2019 23:59

Progressing on Lemtrada

Hello everyone. I was diagnosed with MS at the end of 2014. And have tried betaferon and tysabri but due to being jc positive I began Lemtrada in September 2016 and had round 2 in September last year. Apart from a week about a month after round 1 in which I felt amazing (probably due to steroids) I ...

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@Spuddie007

9 Oct 2014 09:19Last reply 10 Oct 2014 09:17

Newly Diagnosed MS, new to Shift.ms

Hi Everyone I'm a very very recently diagnosed MS sufferer after two 'attacks' in six weeks and confirmation from a Neuro Super Specialist. Have been in hospital twice in six weeks with seperate attacks on the left and right side. Currently suffering from muscle weakness and numbness on my right s...

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@Jubli8

3 Oct 2013 20:05Last reply 22 Oct 2013 09:38

Going off the drugs

After 30 years RRMS and 10 years Betaferon injections plus other drugs, I have stopped taking everything with only minor noticeable differences in symptoms. As drug companies dont do tests on people NOT taking their product I would like to hear what experiences other people who have stopped medicat...

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@trace75

27 Oct 2012 09:05Last reply 28 Oct 2012 10:11

To tell or not to tell

Getting myself extremely stressed at the minute. Have had CIS and am in to my second month of betaferon. I was always very close to my eldest brother until recently when the relationship has been more strained. He knows i was unwell at the start of the year but i haven't told him why. He did start t...

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@lukezni

18 Apr 2020 08:25Last reply 19 Apr 2020 10:30

Isolation letter from MS services

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...

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@jessica2996

18 Jan 2016 18:59Last reply 19 Jan 2016 22:17

Interferon B 1-B, any experience?

Hi! I've been diagnosed with ms a few months ago and i'm starting my treatment with betaferon or extavia (which both are interferons B 1-B). Does anyone have any experience in the meds? I'd like to know your story :)

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@Pulpculture

23 Jul 2013 12:21Last reply 29 Jul 2013 10:17

Travelling With Meds

Hi. What's your experience of travelling with Meds? It's always a big concern for me. I'd love to hear some ideas for keeping meds cool whilst travelling etc. My experiences are the following: 1) Camping in the UK a couple of years ago. Spent most of the long weekend moving my bag of meds (Betafer...

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