#betaferon - Shift.ms

13 Jun 2022 17:00

I am quiting the betaferon :(

Since i am on a full dose my blood pressure and heart rate is too high. And it`s happening every other day i am injecting the medicine. Even i`ve seen my cardiolog and changing the pills it`s the same. I can`t take it anymore. .... Anyone with simptoms like mine?

@AddyBG

2 Jun 2022 04:42 EditedLast reply 2 Jun 2022 16:34

Trouble sleeping after Betaferon injection

Hi, i am inejcting betaferon arround 10 pm. and went to sleep everytime, but i wake up way too early on the other day and i am feeling asleep whole day. There is some trouble sleeping... Do you have any problems like mine? Any suggestions? This is my first month from starting the drug.

3

@AddyBG

27 May 2022 20:09

Betaferon injection areas

I am at second week of rotation and it`s terrible about these 48 spots you have to inject the drug. Do you guys inject every time in the area you have to? I mean before injection i have at least 30 min. of preparation - drawing on my skin with a pen the spot i have to inject the drug, combining the ...

@AddyBG

17 May 2022 16:43

How did you feel after the first injection of Betaferon?

Yesterday it was my first injection of Betaferon. Firstly it was 0,25 and they told me how to gradually increase the dose. They gave me the injection around 13:00 and i had temperature like ... 37,1 arround 20:00. Today i am fine but i have same temperature arround 37,1 - 37,2 degrees celsius. I don...

@AddyBG

6 Apr 2022 14:53Last reply 6 Apr 2022 15:12

Waiting for Betaferon - i am little scared

Hello, after my country health officials denied my first prescribed medication - Copaxone and the reason was lack of proof for MS now i`ll try again with another papers and new prescribed medication - Betaferon. How are you feeling after taking the medication? Is everything allright with it? I read ...

2

@Cel17

18 Mar 2021 12:26Last reply 22 Mar 2021 12:28

Treatment advice/ experiences on Betaferon or Glatiramer acetate

Hi, Just wondered if anyone has thoughts or experiences, side effects, affecting of daily life of either Glatiramer acetate or Betaferon. I have been given the option of these two above or Ocrelizumab.... cannot choose!! Thanks!

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@lorag

17 Apr 2019 12:37Last reply 18 Apr 2019 00:16

Starting betaferon

I just picked up my prescription for betaferon and I just read this medication is recommended for secondary progression MS as well. I’m a little annoyed with the neurologists I have been seeing for over 20 years and have been SPMS for over 10yrs have never ever mentioned this med to and I have been ...

2

@Syrenna13

4 Aug 2017 09:35Last reply 8 Aug 2017 07:22

Betaferon vs Lemtrad

Disease modifying drugs Betaferon vs Lemtrad Pros and cons??

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@mari365

31 May 2016 06:11Last reply 1 Jun 2016 03:16

Betaferon

Hi all, Very newbie post but I'm very new to all of this, just diagnosed 3 weeks ago. Still trying to get my head around the whole thing. I have decided to start medication and have gone with Betaferon. I'm starting tomorrow and was just wondering if anyone else has used it and what sort of experie...

6

@Phillip

4 Oct 2015 19:02Last reply 29 Oct 2015 13:53

Rebif v Betaferon

Hi, I was diagnosed with MS just over 2 weeks ago. I was given the option of 6 treatments. I then narrowed it down to three: 1) rebif, 2) tecfidera and 3) betaferon. I just ruled out tecfidera because of the link to PML. From your own experience would you recommend rebif or betaferon? They both see...

15

@hkittypink

6 Aug 2014 06:44Last reply 7 Oct 2015 09:17

Thinking of just stopping Betaferon

I've been taking Betaferon for over 4 years now and to tell you the truth I'm sick and tired of the way it rules my life! I have no side effects apart from bruising, but am just fed up of the injections which I hate doing and don't particularly want to go onto another drug. I have MS, it will get ...

7

@meg

2 Mar 2013 17:01Last reply 5 Mar 2013 20:06

Betaferon and contortion

It is suggested that you should avoid injecting into the same place twice in a row and the patient diary suggests 8 injection areas: upper arms, stomach, thighs and buttocks, left and right side of each, proposing rotating through each area 6 times before you get back to the same square 48 injection...

2

@MarkP

8 Dec 2009 18:15Last reply 21 Dec 2009 12:09

Betaferon Yay or Nay?

Been steered towards Betaferon. Now I've read the books and seen the DVD. The choice is of course mine. I know which way I am leaning but any advise,or comments positive or negative would be greatly appreciated. Many thanks...

3

@Shantal

15 Aug 2022 18:52Last reply 16 Aug 2022 13:18

How will we find a cure with no funding to find one

Been in hospital for 5 Days.They pumping me with steroids.6th Relapse in 17 years.I just want this nightmare to end.Tired of hospitals and feeling weak.Im taking Betaferon injections every 2nd day??Can anyone recommend anything else to discuss with my doctor?? Help please!!!! We fighting the same en...

3

@JazWarrior

2 Jul 2022 04:45Last reply 2 Jul 2022 09:46

Let me introduce myself

I’m so happy I found this group. Hello everyone, my name is Jasmine and I was diagnosed the day before Christmas in 2014 at 30 years old. Unfortunately my journey has not been an easy one. Currently I’m on Rebif but that’s after copaxone, betaferon, tysabri and ocrevus. I’m still waiting to see how ...

3

@lukezni

18 Apr 2020 08:25Last reply 19 Apr 2020 10:30

Isolation letter from MS services

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...

5

@lorag

13 Nov 2019 14:30

Anxiety freezing injecting needles

Does anybody else Start to freeze and get panic attacks when injecting themselves with medication? I’ve been on betaferon for over 6 months now and have started to freeze when using a auto injector. This has happened to me before when I was in Avonex and Rebif. I have been on tablet meds 3 differe...

@micheleg63

12 Jan 2018 09:22Last reply 23 Feb 2019 23:59

Progressing on Lemtrada

Hello everyone. I was diagnosed with MS at the end of 2014. And have tried betaferon and tysabri but due to being jc positive I began Lemtrada in September 2016 and had round 2 in September last year. Apart from a week about a month after round 1 in which I felt amazing (probably due to steroids) I ...

9

@FXMS

12 Sep 2018 06:18Last reply 12 Sep 2018 20:34

βIFN-1a/1b while waiting Ocrevus?

Hey! My neurologist thinks Ocrevus is the best choice for my early PPMS. Because of insurance paperwork, I have to wait until march-june 2019 to get it though. Is there any benefit in starting treatment with βIFNs (Rebif or Betaferon/Betaseron) for less than a year? Or would you wait to start Ocr...

2

@paulmorrison

2 Dec 2017 15:36Last reply 26 Dec 2017 12:43

Neurologist visit in January

Hi everybody, my name is paul and I live in the south of Spain. I got diagnosed with rrms in April this year. Spent two years having physio and back scans,thinking that the symptoms were caused by a back problem! Eventually I was hospitalized in may, and put under a ms specialist. Ive lost strength ...

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