Shift.ms
Donate
  • Forum
  • Learn about MS
  • MS symptoms
  • MS diagnosis
  • MS treatment
  • Living with MS
  • Find MSers
  • Buddy Network
  • Films
  • Blogs
  • Get Involved
  • Volunteer
  • Fundraise
  • Donate
  • About us
  • Contact us
  • House rules
  • Terms of use
  • Privacy policy
  • Cookie policy
Sign in

We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

©2023 Shift.ms

Looking for
something specific?

  • Picked for you
  • Browse topics
  • Find MSers
No description set

Topics

  • Aubagio
  • Avonex
  • Betaferon
  • Copaxone
  • Extavia
  • Gilenya
  • Lemtrada
  • Ocrevus
  • Plegridy
  • Rebif
  • Tecfidera
  • Tysabri
  • Unlicensed
  • Which DMT
  • HSCT
  • Browse all
Found 516 results

@AddyBG

AddyBG

Betaferon and influenza

Hello, i have influenza and my ms nurse said i have to stop taking it while i am sick. I will, but i was wondering if i don`t get few shots, after i start taking it again, the flu-like symptoms of betaferon will starts appear again... My fever is not so high, so should i continue with the betaferon?...
  • Symptoms
  • Betaferon
  • Treatment
  • Diagnosis
  • Which DMT
  • Rebif
  • Healthy living
  • Relapses
  • Copaxone
  • Extavia

@AddyBG

AddyBG

I am quiting the betaferon :(

Since i am on a full dose my blood pressure and heart rate is too high. And it`s happening every other day i am injecting the medicine. Even i`ve seen my cardiolog and changing the pills it`s the same. I can`t take it anymore. .... Anyone with simptoms like mine?
  • Work and play
  • Fun drugs
  • Symptoms
  • Treatment
  • Betaferon
  • Diagnosis

@AddyBG

EditedLast reply

AddyBG

Trouble sleeping after Betaferon injection

Hi, i am inejcting betaferon arround 10 pm. and went to sleep everytime, but i wake up way too early on the other day and i am feeling asleep whole day. There is some trouble sleeping... Do you have any problems like mine? Any suggestions? This is my first month from starting the drug.
  • Betaferon
  • Symptoms
  • Treatment
  • Copaxone
  • Work and play
  • Avonex
  • Mental health
  • Plegridy
  • Extavia
  • Fatigue
3

@AddyBG

AddyBG

Betaferon injection areas

I am at second week of rotation and it`s terrible about these 48 spots you have to inject the drug. Do you guys inject every time in the area you have to? I mean before injection i have at least 30 min. of preparation - drawing on my skin with a pen the spot i have to inject the drug, combining the ...
  • Treatment
  • Betaferon
  • Copaxone
  • Symptoms
  • Avonex
  • Extavia
  • Plegridy
  • Rebif
  • Going out
  • Which DMT

@AddyBG

AddyBG

How did you feel after the first injection of Betaferon?

Yesterday it was my first injection of Betaferon. Firstly it was 0,25 and they told me how to gradually increase the dose. They gave me the injection around 13:00 and i had temperature like ... 37,1 arround 20:00. Today i am fine but i have same temperature arround 37,1 - 37,2 degrees celsius. I don...
  • Betaferon
  • Treatment
  • Rebif
  • Copaxone
  • Extavia
  • Plegridy
  • Avonex
  • Diagnosis
  • Symptoms
  • Disclosure

@AddyBG

Last reply

AddyBG

Waiting for Betaferon - i am little scared

Hello, after my country health officials denied my first prescribed medication - Copaxone and the reason was lack of proof for MS now i`ll try again with another papers and new prescribed medication - Betaferon. How are you feeling after taking the medication? Is everything allright with it? I read ...
  • Mental health
  • Copaxone
  • Symptoms
  • Treatment
  • Betaferon
  • Diagnosis
  • Rebif
  • Extavia
  • Gilenya
2

@Cel17

Last reply

Cel17

Treatment advice/ experiences on Betaferon or Glatiramer acetate

Hi, Just wondered if anyone has thoughts or experiences, side effects, affecting of daily life of either Glatiramer acetate or Betaferon. I have been given the option of these two above or Ocrelizumab.... cannot choose!! Thanks!
  • Treatment
  • Which DMT
  • Betaferon
  • Unlicensed
  • Ocrevus
  • Symptoms
  • Work and play
8

@lorag

Last reply

lorag

Starting betaferon

I just picked up my prescription for betaferon and I just read this medication is recommended for secondary progression MS as well. I’m a little annoyed with the neurologists I have been seeing for over 20 years and have been SPMS for over 10yrs have never ever mentioned this med to and I have been ...
  • Diagnosis
  • Secondary progressive
  • Treatment
  • Betaferon
  • Which DMT
2

@Syrenna13

Last reply

Syrenna13

Betaferon vs Lemtrad

Disease modifying drugs Betaferon vs Lemtrad Pros and cons??
  • Treatment
  • Betaferon
  • Work and play
  • Fun drugs
11

@mari365

Last reply

mari365

Betaferon

Hi all, Very newbie post but I'm very new to all of this, just diagnosed 3 weeks ago. Still trying to get my head around the whole thing. I have decided to start medication and have gone with Betaferon. I'm starting tomorrow and was just wondering if anyone else has used it and what sort of experie...
  • Diagnosis
  • Newly diagnosed
  • Symptoms
  • Treatment
  • Betaferon
6

@Phillip

Last reply

Phillip

Rebif v Betaferon

Hi, I was diagnosed with MS just over 2 weeks ago. I was given the option of 6 treatments. I then narrowed it down to three: 1) rebif, 2) tecfidera and 3) betaferon. I just ruled out tecfidera because of the link to PML. From your own experience would you recommend rebif or betaferon? They both see...
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Betaferon
  • Rebif
  • Tecfidera
  • Tysabri
  • Which DMT
  • Work and play
  • Fun drugs
15

@hkittypink

Last reply

hkittypink

Thinking of just stopping Betaferon

I've been taking Betaferon for over 4 years now and to tell you the truth I'm sick and tired of the way it rules my life! I have no side effects apart from bruising, but am just fed up of the injections which I hate doing and don't particularly want to go onto another drug. I have MS, it will get ...
  • Diagnosis
  • Disclosure
  • Symptoms
  • Fatigue
  • Mental health
  • Relapses
  • Treatment
  • Avonex
  • Betaferon
  • Copaxone
  • Rebif
  • Plegridy
  • Extavia
7

@meg

Last reply

meg

Betaferon and contortion

It is suggested that you should avoid injecting into the same place twice in a row and the patient diary suggests 8 injection areas: upper arms, stomach, thighs and buttocks, left and right side of each, proposing rotating through each area 6 times before you get back to the same square 48 injection...
  • Symptoms
  • Relapses
  • Treatment
  • Avonex
  • Betaferon
  • Copaxone
  • Rebif
  • Work and play
  • Going out
  • Relationships
  • Plegridy
  • Extavia
2

@MarkP

Last reply

MarkP

Betaferon Yay or Nay?

Been steered towards Betaferon. Now I've read the books and seen the DVD. The choice is of course mine. I know which way I am leaning but any advise,or comments positive or negative would be greatly appreciated. Many thanks...
3

@Wesley14

Last reply

Wesley14

Vaccines

I used every second day betaferon injection it was so disgusting 😫😫, but before 5 days i meet with new neurolog and he change my injections from betaferon every second day to plegredy injection 2 times per month so im better now💪
Reims, France
  • Betaferon
  • Treatment
  • Plegridy
  • Copaxone
  • Work and play
  • Meet ups
  • Rebif
  • Extavia
  • Avonex
  • Symptoms
1

@Alterego

Alterego

Fourth time lucky?

After trying Betaferon, Gilenya and Tecfidera, I've now a choice of Plegridy, Rebif, Avonex or Copaxone. Betaferon stopped working after 4-5 years and the two tablets lowered my lymphocytes too far so I had to stop. I already do 28 insulin injections a day. Any advice on choice of options?
  • Treatment
  • Copaxone
  • Rebif
  • Avonex
  • Tecfidera
  • Gilenya
  • Which DMT
  • Plegridy
  • Betaferon
  • Symptoms

@Shantal

Last reply

Shantal

How will we find a cure with no funding to find one

Been in hospital for 5 Days.They pumping me with steroids.6th Relapse in 17 years.I just want this nightmare to end.Tired of hospitals and feeling weak.Im taking Betaferon injections every 2nd day??Can anyone recommend anything else to discuss with my doctor?? Help please!!!! We fighting the same en...
  • Symptoms
  • Relapses
  • Steroids
  • Fatigue
  • Treatment
  • Betaferon
  • Work and play
3

@JazWarrior

Last reply

JazWarrior

Let me introduce myself

I’m so happy I found this group. Hello everyone, my name is Jasmine and I was diagnosed the day before Christmas in 2014 at 30 years old. Unfortunately my journey has not been an easy one. Currently I’m on Rebif but that’s after copaxone, betaferon, tysabri and ocrevus. I’m still waiting to see how ...
  • Treatment
  • Rebif
  • Copaxone
  • Diagnosis
  • Newly diagnosed
  • Ocrevus
  • Symptoms
  • Betaferon
3

@lukezni

Last reply

lukezni

Isolation letter from MS services

Hello I've just received another letter this time from the ms nurse & neurology service. Just going to point out some of the info, some of you probably already know and may have received this letter. Thought I'd share on here anyway. Ms patients in the vulnerable category that require shiel...
  • Diagnosis
  • Treatment
  • Avonex
  • Betaferon
  • Gilenya
  • Lemtrada
  • Rebif
  • Tecfidera
  • Unlicensed
  • Which DMT
  • Plegridy
  • Extavia
  • Aubagio
  • MRI
  • Ocrevus
  • Mavenclad
5

@lorag

lorag

Anxiety freezing injecting needles

Does anybody else Start to freeze and get panic attacks when injecting themselves with medication? I’ve been on betaferon for over 6 months now and have started to freeze when using a auto injector. This has happened to me before when I was in Avonex and Rebif. I have been on tablet meds 3 differe...
  • Symptoms
  • Hot and cold
  • Mental health
  • Treatment
  • Avonex
  • Betaferon
  • Rebif
PreviousNext page