#relapsing-remitting

24 Sep 2015 13:50Last reply 5 Mar 2021 16:41

Best Treatment for Relapsing Remitting

I am a 25 year old man from Ireland. I was diagnosed with Relapsing Remitting MS in September 2015. I have been six treatments to choose from 1) Tecfidera 2) Plegridy 3) Avonex 4) Rebif 5)Copaxone 6) Betaferon. If anybody is on any of these and has any advice or recommendations I would be delighted ...

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@gpeps

25 Mar 2013 18:44Last reply 17 Feb 2021 22:00

From Relapsing Remitting MS to Secondary Progressive - questions please!

Hi all, We've got Prof Alan Thompson from the Institute of Neurology in London lined up to respond to your questions about the transition from Relapsing Remitting MS to Secondary Progressive MS. Professor Thompson is a world leader when it comes to progressive MS and this is your chance to ask...

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@supersmileygal

7 Jul 2009 13:24Last reply 7 Jul 2009 13:24

Relapsing-remitting

I was only recently diagnosed with MS and found to have this form, and must admit that I'm finding it hard to come to terms with. Does anyone know of any counselling support through the NHS that can help with this? e.g. MS nurses etc?

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@Michelle_Grimstad

6 Dec 2019 20:07Last reply 7 Dec 2019 13:57

My relapsing remitting ms

I've had ms for 18 yrs now got diagnosed when I was 27 im on tysabri excellent med I haven't had a relapse for about 10 yrs since I started it but if anyone has any questions I will trt and help I walk still just can't walk for long distance like walmart for that I use my manual wheelchair I'm prett...

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@Ladianna

14 Feb 2021 18:16Last reply 15 Feb 2021 09:10

Hi my name is Anne and I have relapsing remitting MS for 23 years.

I’m having difficulty with my fatigue I was on provigal and know I’m on Ritalin. I’m going to be trying a time release Ritalin. Ugh. I want aderall. I have done my research. I’m terribly frustrated . I live in Erie Pennsylvania.

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@yesterdaysgal

3 May 2017 03:37Last reply 5 May 2017 06:09

Relapsing, Remitting

Temporary memory loss is common for me. I try to stay positive. As a great post once said; Never admit to having an illness. Unfortunately the lack of admission only works when you feel good.

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@Octavio_Breme

6 Dec 2019 09:00Last reply 7 Dec 2019 05:08

Relapsing remitting MS (Tier 2 Visa)

Good morning, I´m from Argentina and I have relapsing remitting MS since 2010 aprox. My employee has offered a job in the UK to start in February and they are requesting a Tier 2 Visa for me and my wife, we need to pay for the Healthcare Surcharge. Right now I´m taking Gilenya Fingolimod 0,5mg; do y...

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@nicolesmiles

12 Aug 2019 07:37Last reply 12 Aug 2019 08:52

25 Perth, relapsing remitting.

Anyone have experience taking modafinil?

1

@smurf69

5 Dec 2018 18:50Last reply 13 Mar 2019 20:14

I’m back

Doubt anyone remembers me but I’ve posted on here since 2016. Long story short but got CIS diagnosis in January 2017 and started on Rebif until December. Taken off due to low wbc meaning I couldn’t have elective surgery. Plan then was for 6 monthly mri/appointments and close monitoring. My case has ...

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@Clare80

16 Mar 2020 22:51Last reply 14 Jan 2021 11:59

We've got this...

It struck me this weekend that people with MS are actually probably particularly well equipped to deal with the coronavirus outbreak. Compared to the rest of the population, we are all used to: - Being stuck in limbo, nobody can ever tell us how long something will last and if it will be permanent,...

57

@Nick-G

1 Sep 2014 16:25Last reply 3 Sep 2014 22:51

Recently Diagnoised

Hi I was wondering if you might be able to help me? About a month ago I was told by a neurosurgeon that I have MS Relapsing Remitting, at least that is what I think he said it was a bit of a whirl and a shock as I went for an MRI as my Chiropractor thought that I had a slipped disc. Anyway and I a...

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@erinlidia

24 Jul 2015 16:28Last reply 11 Aug 2015 20:06

Supporting newly diagnosed boyfriend

Hi everyone :) I'm here to ask how to support someone I love more than anything. Sorry if this is long, I just want to set the stage. My boyfriend of 8 years and I moved in together a few weeks ago. It's been an awesome adventure so far, and we're so excited about the future. A few months ago, he ...

33

@cdag1rl

3 Aug 2017 11:37Last reply 28 Feb 2019 20:35

My Ketogenic Diet

I want to share my experiences with everyone about my ketogenic diet. The Keto diet is very low in carbohydrates and high in healthy fats with a medium protein intake, and it is designed to put you into ketosis, which makes your body burn fat for energy, instead of glucose. The benefits can be ama...

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@Scramblelina

26 Nov 2012 00:00Last reply 28 Nov 2012 19:04

Don't want to start on disease modifying treatments

I'm new to this site, was diagnosed in 2006 with relapsing remitting after optic neuritis which was a complete shock. For several years I had very few problems except for being a little off-balance and struggling with words occasionally. This year it feels like it's all caught up with me, seem t...

24

@Sewing-chick

21 May 2016 12:23Last reply 4 Jul 2017 16:26

My Cladribine experience

I wanted to describe my experience of being given Cladribine. This is a treatment that may stop MS activity. It is given on three separate occasions. The first time the person with MS has three sets of injections of Cladribine. A month later their lymphocyte count is checked and, depending on wha...

20

@Paddymanc

4 Apr 2019 04:37Last reply 6 Apr 2019 12:50

New Member This Is Me

hi everyone just a quick hello,and introduction im paddy from manchester uk symptoms started july 18, strange pins and needles under small toe by november it had spread to both legs, and both arms,and ended up in a wheelchair after 8 months of mis-diagnosis,and endless scans etc finally had a appoin...

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@Mark_Harlin

15 Feb 2019 14:44Last reply 25 Feb 2019 18:10

Recently diagnoses

Hi all, I'm new on here. Just been diagnosed with relapsing remitting MS and have decided to go with Tecfidera medication which j will be starting in the next few weeks. Any advice you can give me that I need to know in the first few weeks/months. Thanks in advance

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@jennymay1548

20 Jul 2020 17:20Last reply 28 Jul 2020 08:33

Introduction

Hi! I’m Jenny-May,I’m 21 and I’ve recently been diagnosed with relapsing remitting MS. I’ve been advised to join because I’m quite ‘lonely’ as my therapist says 🤦🏼

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@BronwynMogridge

25 Apr 2016 15:16Last reply 6 May 2016 18:00

LEMTRADA TREATMENT

Hi All I was diagnosed with relapsing remitting MS in 2013, the neurological consultant at the disease modifying clinic I have gone to has suggested I do the Lemtrada treatment. At first it sounded like great but once researching it and seeing the severe side effects you could get it has scared me ...

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@lpoollou2

30 Sep 2019 04:51Last reply 24 Oct 2019 07:51

tecfidera

I was diagnosed with relapsing remitting MS back in 2007. My relapses used to average one every 4 years until last year. I was fine for a year after having my daughter then had two relapses within a couple of months. It was the first time I qualified for a disease modifying drug. They put me on copa...

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