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Life swallows you up and you forget you're seriously ill until you have another relapse. I have to laugh otherwise I'll cry. Luckily, it's nowhere near as severe as my last just incredibly uncomfortable and is making work and study difficult. I'm also going to be starting my DMDs soon, I'm going to ...

Oh my days, just went through my PIP tribunal paperwork and literally sat and cried... They just keep referring to the fact I have a job and that I have a licence (don’t drive and it’s restricted to 3 years), and my last big relapse was 3 years ago. Not concentrating on the problems I do have. In th...

I was hospitalised back in July as I lost the ability to walk due to servere pain in both my knees. Nobody believed my pain as there was no swelling of bruising and my symptoms were 'weird'. It wasn't until I was in the MRI I realised the nurses voice change tone and I knew they had found something...

Anyone else get a dreaded brown envelope arrive on the doormat and think 'great another fight to face!' I think the endless reviews of Personal Independence Payment for those of us with MS is absolutely disgusting! I mean did I miss something? Or is there suddenly a cure for Multiple Sclerosis that ...

I’m a man of the world and a people person. I work in DevOps, so I’m basically a nerd with people skills. I speak fluent nerd, but I can talk to just about anyone about anything. I speak to the business, gather their requirements, then translate everything for the technical minds who build it. I’m ...

When you’re working or anything do you do things wrong? like in a silly order or something… I find it frustrating if I do things like that 🙄😤!! Is it a Ms thing?

Sorry if this offends anyone, because I know MS hits us all very differently, but I think the wins deserve some airtime too. I went to the gym today after linking my Garmin data to ChatGPT and building my training around what my body was actually showing. Today it basically said: RELEASE THE HOUN...

shift.ms was a great help and a lifeline when i first got diagnosed with RRMS in 2022. jump 4 years, to the month, forward: i now have SPMS i now have frontotemporal dementia i am now 50% paralysed i had an IQ of 154, now i can hardly keep my cool or string a sentence together. i was a successf...