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Life swallows you up and you forget you're seriously ill until you have another relapse. I have to laugh otherwise I'll cry. Luckily, it's nowhere near as severe as my last just incredibly uncomfortable and is making work and study difficult. I'm also going to be starting my DMDs soon, I'm going to ...

I've been on Kesimpta for 8 or so months and really struggled with feeling 'hungover' and fatigued on and off since the big crash of the loading doses. My nurse has agreed I need to change and has asked me to consider Briumvi, Ocrevus or Mavenclad while she chats to my neuro. If anyone has any exper...

Hi guys! Please don’t judge but I’ve only found that drinking Monsters beats MS fatigue while at work. I know energy drinks are horrible for your heart so I was wondering what else I could drink or take to beat the fatigue on work days. Thank you for your insights and tips xxx

I hate MS and all that goes with it. Since my diagnosis i have had to go on Disability my check is only 900 a month and that literally pays my rent and phone bill. I have been looking for a low income apartment and finally found one just to be told I have to pay a $75 dollar application fee. I expla...

Hi all, In six weeks I’ve grown three more lesions in brain and spine and finally met criteria 🙄 this is all in under 6 months and it’s progressing fast. Lesions (multiple) in left and right brain along with c2+3. I’ve been told they a perm damage now? :( Symptoms are getting harder by the day. Nu...

I’m a tv editor and I work on a UK show called ‘Sort Your Life Out’ where families in need of help have their houses organised and declutterred by a team of experts to bring back the love for their homes they once had. The episode I started yesterday came as a bit of a shock because the family have ...

Do you tell your colleagues at work? My manager in a meeting tried to tell me she thinks I should let them know. They are a small team we're all girls. They seem nice But when I began my role I did state I wanted my diagnosis confidential. I think some of my colleagues may already know. It is awkwar...

Do you tell your colleagues at work? My manager in a meeting tried to tell me she thinks I should let them know. They are a small team we're all girls. They seem nice But when I began my role I did state I wanted my diagnosis confidential. I think some of my colleagues may already know. It is awkwar...

Asking if anyone has ever asked their employer to grant working fully remote because of health issues and was denied. Even though everything done on site can be done at home. Please Share experiences or laws concerning disability in the workplace that you are aware of. I am in the state of MA.