#work-and-study - Shift.ms

25 Nov 2020 15:40 Edited

Hello Again

Life swallows you up and you forget you're seriously ill until you have another relapse. I have to laugh otherwise I'll cry. Luckily, it's nowhere near as severe as my last just incredibly uncomfortable and is making work and study difficult. I'm also going to be starting my DMDs soon, I'm going to ...

@eloquent

Yesterday at 21:44Last reply Today at 12:28

New treatment enquiry

Hello, I heard a neurologist in an interview saying. That there is a new treatment that passed clinical trial. Where a patient take 10 tablets the first year same the second and third year. Then the patient stay off relapses on scan and clinical tests for 10 years fully healthy. Live their life rel...

13

@Snail-train

last Sunday at 13:33Last reply Today at 08:37

Wheelchair- when?

To the people on here using wheelchairs, please can I ask you when did you know that was the time? I just did a trip to my local shop… a 10 min slow walk. I recently bought a walking stick to help me balance as my right leg is the weaker one. But todays trip I really really struggled with. Kept ha...

8

@Lulabella

last Friday at 21:51Last reply last Monday at 15:39

Support and understanding

I think my partner has said the most hurtful thing he could ever say he said "his hard earned money" as if I don't struggle every day with my progression and work for my disability money just by moving and keeping independent. I have a degree in Biomedical Science - since my diagnosis is still relat...

15

@Raceya

20 Jun 2022 02:26Last reply last Sunday at 21:49

BTK inhibitor Tolebrutinib

Has anyone here volunteered for phase three study in USA?

Phoenix, United States

1

@Mag_MSOCstudy

last Sunday at 06:51

Multiple Sclerosis Online Course (MSOC) study is open!

We are seeking people with MS to be part of a study investigating the effects of lifestyle recommendations delivered through an online learning platform! Developed by the University of Melbourne, this 6-week online course will give you the opportunity to connect with other people with MS and play ...

Melbourne, Australia

@MSmummy

last Thursday at 17:35Last reply last Friday at 09:47

Insurance cover

Hello everyone, I don’t know if this is relevant to this page but I desperately need some help or advice. I was diagnosed with RRMS in January this year which through me completely. As you all know it turns your life upside down! Luckily my partner and I had critical illness insurance to help us o...

6

@Emilyvizza

last Thursday at 19:55Last reply last Friday at 07:08

Migraine or optic neuritis?

Hello there! I am newer to this forum, but diagnosed in 2020 with RRMS. Since then I’ve been on a couple different medications (copaxone, now rebif). However I am still experiencing things that I’m not sure about… My mom who also has MS, had the first symptom of optic neuritis. This isn’t somethin...

5

@Boulevard_Soul

16 Feb 2022 16:07 EditedLast reply last Thursday at 21:37

Participants needed for psychology research project about MS

Hi everyone, Hope you're all doing alright! I'm currently doing a masters in Psychology and, being an MSer myself, I'm doing my research dissertation on people's experiences of being diagnosed with and having MS (write about what you know right?) It's in the early stages, but I'm gearing up to r...

30

@Magdawo

22 Jun 2022 17:50Last reply last Thursday at 20:08

Steroids self isolation

Would you self isolate after taking dose of steroids (medrol)? I don't know what to tell my employer, how long I need to work from home. My MS nurse doesn't answer 🙁

1

@oowa12345

last Thursday at 12:30 Edited

Symptoms Change Every Morning During Relapse

Hello all, I was diagnosed 6 months ago. My eyesight went double for a month and MRI showed many lesions on my brain. I am learning what to expect from this disease. I just found out that my RRMS is very aggressive. The weird thing is during my most recent relapse( 1 month ago) I did not have on...

@MaidMarian

20 Jun 2022 19:00Last reply 21 Jun 2022 22:42

Bad day

So far since being diagnosed about a month ago I have been really upbeat and philosophical about it all but today really got me down! First there was a car parked on the pavement, then when I got to work the wide entry (that I can fit my walker through was out of order) just a sign directing you to...

10

@SalBee82

21 Jun 2022 07:37Last reply 21 Jun 2022 20:03

Work and fatigue

Im finding it difficult to keep working with my fatigue. My job involves lots of online meetings and fast turn around of things. Im a project manager. I work remotely/ home based. I would love to quit my job, dont enjoy it anymore. My MS has now taken over. I didn’t really feel it before, only the p...

11

@BULLMAN

20 Jun 2022 17:44 Edited

Today’s post

A pensioner drove his brand new BMW to 100 mph, looking in his rear view mirror, he saw a police car behind him. He floored it to 140 , then 150, ... then 155, ... Suddenly he thought, "I'm too old for this nonsense !" So he pulled over to the side of the road and waited for the police car to ca...

@supermum1983

15 Jun 2022 16:05Last reply 16 Jun 2022 23:31

Does anyone do the spoon theory??

For people that don't know, I remember in the early days of been diagnosed I was told this, We get 10 spoons a day, so travelling to work or school might cost 3 spoons, cooking a meal 2 spoons etc.. When you have used your spoons you rest. I have started colour coding my days so today was a red d...

7

@BULLMAN

14 Jun 2022 10:25

Today’s post

I gave up my seat on the bus to a blind person, and that’s how I lost my job as a bus driver.

@Utopia63

8 Jun 2022 16:48Last reply 14 Jun 2022 08:34

The DWP are a waste of space

Hi everyone, just to let you all know I was not successful in getting my PIP . I never even got 1 point. I have got MS and it’s something that’s not going away. I have lost my faith in the whole DWP System. They really don’t understand what we go through day in day out. I’m not appealing either, th...

21

@Boulevard_Soul

13 Jun 2022 09:34 Edited

People with Relapse Remitting MS wanted for research project

Hi everyone, I have posted a general overview of this research project before, however I now have the all clear to properly advertise and begin recruiting people for interview, so please see below the official information: I am conducting a research project about people’s experiences with MS, as p...

@danz

10 Jun 2022 01:19Last reply 11 Jun 2022 22:52

I KNOW I CAN DO THAT BUT can i

So here I am unemployeed and sending resumes out looking at jobs I'm WAY over qualified for and getting sad knowing a service/sales job is all I will ever get. I see jobs that are perfect for me BUT I know M.S. can hit me for days and make me look like an idiot at my new job just like the last one...

5

@Raceya

11 Jun 2022 17:34

THE BIG DUMP

I have had MS a long time. So, I’ll try to stay focused and brief. (Wish me luck😂) Many strange happenings from the age of 20. All came to be diagnosed in 1997 at age 32. I’ve taken Copaxone, Avonex, Bee stings🐝(yep),IVIG, Tysabri, and then the BIG GUN- HICY. (Which is high dose cyclophosphami...

Phoenix, United States

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