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Gilenya (fingolimod) is a disease modifying treatment (DMT) for active relapsing remitting multiple sclerosis. It is prescribed as a daily pill and clinical trials have shown it can reduce relapses by around 50% compared to a placebo. Why not share your experience of Gilenya MS treatment or ask other MSers about theirs?

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@LeParc

22 May 2024 09:43Last reply 4 Nov 2024 20:13

Gilenya/ Fingolimod

Hi everyone I'm waiting to switch from Fingolimod to Mavenclad but presently still taking fingolimod. In the last 4 weeks I've developed an eczema type rash on my upper back chest upper arms and shoulders. Has any one else experienced this I'm been taking fingolimod for several years now so I was wo...

Oldham, United Kingdom

@LeParc

26 Apr 2024 20:37Last reply 24 May 2024 11:01

Moving from Gilenya to Mavenclad

Hi everyone, Has anyone had experience of moving from Gilenya to Mavenclad and if so what did it involve e.g. how long share you taken off Gilenya for etc. Many thanks in advance for any replies.

@Elaine_Jacobs_Gammage

31 Mar 2024 08:54

Gilenya bad skin cancer

Hi looking for a little advice. Have been taking Gilenya 6+ years prescribed by Charing Cross Hospital. In that time I have never been checked nor asked about skin, legions or checked for any form of skin cancer. I vaguely remember when first being prescribed gilenya the increase risk in cancer, bu...

London, United Kingdom

@Gillo

16 Sep 2022 13:45Last reply 24 Dec 2023 01:21

Gilenya

Hi can I hear your thoughts on Gilenya, I'm due to start it soon, thanks

Dublin, Ireland

@MSfighterAR

19 Dec 2023 12:53 Edited

after gilenya

hello i take gilenya since 2018 i have an appointment with neurologist on 2024 should i stop it and if i did whats next i wish i take oral treatment that has no pml risk like gilenya or should be brave and continue with it

Dammam, Saudi Arabia

@ody0585

5 Dec 2022 02:57Last reply 8 Sep 2023 15:26

Medication Gilenya

Soo .. let’s just say I have been drinking Gilenya for about 7 years now , the generic just came out like a couple of months ago. All of the sudden a generic came out and the pharmacy/ insurance gave me a battle to get the name brand. It was a night mare ! Anyone else have this issue :/ thank god ...

Miami, United States

@monixpauls

21 Aug 2023 22:48

A DMT stronger than Tecfidera but not as suppressive as Gilenya

I made the switch off Gilenya at the beginning of this year to Tecfidera. My quality of life had sunk down on Gilenya due to its suppressive qualities & dealing with other infections, toxic mold, etc, that my body just wasn't able to fight off very well. Unfortunately my latest MRI showed a bunch of...

Southaven, United States

@Lolalala

4 Apr 2023 15:02

Kesimpta vs Gilenya (Fingolimod)

Hi I was previously on Fingolimod and loved it. Today I started on Kesimpta. Has anyone else had experience of both medications? I'm just hoping it's as good. Better would be beautiful, but it is what it is unfortunately. Any advice would be brilliant. Many thanks Louise

@DalJoy

24 Mar 2023 01:44 EditedLast reply 30 Mar 2023 10:43

Stopping Gilenya (fingolimod) to start Kesimpta

Hi everyone I have stopped taking Gilenya today in order to start the 1 month 'wash out' period required before changing to Kesimpta (I have treatment failure on Gilenya having just had a relapse). Has anyone else been through the Gilenya wash out period? I'm fearful of having some sort of rebound...

@Mathew_Hare

6 Apr 2022 15:21Last reply 29 Mar 2023 01:08

Moving from Tysabri to Gilenya

Hey all, I’ve been on Tysabri since March 2020 and have been fortunate to have no relapses but my MS team told me a couple of days ago that I need to change to Gilenya due to a change in my JC status. I had my last Tysabri infusion earlier today and the neuro nurses seemed very confused about wh...

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