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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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  • Aubagio
  • Avonex
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  • Gilenya
  • Lemtrada
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@Gillo 

Last reply

Gillo

Gilenya

Hi can I hear your thoughts on Gilenya, I'm due to start it soon, thanks
Dublin, Ireland
  • Gilenya
  • Treatment
14

@Miranda22 

Last reply

Miranda22

Gilenya

Hi I'm new here I was just wondering how well gilenya worked for you if you ever took it. And pros and cons. I was diagnosed in November 2021 and didnt start meds until July 31st 2022.
  • Gilenya
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Work and play
2

@kimcarlson 

kimcarlson

Gilenya

I have been using it for years and have no relapses. The prescription reads to take it in the morning, but I feel it is too strong for me and makes me sleepy all day, so I take it before bed and have no problems the next day.
  • Gilenya
  • Treatment
  • Symptoms
  • Going out
  • Relapses
  • Work and play
  • Which DMT

@katfight 

Last reply

katfight

Gilenya

New to gilenya - does anyone take this as would like to know if - Does your pulse drop everything you take your daily dose Do you feel tired straight after taking your daily dose? Want to know if this is normal for others. Thanks
  • Gilenya
  • Treatment
  • Fatigue
  • Symptoms
2

@Anna9292 

Last reply

Anna9292

Gilenya

Has anyone been put on gilenya for their MS? I'm due to start it soon and a bit nervous about it
  • Gilenya
  • Treatment
6

@Diva40 

Last reply

Diva40

Gilenya

Hi has anyone had issues getting Gilenya ? Only have 10 left!!!! In touch with Lloyd’s pharmacy.....
  • Treatment
  • Gilenya
13

@Melanie_Edenfield_1 

Last reply

Melanie_Edenfield_1

Gilenya

Hello. I teach and just started taking Gilenya. My white blood cell count was a little low. Should I worry about getting sick?
  • Treatment
  • Gilenya
6

@Michael_Vallely 

Last reply

Michael_Vallely

Gilenya?

How many people are there put there that have been on Gilenya for longer than 2 years? From what I've picked up is that people start on Gilenya fine but are taken off the drug pretty soon. It seems to be a short term DMT with a bad rep. Also. On a scale of 1-10 how bad do you find the side effects ...
  • Treatment
  • Gilenya
  • Which DMT
7

@Amy_Forrest 

Last reply

Amy_Forrest

Gilenya?

Hi havnt posted on here in a while, Been on gilenya for a year and 7 months now and it's fine, keeping my relapses away but it's dropped my immune system. Does anyone else worry about having a low immune system, I just feel like I'm at risk of getting so many bad things i.e cancer!!! My biggest w...
  • Symptoms
  • Mental health
  • Treatment
  • Gilenya
  • Work and play
  • Family and children
3

@Sasha_Rix 

Sasha_Rix

Gilenya

Started gilenya just over a week and I have a bad headache that's now on the 3rd day when will these reduce its driving me mad thanyou
  • Treatment
  • Gilenya
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