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Registered Company: 06000961

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  • Aubagio
  • Avonex
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  • Gilenya
  • Lemtrada
  • Ocrevus
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@ody0585 

Last reply

ody0585

Medication Gilenya

Soo .. let’s just say I have been drinking Gilenya for about 7 years now , the generic just came out like a couple of months ago. All of the sudden a generic came out and the pharmacy/ insurance gave me a battle to get the name brand. It was a night mare ! Anyone else have this issue :/ thank god ...
Miami, United States
  • Gilenya
  • Treatment
  • Going out
  • Work and play
  • Diagnosis
  • Symptoms
  • Disclosure
  • Which DMT
4

@monixpauls 

monixpauls

A DMT stronger than Tecfidera but not as suppressive as Gilenya

I made the switch off Gilenya at the beginning of this year to Tecfidera. My quality of life had sunk down on Gilenya due to its suppressive qualities & dealing with other infections, toxic mold, etc, that my body just wasn't able to fight off very well. Unfortunately my latest MRI showed a bunch of...
Southaven, United States
  • Treatment
  • Tecfidera
  • Gilenya
  • MRI
  • Diagnosis

@Lolalala 

Lolalala

Kesimpta vs Gilenya (Fingolimod)

Hi I was previously on Fingolimod and loved it. Today I started on Kesimpta. Has anyone else had experience of both medications? I'm just hoping it's as good. Better would be beautiful, but it is what it is unfortunately. Any advice would be brilliant. Many thanks Louise
  • Treatment
  • Gilenya
  • Diagnosis
  • Symptoms

@DalJoy 

EditedLast reply

DalJoy

Stopping Gilenya (fingolimod) to start Kesimpta

Hi everyone I have stopped taking Gilenya today in order to start the 1 month 'wash out' period required before changing to Kesimpta (I have treatment failure on Gilenya having just had a relapse). Has anyone else been through the Gilenya wash out period? I'm fearful of having some sort of rebound...
  • Treatment
  • Gilenya
  • Relapses
  • Symptoms
3

@Mathew_Hare 

Last reply

Mathew_Hare

Moving from Tysabri to Gilenya

Hey all, I’ve been on Tysabri since March 2020 and have been fortunate to have no relapses but my MS team told me a couple of days ago that I need to change to Gilenya due to a change in my JC status. I had my last Tysabri infusion earlier today and the neuro nurses seemed very confused about wh...
  • Gilenya
  • Treatment
  • Tysabri
  • Which DMT
  • Ocrevus
  • Disclosure
  • Research
  • Diagnosis
  • Relapses
6

@Miranda22 

Last reply

Miranda22

Gilenya

Hi I'm new here I was just wondering how well gilenya worked for you if you ever took it. And pros and cons. I was diagnosed in November 2021 and didnt start meds until July 31st 2022.
  • Gilenya
  • Treatment
  • Diagnosis
  • Newly diagnosed
  • Work and play
2

@Docwithms 

Last reply

Docwithms

Gilenya and infections

This is the third time I get respiratory infection in 3 months and with each time I don't even recover 100% , so is that normal with Gilenya ? My doctor said that he will change it because it causes my immunity to go low ... and I am still waiting for the appointment!!!
London, UK
  • Gilenya
  • Treatment
  • Mental health
  • Symptoms
1

@Hd78 

Last reply

Hd78

Gilenya experiences?

Hi my MS has progressed & my neuro is changing me from Tecfidera to Gilenya. I was just wondering if many of u are or have taken it in the past. What did u think of it?
  • Treatment
  • Gilenya
  • Tecfidera
  • Diagnosis
13

@kimcarlson 

kimcarlson

Gilenya

I have been using it for years and have no relapses. The prescription reads to take it in the morning, but I feel it is too strong for me and makes me sleepy all day, so I take it before bed and have no problems the next day.
  • Gilenya
  • Treatment
  • Symptoms
  • Going out
  • Relapses
  • Work and play
  • Which DMT

@Gillo 

Last reply

Gillo

Gilenya

Hi can I hear your thoughts on Gilenya, I'm due to start it soon, thanks
Dublin, Ireland
  • Gilenya
  • Treatment
11
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