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Hi everyone I have stopped taking Gilenya today in order to start the 1 month 'wash out' period required before changing to Kesimpta (I have treatment failure on Gilenya having just had a relapse). Has anyone else been through the Gilenya wash out period? I'm fearful of having some sort of rebound...

Hi I'm new here I was just wondering how well gilenya worked for you if you ever took it. And pros and cons. I was diagnosed in November 2021 and didnt start meds until July 31st 2022.

This is the third time I get respiratory infection in 3 months and with each time I don't even recover 100% , so is that normal with Gilenya ? My doctor said that he will change it because it causes my immunity to go low ... and I am still waiting for the appointment!!!

Hi my MS has progressed & my neuro is changing me from Tecfidera to Gilenya. I was just wondering if many of u are or have taken it in the past. What did u think of it?

I have been using it for years and have no relapses. The prescription reads to take it in the morning, but I feel it is too strong for me and makes me sleepy all day, so I take it before bed and have no problems the next day.

Soo .. let’s just say I have been drinking Gilenya for about 7 years now , the generic just came out like a couple of months ago. All of the sudden a generic came out and the pharmacy/ insurance gave me a battle to get the name brand. It was a night mare ! Anyone else have this issue :/ thank god ...

Hi can I hear your thoughts on Gilenya, I'm due to start it soon, thanks

Soo .. let’s just say I have been drinking Gilenya for about 7 years now , the generic just came out like a couple of months ago. All of the sudden a generic came out and the pharmacy/ insurance gave me a battle to get the name brand. It was a night mare ! Anyone else have this issue :/ thank god ...

I've just started this DMT & wondered what peoples experience is on it and also why was this drug recommended to you over others? Thanks very much.

I will like to heard, you experienced if you taking GYLENYA.

Hi I am wondering could some one help me. I'm freaking out here. My period was late recently and I took a pregnancy test (actually took4) and it was positive. I was shocked (still am) cos my husband and I were not planning on having kids any time soon. I came off the pills a few months ago as I was ...

Can anyone who has moved from Gilenya to Ocrevus share how long it was from when they were told to stop Gilenya before their first infusion? I'm in the 'waiting period' ....and waiting for my infusion date (am off meds)

Hi there, Has anyone had to stop taking Gilenya due to a prolonged QT interval on their ECG? My Gp who did the ECG didn’t seem too concerned but I mentioned it to my MS nurse and my MS consultant has asked me to stop it immediately! I’ve been ticking along on it nicely for eight years without a ...

Just wondering if anyone else has just lost their period since they started Gilenya? I mean... I'm not complaining (per se) and my GP didn't seem especially bothered when I told her about it in December, she did a few blood tests and it's not early menopause so that's cool, but 9 months on still not...

If you take gilenya, have you ever accidentally taken your medicine twice on the same day? Did you have any issues from it?

Hey all, I’ve been on Tysabri since March 2020 and have been fortunate to have no relapses but my MS team told me a couple of days ago that I need to change to Gilenya due to a change in my JC status. I had my last Tysabri infusion earlier today and the neuro nurses seemed very confused about wh...

Hi all. I have RRMS and been on Gylenia for almost 5 years already. Descreasing the white blood cell count is something exprected from gilenya and my value was constant to 0.6 untill now that since Nov last year it got as low as 0.4. My neurologist says this is a critical low level already and if it...

New to gilenya - does anyone take this as would like to know if - Does your pulse drop everything you take your daily dose Do you feel tired straight after taking your daily dose? Want to know if this is normal for others. Thanks

Has anyone got sick with Covid (or know anyone who did)? I am on Gilenya since 2017 and I have read reports that Covid vaccines are not so effective with that particular drug. It would be very helpful to know if anyone got sick with Covid and share with us his/her experience

Discussion with Nurse re mavinclad but they would like me to try Gilenya. Not sure if I should just say OK or say no I want mavinclad. I believe mavinclad is better so why not just go straight to it? Help please