#which-dmt - Shift.ms

4 Sep 2018 18:44Last reply 17 Sep 2018 15:24

What to do? To DMT or not? Which DMT?

Hi Everyone, So I've posted on here once before and haven't been very active on here since so my apologies for that and thank you to everyone that replied to me. I think I've been trying to ignore the possible (inevitable) diagnosis heading my way and trying to live life normally while I can. Howev...

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@Robean

1 Oct 2019 05:23Last reply 1 Oct 2019 20:38

Am I crazy......?

To be considering starting a DMT when my MS is currently really stable and I feel well? I’ve had 1 relapse in 5 years which I have fully recovered from. I’ve always been pro treatment and always said I would start a DMT as soon as I could because everything I’ve read says the earlier the better. I...

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@michael

18 Oct 2016 01:52Last reply 26 Oct 2016 10:41

To DMT or to not DMT

Hi all, A quick overview, I was diagnosed in 2007 after 2 very mild episodes (slight numbness in sole of foot and double vision, both stoped after a week). Since then I have been on the powder form of Avonex and have had no further relapses. I have recently been told that Avonex are stopping the pow...

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@Robean

23 Sep 2019 19:00Last reply 29 Sep 2019 21:30

Newly diagnosed - treatment choices!

Hi everyone, this is my first post on this site which was recommended to me by my MS nurse! I was officially diagnosed with RRMS in August after a 2nd episode of double vision - 1st episode was 5 years ago and back then I had a lumbar puncture which was positive, I knew there was a high chance I’d...

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@CineMike

3 Apr 2021 14:22Last reply 5 Apr 2021 08:13

Need help figuring this out ...

I have a question that is not specific to the COVID vaccine but any vaccination in general. From my understanding, both Ocrevus and Kesimpta have different methods, doses and schedules but the result is the same with the depletion of B cells. Presumably this means that for both drugs it would take 5...

4

@Mererid

7 Dec 2018 01:37Last reply 11 Dec 2018 15:36

Tecfidera/Lymphopenia fail. Next DMT?

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...

3

@Shona12

17 Apr 2018 07:07Last reply 17 Apr 2018 10:47

Update

Hi All Not been around for a while as I just got too frustrated :-( sorry. I thought I should be on the DMT as I followed the guidelines on here and NICE but my consultant wasn't doing it, said my last MRI didn't show what he needed etc.., so was very frustrated and didn't know where to go next. I ...

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@LisaNeighbour

21 Feb 2018 17:15Last reply 21 Feb 2018 20:46

Hi

Thank you so much for the information and for listening or reading? I have to start treatment for latent TB tomorrow, which lasts for 3 months. I will then be told which DMTs for my RRMS will be appropriate and safe for me. I’ve been off treatment since October, due to a relapse and new lesions. Sti...

2

@ilovemywife

2 Mar 2021 17:48Last reply 3 Mar 2021 20:57

Looking for advice... DMT what do you recommend us to start with?

Hey everyone. I'm helping my wife figure out which DMT is the safest to take. Meeting with our neurologist this week to discuss options. She has only had one episode of Optic Neuritis in early 2014. Since then some short false alarm visits (strange vision issues) to the ER and no other symptoms. The...

Bridgeview, United States

2

@LeaLea78

19 Aug 2018 17:18Last reply 19 Aug 2018 19:18

Another relapse?

Hi all, I'm currently awaiting treatment - not due to see the consultant again until 9th November to discuss which DMT I'll be having. In the meantime, I've had my course of steroids to treat the relapse, and GP following up with 60mg Duloxetine as recommended by neurologist. Over the last 2 weeks, ...

1

@TracyD

16 Apr 2015 08:29Last reply 9 Nov 2015 14:26

TracyD's Lemtrada Updates and Blog

I started it yesterday with 33 days to go. I'm doing a lot of proactive preparation before the treatment starts so I wanted to track that and my thoughts and feelings in the lead up to it. I hope that it can be helpful, informative and provide some support for people considering Lemtrada over the ne...

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@Phillip

24 Sep 2015 13:50Last reply 5 Mar 2021 16:41

Best Treatment for Relapsing Remitting

I am a 25 year old man from Ireland. I was diagnosed with Relapsing Remitting MS in September 2015. I have been six treatments to choose from 1) Tecfidera 2) Plegridy 3) Avonex 4) Rebif 5)Copaxone 6) Betaferon. If anybody is on any of these and has any advice or recommendations I would be delighted ...

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@Clare80

16 Mar 2020 22:51Last reply 14 Jan 2021 11:59

We've got this...

It struck me this weekend that people with MS are actually probably particularly well equipped to deal with the coronavirus outbreak. Compared to the rest of the population, we are all used to: - Being stuck in limbo, nobody can ever tell us how long something will last and if it will be permanent,...

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@katfight

27 Feb 2014 20:37Last reply 6 Mar 2014 16:31

need to moan about me!!

So I posted couple weeks back about my life. I didn't tell the whole truth tho so here it goes, im gay so my partner who has just left me is a woman. So ive struggled recently dealing with tge new diagnosis, then the relationship ended and this week my ex girlfriend who has only ever had girlfrie...

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@RachaelLouise

7 Sep 2018 12:28Last reply 10 Sep 2018 14:59

Really not happy with my medical team ..

I’m having a bad time at the moment had relapse and steroids a few weeks ago . I’m just fed up of being treated badly . It’s like they think we have all the time in the world - we have lives or want to have a life Just because my body got sick doesn’t mean I don’t want a life They Just mess arou...

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@Graham100

3 Aug 2014 17:01Last reply 31 Aug 2014 07:51

E-Petition

Dear my fellow MSers, I came across this link http://epetitions.direct.gov.uk/petitions/61501 I thought 'if every MS sufferer were to take a minute to sign this, our care would be talked about in the Commons' Topics Treatments and therapies Emotional support.

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@artisus

11 Jul 2012 14:32Last reply 24 Jan 2018 02:34

Turmeric as a Treatment?

Hey everyone! I was wondering if anyone here has used large amounts of turmeric as a treatment? I'm a fan of 'natural' treatments as much as possible and have heard great things about turmeric and ginger. If you have tried either of these holistic approaches (or another!), did you like it? Did yo...

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@louie999999

28 Sep 2013 10:22Last reply 10 Apr 2014 06:42

Coming out

Hi everyone How did you make the decision to "come out" about your MS? It's been 5 years now and only my parents know. Sometimes I prefer that no one knows and I can just get on with things and other times I feel like I just want to yell it out.

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@lilbird

8 Sep 2015 21:08Last reply 21 Sep 2015 04:29

so... why not choose Lemtrada?

I'm really just curious to know why those of you who have opted for other treatments passed on Lemtrada? It's starting to look to me like the most logical option & there are certainly many people on this site who strongly advocate it. I guess what I'm asking is, is there something I'm missing ...

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@Henrietta

25 Jul 2020 16:58Last reply 27 Jul 2020 04:18

Newly diagnosed - which DMD?

Diagnosed yesterday (by phone of course, thanks COVID) with RRMS. Was expecting it so not surprised. Now have to decide between Aubagio and Tecfidera. I’m tending towards Tecfidera but would welcome feedback / opinions / advice. Thanks 😊

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