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Found 1466 results

@Lisa_Mills

4 Sep 2018 18:44Last reply 17 Sep 2018 15:24

Lisa_Mills

What to do? To DMT or not? Which DMT?

Hi Everyone, So I've posted on here once before and haven't been very active on here since so my apologies for that and thank you to everyone that replied to me. I think I've been trying to ignore the possible (inevitable) diagnosis heading my way and trying to live life normally while I can. Howev...
  • Diagnosis
  • Healthy living
  • Diet
  • Vitamins and supplements
  • Research
  • Symptoms
  • Balance
  • Treatment
  • Lemtrada
  • Tecfidera
  • Which DMT
  • Work and play
  • Family and children
  • Fun drugs
  • Work and Study
  • MRI
  • Pregnancy
  • Cause
12

@Robean

1 Oct 2019 05:23Last reply 1 Oct 2019 20:38

Robean

Am I crazy......?

To be considering starting a DMT when my MS is currently really stable and I feel well? I’ve had 1 relapse in 5 years which I have fully recovered from. I’ve always been pro treatment and always said I would start a DMT as soon as I could because everything I’ve read says the earlier the better. I...
  • Symptoms
  • Relapses
  • Treatment
  • Which DMT
  • Work and play
11

@michael

18 Oct 2016 01:52Last reply 26 Oct 2016 10:41

michael

To DMT or to not DMT

Hi all, A quick overview, I was diagnosed in 2007 after 2 very mild episodes (slight numbness in sole of foot and double vision, both stoped after a week). Since then I have been on the powder form of Avonex and have had no further relapses. I have recently been told that Avonex are stopping the pow...
  • Diagnosis
  • Disclosure
  • Newly diagnosed
  • Symptoms
  • Blurred vision
  • Treatment
  • Avonex
  • Which DMT
8

@Robean

23 Sep 2019 19:00Last reply 29 Sep 2019 21:30

Robean

Newly diagnosed - treatment choices!

Hi everyone, this is my first post on this site which was recommended to me by my MS nurse! I was officially diagnosed with RRMS in August after a 2nd episode of double vision - 1st episode was 5 years ago and back then I had a lumbar puncture which was positive, I knew there was a high chance I’d...
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Research
  • Symptoms
  • Blurred vision
  • Relapses
  • Treatment
  • Copaxone
  • Tecfidera
  • Which DMT
  • Family and children
  • Relationships
  • Aubagio
  • Pregnancy
7

@Mererid

7 Dec 2018 01:37Last reply 11 Dec 2018 15:36

Mererid

Tecfidera/Lymphopenia fail. Next DMT?

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...
  • Research
  • Treatment
  • Tecfidera
  • Which DMT
3

@Shona12

17 Apr 2018 07:07Last reply 17 Apr 2018 10:47

Shona12

Update

Hi All Not been around for a while as I just got too frustrated :-( sorry. I thought I should be on the DMT as I followed the guidelines on here and NICE but my consultant wasn't doing it, said my last MRI didn't show what he needed etc.., so was very frustrated and didn't know where to go next. I ...
  • Diagnosis
  • Symptoms
  • Fatigue
  • Numbness
  • Steroids
  • Treatment
  • Which DMT
  • Work and play
  • Meet ups
  • MRI
2

@LisaNeighbour

21 Feb 2018 17:15Last reply 21 Feb 2018 20:46

LisaNeighbour

Hi

Thank you so much for the information and for listening or reading? I have to start treatment for latent TB tomorrow, which lasts for 3 months. I will then be told which DMTs for my RRMS will be appropriate and safe for me. I’ve been off treatment since October, due to a relapse and new lesions. Sti...
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Symptoms
  • Relapses
  • Treatment
  • Which DMT
  • MRI
2

@LeaLea78

19 Aug 2018 17:18Last reply 19 Aug 2018 19:18

LeaLea78

Another relapse?

Hi all, I'm currently awaiting treatment - not due to see the consultant again until 9th November to discuss which DMT I'll be having. In the meantime, I've had my course of steroids to treat the relapse, and GP following up with 60mg Duloxetine as recommended by neurologist. Over the last 2 weeks, ...
  • Symptoms
  • Relapses
  • Steroids
  • Treatment
  • Which DMT
1

@TracyD

16 Apr 2015 08:29Last reply 9 Nov 2015 14:26

TracyD

TracyD's Lemtrada Updates and Blog

I started it yesterday with 33 days to go. I'm doing a lot of proactive preparation before the treatment starts so I wanted to track that and my thoughts and feelings in the lead up to it. I hope that it can be helpful, informative and provide some support for people considering Lemtrada over the ne...
  • Treatment
  • Lemtrada
  • Which DMT
99

@Phillip

24 Sep 2015 13:50Last reply 11 Oct 2020 13:33

Phillip

Best Treatment for Relapsing Remitting

I am a 25 year old man from Ireland. I was diagnosed with Relapsing Remitting MS in September 2015. I have been six treatments to choose from 1) Tecfidera 2) Plegridy 3) Avonex 4) Rebif 5)Copaxone 6) Betaferon. If anybody is on any of these and has any advice or recommendations I would be delighted ...
  • Treatment
  • Relapsing remitting
  • Diagnosis
  • Newly diagnosed
  • Rebif
  • Copaxone
  • Avonex
  • Which DMT
  • Tecfidera
  • Relapses
67

@Clare80

16 Mar 2020 22:51Last reply 14 Jan 2021 11:59

Clare80

We've got this...

It struck me this weekend that people with MS are actually probably particularly well equipped to deal with the coronavirus outbreak. Compared to the rest of the population, we are all used to: - Being stuck in limbo, nobody can ever tell us how long something will last and if it will be permanent,...
  • Diagnosis
  • Disclosure
  • Relapsing remitting
  • Healthy living
  • Treatment
  • Limbo land
  • Coronavirus
  • Which DMT
  • Work and play
57

@katfight

27 Feb 2014 20:37Last reply 6 Mar 2014 16:31

katfight

need to moan about me!!

So I posted couple weeks back about my life. I didn't tell the whole truth tho so here it goes, im gay so my partner who has just left me is a woman. So ive struggled recently dealing with tge new diagnosis, then the relationship ended and this week my ex girlfriend who has only ever had girlfrie...
  • Diagnosis
  • Disclosure
  • Symptoms
  • Relapses
  • Treatment
  • Which DMT
  • Work and play
  • Family and children
  • Meet ups
  • Relationships
55

@RachaelLouise

7 Sep 2018 12:28Last reply 10 Sep 2018 14:59

RachaelLouise

Really not happy with my medical team ..

I’m having a bad time at the moment had relapse and steroids a few weeks ago . I’m just fed up of being treated badly . It’s like they think we have all the time in the world - we have lives or want to have a life Just because my body got sick doesn’t mean I don’t want a life They Just mess arou...
  • Diagnosis
  • Newly diagnosed
  • Research
  • Symptoms
  • Blurred vision
  • Mental health
  • Relapses
  • Steroids
  • Treatment
  • Which DMT
  • Work and play
  • Money
  • Relationships
  • Travel
  • Stem cells
52

@Graham100

3 Aug 2014 17:01Last reply 31 Aug 2014 07:51

Graham100

E-Petition

Dear my fellow MSers, I came across this link http://epetitions.direct.gov.uk/petitions/61501 I thought 'if every MS sufferer were to take a minute to sign this, our care would be talked about in the Commons' Topics Treatments and therapies Emotional support.
  • Treatment
  • Which DMT
50

@artisus

11 Jul 2012 14:32Last reply 24 Jan 2018 02:34

artisus

Turmeric as a Treatment?

Hey everyone! I was wondering if anyone here has used large amounts of turmeric as a treatment? I'm a fan of 'natural' treatments as much as possible and have heard great things about turmeric and ginger. If you have tried either of these holistic approaches (or another!), did you like it? Did yo...
  • Healthy living
  • Diet
  • Treatment
  • Which DMT
50

@louie999999

28 Sep 2013 10:22Last reply 10 Apr 2014 06:42

louie999999

Coming out

Hi everyone How did you make the decision to "come out" about your MS? It's been 5 years now and only my parents know. Sometimes I prefer that no one knows and I can just get on with things and other times I feel like I just want to yell it out.
  • Treatment
  • Which DMT
48

@lilbird

8 Sep 2015 21:08Last reply 21 Sep 2015 04:29

lilbird

so... why not choose Lemtrada?

I'm really just curious to know why those of you who have opted for other treatments passed on Lemtrada? It's starting to look to me like the most logical option & there are certainly many people on this site who strongly advocate it. I guess what I'm asking is, is there something I'm missing ...
  • Treatment
  • Lemtrada
  • Which DMT
41

@Henrietta

25 Jul 2020 16:58Last reply 27 Jul 2020 04:18

Henrietta

Newly diagnosed - which DMD?

Diagnosed yesterday (by phone of course, thanks COVID) with RRMS. Was expecting it so not surprised. Now have to decide between Aubagio and Tecfidera. I’m tending towards Tecfidera but would welcome feedback / opinions / advice. Thanks 😊
  • Diagnosis
  • Newly diagnosed
  • Tecfidera
  • Treatment
  • Relapsing remitting
  • Aubagio
  • Which DMT
40

@Stumbler

10 Sep 2018 11:51Last reply 30 Sep 2018 16:02

Stumbler

UK: Ocrevus Declined by NICE for PPMS

This is hot off the press and has upset people in the medical profession, as well as UK PPMSers. There's already a campaign to contest this decision :- https://signup.mssociety.org.uk/page/30088/petition/1  
  • Diagnosis
  • Treatment
  • Which DMT
  • Primary progressive
  • Ocrevus
38

@Jaybo78

4 Nov 2014 17:19Last reply 31 Jul 2015 05:59

Jaybo78

Optic Neuritis recovery

Hi I managed to develop optic neuritis in my right eye at the beginning of September. Quite a long story but It started with the usual pain when moving eye, not that I knew why at the time I just thought I had bad eye strain. Well after a week I suddenly had what the optician thought was an ocular m...
  • Healthy living
  • Exercise
  • Symptoms
  • Blurred vision
  • Dizziness
  • Mental health
  • Pain
  • Treatment
  • Gilenya
  • Tecfidera
  • Which DMT
37
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