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I signed up for the StarMS Trial yesterday, but I also have to choose a DMT in case I don't get the stem cell transplant (or don't get on the trial based on my test results). I am trying to decide between the 6 monthly infusion(ocrelizumab) or the monthly injection (Kesimpta/ofatumumab) I am leani...

Hi ! Just looking for a bit of advice or opinions on which DMT would be best or people's experience with them, and just to have a bit of a rant I suppose. I'm 29, just been diagnosed with highly active relapsing remitting MS, likely had MS for about 6 years. I've been offered Cladribine, Ocrevus, Ke...

Ive just been diagnosed, i live in the UK and im awaiting being transfered over to the nhs list (i was diagnosed vis private healthcare) the neurologist i currently see has said that i shoud be offered a DMT and mentioned these ones, im not sure which i will actually be offered as need to wait and s...

Hi Everyone, So I've posted on here once before and haven't been very active on here since so my apologies for that and thank you to everyone that replied to me. I think I've been trying to ignore the possible (inevitable) diagnosis heading my way and trying to live life normally while I can. Howev...

So, I see a lot of questions on this board about choosing a DMT or switching. Given that there are over 20 different options right now, it can feel a lot like cramming for the final in Your Future Is at Stake 101. The good news? The Multiple Sclerosis Association of America just launched The MSAA Tr...

Hello everyone, I hope you’re all doing well! I’ve recently been diagnosed with MS, and to be honest, I’m still massively struggling to get my head around it. One day I feel okay and feel as though I’m starting to accept it, the next day I’m breaking down wondering why me🙁 I’ve had a couple of t...

To be considering starting a DMT when my MS is currently really stable and I feel well? I’ve had 1 relapse in 5 years which I have fully recovered from. I’ve always been pro treatment and always said I would start a DMT as soon as I could because everything I’ve read says the earlier the better. I...

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...

Hi everyone. Just wondering which DMT to ask for. They all seem to have side effects and I don’t want to spend a lot of time feeling rough after taking a drug. I was thinking of asking for Ocrevus. Based on high efficacy, low side effects and frequency. Has the pandemic affected this drug because it...

I have RRMS and I am currently trying to decide which DMT to step up to from interferon as my disease has become very active. It is difficult managing all the new disability and decisions. Does anyone have any experience with Ocrevus, Fingolimod or Cladribine as these are the options suggested by my...

I have a question that is not specific to the COVID vaccine but any vaccination in general. From my understanding, both Ocrevus and Kesimpta have different methods, doses and schedules but the result is the same with the depletion of B cells. Presumably this means that for both drugs it would take 5...

Hey everyone. I'm helping my wife figure out which DMT is the safest to take. Meeting with our neurologist this week to discuss options. She has only had one episode of Optic Neuritis in early 2014. Since then some short false alarm visits (strange vision issues) to the ER and no other symptoms. The...

Hi everyone, this is my first post on this site which was recommended to me by my MS nurse! I was officially diagnosed with RRMS in August after a 2nd episode of double vision - 1st episode was 5 years ago and back then I had a lumbar puncture which was positive, I knew there was a high chance I’d...

Hi all, I'm currently awaiting treatment - not due to see the consultant again until 9th November to discuss which DMT I'll be having. In the meantime, I've had my course of steroids to treat the relapse, and GP following up with 60mg Duloxetine as recommended by neurologist. Over the last 2 weeks, ...

Hi All Not been around for a while as I just got too frustrated :-( sorry. I thought I should be on the DMT as I followed the guidelines on here and NICE but my consultant wasn't doing it, said my last MRI didn't show what he needed etc.., so was very frustrated and didn't know where to go next. I ...

Thank you so much for the information and for listening or reading? I have to start treatment for latent TB tomorrow, which lasts for 3 months. I will then be told which DMTs for my RRMS will be appropriate and safe for me. I’ve been off treatment since October, due to a relapse and new lesions. Sti...

Hi all, A quick overview, I was diagnosed in 2007 after 2 very mild episodes (slight numbness in sole of foot and double vision, both stoped after a week). Since then I have been on the powder form of Avonex and have had no further relapses. I have recently been told that Avonex are stopping the pow...

Does anyone on occrevus feel the "crap gap"... I'm currently waiting to do my infusion next week and I feel so tired. My legs are so heavy...what do you guys do when this happens?

So just sharing my story as it might be helpful for other folk in a similar position. About (roughly) 2 years ago I noticed my feet and left leg started feeling a bit numb and also had a strange sensation around my waist (which I'd later learn is an MS Hug) - felt a bit like wearing boxer shorts th...

I applied for PIP in November. I went for an assessment in January and failed to qualify - scoring 2 0's. I reapplied (sorry can't think of the proper word :D) after failing and someone from the DWP called me on Monday and spent 25 minutes on the phone with me going through how MS affects my day t...