#which-dmt - Shift.ms

13 Mar 2022 19:35Last reply 20 Jun 2022 16:16

Which DMT - Newly diagnosed

Hi ! Just looking for a bit of advice or opinions on which DMT would be best or people's experience with them, and just to have a bit of a rant I suppose. I'm 29, just been diagnosed with highly active relapsing remitting MS, likely had MS for about 6 years. I've been offered Cladribine, Ocrevus, Ke...

Hamilton, United Kingdom

6

@Lisa_Mills

4 Sep 2018 18:44Last reply 17 Sep 2018 15:24

What to do? To DMT or not? Which DMT?

Hi Everyone, So I've posted on here once before and haven't been very active on here since so my apologies for that and thank you to everyone that replied to me. I think I've been trying to ignore the possible (inevitable) diagnosis heading my way and trying to live life normally while I can. Howev...

12

@hayleighjayne

10 Feb 2022 09:26Last reply 10 Feb 2022 23:33

Tecfidera, newly diagnosed - clueless!

Hello everyone, I hope you’re all doing well! I’ve recently been diagnosed with MS, and to be honest, I’m still massively struggling to get my head around it. One day I feel okay and feel as though I’m starting to accept it, the next day I’m breaking down wondering why me🙁 I’ve had a couple of t...

Leicester, UK

5

@Robean

1 Oct 2019 05:23Last reply 18 Nov 2021 20:56

Am I crazy......?

To be considering starting a DMT when my MS is currently really stable and I feel well? I’ve had 1 relapse in 5 years which I have fully recovered from. I’ve always been pro treatment and always said I would start a DMT as soon as I could because everything I’ve read says the earlier the better. I...

12

@Mererid

7 Dec 2018 01:37Last reply 9 Sep 2021 11:57

Tecfidera/Lymphopenia fail. Next DMT?

Hi all, Seeking advice. Has anyone been taken off Tecfidera due to developing lymphopenia? If so, which DMT did you try next, and did your lymphocyte count remain stable with your next choice of treatment for RRMS? Anyone had the same adverse effect happening repeatedly despite trying differ...

4

@Clary

18 Jul 2021 05:47Last reply 20 Jul 2021 12:36

DMT. Which one?

Hi everyone. Just wondering which DMT to ask for. They all seem to have side effects and I don’t want to spend a lot of time feeling rough after taking a drug. I was thinking of asking for Ocrevus. Based on high efficacy, low side effects and frequency. Has the pandemic affected this drug because it...

7

@Ntsiri

1 May 2021 02:13

DMT change

I have RRMS and I am currently trying to decide which DMT to step up to from interferon as my disease has become very active. It is difficult managing all the new disability and decisions. Does anyone have any experience with Ocrevus, Fingolimod or Cladribine as these are the options suggested by my...

@CineMike

3 Apr 2021 14:22Last reply 5 Apr 2021 08:13

Need help figuring this out ...

I have a question that is not specific to the COVID vaccine but any vaccination in general. From my understanding, both Ocrevus and Kesimpta have different methods, doses and schedules but the result is the same with the depletion of B cells. Presumably this means that for both drugs it would take 5...

4

@ilovemywife

2 Mar 2021 17:48Last reply 3 Mar 2021 20:57

Looking for advice... DMT what do you recommend us to start with?

Hey everyone. I'm helping my wife figure out which DMT is the safest to take. Meeting with our neurologist this week to discuss options. She has only had one episode of Optic Neuritis in early 2014. Since then some short false alarm visits (strange vision issues) to the ER and no other symptoms. The...

Bridgeview, United States

2

@Robean

23 Sep 2019 19:00Last reply 29 Sep 2019 21:30

Newly diagnosed - treatment choices!

Hi everyone, this is my first post on this site which was recommended to me by my MS nurse! I was officially diagnosed with RRMS in August after a 2nd episode of double vision - 1st episode was 5 years ago and back then I had a lumbar puncture which was positive, I knew there was a high chance I’d...

7

@LeaLea78

19 Aug 2018 17:18Last reply 19 Aug 2018 19:18

Another relapse?

Hi all, I'm currently awaiting treatment - not due to see the consultant again until 9th November to discuss which DMT I'll be having. In the meantime, I've had my course of steroids to treat the relapse, and GP following up with 60mg Duloxetine as recommended by neurologist. Over the last 2 weeks, ...

1

@Shona12

17 Apr 2018 07:07Last reply 17 Apr 2018 10:47

Update

Hi All Not been around for a while as I just got too frustrated :-( sorry. I thought I should be on the DMT as I followed the guidelines on here and NICE but my consultant wasn't doing it, said my last MRI didn't show what he needed etc.., so was very frustrated and didn't know where to go next. I ...

2

@LisaNeighbour

21 Feb 2018 17:15Last reply 21 Feb 2018 20:46

Hi

Thank you so much for the information and for listening or reading? I have to start treatment for latent TB tomorrow, which lasts for 3 months. I will then be told which DMTs for my RRMS will be appropriate and safe for me. I’ve been off treatment since October, due to a relapse and new lesions. Sti...

2

@michael

18 Oct 2016 01:52Last reply 26 Oct 2016 10:41

To DMT or to not DMT

Hi all, A quick overview, I was diagnosed in 2007 after 2 very mild episodes (slight numbness in sole of foot and double vision, both stoped after a week). Since then I have been on the powder form of Avonex and have had no further relapses. I have recently been told that Avonex are stopping the pow...

8

@eloquent

Yesterday at 21:44Last reply Today at 12:11

New treatment enquiry

Hello, I heard a neurologist in an interview saying. That there is a new treatment that passed clinical trial. Where a patient take 10 tablets the first year same the second and third year. Then the patient stay off relapses on scan and clinical tests for 10 years fully healthy. Live their life rel...

12

@NC_MtnGirl

Today at 08:43Last reply Today at 12:06

Kesimpta

Hi all, I'm switching DMT's in the next week and will begin Kesimpta. I've searched through the posts and gotten some great information about it but am welcoming any other info. How has your experience with Alongside Kesimpta been? How have side effects been going? Anyone on it long enough to see if...

5

@MrsR

10 Jun 2022 20:33Last reply Yesterday at 20:43

Mavenclad / Kesimpta

Any positive / negative for the above two DMDs? Thanks xx

3

@Magda_odp

22 Jun 2022 19:01Last reply Yesterday at 01:02

Treatment waiting time.

Hello. I’m newly diagnosed with RRMS. I have been seen by MS consultant a week ago who recommends I should probably start my treatment with Tysabri. I am just curious how long does it take to begin the treatment after you had a consultation? (I’m based in UK)

17

@Amyclair

23 Feb 2022 08:01Last reply last Sunday at 21:33

Kesimpta

I’m going to start Kesimpta in the next couple of weeks. Has anyone or is anyone using by his as their treatment? What has been your experience?

8

@Loves

22 Jun 2022 23:35

I'm about give up

I should be cleared for hep c meds soon... I should be happy. No! I feel guilty for speaking up for my self telling the doc my migraines are sucking the life out of me. I agreed to start taking vitamin D again. But she just kept offering different meds, as I said I would like to see a specialist, bu...

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