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Hi guys! Currently on day #2 of steroids for yet another relapse, which is a poop, but as my third relapse on Gilenya has the advantage of my Neuro now being happy to look at Lemtrada for me. I am having a workup in the next few months (Haematologist, Immunologist etc, as have some other factors in ...

My understanding of Lemtrada (in very simple terms) is that it kills part of your immune system so it cannot attack your brain / spinal cord, and when that part of your immune system grows back hopefully it stops attacking. Question I have is around how long (ball park) it would takes for your immu...

I had my first round of Lemtrada 3 weeks ago, and everyone around me has Covid. Friends, housemates, colleagues. I stayed off work for the last 3 weeks but going back to a hospitality job in 2 days..... Supposedly I have a very low immune system after treatment, yet I seem to be the only non-ill per...

Hey everyone, hope you're all having a nice Friday. I just wanted to pop on here and ask if anyone has any experience with Lemtrada? It being reccommended to me by my Neurologist on the basis of how effective it is and how active my disease is. I've read up on it and the side effects, if experience...

Hi I'm starting lemtrada in 3 weeks. Got friends over later for a bbq and one of them has chicken pox (child not adult). My boy needs to get it at some point. Is it a really bad idea to rub him over this child 3 weeks before my treatment? I've had chickenpox as a child. Thanks Sam

Are there any scientists out there who can explain to me why when you take Lemtrada or mavenclad you expect your immune system to grow back and behave itself after two or three treatments, but with ocrevus you have to keep taking it?

Hi, does anyone know of MS centres in London or the South East that are using Lemtrada (alemtuzumab). I know Barts would be one but any others? Also has anyone been offered it recently for highly active or rapidly evolving MS? Many thanks

Despite having MS for 28y, I had a conversation - f2f! - with my new neuro and he gladly agreed to my request to be moved from Ocrelizumb (Ocrevus) to Alemtuzumab (Lemtrada). Not only is it arguably a more highly efficacious drug than ocrelizumab it doesn't come freighted with the much publicised a...

Just wandering.. I had my second course over 3 years ago, I'm still having my monthly bloods but I haven't had a follow up MRI Since.. is this normal? #lemtrada #MRI

Hi there! I'm seeking some advice with personal experiences related to Lemtrada and Mavenclad. I have heard good things about both DMD and wanted to make the best choice for my MS moving forward. Thanks in advance! Jenna

Hello, I have recently been diagnosed with RRMS and have been advised to go for the high efficiency treatment DMTs. Currently weighing up the decision before my consultation in a few weeks. Looking for help to see if anyone have any advice with these from personal experience. Preferences, recommenda...

Hi 👋 I'm hoping someone here can shed some light on this for me. I was diagnosed with RRMS in January 2015. After a series of bad relapses mainly affecting my legs and mobility, I was put on lemtrada in the summer of 2015. I had my second round in 2016. I reacted well to the treatment and was st...

Finished second round of lemtrada yesterday and feeling fab. Side effects were no way near as bad as round 1 for me. Fingers crossed this will be my last round ! #feelingpositive

Has anyone had Lemtrada and has it worked for them? Or is anyone currently have Lemtrada?

All went really well and due to be going in first week of June ! 🥰

My pre-assessment for round 2 is tomorrow Woo! This treatment has had such a positive impact on my relapsing remitting ms and so many of my symptoms have improved already. Ready to kick some MS ass!

Hello all, Brand new here. I guess I wanted to share my situation and get some words of encouragement! I have been living with RRMS since 2006. Started with betaferon for 10years, hated the injections. Then got moved to Gilenya for 3 years which unfortunately didn't cover me very well. I had two rel...

Hi guys, has anyone been put on Ocrevus AFTER Lemtrada? If so, how are you now? Do you feel better? I didn’t get anything from Lemtrada and now my neuro has agreed to put me on Ocrevus and I’d just like to know if there’s others in my position and what the results were Thanks

Does anyone know why we don't seem to hear much about Lemtrada anymore? Or is it just my imagination?

Hi, I’m coming up to 5 years since my last infusion of Lemtrada (so looking forward to going from monthly bloods to 3 monthly bloods) I’m new to the group and i just wondered who else has had it and how they found it? and how they are doing? Doesn’t seem to be many people taking it anymore?