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Registered Company: 06000961

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  • Benign
  • Disclosure
  • Limbo land
  • MRI
  • Newly diagnosed
  • Primary progressive
  • Relapsing remitting
  • Secondary progressive
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@Scotii 

Last reply

Scotii

Primary progressive treatment

I’m just diagnosed primary progressive, to get another MRI soon which I believe tells me if it’s active or not, my neurologist has mentioned Ocrevus, has anyone had any experience with this? I didn’t sound great when my neurologist told me about it
Paisley, United Kingdom
  • Diagnosis
  • Newly diagnosed
  • Ocrevus
  • Primary progressive
  • Disclosure
  • MRI
  • Treatment
14

@TraceyR 

EditedLast reply

TraceyR

Need to show activity before offered meds for Primary Progressive MS

I have had my diagnosis changed from RRMS to PPMS but my latest scan in April shows it is currently not active, therefore, can not start medication yet. I have lesions showing on my brain, neck and chest but I was unaware I had MS until a year ago so I’m concerned that when the MS becomes active, I ...
  • Diagnosis
  • Symptoms
  • Primary progressive
  • MRI
  • Relapsing remitting
  • Bladder and bowel
  • Disclosure
  • Treatment
  • Relapses
6

@MSWarrior84 

Last reply

MSWarrior84

I was diagnosed with Primary Progressive MS a year ago if anyone would like to talk...

No new lesions at my last scan after two full treatments of Ocrevus
  • Diagnosis
  • Newly diagnosed
  • Ocrevus
  • Treatment
  • Primary progressive
  • MRI
5

@lizelliott 

Last reply

lizelliott

Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Symptoms
  • Balance
14

@Paige_Wheeler 

Last reply

Paige_Wheeler

Primary Progressive ms

I was diagnosed 5years ago with Ppms The other night I woke with severe pains in my diaphragm. I wasen’t sure what it was and thought maybe heart attack. Then I read about the ms hug. Anyone experience this?
  • Diagnosis
  • Primary progressive
  • Newly diagnosed
  • Symptoms
  • Relapses
8

@2012ashleigh 

Last reply

2012ashleigh

I have primary progressive ms for 7 years now

I got meylena this month never had treatment before. So I feel very excited. My MRI doesn't show any new lessons in the brain but ons straight one at my spine. Why only there?
  • Treatment
  • Diagnosis
  • Primary progressive
  • MRI
4

@Remika 

Last reply

Remika

Primary Progressive

So today I was told that I likely have Primary Progressive MS. Immediately I started doing research and I am just so bummed. I was really hoping this thing wouldn’t take too much from me but that doesn’t seem to be likely now.
  • Diagnosis
  • Primary progressive
  • Research
  • Disclosure
  • Treatment
  • Symptoms
  • Secondary progressive
7

@Eanzi30 

Last reply

Eanzi30

Primary Progressive

New here, I was diagnosed 3 1/2 years ago but when I think back I’m pretty sure I’ve had MS for at least 20 years. Last time I saw my neurologist she said I was at primary progressive and has kept me off of meds. I feel physically that I have progressed since I’ve last seen here…I go and see her nex...
Independence, United States
  • Diagnosis
  • Newly diagnosed
  • Primary progressive
  • Symptoms
  • Secondary progressive
  • Treatment
  • MRI
  • Work and play
  • Which DMT
  • Spasticity
2

@brandee1177 

EditedLast reply

brandee1177

Advanced Aggressive Primary Progressive

I struggle every moment of every day and my case is so advanced that I’m close to needing a wheelchair. I was an athlete and a genius iQ of 140! Now I can’t remember the name of my best friend if I don’t sit and think for a second. I cannot jump hurdles anymore. I was an all state won first place i...
  • Healthy living
  • Exercise
  • Work and play
  • Accessibility
  • Symptoms
  • Diagnosis
  • Primary progressive
  • Hot and cold
  • Bladder and bowel
  • Balance
5

@dave 

Last reply

dave

primary progressive anyone?

I recently got diagnosed with primary progressive MS. I know that any type is bad but when ever i talk to anyone about it they say "it's not that bad", "i have a friend with it"..... and it always turns out they have the remitting one. Does any one with the progressive kind, feel trapped? and doomed
  • Diagnosis
  • Primary progressive
  • Newly diagnosed
  • Relapsing remitting
  • Secondary progressive
  • Symptoms
  • Treatment
9
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