#primary-progressive

EditedLast reply

Need to show activity before offered meds for Primary Progressive MS

I have had my diagnosis changed from RRMS to PPMS but my latest scan in April shows it is currently not active, therefore, can not start medication yet. I have lesions showing on my brain, neck and chest but I was unaware I had MS until a year ago so I’m concerned that when the MS becomes active, I ...

7

@SamuelJS

MS drug fenebrutinib shows ‘unprecedented results’ in trialsBTK inhibitor tested in relapsing, primary progressive forms of disease

https://multiplesclerosisnewstoday.com/news-posts/2025/11/13/ms-drug-fenebrutinib-shows-unprecedented-results-trials/

First posted on the Shift.ms app

@Leighann

EditedLast reply

Any experience of Primary Progressive MS, Crohn’s disease and HSCT

Hi everyone. My Husband recieves his lumber puncture results next week but we have already been told that he has PP MS and is EDSS 4 - so just waiting for the confirmation of diagnosis. Because he also has Crohn’s (ocrevus not compatible with Crohn’s) we have been told there are no standard treatme...

First posted on the Shift.ms app

4

@Danny1989

Last reply

I was diagnosed with primary Progressive MS. I was prescribed Prednisone 50 MG. Take 24 tablets (1,200 mg). Take it one time daily for five days total. This is all new to me, if anyone can explain in detail please? Is this the first step, taking all theses pills for further treatment?

San Diego, United States

First posted on the Shift.ms app

11

@Danny1989

Last reply

Easy diets, meals, snacks, fruits, vegetables etc…. When dealing with, Primary progressive MS

First posted on the Shift.ms app

6

@lizelliott

Last reply

Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...