#primary-progressive

Primary progressive multiple sclerosis (PPMS) differs from relapsing remitting MS. PPMS does not typically have distinct relapses or periods of remission, but takes a more progressive form. Check out our groups to speak to others with primary progressive MS.

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@lizelliott

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Newly diagnosed with Primary Progressive

I am 62 years old and had in July this diagnosis. I t seems that every case/person is different but I would like to share with someone who also has primary progressive.I have no complaints about my doctors physios etc but just feel a bit isolated and also because I am older it does not seem to ma...

@rene1224

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What's a good medication that works for primary progressive MS?

First posted on the Shift.ms app

@Scrivie

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Hi everyone, I have a question how many times are we supposed to have contact with our Ms nurse, I have got primary progressive multiple sclerosis and in the last four years I have only seen my ms nurse for five minutes and had one phone call, is this right xx

First posted on the Shift.ms app

@jojou84

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Hi I have just joined I have primary progressive ms and get 6 monthly infusions of ocruvus

First posted on the Shift.ms app

@Garyone

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I have primary progressive ms and wondered what other people's experience of progressive ms ,symptoms development etc

First posted on the Shift.ms app

@Lumoux

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Primary progressive research

https://emea01.safelinks.protection.outlook.com/?url=https%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3D_peWnQDopNU&data=05%7C02%7C%7C87a07a1f52394e5f4fc508dc53f1ddb9%7C84df9e7fe9f640afb435aaaaaaaaaaaa%7C1%7C0%7C638477545503439411%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwi...

Littlehampton, United Kingdom

Research

@Scotii

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Primary progressive treatment

I’m just diagnosed primary progressive, to get another MRI soon which I believe tells me if it’s active or not, my neurologist has mentioned Ocrevus, has anyone had any experience with this? I didn’t sound great when my neurologist told me about it

Paisley, United Kingdom

@TraceyR

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Need to show activity before offered meds for Primary Progressive MS

I have had my diagnosis changed from RRMS to PPMS but my latest scan in April shows it is currently not active, therefore, can not start medication yet. I have lesions showing on my brain, neck and chest but I was unaware I had MS until a year ago so I’m concerned that when the MS becomes active, I ...

@MSWarrior84

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I was diagnosed with Primary Progressive MS a year ago if anyone would like to talk...

No new lesions at my last scan after two full treatments of Ocrevus

@Paige_Wheeler

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Primary Progressive ms

I was diagnosed 5years ago with Ppms The other night I woke with severe pains in my diaphragm. I wasen’t sure what it was and thought maybe heart attack. Then I read about the ms hug. Anyone experience this?

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