Life after lemtrada
Hi Everyone,
I am in a pickle, I have had two courses of lemtrada, It was rough but I recovered fairly quickly and I've been living a great life, I have MS symptoms that are transient and they can come and go for an unknown amount of time but mostly I am well.
For the last 3 or so months I have been having pains pretty much daily and nightly in my legs, my lower back as well as all the other nerve symptoms that are associated with MS pains.
I've had an MRI a few days ago and I'm seeing my neurologist next week, I wanted to know how people have felt after a third round of lemtrada or whether it might be better to push for hsct? They obviously would rather have neither of these as I have a full and busy life and the thought of having to be cooped up in hospital is not a pleasant one.
If anyone has been in the situation of relapsing after two rounds of lemtrada, I would love to know you have been offered or what you have done next?
Thank goodness for shift.ms hey!
Emma
Hello Emma, I had two rounds of Lemtrada back in 2018 and 2019 and until December 2023 I did not start a new dmt and also my MRI did not show any signs of progression. My neurologist offered me Ocrevus or Kesimpta and I am currently on Kesimpta and is has helped me immensely after my lesion reactivation from last year. hope this helps and good luck, you got this xx
I had 2 rounds of Lemtrada too back in 2017 & 18, my MS just progressed and now on siponimod My London hospital stopped using Lemtrada, so no chance of a 3rd round .