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Found 238 results

@MrsR

10 Jun 2022 20:33Last reply Yesterday at 20:43

MrsR

Mavenclad / Kesimpta

Any positive / negative for the above two DMDs? Thanks xx
  • Treatment
  • Which DMT
  • Positives of MS
  • Work and play
  • Mavenclad
3

@Megs

6 Jun 2022 06:08

Megs

Mavenclad and period

Hi everyone, just wondering if any of you people is experiencing period fluctuation whilst on Mavenclad. I finished my first year course on November 2021 and since then my period has been off - very irregular and sometimes extremely painful to the point I have to lay in bed. I'm interested to know...
  • Treatment
  • Mavenclad
  • Unlicensed
  • Work and play
  • Which DMT
  • Symptoms
  • Diagnosis

@Sorcha_Finnegan

26 May 2019 12:12Last reply 5 Jun 2022 20:41

Sorcha_Finnegan

Mavenclad

Hi all. Just wondering if anyone has experienced feeling really cold since taking mavenclad? I mean heating on full blast and wearing 3 fleece layers buts hands still ice to touch? It's near the end of May so think this is not too normal..........
  • Hot and cold
  • Mavenclad
  • Symptoms
  • Treatment
10

@Mo-jo

3 Jun 2019 12:04Last reply 5 Jun 2022 20:21

Mo-jo

Mavenclad /cladribine

Hi all, tomorrow will be the last dose of this year of mavenclad, so far so good. No significant side effects so far thank god. How you are all well. ☺
  • Mavenclad
  • Unlicensed
  • Treatment
  • Work and play
6

@ClareEloise

28 Jun 2021 16:00 EditedLast reply 5 Jun 2022 17:36

ClareEloise

A diary of Cladribine / Mavenclad

Hi everyone! I’ve been here for a few months having been diagnosed in January but this is my first post! I started day one of cladribine today, so far so good! I wondered if it would be useful to anyone considering the medication if I made a post each day on how I’m doing with it :) All the posts ...
Hampshire, England, United Kingdom
  • Treatment
  • Newly diagnosed
  • Unlicensed
  • Which DMT
  • Mavenclad
  • Diagnosis
  • Money
44

@Louise_Harper

17 Dec 2019 03:01Last reply 5 Jun 2022 16:31

Louise_Harper

Mavenclad

Hey, I only started this treatment yesterday and I just feel really sick and I haven’t slept all night 🙁 but I haven’t actually been sick. Is this one of the side effects? Or isit just me overthinking too much about it. Hopefully things will ease off.
  • Treatment
  • Mavenclad
  • Symptoms
  • Going out
7

@Shannon_OHara

25 Aug 2020 16:33Last reply 5 Jun 2022 16:04

Shannon_OHara

Next drug is cladribine /mavenclad

Hey guys, I've been diagnosed with Ms since I was 13 and had lots of scarring before then, had nearly 10 years of treatment. However, my Ms keeps becoming active. The next and only drug they are suggesting is cladribine /mavenclad. So taking it for the short amount of time over two years. I'd lik...
  • Treatment
  • Symptoms
  • Mavenclad
  • Unlicensed
  • Diagnosis
  • Newly diagnosed
11

@Momoftwo

15 Dec 2017 18:39Last reply 5 Jun 2022 14:53

Momoftwo

Mavenclad

Anyone taking Mavenclad??? It was just approved in Canada and my neurologist suggested I start this treatment. Just looking for some info on side effects ??
  • Treatment
  • Mavenclad
  • Which DMT
  • Unlicensed
  • Relapsing remitting
14

@laurenrose

18 Jun 2019 15:26Last reply 5 Jun 2022 14:39

laurenrose

cladribine/mavenclad experiences pls!

hi! i completed my first year of treatment in jan + feb this year and sadly, i'm not having the best experience. i'm keen to hear from anyone else who has been on cladribine and what sort of side effects you had. thank you! lauren
  • Treatment
  • Unlicensed
  • Mavenclad
  • Ocrevus
  • Diagnosis
  • Relapsing remitting
19

@dvtrv

29 Nov 2018 12:46Last reply 5 Jun 2022 14:15

dvtrv

How long before Mavenclad taked affect

Hi to all with knowledge and/or experience with Mavenclad. Can anyone please tell me when I should, see, feel the affects of MC taking affect. I've had to take time off work as now being 10 weeks without Tysabri and am wondering when I should be back to the state I was in before coming off Ty. Th...
  • Disclosure
  • Mavenclad
  • Diagnosis
  • Work and play
  • Treatment
  • Symptoms
  • Work and Study
  • Relapses
25

@Tpenner86

10 Jan 2020 00:53Last reply 5 Jun 2022 14:12

Tpenner86

Mavenclad

Hi i was diagnosed with RRMS in 2012 when i was 26. Now 33 I've tried Copaxone, Gylenya and am on my second year of Mavenclad. With Copaxone i had a relapse and never felt any relief. Also i have permanent divots in my legs and arm because of it. Gylenya I was happy with but still finding symptoms w...
  • Relapses
  • Symptoms
  • Treatment
  • Copaxone
  • Mavenclad
  • Diagnosis
  • Newly diagnosed
  • Relapsing remitting
  • Numbness
  • Disclosure
29

@melissag

23 Aug 2018 13:49Last reply 5 Jun 2022 14:06

melissag

Mavenclad

Hi all! I’m looking into changing from Gilenya to Mavenclad, and I’m just a bit confused! I’m seeing my MS nurse in a month to tell her what I’ve decided but I was just hoping someone here could help answer some questions in the meantime!    I originally really wanted Lemtrada, even though t...
  • Treatment
  • Disclosure
  • Mavenclad
  • Gilenya
  • MRI
  • Symptoms
  • Diagnosis
  • Which DMT
  • Lemtrada
47

@SamJam

4 Jun 2022 15:04

SamJam

Mavenclad

Hello Just wanted your opinion on Mavenclad. Have you tried Mavenclad in the past, has it helped ?
  • Mavenclad
  • Treatment
  • Work and play

@foldpaper

5 May 2022 15:29 EditedLast reply 6 May 2022 10:58

foldpaper

Mavenclad / Cladribine and cancer — would you?

Need some advice. I was diagnosed with RRMS in June, discussions w neuro led to Mavenclad. I like the efficacy it promises, and is something that my hospitalisation insurance will likely be able to cover. Daily meds… would not. However! Bc life is sometimes a cosmic joke, I also found out in Oct tha...
  • Treatment
  • Diagnosis
  • Mavenclad
  • Relapsing remitting
  • Newly diagnosed
  • Which DMT
  • Unlicensed
  • Work and play
6

@michellesmith

2 May 2022 09:09Last reply 3 May 2022 12:01

michellesmith

Attention Mavencladders

Hi lovely MSers! I'm due to start treatment soon and my neurologist has recommended Mavenclad for me. What are peoples experience with it? Anyone love it? Anyone had any terrible side effects? The side effects scare me a bit but would like to hear anyone's personal opinions on it if possible! Thank ...
  • Treatment
  • Mavenclad
  • Which DMT
  • Symptoms
2

@TheQuietLady

26 Apr 2022 17:27Last reply 30 Apr 2022 10:19

TheQuietLady

Lemtrada or Mavenclad?

Hi, after being advised to come off Ocrevus because of Covid concerns, the MDT has approved me for either Lemtrada or Mavenclad. How do you choose between 2 very different treatments! Obviously Mavenclad is very attractive because taking tablets is very convenient compared to going into hospital for...
Harlow, United Kingdom
  • Treatment
  • Lemtrada
  • Mavenclad
  • Ocrevus
  • Disclosure
  • Relapsing remitting
  • Diagnosis
4

@Harke

6 Apr 2022 18:53Last reply 8 Apr 2022 17:02

Harke

Starting Mavenclad

Hi. I have been taking copaxone 3x per week from injections for a few years now but new lesions have developed. There was a 4 month period when getting the covid vaccines i was given incorrect information from the pharmacy and i stopped the injections. Anyway, now I am to start mavenclad. Looking ...
Edmonton, Canada
  • Copaxone
  • Treatment
  • Mavenclad
  • Rebif
  • Avonex
  • Betaferon
  • Extavia
  • Plegridy
  • Diagnosis
  • Gilenya
3

@hdhaliwal

10 Mar 2022 21:05Last reply 13 Mar 2022 17:36

hdhaliwal

Mavenclad Treatment?

Helloo everyone, So I am new to this site, found it while I was trying to do research for Mavenclad treatment. I am very excited and hopeful to have this community as a support system as I haven't had anyone to talk to who can relate to my MS. I have been on Glatect (copaxone) for the last 2 year...
  • Treatment
  • Mavenclad
  • Copaxone
  • MRI
  • Research
  • Which DMT
  • Diagnosis
  • Coronavirus
  • Disclosure
  • Healthy living
3

@fay_mishima

15 Feb 2022 07:03

fay_mishima

Query for Mavenclad Patients

Hi everyone. Hope everyone's having a good day. I started Mavenclad - Year one in 2021 and was due to take Year 2 pills end of January, 2022. However, Omicron hit me so my neurologist pushed it back by 4 weeks. I have had all my MRI Scans and blood tests and due to take it next week, and emailed my...
  • Mavenclad
  • Treatment
  • Work and play
  • MRI
  • Healthy living
  • Diagnosis
  • Unlicensed
  • Fun drugs

@Aceymptomatic

29 Jan 2022 12:39 EditedLast reply 8 Feb 2022 02:10

Aceymptomatic

Mavenclad?

Hey fellow MS'ers *weird name but ok*. Has anyone gone through their course of Mavenclad or been put off by the research. It seems like a really large step but my team are urging me to try it (70% reduction). Just wanted to get a gauge of your experiences with it. Hope you are all having an awesome...
  • Mavenclad
  • Research
  • Treatment
  • Unlicensed
  • Relapsing remitting
  • Symptoms
1
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