#mavenclad - Shift.ms

23 Aug 2018 13:49Last reply 17 Jun 2021 21:36

Mavenclad

Hi all! I’m looking into changing from Gilenya to Mavenclad, and I’m just a bit confused! I’m seeing my MS nurse in a month to tell her what I’ve decided but I was just hoping someone here could help answer some questions in the meantime! I originally really wanted Lemtrada, even though t...

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@ClareEloise

28 Jun 2021 16:00 EditedLast reply 11 Sep 2021 12:53

A diary of Cladribine / Mavenclad

Hi everyone! I’ve been here for a few months having been diagnosed in January but this is my first post! I started day one of cladribine today, so far so good! I wondered if it would be useful to anyone considering the medication if I made a post each day on how I’m doing with it :) All the posts ...

Hampshire, England, United Kingdom

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@Tpenner86

10 Jan 2020 00:53Last reply 22 Apr 2021 23:18

Mavenclad

Hi i was diagnosed with RRMS in 2012 when i was 26. Now 33 I've tried Copaxone, Gylenya and am on my second year of Mavenclad. With Copaxone i had a relapse and never felt any relief. Also i have permanent divots in my legs and arm because of it. Gylenya I was happy with but still finding symptoms w...

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@dvtrv

29 Nov 2018 12:46Last reply 23 Dec 2019 16:16

How long before Mavenclad taked affect

Hi to all with knowledge and/or experience with Mavenclad. Can anyone please tell me when I should, see, feel the affects of MC taking affect. I've had to take time off work as now being 10 weeks without Tysabri and am wondering when I should be back to the state I was in before coming off Ty. Th...

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@KeepSmyelin99

30 Aug 2019 14:27Last reply 30 Oct 2019 11:48

Tecfidera vs Mavenclad

Anyone been on/taking either Tecfidera or Mavenclad? Would be useful to know what other people’s experiences have been like.

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@laurenrose

18 Jun 2019 15:26Last reply 22 Jul 2019 05:23

cladribine/mavenclad experiences pls!

hi! i completed my first year of treatment in jan + feb this year and sadly, i'm not having the best experience. i'm keen to hear from anyone else who has been on cladribine and what sort of side effects you had. thank you! lauren

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@Chris_Atallah

8 Mar 2020 12:39Last reply 21 Apr 2021 18:18

MAVENCLAD 2ND WEEK EFFECTS

Hey everyone, was just curious if anyone has taken MAVENCLAD and if they found that the second week (week 5) affected them more or less than the first? In terms of side effects or feeling sick, etc.

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@Firefrau26

3 May 2018 21:51Last reply 22 Aug 2018 15:14

Stopping Gilenya to start Mavenclad

Stopped almost three weeks ago and have started to have pain all over and incredible mood swings. Has anyone experienced this. I work full time as a nurse and have found it almost impossible to organize my thoughts since stopping.

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@Sylvia_Sparkle

25 Jan 2019 11:19Last reply 14 Mar 2019 12:39

Dmd mavenclad

Hey guys I've decided on my treatment going for mavenclad anyone on here used it what's your tips

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@Amber_Oneil

6 Sep 2020 18:00Last reply 21 Apr 2021 18:15

Mavenclad

Is there anyone on this medication that I could talk to start mavenclad tomorrow thanks

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@Momoftwo

15 Dec 2017 18:39Last reply 3 Nov 2020 12:12

Mavenclad

Anyone taking Mavenclad??? It was just approved in Canada and my neurologist suggested I start this treatment. Just looking for some info on side effects ??

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@Ciara_Fisher

15 Jul 2020 18:33Last reply 7 Sep 2020 20:20

Tysabri or Mavenclad

I’ve had to come off Gilenya because it caused me to have deranged LFTs and since being off it I’ve had a a new lesion form on my spine. I just don’t know whether to start Tysabri or Mavenclad. I don’t know if I want to have to get infusions every month but I could go straight back to work once I st...

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@Yorkel505

21 Feb 2021 17:31 EditedLast reply 21 Apr 2021 00:06

Moving to Mavenclad after one dose of Lemtrada

Hello all, Brand new here. I guess I wanted to share my situation and get some words of encouragement! I have been living with RRMS since 2006. Started with betaferon for 10years, hated the injections. Then got moved to Gilenya for 3 years which unfortunately didn't cover me very well. I had two rel...

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@Shannon_OHara

25 Aug 2020 16:33Last reply 1 Sep 2020 11:55

Next drug is cladribine /mavenclad

Hey guys, I've been diagnosed with Ms since I was 13 and had lots of scarring before then, had nearly 10 years of treatment. However, my Ms keeps becoming active. The next and only drug they are suggesting is cladribine /mavenclad. So taking it for the short amount of time over two years. I'd lik...

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@kalsekhon

23 May 2020 18:27Last reply 26 Jun 2020 11:23

New treatment Ocrelizumab or Mavenclad

My neurologist has suggested Ocrelizumab or Mavenclad. He saidBoth are equally effective. Ocrelizumab is 6monthly infusion, while Mavenclad is oral medication-a 2year-course treatment, with 20day-doses over 2year period. Confused? Can I ask members for their experience with either treatments 🤔

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@Laura_Pizzolitto

27 Nov 2019 23:39Last reply 19 Feb 2020 19:46

Mavenclad (Cladribine)

Hi guys, just looking for some advice, insight...Was on Copaxone for 1 year 1/2 but unfortunately not working... my neuro wants me to start Mavenclad. Just wondering if anyone on this medication can tell me their experience, side effects etc...very worried about low immune system

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@holtyc

17 Aug 2018 06:39Last reply 23 Aug 2018 10:26

Mavenclad/Cladribine

Hi, My dad has Primary Progressive MS, he has been told by his neuro consultant that a new drug called Mavenclad/Cladribine is his best chance of stopping progression, and that it has been shown to stop progression in a third of those with PPMS. However, after MRI's theyve decided they wont give i...

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@Sorcha_Finnegan

26 May 2019 12:12Last reply 26 May 2019 15:39

Mavenclad

Hi all. Just wondering if anyone has experienced feeling really cold since taking mavenclad? I mean heating on full blast and wearing 3 fleece layers buts hands still ice to touch? It's near the end of May so think this is not too normal..........

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@Alexp1218

6 May 2019 17:01Last reply 8 May 2019 20:26

Mavenclad

Curious if anyone is currently taking this drug. Dx’d In 2004 RRMS progressed to SPMS in 2017. My neuro is wanting me to try this DMD if he doesn’t hear anything negative about this DMD. My question is does it cause depression? I was on aubagio which heightened my pain level considerably and made me...

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@jessvf14

13 Sep 2020 06:11Last reply 16 Sep 2020 18:19

Does anybody on Mavenclad know?

I am due to start my second round in November and am booked in for my MRI etc, but my MS team are being their usual non-responsive self. I'll keep trying, and I've emailed Adviva, but does anybody know if we're being asked to isolate again for the first 12 weeks of treatment? I fell in this period w...

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