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Found 299 results

@ollie123

Last reply

ollie123

Cladrabine (Mavenclad) Hair Loss

I know I shouldn’t be so vain, but about to start Mavenclad and worried about the ‘hair loss’. Anyone else had this? Is it thinning or going completely bald? Does it grow back? I was on Aubagio which had a similar side effect, although it didn’t seem to effect me. Thanks
Reading, United Kingdom
  • Treatment
  • Mavenclad
  • Aubagio
  • Mental health
  • Plegridy
  • Rebif
8

@Slackmooyer2

Last reply

Slackmooyer2

Mavenclad

On a Facebook group for MS that I am on, was a post by an individual that was on year 4… 7th week In total. Has this happen to anyone?. I was told 2 years…
Toronto, ON, Canada
  • Disclosure
  • Diagnosis
  • Treatment
  • Mavenclad
  • Symptoms
1

@Barnaby

EditedLast reply

Barnaby

Mavenclad

Hey all I'm Sam. I have just joined this group. I was diagnosed in March this year with RRMS. I have chosen mavenclad as a treatment,does anyone have any experience with this ?
  • Diagnosis
  • Treatment
  • Newly diagnosed
  • Relapsing remitting
  • Mavenclad
17

@melissag

EditedLast reply

melissag

Mavenclad

Editing to add- I completed my second round of treatment in 2020, and had some mild side effects but now it is out of my system, my lymphocytes are at a ”normal” level, and I’m being considered stable! Hi all! I’m looking into changing from Gilenya to Mavenclad, and I’m just a bit confused! I’m se...
  • Treatment
  • Disclosure
  • Mavenclad
  • Lemtrada
  • MRI
  • Gilenya
  • Which DMT
  • Symptoms
  • Diagnosis
  • Unlicensed
63

@Ghardy

Last reply

Ghardy

MAVENCLAD?

Trying to talk myself into being on something after 17 years with MS or be more focused on the natural route. Anyone take mavenclad?
Phoenix, United States
  • Mavenclad
  • Treatment
  • Healthy living
41

@londonlad

Last reply

londonlad

Cladribine (Mavenclad) - Year 2

Hi all, Hope you are doing well. A few questions for anyone who has taken this drug and can help. Did you get the shingle/ chicken pox vaccine or not before taking this drug? i haven't been told i need to. Also - how did you find year 2 compared to first year? similar, worse , anything else? be goo...
  • Treatment
  • Unlicensed
  • Mavenclad
  • Disclosure
  • Diagnosis
  • Ocrevus
  • Travel
  • Work and play
  • Tysabri
2

@Brisimonton

Last reply

Brisimonton

Need advice - lemtrada or mavenclad? Family planning.

Hi all. I’m overwhelmed, looking for input. DX in 2019 and started Tysabri. Stayed on Tysabri for 2 years and was stable. Switched to copaxone for family planning, and eventually found out we have male and female factor infertility. We’ve been working with a specialist, trying to get everything sort...
  • Family and children
  • Treatment
  • Work and play
  • Copaxone
  • Diagnosis
  • Lemtrada
  • Relationships
  • Disclosure
  • Mavenclad
  • Newly diagnosed
4

@Tim2000

Last reply

Tim2000

Mavenclad and Travel

Hi All, I just started the first dose of mavenclad and I am happy no side effects, fingers crossed 🤞let’s see how this goes 😊 Ok.. so my question is, can I to go travelling in two weeks time before my second dose of treatment and go travelling 2 months after my first treatment? I had planned these...
Tralee, Ireland
  • Travel
  • Treatment
  • Work and play
  • Mavenclad
  • Which DMT
4

@Stina108

Last reply

Stina108

Mavenclad…

Hi everyone, new here…Diagnosed in 1998 aged 27. Had intravenous steroids in hospital at the time. Had first DMT last august. Mavenclad. Still waiting for lymphocytes to recover from first round, and it’s been over a year. Wondering if anyone else has had a similar experience. Running out of time to...
  • Newly diagnosed
  • Diagnosis
  • Treatment
  • Mavenclad
  • Steroids
  • Which DMT
  • Exercise
  • Healthy living
  • Symptoms
2

@V-ICE

Last reply

V-ICE

Mavenclad

Started with Mavenclad, month 2, day 3. How are your experiences ?
  • Mavenclad
  • Treatment
  • Work and play
7

@Stina108

Stina108

Cladribine/Mavenclad

Hello everyone, I started this DMT a year ago. Still waiting for my lymphocytes to recover from the first round in August 21. Has anyone else had a similar experience? Feels like time is ticking by…be grateful to hear if anyone has been in the same position? Thank you, Stina
  • Treatment
  • Mavenclad
  • Which DMT
  • Unlicensed
  • Diagnosis

@foldpaper

EditedLast reply

foldpaper

Mavenclad / Cladribine and cancer — would you?

Need some advice. I was diagnosed with RRMS in June, discussions w neuro led to Mavenclad. I like the efficacy it promises, and is something that my hospitalisation insurance will likely be able to cover. Daily meds… would not. However! Bc life is sometimes a cosmic joke, I also found out in Oct tha...
  • Treatment
  • Diagnosis
  • Mavenclad
  • Relapsing remitting
  • Newly diagnosed
  • Which DMT
  • Unlicensed
  • Work and play
9

@FilipaM

Last reply

FilipaM

Mavenclad adventure

Hello to all! After 6 years of diagnosed MS (and probably 12 of it) I just changed to my third treatment - Mavenclad. Just ended my first cycle last friday and been feeling lots of fatigue, dizziness and also nausea 😐 my nurse says nausea is not a ‘usual’ with it. I find my symptoms increased over ...
  • Symptoms
  • Dizziness
  • Treatment
  • Newly diagnosed
  • Fatigue
  • Diagnosis
  • Mavenclad
  • Work and play
8

@Andra

Last reply

Andra

Ocrevus versus Mavenclad

Hello everybody. I am on Ocrevus since 2019 with no new lessions but i feel the worsening of my symptoms (pain, muscle spams, diplopia since i started Ocrevus, heat and cold intolerance, and more others. My neurologist said to me about Mavenclad. Has anybody passed from Ocrevus to Mavenclad? What wa...
  • Ocrevus
  • Treatment
  • Symptoms
  • Mavenclad
  • Hot and cold
  • Pain
  • Diagnosis
  • MRI
  • Spasticity
  • Relapsing remitting
7

@carolynjb

Last reply

carolynjb

Ocrelizumab (Ocrevus), Ofatumumab(Kesimpta) or Cladribine (Mavenclad)

I was diagnosed with RRMS recently and have been asked to consider the following DMTs. Any thoughts on people's experiences with them would be helpful. I'm really active (runner and triathlete) so want to also understand how the drugs might impact my exercise. thanks
  • Diagnosis
  • Treatment
  • Newly diagnosed
  • Ocrevus
  • Relapsing remitting
  • Mavenclad
  • Exercise
  • Healthy living
  • Fun drugs
  • Which DMT
7

@shedl

Last reply

shedl

Mavenclad journey has started

So… The first tablet of Mavenclad is taken. Yet four to go 💊 Personal lockdown is also starting today 😷 How are you guys doing?
  • Mavenclad
  • Treatment
  • Symptoms
  • Work and play
4

@Toni0987

Last reply

Toni0987

Ocrevus vs Mavenclad (cladribine)

Hi everyone, new to this site and everything MS so all feedback is greatly appreciated. I was diagnosed back in May this year but have had symptoms going back a few years. My neurologist has given me the option of taking either ocrevus or cladribine and I have no idea which way to go or to even go o...
London, United Kingdom
  • Treatment
  • Newly diagnosed
  • Diagnosis
  • Unlicensed
  • Ocrevus
  • Symptoms
  • Mavenclad
  • Relapses
10

@SammyC

Last reply

SammyC

Mavenclad symptoms or possibly menopause

Hi, Not sure if my symptoms are my Mavenclad or possibly menopause. If you are on Mavenclad, has anyone had a reaction once they had their second dose? My bloods went very low and still low. They said mavenclad should stop new MS symptoms but definitely not with me. First dose all good then the se...
  • Mavenclad
  • Symptoms
  • Treatment
  • Dizziness
  • Hot and cold
  • MRI
3

@fay_mishima

fay_mishima

Mavenclad - Post Month 2/Year 2

Just wondering if feeling nauseous from time to time is normal? I finished Year 2, Month 2 in March and a wave of nausea has recently hit me (5 months later). Did all internal checking with various doctors but checked in fine from their side. Only thing I can think of is this, since its a two year...
  • Treatment
  • Symptoms
  • Dizziness
  • Mavenclad
  • Work and play
  • Diagnosis
  • Family and children
  • Which DMT
  • Relapsing remitting
  • Unlicensed

@Flores

Last reply

Flores

Mavenclad

Anyone taking Mavenclad on this group. I am still debating whether to start Mavenclad or Kesimpta, I met with my MS nurse and I am even more confused. For sure I do not want infusions. Thanks sharing your experience on Mavenclad.
London, United Kingdom
  • Mavenclad
  • Treatment
  • Which DMT
  • Work and play
  • Diagnosis
2
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