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I started Lemtrada June of 2018, completed May of 2019. It wasn’t an easy treatment. Ms for me began in 1995 (17 years old). Around 29 years of interferons…betaseron and then avonex. Then I stopped dmt’s and tried just diet…..bad idea.🤦🏼‍♂️. With my ms progressing and shouldering from RRMS to ...

Just thought it was worth sharing my experience in case anyone (in the UK) is unfortunate enough to catch Covid now that it's doing the rounds again. I did a lateral flow test as soon as I felt unwell (high temperature, headache etc) and got straight on to 111 when I got my positive Covid result. ...

Hi guys! I had a Tysabri infusion last week and was told I had tested positive for JCV, It also happened to be my 24th infusion, so it was potentially my last Tysabri infusion. I had a call from my MS Nurse to say that my neurologist wants to re-test, so I have to go in again for bloods. However, sh...

I've been diagnosed 3 years, just struggling at the minute and feel lile I'm not being taken seriously. Recently lost the sight in my left eye, rang MS nurse 3 days ago and no answer and still havent got back to me. I took myself to the eye hospital where they said I have optic neuritis but to come...

Hello all, just new to this forum. I was Diagnosed in April 21 and taking DMT Lemtrada. I'm living with ms and serving for our military. In addition I'm competing in Invictus Games in Dusseldorf in Sept.

Hey :) In the midst of a relapse. Nystagmus & vertigo being the tell tale symptoms this time round. I’ve suffered with optic neuritis. Though my vision has never been the same, it did improve and I became accustomed to a change in sight. Now nystagmus 🤯😵‍💫 just curious, those who’ve experience...

Hi folks - dx RRMS in 2017, took it well because the alternative based on symptoms was looking like a brain tumour, had two rounds of Lemtrada in 2018 and 2019, and generally doing alright. Been meaning to join for a while. Not a fan of a pity party or competing over who has it worst, but always h...

Hello all I’m new to this page. I have had MS since December 2018 and had lemtrada in March 2019 was due my second lot in 2020 but due to covid it got cancelled and haven’t had to have any since until now. They have found new lesions on my brain and said I need more treatment so I’m thinking have th...

Hello all :) I’m after some advice I had my last full dose infusion in January and was due my 6 monthly one in July. This was delayed due to other medical reasons, I’m now awaiting the outcome of the regional MDT (cancelled twice due to junior doctor strikes) which is now in September. If all is w...

Hi I'm new here 👋 I got a DX of RR MS after the birth of my first child in 2009. I was in a bad way couldn't walk talk or do anything not even hold my baby 😪 I was in constant relapse as soon as 1 symptom cleared another started 🙄 . Life was extremely difficult. I was eventually put on Campath ( ...