Looking for
something specific?

Hi all I’ve friends who don’t know I’ve MS and they want to go out to the city and walk around few different pubs and nightclub. I won’t be able for that. So I just can’t go. Anything similar happen to you? My close friends know but others don’t and I’m very private about it Thanks xx

I posted the other day about getting hot so apologies but I’m going out of my mind!!! Iv been getting ridiculously hot as well as having hot flashes around my head neck chest and back. It’s almost like my skin is burning, it feels like sun burn. Iv had tonnes of blood tests back and all normal (...

Hi all, the amazing Niamh is taking over our Youtube channel and sharing her tips on managing MS at music festivals - yes she is going out out to the Electric Picnic Festival in Ireland - follow her festival survival guide for MSers over the weekend over at our Youtube channel - also please get invo...

I went to a local gig today and I was thinking how different your priorities are when you have MS. Pre MS days all I bothered about was the price of the booze and that they had good tunes on the juke box. If them the drinks were cheap and there was rock or meal playing, then I was a happy chap. Now...

I signed up to a disabled dating site to find someone who'd understand me and was compatible with me. After one day i got a message from a girl who obviously liked my profile and wanted to meet up! This girl, Jade, was (and still is) perfect for me. She appreciates the same random music as me, h...

Hi, I am in near constant pain with my back. As soon as I start to walk, my back really hurts on my left side :( I can't walk far without being in a lot of pain and I can rest a bit, do a bit...but the pain means that going out isn't enjoyable or easy. I go on holiday at the end of May for a wee...

I was diagnosed in December and am waiting to go on kesimpa in about 2-3 weeks,I hardly go out mostly appointments, I get around indoors bit outside walking is a different level,I have a stick but having trouble getting my head around it,we don't have a car at mo and I'm anxious about going out on m...

Anyone interested in going out cycling around London snail speed once this horrible weather subsides?

Has anyone from Scotland gone privately for a diagnosis? I am looking to see if this is an option for me to avoid the horrendous waiting times for appointments. I am quickly going out of my mind 🥴

My name is Rita I just joined this morning and I don't know what I am hoping for or what to expect from here? I was diagnosed with MS May 26,2021. That came as a bonus diagnosis to my presenting problem my now secondary diagnosis descibed as stable grade 2 spondylolisthesis with bilateral pars defec...

I have had balance issues for a while and I am wondering if should get rid of the high heels. I find walking in heels very difficult and certainly wouldn’t risk going out in public (as I know I would be stumbling and falling). My question is can physio help with heels ie use a stick or some informat...

Hi everyone, I had MS diagnosis on July 2021. I am originally from Turkey but I came Poland to study. Turkey healthcare system allow me to have free medication which I use Pharon (it is 4000 Turkish lira) but I don't know how Polish healthcare system works. Currently I go to Turkey to have medicati...

Today we were going out for Afternoon tea for my mums 91st birthday. It turned out to be a very different day. Mum ẁent missing about 5.30am seen on Cctv at 5.45 in her pyjamas and nothing else nothing on her feet. We searched the local area and police and helicopter out. Now found with broken n...

Hi everyone I want to ask you did you feel like useless in eyes of other people. I'm starting to feel that from my father, he's trying to control me, for example when I'm going out, where I'm spending my money (not spending on gambling drinking etc.) do we deserve to be controlled like that 😔. I kn...

I hope everyone is having a great Christmass! I am new here, but been living with MS since I was 11 , so for 18 years ... I know everybody is different but i want to ask if you ever had like a" quick thing "? Last year my hands and face paralized out of the sudden..(never had that before) By the ti...

Hi all, had a bit of a scary experience on Tuesday. Woke up in the middle of the night and couldn’t walk, fell over when I got up and couldn’t move my legs. I’ve been suffering from the flu and am under a lot of stress, an MS nurse told me it was most probably a pseudo-relapse. But this has totally ...

I was diagnosed at the beginning of this year (RRMS) but have, no doubt, been living with it for many years, given that it was only when I developed my 21st lesion that I was diagnosed. I work full time in the edtech sector as a Learning Designer - but, thankfully, its a remote position so I am in ...

I've not had a drink in a while, I had a blow out the other week.. I feel it's really set me back even over a week later, I know it can cause internal damage brain shrinkage. I don't like the hangovers or really going out. I'd rather do something in the day time. Think my clubbing days are over, but...

I was diagnosed with RRMS 8 months ago, was a massive runner but started struggling a couple of years ago and just thought it was getting old until I collapsed about 14 months ago and had loads of tests. I struggle walking some days know which is so crap as I loved going out for a run. Get numb arm...

I can't shake the feeling that im being a burden on others. For example, I don't like going out and about with groups as I'm conscious I'm slow and I get tired. I can't really walk great uphill and downhill is a bit tricky too People say they don't mind and I'm sure they don't but I feel sad