#going-out - Shift.ms

9 Jan 2020 15:08Last reply 10 Jan 2020 15:24

Over heating... going out of my mind!

I posted the other day about getting hot so apologies but I’m going out of my mind!!! Iv been getting ridiculously hot as well as having hot flashes around my head neck chest and back. It’s almost like my skin is burning, it feels like sun burn. Iv had tonnes of blood tests back and all normal (...

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@SamBillington

29 Aug 2019 13:00Last reply 30 Aug 2019 12:40

Going out out.

Hi all, the amazing Niamh is taking over our Youtube channel and sharing her tips on managing MS at music festivals - yes she is going out out to the Electric Picnic Festival in Ireland - follow her festival survival guide for MSers over the weekend over at our Youtube channel - also please get invo...

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@Dave-c

7 Sep 2013 16:18Last reply 20 Sep 2013 16:23

Going out

I went to a local gig today and I was thinking how different your priorities are when you have MS. Pre MS days all I bothered about was the price of the booze and that they had good tunes on the juke box. If them the drinks were cheap and there was rock or meal playing, then I was a happy chap. Now...

7

@DJDsouza

18 Apr 2009 00:46Last reply 20 Apr 2009 13:22

Going out with someone with ms

I signed up to a disabled dating site to find someone who'd understand me and was compatible with me. After one day i got a message from a girl who obviously liked my profile and wanted to meet up! This girl, Jade, was (and still is) perfect for me. She appreciates the same random music as me, h...

2

@supermum1983

Yesterday at 17:16Last reply Today at 08:53

Drinking

I've not had a drink in a while, I had a blow out the other week.. I feel it's really set me back even over a week later, I know it can cause internal damage brain shrinkage. I don't like the hangovers or really going out. I'd rather do something in the day time. Think my clubbing days are over, but...

4

@criptastical

14 May 2022 08:07Last reply 15 May 2022 09:34

I want to be normal

I'm just so tired of being sick. I'm 21. Most people my age, their plans involve parties and going out and getting drunk - my plans involve medication and doctors appointments and hospitals and a sharps bin. In the last week I've had to go to A&E twice, once for possible appendicitis and once for he...

3

@Muffie

18 Apr 2022 16:07Last reply 18 Apr 2022 22:59

It may be a bank holiday but…….

Happy holidays everyone bla bla bla. I don’t wish to be a downer but basically I’m going to be. Is there anyone else out there with MS experiencing a pretty rough day? I am and it may be an easter weekend in my area barbeques, kids playing etc but this weekend for some reason my body doesn’t know it...

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@lisamarieromy

8 Feb 2022 19:52Last reply 9 Mar 2022 21:51

Thoughts - feel fry to ignore

I thought I’d share so maybe some can relate I am grateful for my quick diagnosis I am grateful for having access to Tysabri every month I am grateful for MRI’s to know what’s going on in my brain and spine I am grateful my hearing returns when it went away I am grateful for my apartment that fee...

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@ConnieT

27 Jan 2022 07:06Last reply 27 Jan 2022 22:24

Sorry, I’m a newbie…

I’m new to all of this and I’m struggling. Sept/Oct last year was when I noticed my legs would feel like jelly after a 25 minute walk, but it’s nowhere near as bad now. I knew nothing about MS at that time, and all through November and December and I did life just fine. But NOW my brain is trying t...

Melbourne, Australia

5

@Claz12

24 Jan 2022 22:46Last reply 26 Jan 2022 15:27

Headaches/Head & Neck Pressure

Hi All, Just looking for a bit of advice. For the last nearly 3/4 weeks I’ve been having the most awful feeling in my head (temples) and upper neck. Sometimes I would describe it as a head ache but more of the time I’d describe it as a pressure in my head specifically at my temples and my base of s...

4

@peppergirl

26 Nov 2021 20:32Last reply 28 Nov 2021 12:12

Ocrevus

I stopped gilenya on 1 Sep so I could switch back to Ocrevus. Due an infusion in Tuesday. Shielding, not going out, but managed to catch a bit of cold from other half. Definitely not covid, so not sure if it'll be cancelled now?

Ellesmere Port, United Kingdom

1

@Ali1972

29 Oct 2021 23:09Last reply 1 Nov 2021 15:39

👋 hiya

Hi I am just looking into MS as a possible diagnosis. I have had many symptoms for at least 2 years starting with vision disturbance left eye and occipital pain/ neck pain and nausea. Then went onto having an unconscious seizure 2 days after this that started with myoclonic seizures I had had whilst...

8

@kadikilania

30 Oct 2021 16:59Last reply 31 Oct 2021 03:26

Fear to whats next gona happen..

How can we over come this feeing of fear that something bads gonna happen or whens your next fall (physically)? I always avoid going out or seeing and meeting anybody because I always have the fear that I'll embarrass myself . Share your thoughts and experience please.

4

@scribe

15 Oct 2021 10:40

Webinar: vaccines & immunosuppressed (with Prof G)

Hi all, MS expert Professor Gavin Giovannoni aka Prof G from Barts is taking part in this webinar from the ZOE COVID study team (they run the big UK COVID symptom app) talking about vaccines and immunosuppressed people, including MSers. It's going out on 28th October at 3pm but will be on youtube fo...

@Spencealot

25 Sep 2021 11:42Last reply 28 Sep 2021 15:35

Back 2 feet

I have been diagnosed of m.s 2 years ago after i hurt my leg and the doctors couldnt find a problem, now i still cant walk or stand years later and i hear about BIO NESS its a muscle stimulator to help with standing and walking but it is extremely expensive i was wondering if anyone knows of a gover...

3

@Clary

30 Aug 2021 08:45Last reply 8 Sep 2021 05:40

Heels?

I have had balance issues for a while and I am wondering if should get rid of the high heels. I find walking in heels very difficult and certainly wouldn’t risk going out in public (as I know I would be stumbling and falling). My question is can physio help with heels ie use a stick or some informat...

13

@aleks

14 Feb 2021 13:27 EditedLast reply 2 Sep 2021 09:52

Being disabled in times of global pandemic.

Hi all, hope you are doing fine, greetings from Luxembourg! I've spent most of my morning being upset with this whole pandemic drama that has been messing with our lives for a year now. I lived in two countries in the past year (Belgium and Luxembourg), I also visited my family in Poland for Christ...

Diekirch, Luxembourg

3

@jacob

7 Aug 2021 19:17

Numbness & weakness every time I walk

This is a new one for me. Every time I try and walk somewhere I get numbness and weakness in both my legs after about 5 minutes. I thought it was just a one-off last week... but I've now tried going out twice more and exactly the same thing happened. Shortly after the numbness, I get pain in my hip ...

Edinburgh, Scotland, United Kingdom

@jacob

18 Jul 2021 11:12Last reply 2 Aug 2021 17:36

Doing this alone

Hi everyone, I've just joined the forum and I was officially diagnosed with MS 5 weeks ago after 18 months of being told I "might have MS" and gradually going downhill over several years. The thing I'm finding hardest about it all is how alone I am, I have no support network. I don't have a very sup...

Edinburgh, Scotland, United Kingdom

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@Shelly212

19 Jul 2021 20:04Last reply 20 Jul 2021 11:46

Csf Leak

Hiiiii 😩 new to this so please bare with me. I’ve read all your stories and they’re so similar to mine. I had a cfs leak after my epidural went wrong having my beautiful baby girl in April this year. I had a blood patch straight after, which stopped all head aches & stiffness of my neck went. But s...

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