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I've been bad this year, disability has got much worse, no DMT at present, largely down to circumstances conspiring against me, waited a year for bloods to improve enough to start the Chariot Trial, then had a heart attack, so got rejected before I started 😞 was finally offered an unlicensed in Wal...

Hi Everyone, I am newly diagnosed (just awaiting the results to find out what type it is) and my neuro is keen for me to try Cladribine. I'm currently under Dr Schmierer at the Royal London. Does anyone have any first hand experiences of Cladribine and any side effects it has? I'm nervous to try ...

Hello, My ms nurse at the Royal London hospital has recommended Cladribine as an alternative to lemtrada. Can anyone tell me about the cancer risk associated with this treatment and why they might take this instead of Lemtrada? I am not keen in taking Lemtrada due to the long term follow up pe...

🎉 JOIN US FOR A FAMILY FUN DAY IN SUPPORT OF MS SOCIETY UK! 💜 📍 Niagara Leisure Centre, Sheffield (S6) 📅 Saturday 19th July 🕛 12pm – 5pm 👉 https://facebook.com/events/s/ms-society-uk-fundraising-day-/838459067943410/ We’re excited to invite you to a fantastic Family Fun Day packed with fun, f...

I didn’t think MS could still humiliate me. I feel bad about how I’m effecting those around me and how I am going to be a greater burden on my family. I lost it and tore into my wife. I was in such a haze that I can’t remember what I said. I acutely remember the feeling of being mortified. Of c...

I had HSCT September 18 in Russia. Was doing great till I got shingles in summer 19, and a MRI in January 20 confirmed new activity. I’ve been advised by my HSCT doctor to get Rituximab infusions (3-4) to try to put me back in remission. Since Rituximab is not licensed for MS in the UK , I’m struggl...

Very interesting trial. Not sure if there are UK centres but definitely worth a look at the trial website. http://www.beat-ms.org/ I have been in many trials and it is like free private healthcare, and BEAT-MS is not testing new medications, it is a comparator of the best efficacy therapies tha...

Looking forward to my enforced rest day with drug induced temporary snooziness. Having been Dx'd for 26y, Ocrelizumab is my 4th DMT. Rebif and Copaxone are so very yesterday - had them both back in the day - then Tecfidera until Ocrelizumab was licensed back in Dec 18. I had my first hit Jan 5th th...

Hello, Is there anyone on here that has started their treatment in the UK? I see that some Americans have. I am interested to know the approach taken by UK Neuros. I haven't got it yet but I am going to see a neuro later this month with a view to having it Rx for me. I dream of not being tied to a...

Hey guys, a couple of us are meeting up in Derby tomorrow for lunch/drinks at Carneros Lounge between 1-1.30 , they serve tea , coffee & soft drinks & are licensed , vegetarian or non vegetarian meals ... the more the merrier so come along if you’re free. All wheelchair friendly as is loo. P...