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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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@Jeng 

Last reply

Jeng

Brabio or Tecfidera🤔🙃

I was diagnosed RRMS in Dec 2020, the neurologist believes I've had it for 11 years. I've had 2 relapses in 2 years and currently have 1 active lesion (great way to end the year!) I have narrowed my choice of DMT down to Brabio 3xweek or Tecfidera, I like that Tecfidera is more effective and a pill ...
  • Treatment
  • Tecfidera
  • Newly diagnosed
  • Diagnosis
  • Research
  • Work and play
  • Which DMT
  • Fun drugs
  • Relapsing remitting
  • Diet
18

@motorhead 

Last reply

motorhead

Generic Tecfidera

Hi Everyone! Has anyone had any issues since their Tecfidera has been move to the generic version of the medication? I've been on the generic version for around 3 weeks now- since moving to the new medication I've been flushing literally every night, even after taking an antihistamine and aspirin ...
London, United Kingdom
  • Tecfidera
  • Treatment
  • Symptoms
  • Fatigue
  • Diagnosis
  • Work and play
  • Gilenya
10

@lizzie20 

Last reply

lizzie20

tecfidera

This may be a silly question but when i was speaking to my ms nurse the day i was starting tecfidera she said im not due for more bloods till may and about a week ago im getting told i need to get bloods done before i go onto the higher dose but the nuse gave me the higher dose i just dont start it ...
First posted on the Shift.ms app
7

@JoeWren 

Last reply

JoeWren

Recent diagnosis, Kesimpta or tecfidera?

Diagnosed only last week, I have an appointment with the MS nurse on 11/12/23 after the neurologist at my diagnosis appointment gave me a choice between kesimpta or tecfidera. I’m really unsure which way to go, does anyone have and input that might help me make my final decision please?
Forfar, United Kingdom
  • Diagnosis
  • Treatment
  • Newly diagnosed
  • Tecfidera
  • Which DMT
  • Relapsing remitting
65

@Belledefluff 

Last reply

Belledefluff

Tecfidera and constant respiratory infection

Good morning, Anyone on tec find they had a constant cough/wheeze/bubble in their chest? I think this is the 3rd time since the start of March and with only a few weeks of having no symptoms. I was never really ill before tec and was aware of the risk of immunosuppression but this is taking the p*s...
Aberdeen, UK
  • Treatment
  • Tecfidera
  • Symptoms
  • Research
4

@Daisy-Jen 

Last reply

Daisy-Jen

Tecfidera

Just wondering if anyone else can relate. Been on Tecfidera since 2020 with good effect. My white cells have steadily been dropping though, now at 0.5 so they have cut me down to 1 tablet a day instead of 2. Just a bit worried about the effectiveness if only taking half a dose. Thanks if anyone has ...
Glasgow, United Kingdom
  • Treatment
  • Tecfidera
  • Symptoms
  • Which DMT
First posted on the Shift.ms app
7

@LouiseM 

EditedLast reply

LouiseM

Flushing with tecfidera

Hey, started tecfidera in June, experiencing regular hot flushes/itchiness. I know this can be a normal side effect but is anyone on tecfidera that experienced flushing, did it ever settle down? If so, when?
  • Tecfidera
  • Treatment
  • Symptoms
First posted on the Shift.ms app
30

@Lightning87 

Last reply

Lightning87

Coming off Tecfidera after 6 years

Hey guys! It’s been so long since I posted on here as I’ve been doing relatively good. Diagnosed in June 2018 and started Tec in September 2018. Bloods always been fine, no new lesions - excellent! However, over the last 6+ months, my lymphocytes dropped as low as 0.37, came up to 0.5 so I could...
  • Treatment
  • Tecfidera
  • Newly diagnosed
  • Hot and cold
  • Which DMT
  • Diagnosis
  • MRI
  • Symptoms
  • Disclosure
First posted on the Shift.ms app
5

@Abz671 

Last reply

Abz671

Shingles and Tecfidera

So I had a rash on my side on Monday and didn’t think anything of it as I have been feeling fine. But I have been to the GP and they have told me it is 100% shingles! Has anyone else ever had shingles whilst on Tec and if so, did you continue taking your treatment? I phone my MS nurse but she is o...
  • Treatment
  • Work and play
  • Disclosure
  • Travel
  • Diagnosis
  • Tecfidera
  • Symptoms
2

@rustyhalo70 

Last reply

rustyhalo70

JC Positive and Tecfidera

My neuro wants to start me on Tec as I’ve not done well with other DMT’s and he wants me on something. I’m also JC virus positive, bringing the risk of PML into the picture. Anyone out there made the decision to go ahead on a DMT after testing JC positive? Knowing the risk of PML in the equation? No...
  • Treatment
  • Which DMT
  • Tysabri
  • Positives of MS
  • Work and play
  • Secondary progressive
  • Diagnosis
  • Tecfidera
  • Gilenya
  • Research
First posted on the Shift.ms app
5
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