Hi all, my name is Bill and I’m a 58 year old male from MA. Thank you for adding me here. I was diagnosed with MS in April 2019. I am now on my fourth DMT (previously on Tecfidera, Vumerity and Copaxone). I’m currently on Briumvi infusions. I had my first infusion this May, and had my second infusio...
Been feeling sick for two weeks now and just realised I've started having a much healthier breakfast, ie very little fat. Nausea is one of the tecfidera side effects, I've now upped my fat content for breakfast, so so you think this will stop the nausea?
Hello, I'm just wondering if anyone else has had trouble with medication. When I was pregnant I was on copaxone which my skin had a bad reaction too and then on avonex but had bad flu symptoms when I took them for 3 hours.
Then I change to tecfidera when I was no longer pregnant and took for 3 mon...
I had my annual check up with my consultant 2 hours ago at RUH Bath. Here is a brain dump of our discussion, while it's fresh in my mind, in case it helps anyone else with RRMS/SPMS who takes a T Cell based DMD:
- Lymp count was 1.3 and right where they want it.
- The very slow annual increase in...
Hello everyone, it’s been a year since my MS diagnosis and I’ve had one new lesion in my brain. I’ve been on Tecfidera for a year. No recognisable symptoms except for MRI finding, but my doctor has recommended shifting to Rituximab. Anyone who is on Rituximab? How are the infusions and the side effe...
Hello everyone, I was diagnosed with relapse remitting MS in 2010. Like everyone it’s been unpredictable, painful and downright frustrating having the disease. My question is though since I hit my early 50’s my relapses have stopped and still yay DMT Tecfidera. Has anybody else had the same experien...
Hi all, apparently I’ve been lurking since sometime last year, but now I’ve discovered the app so jumping on in…
I’m 45, diagnosed at 39 but suspected for a couple of years before that. Started off with no treatment, then 3 yrs on Tecfidera, now on Ocrevus which is so far fantastic.
I have a 5yo ...
I'm looking for feedback on any side effects people have suffered on either Avonex, Tecfidera or Aubagio.
Some of the possible side effects look scary and I'm trying to make a decision on which of the three Ive been offered I should try next.
Aubagio looks the less dangerous but I'd like to hear e...
Hi! I just got diagnosed with MS in August of this year and have been prescribed tecfidera. I'm nervous about taking it for the first time.I would like if anyone could share their experiences. Is there anything I should be concerned about?