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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Sort 1339 results by
Recent activityNewest posts

@Spiderhack 

Last reply

Spiderhack

Normal medication

Hello fellow MS people I am currently on DImethyl fumarate (Tecfidera) and whilst it’s done its job as far as I am aware. Are there any other natural Meds people recommend and if so where you get them from ? I am in the UK I appreciate exercise is a great one which I do but sometimes I am too tir...
First posted on the Shift.ms app
4

@Chrissykain 

Last reply

Chrissykain

cladribine

So I was dx 2009. Copaxone nearly killed me. Tecfidera caused me severe acne. I lost the feeling from my neck down September last year and finally had an mri in April. I broke my shoulder in October (slipped on holiday in Bulgaria) had surgery there and had plates and pins , they flew me home too ...
First posted on the Shift.ms app
12

@SennaWaiIChan 

Last reply

SennaWaiIChan

Advise

Hi everyone, I’ve been diagnosed with RRMS for four years now and have been on Tecfidera since the beginning. My latest MRI showed a bit of progression, and my neurologist has suggested switching to Siponimod. I was wondering if anyone here has any personal experience with this medication – how have...
First posted on the Shift.ms app
10

@Lightning87 

Last reply

Lightning87

Ocrevus - your experiences

Hello! I was diagnosed in June 2018 and was on Tecfidera for 6 years before my Neuro advised I would require to come off the DMT as my lymphocytes were below 0.5 for longer than 6 months. I had to go ’cold turkey’ until my lymphocytes went back up to 0.8 which they just have, thankfully. They hav...
First posted on the Shift.ms app
7

@Jillianleigh16 

EditedLast reply

Jillianleigh16

Tecfidera (dimethyl fumerate)

Has anyone taken this Medication? I took my first dose Last Friday and had a horrible reaction of severe flushing, high BP and HR I was sent to ER from work. Any advice or similar reactions? Update: I have been completely stopped on the Tecfidera. I will be switching neurologists due to mine movin...
First posted on the Shift.ms app
43

@clars64 

Last reply

clars64

I was diagnosed 17 years ago. Started with Tecfidera then Ocrevus, and now Kesimpta. My question/frustration is as follows. What should i expect from my Dr.? He is a neurologist. I see him 1 time a year which follows an MRi. We meet for 10 minutes and he tells me the MEI showed “ no remarkable changes”. Appointment complete. I get nothing about me and my progressing disability. I feel like a data point and nothing else. Thoughts? Thanks

Suring, United States
First posted on the Shift.ms app
5

@JenniferAnne 

Last reply

JenniferAnne

Medication 💊 tips anyone?

I think I may need a different medication , I still feel like what I’ve been on hasn’t helped over all, then again maybe I’ve just been on it ao long that it’s not working best for me. I started with Tecfidera, then began I fusions with Ocrevus. Anyone else having success with theirs? I trust my Doc...
First posted on the Shift.ms app
25

@fleety 

EditedLast reply

fleety

Intro

Hi. Hope you are well, not sure how this works but heard about it online and thought to try it out. I got diagnosed with MS back around 2022. Was a huge shock, I was initially seeing doctors about having back and leg pains. I had a couple of MRI's, eventually saw a neurosurgeon who first suggested p...
First posted on the Shift.ms app
11

@lizzie20 

Last reply

lizzie20

tecfidera

This may be a silly question but when i was speaking to my ms nurse the day i was starting tecfidera she said im not due for more bloods till may and about a week ago im getting told i need to get bloods done before i go onto the higher dose but the nuse gave me the higher dose i just dont start it ...
First posted on the Shift.ms app
7

@Abz671 

Last reply

Abz671

Tyruko side effects?

So I was on Tecfidera and had new disease activity so I am switching to Tysabri/Tyruko. After doing a short search I had come across patients having adverse reactions to the bio similar Tyruko and I’m panicking slightly as I have been told this it what I’ll be taking. What are peoples Tyruko experie...
First posted on the Shift.ms app
4
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