#positives-of-ms - Shift.ms

27 Jan 2023 15:14

I am looking for personal experiences regarding MS meds

Hi, I need to go on MS medication and would like hear from anyone (both positive AND negative) experience from patients who are on or who has been on Ocrevus, Mavenclad & Kesimpta. My Neurologist recommends Mavenclad but here in the US it has a black box warning and that concerns me. Any informatio...

@Mariaawad

26 Jan 2023 09:46

I am happy to join shift.ms community ❤️

I have been diagnosed with MS in May 2021, and the very first thought that came to my mind was “what if this is my chance to make a change, to do something truly purposeful”. I still find it weird to have had this as a very early thought, to think about sharing it with others and seeing the undenia...

Beirut, Lebanon

@Kate13

24 Jan 2023 21:45

MS Society PIP Webinar

The MS Society is running a webinar on PIP this Thursday 26th January at 6:30pm (in the U.K.) Thought I’d share as I’ve seen a lot of questions about PIP recently. This is the information about the webinar: ‘We’ll be joined by Georgie Wood, an MS Welfare Benefits Advisor from the Disability Law Cen...

@Nermin

22 Jan 2023 20:10Last reply 22 Jan 2023 21:40

Be positive

Don’t give up think positive walk as u can everyday stay active in life don’t drink alcohol eat healthy food vegetables 🥗 fruit Nuts 🌰 and everything will be good 😊 God bless everybody with MS we are the great warriors

Shkoder, Albania

1

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@Nermin

19 Jan 2023 20:12Last reply 20 Jan 2023 12:52

SM

I think sclerotic multiple will stop and not will disturb so much if are positive no stress no sad we not are to win nothing and if we feel sad to stay with right People to eat good to eat fruit vegetables and fish to walk as u can to are more active in everything so we will win 🏆

Shkoder, Albania

2

@Emeralwyn

16 Jan 2023 11:00Last reply 16 Jan 2023 20:39

JC virus index.

Hello everyone, I'm new here. Going through my 6th tysabri infusion, just got the results for the JC test and I'm positive. My index is 2.14. Should I be worried?

5

@Dazman76

16 Jan 2023 18:15

1st Kesimpta shot today at 10:30am,so far so good,hope every1 well

Keep positive everyone.

@VishyAndMehul

14 Jan 2023 01:46

Tysabri to Rituximab

Hi, my partner had COVID in February 2022 and the week after that she started feeling the weakness in her legs. In a matter of months, she was completely immobile. She was diagnosed with MS in June 2022. The treatments started with Steroids, then moved to 6 doses (one every 28 days) of Tysabri (Nat...

Bengaluru, India

@Baja

9 Jan 2023 12:48Last reply 10 Jan 2023 11:19

There's always a reason to be positive <3

Let's leave the negatives aside. Has MS given you anything positive in life? Since I was diagnosed, I started to take life completely differently. Every day is an opportunity for me to prove to myself that I can do the impossible. It keeps me going. What about you?

13

@Tanie_xox

8 Jan 2023 20:22

Still in limbo

Hi everyone. I still have been undiagnosed at the moment but my doctor seems to be fairly confident I have ms and that I'm now having my 2nd relapse again which has occured round the same time as last year with all the same symptoms but worse this time around. I tested positive for anca and the vasc...

@luceb93

13 Oct 2022 17:55Last reply 5 Jan 2023 20:45

Long term Tysabri users

Seeing as there isn’t much research out there, I was wondering how long everyone’s been on tysabri for before turning positive for jcv? I’ve been on Tysabri since February 2014 so next Feb will be 9 years for me and I’ve always been negative for the jcv virus.

26

@Aideog

4 Jan 2023 19:37Last reply 5 Jan 2023 19:12

Ocrevus/Kesimpta vs Tecfidera?

Hey there! I was diagnosed with RRMS in July of 2022 and will be starting treatment soon. My neuro suggested either Ocrevus or Kesimpta and I went for Ocrevus. After I had chosen (and all the documentation went through insurance, etc), I got a call from the neuro telling me she reviewed my medic...

8

@Daquin

4 Jan 2023 22:33Last reply 5 Jan 2023 15:00

Every aspect of life becomes a challenge

So I’ve been dealing with PPMS for a few years now, and nothing has been easy. I don’t need to go through the extended list of side affects with you, because I’m sure we all suffer from this neurological monster in a very similar manner. I’m most concerned with where it has left me as a young fath...

Vancouver, Canada

10

@billyshift

3 Jan 2023 15:45Last reply 4 Jan 2023 11:17

What main improvement you would like to see for MS in 2023?

Happy New Year Shift.ms community! 👋 I’d love to hear from you about what one improvement you would like to see in the multiple sclerosis world in 2023. Is there a particular treatment or therapy that you hope becomes more widely available? A change in societal attitudes towards those with chron...

8

@Shiftms

28 Jan 2023 18:00 Edited

Who has had a positive impact on your MS journey?

Hey Shift.ms community! 👋 We'd love to hear from you about the people who have had a positive impact on your journey with multiple sclerosis. Who has supported you and helped you navigate the challenges of living with a chronic illness? How have these people made a difference in your life, and wha...

@Kris8

1 Jan 2023 11:56Last reply 1 Jan 2023 13:52

Hello everyone, New member

Hello everyone, I would like to introduce myself, my name is Christine. I have had MS for over 30 years. My philosophy is that I own it, it does not own me. Sometimes that can be hard, but, being positive I think has helped me over time. I lived in a smalllish village called Poynton near Mac...

Frome, United Kingdom

3

@Dawn86

31 Dec 2022 07:29Last reply 1 Jan 2023 01:31

New here ☺️

Morning All, I just came across an ad for this platform on Instagram and thought I have nothing to loose by joining. I was diagnosed with RRMS in August after having what I now know as 2 relapses one in April and one the Sept before. I currently don't need any medication which i am very happy a...

10

@CharlotteF

31 Dec 2022 09:17Last reply 31 Dec 2022 10:24

What's going on??

Hi folks, I'm feeling a little lost at the minute, positive but lost. I received my diagnosis around July time and about a month ago I was given my treatment options with the doctors preferred option being Tysabri. Then they backtracked and want to do another MRI, my last MRI in August showed an en...

1

@smiler123

23 Dec 2022 18:26Last reply 24 Dec 2022 00:29

Bloody covid

Tested positive today after feeling poorly for the majority of the week, have the antiviral tabs to take as I'm on ocrevus dmt, anyone any tips at all ? Didn't test earlier as thought it was flu not covid, I'm gutted

5

@Corinna

14 Dec 2022 16:04 EditedLast reply 15 Dec 2022 09:53

Natalizumab Query...

Hi all, I'm considering starting Natalizumab, wondering if anyone could share experiences, positive and negative? I also may be going through IVF around the same time... Bit nervous!

London, United Kingdom

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