#positives-of-ms - Shift.ms

@Ramadevi

25 Sep 2022 05:31

Hi. Diagnosed with MS in Jan 2008.

Would suggest YOGA for recovery and a positive attitude helps .

@Screwdriver

23 Sep 2022 22:05Last reply 24 Sep 2022 18:38

Coming down from Methylprednisolone

OK so I have had the MOST spectacular response to this corticosteroid imaginable. I am a different person (a much better one). It has been a dark and dim time these past few decades. Whatever the actual prognosis eventually transpires MS/Encephalitis/cerebro spinal vasculitis, all similar condition...

2

@Sassymomof4boys

24 Sep 2022 02:18

Hi I had just turned 36 when Dx back in 2012. Changed my life 100%...

Since my diagnosis back in March of 2012, my life has changed in so many way. Some good and some bad. I was Never a sad person until about 6 months after that, then that was the first of many suicide attempts ( Depression is horrible for me). I try to stay positive but sometimes it's hard. I have ...

Cannon Falls, United States

@RoxanaM

21 Sep 2022 16:58Last reply 23 Sep 2022 03:24

MRI results- home visit

Hi everyone, it's been a while since my last post😅. Hope everyone it alright. So ...long story short...been diagnosed in September 2020...december 2020 started Tysabri...JC positive... I've been doing ok ...just this year in February i had a very bad vertigo attack that lasted over 5 weeks. My cons...

Doncaster, United Kingdom

2

@Rainbowjo

15 Sep 2022 15:50Last reply 21 Sep 2022 14:52

Scared

Hi everyone I’m new, I know I have to stay positive so I don’t let this swallow me up just wondering though , in these early days feeling scared, lonely, sleepless nights etc ….does that kind of thing become easier? Sorry if this is grim !

17

@Ireneb74

6 Sep 2022 13:50 EditedLast reply 20 Sep 2022 22:03

Story time - PIP & PPMS

Sitting comfortably ??? Then I will begin... In 2019 I was awarded Enhanced Mobility PIP, I had quite bad mobility issues. With that award I got a Motability Car. Life was good :-) In 2021 my GP tried to increase my pain medication - I refused as wanted to know why I was in so much pain. I wa...

4

@Dcms

19 Sep 2022 20:15Last reply 20 Sep 2022 19:37

Tao patches myth or miracle

Hi has anybody heard of or used these, I suffer with severe fatigue balance issues and drop foot in my right leg over the last year. These patches claim to greatly improve these issues,lots of positive reviews about them but sounds to good to be true.

London, United Kingdom

7

@Jordana

20 Sep 2022 08:23

Hard day today with symptoms

Getting my head around MS is difficult and trying to understand what’s happening to your body if it’s a relapse or something else. Recently I’ve started having numb fingertips and the numbness has kinda spread up my arms and to the back of my neck. Plus having vertigo as well. Has really made me sa...

@Mel-N

11 Sep 2022 21:39Last reply 17 Sep 2022 20:02

Tysabri and JC virus

Hi all, is anyone else positive for JC virus and still taking Tysabri? My MS nurse says the risk of PML is the same for the first 2 yrs of tysabri treatment whether you're positive or negative for JC virus. I was only offered tysabri as my treatment (no alternatives were offered) and I've only bee...

Victoria, Canada

9

@Alitasbuffalo

15 Sep 2022 20:10Last reply 17 Sep 2022 16:03

Neuro appointments

I wanted to know, what are your experiences when meeting your neurologist like? Do you feel confused about your MRI results, clueless about the implications of some lesions, or do you feel comfortable and calm with the information your neuro gives you? I live in the Netherlands and doctors here are ...

9

@novemberrain

15 Sep 2022 10:02Last reply 15 Sep 2022 11:24

Coeliac Disease

A couple months ago I tested highly positive for gluten antibodies in a blood sample. Biopsies confirm I have coeliac. I put it to my MS neurologist that my ataxia, positive lumbar puncture and brain lesions are actually symptoms of gluten intolerance (by reading scientific papers). He humoured me b...

4

@Davidp

11 Aug 2022 13:12Last reply 8 Sep 2022 08:35

Staying positive

Hi everyone , I'm new to this site and I just wanted to start off by saying Thank You ! Coming in here to read and chat has been and is such a pleasure 😊

Montreal, Canada

11

@Marionadarlin

7 Sep 2022 10:54 EditedLast reply 7 Sep 2022 14:51

Newbie - Turing Humpdays into positive rocking it day!

Hi Everyone, I'm Marion, a newbie to Shift.ms, looking forward to becoming part of this community. When I was first diagnosed I went a bit rogue and started doing my own research, watching YouTube videos, reading blogs and DR GOOGLE. It scared the bejayzaz out of me because it was all so negative a...

4

@802strong

2 Sep 2022 12:31Last reply 4 Sep 2022 12:51

Help Experience with Sotrovimab for COVID

I have well-controlled RRMS I recently tested positive for COVID and have had a few rough days but seem to be getting better Ive just been offered Sotrovimab a biological medicine for Covid. It's a neutralising monoclonal antibody - a man-made synthetic protein that mimics human antibodies. These s...

2

@BevMc

1 Sep 2022 11:00Last reply 1 Sep 2022 11:08

Would like to connect with positive people who won’t let MS rule life

I’m new on here and would like to connect with really positive people living with MS, who won’t let the MS rule or dictate life. I’m really active, do a lot of exercise, eat well, get enough sleep etc and try to live a life where MS doesn’t dictate to me! Would love to connect with similar minded pe...

1

@YKT1994

19 Oct 2021 13:36Last reply 30 Aug 2022 14:52

Tried to claim for PIP…

Sorry if it seems like all I do is rant… Applied for PIP last year and finally received a telephone assessment this September. I have now received a letter saying they would not award me anything as I seemed FINE and NOT fatigued. I would’ve loved to know how they could possibly assess fatigue ove...

28

@lisamayanderson

6 Aug 2022 20:26Last reply 19 Aug 2022 06:50

Tecfidera advice !

Hi, I started on Tecfidera nearly 4 weeks ago, all was ok for about 3 weeks, but the last 5 days have been horrendous! Really bad stomach issues, I will spare the details but lost nearly 4 pounds in 3 days, and stomach cramps on a par with childbirth, no relief at all. Tried & failed to get hold of...

9

@shiftms-blogs

1 Feb 2000 12:24Last reply 16 Aug 2022 10:55

Staying Positive and Focused Can Help With Your MS Fight

@antrainford has written his first Shift.ms blog highlighting the pressures that can be easy to put on yourself when worrying about MS and shares his personal tips in remaining positive under pressure. Thank you for sharing Anthony. Click below to read the blog by @antrainford ⬇️ https://shift.m...

1

@Damo

15 Aug 2022 12:52

Is right that a GP should over rule a specialist M,S nurse

Why does m,s make you struggle everyday when you get up feeling positive n try to to things that ain't meanial 🙈them u feel fed up

Buxton, Derbyshire, UK

@sandrajc

11 Aug 2022 21:09

my MS diagnosis

It was like June of 2012 and i woke up one morning and had trouble turning iver ti get out of bed and then when i tried to stand up fell back onto the bed luckily because i had very little feeling in my right side and very blurry vision in my right eye, so off to nearest medical clinic we went ...

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