#positives-of-ms - Shift.ms

14 Mar 2017 15:59Last reply 24 Feb 2021 00:57

Positivity thread!

Hi everyone, I know that it just isn't possible to stay positive all the time in the face of MS, and we shouldn't be expected to, sometimes it's tough and we just need to let ourselves feel how we do in that moment. BUT I would really love it if from time to time we could all share something that w...

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@Tiggermum

14 Aug 2014 16:54Last reply 9 Sep 2014 14:25

How do you really feel today?

We often get asked "how are you today", and in most cases we will just say "fine thanks", when in reality we want to scream out all symptoms and issues we are troubled with, not just brush it off and make people feel good they asked. Why dont we all say exactly what we are feeling? We should be ...

44

@Stumbler

31 Jan 2013 12:37Last reply 4 Jan 2018 10:19

DLA/PIP Reassessment. (for UK readers)

My MP had a letter of concern about the forthcoming reassessments. here is his reply :- http://www.timloughton.com/hottopics/circular_campaign_responses/item_2013_01_31__03_39_49.htm And, here is my further question to him on the issue:- "I read with interest your response to the constituent, ...

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@chezy17

29 Dec 2018 21:36Last reply 13 Jan 2019 22:50

MS Positives?

Now I know for a that people that post on here, it's about what MS has taken from them, how life has changed and not for the better but not many, if any positives about what MS has given them? Okay, I know it's a crappy illness, I get that but for me, it's given me some positives, okay so I had to d...

31

@anettauk

2 Aug 2015 04:00Last reply 23 Aug 2015 15:09

lemtrada experience

I've been reading about very positive experiences with Lemtrada treatment, which is very encouraging. I'm very interested to know if anyone has had a bad experience with Lemtrada? x

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@rachela

28 Jul 2012 17:44Last reply 1 Aug 2012 06:16

A Rant

Ok, I'm relatively new here and have been diagnosed officially now for about 4 weeks. I'm trying desperately hard to remain positive about things and I think so far, I've managed to achieve a healthy outlook on the whole process and my possible future. BUT...and here's my first 'pet peeve' now I'...

29

@maura

22 Jul 2018 14:38Last reply 12 Nov 2020 14:40

Diagnos Problems Ireland/weak hand

Hi Guys Any advice appreciated( this is the most positive and supportive site) Having seen my Gp with a problem of having numb feet for 9 weeks(had gone to A&e twice at 3weeks and 6weeks and told as I could move them I'm imagining it). and some mild hand tingling I then went on to develop burnin...

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@QuantumMechanic

15 Feb 2016 09:18Last reply 21 Feb 2016 17:02

Treatment Choice - Advice & slight rant.

Hi all, this is my first post. First let me say that my heart goes out to all of you, I was recently diagnosed with RRMS at the age of 39, just in time for my 40th birthday, and it's been extremely difficult for me to take. I began developing double vision back in June last year and it's progressed...

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@willow

30 Nov 2015 20:21Last reply 8 Dec 2015 18:17

What can I do if i'm refused Lemtrada?

Hello, I have a long waited appointment with my Neurologist this Wednesday. I had rrms for 14 years with occasional relapses. I've had 2 years with no relapses so have now moved into Secondary progressive MS. After doing my own research, and reading about other people's positive results from bein...

28

@hollylb10

31 Mar 2015 16:28Last reply 1 Apr 2015 10:53

In need of some positive thinking :)

Hi am new to this site and don't know what I am really doing :( I have not yet received a diagnosis , I have my first brain MRI this Saturday. I had a spinal MRI nearly a year ago after some leg symptoms that lasted around 6 weeks and nasuea and off balance that was diagnosed as vertigo by my GP. By...

27

@Hannah015

14 Apr 2015 18:16Last reply 21 Apr 2015 17:15

Engaged

Hey all Not an ms post as such but just wanted to share my great news, yesterday my boyfriend proposed :) this time last year I thought my life was over, I had been diagnosed and I had just been released from hospital after a month. I never thought in a million years I would be walking again let al...

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@MrsHawk

20 Feb 2013 15:18Last reply 21 Feb 2013 14:21

Horror Stories

So i have been feeling so positive lately... like i really have been not worried about having MS and have convinced myself that i will be ok... and then i was told that i was naive by this lady and told that a very real possibilty for my future is disbaility. What if i cant handle it?... i feel so v...

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@Ancy

23 Dec 2020 19:19Last reply 25 Feb 2021 18:31

OMS

Me again 😁🤣 Just wondering if any of you folks follow the OMS diet? I started to follow a few weeks ago, obviously don't expect to see any changes right now but has anyone had any positive (or negative) experiences with it??

London Borough of Ealing, England, United Kingdom

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@sunnydaylover

5 Jul 2014 06:12Last reply 21 Jul 2014 09:34

Beliefs

I have a very special friend, who is a fantastic counsellor/art therapist, but yesterday, she was telling me about a friend of hers who is a hypnotherapist and how she believes in power of the mind and that every day if we just believe in our ability to believe we have new cells every day, or words ...

23

@jonnydrama

18 Jun 2012 09:57Last reply 23 Jun 2012 15:15

Aloha - MS Diets!

I'm currently in the process of changing my diet after reading about the benefits, not only for MS but obviously life in general. I've cut all dairy out except skimmed milk (breakfast) and margerine. The only reason I still have marg is because I don't want bread etc without some form of butter or...

23

@gpeps

6 Oct 2020 18:28Last reply 13 Nov 2020 21:19

Website - help us be better?

Hey everyone 👋 We’re always looking for ways to improve our service so that you have the support you need. As you can see, we’ve recently updated our website to ensure we can continue to provide support for many more MSers in the future. We had many issues with the previous site related to speed,...

Leeds, United Kingdom

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@sparkle

5 Jan 2016 19:26Last reply 8 Jan 2016 16:38

Neuro tomorrow

I haven't been diagnosed with MS (yet?) and I'm seeing the neurologist tomorrow for my follow up visit after seeing her in November. She ordered a lot of blood work on top of the tests from the GP and the emergency department and also a MRI just before Christmas. Tomorrow we talk about about results...

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@JasFromTas

9 Aug 2015 11:47Last reply 6 Nov 2016 21:04

Lemtrada and SPMS/PRMS anyone?

Any experiences out there with Lemtrada and SPMS/PRMS? Does it work? In theory (in Aust at least) you can get Lemtrada so long as you are having relapses (even if you also have progression). I am pushing for it even though I have had a few neurologists errr and umm about my actual Dx (a 'bit relaps...

22

@andysot

5 Apr 2015 22:01Last reply 6 Apr 2015 19:31

MitoQ

Anyone tried MitoQ? Having done some research this antioxidant sounds like it might ce helpful in MS....just wondered if anyone has given it a go and had a positive experience? http://www.mitoq.com/uk/mitoq-5mg-capsules-60.html/

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@Hannah015

13 Nov 2014 15:11Last reply 14 Nov 2014 22:49

Back from japan xx

Hi all I'm back from Japan and it was amazing, loved every minute. If you had asked me in march when I was diagnosed and lying in a hospital bed unable to move my left arm or leg if I ever thought I would manage to go abroad, the answer would of been no, and a lot of crying :) but I managed to walk...

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