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Finally had my mri scan results through yesterday. I have something new on my brain which is called a solidarity deep white matter hyperintensity. My last mri scan was 3 years ago and I was on Aubagio back then which was ineffective. I saw my ms nurse yesterday and she thinks I've progressed but wa...

Hey friends, I’m just a bit frustrated at the moment and am seeking some solidarity and maybe advice from those who have been through what I’m dealing with 🌸 I started taking gabapentin last year to help manage my pain, despite the fact that it wasn’t managing my pain at all, I was discouraged from...

Hello everyone I hesitate to post this, since I know a lot of people are struggling with relapses and all sorts of problems, but if I can't say it here, then where can i share? My latest MRI was, in the words of my taciturn and overworked GP "estable", which I think can be understood by the anglo...

Glad to be here as I'm the kind of person who gets stuck into research and support from as early on as possible. I've been struggling since having Covid in March 22 and currently diagnosed with Long Covid. I've been leaning towards MS since early on and my MRI in Nov showed lesions in the Pons. The ...

Hey guys, I’m really struggling with my MS at the moment, physically I’m a lot stronger than I used to be but my fatigue, pain and short term memory is worse. I used to have issues sleeping through night and in the last month I’ve been having my full 8 hours but waking up more tired than ever, idk w...

I just saw after reading here about the living proof documentary, I bought it on Amazon, and all I can say is wow, scare the living shit out of me so has, anyone else with their diet and stuff I’m gonna be starting DMT soon I’ve had some horrible MS days and scared as hell not a good thing to watch ...

Hey - anyone else feeling generally worse (more exhausted, more painful limbs, worse sleep etc.) during lockdown? All my normal day to day symptoms have kinda ramped it up over the past 12 weeks. Nothing new to make me thinks it’s new activity, just the same stuff but turned up... Love+solidarity ...

Morning y'all (technically it is the afternoon but I am well behind and had planned this out for a morning post so y'all still get the American solidarity greeting). - The last loaf of bread was an unmitigated disaster and have been attending - with very limited success - to that. I am trying to sal...

Ciao Ciao (in solidarity with our Italian friends), - Apologies for the lateness. 3 key things have happened at Chez Shadbolt 1- It is an amazingly sunny day near Oxford (UK) 2- We went for a 10km walk by the Thames and over some hills, it was utterly lovely 3- I forgot to eat breakfast so upon gett...

Hi all, So four weeks ago I was happily plodding along in life and here I am posting about my story with MS so far. Through September and October I was having an extremely stressful time at work, to the point where I had threatened to resign out of principle. That all worked out in the end but on ...