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Recent activityNewest posts

@EbonyJoy 

10 Jan 2024 09:20

EbonyJoy

Insulin resistance and weight loss

Hey friends, I’m just a bit frustrated at the moment and am seeking some solidarity and maybe advice from those who have been through what I’m dealing with 🌸 I started taking gabapentin last year to help manage my pain, despite the fact that it wasn’t managing my pain at all, I was discouraged from...
Sydney, Australia
  • Pain
  • Exercise
  • Treatment
  • Healthy living
  • Symptoms
  • MRI
  • Vitamins and supplements
  • Lemtrada
  • Disclosure

@alanzapata 

2 Nov 2023 08:06Last reply 8 Dec 2023 21:12

alanzapata

Five years with no activity

Hello everyone I hesitate to post this, since I know a lot of people are struggling with relapses and all sorts of problems, but if I can't say it here, then where can i share? My latest MRI was, in the words of my taciturn and overworked GP "estable", which I think can be understood by the anglo...
Mairena del Aljarafe, Spain
  • Work and play
  • Healthy living
  • Treatment
  • Which DMT
  • Diet
  • Accessibility
  • Diagnosis
  • Lemtrada
  • MRI
  • Tysabri
8

@MammaCarr 

31 Aug 2023 10:38 EditedLast reply 14 Sep 2023 11:46

MammaCarr

Hello community! Introduction to my world

Glad to be here as I'm the kind of person who gets stuck into research and support from as early on as possible. I've been struggling since having Covid in March 22 and currently diagnosed with Long Covid. I've been leaning towards MS since early on and my MRI in Nov showed lesions in the Pons. The ...
Hull, United Kingdom
  • MRI
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  • Diagnosis
  • Newly diagnosed
  • Blurred vision
  • Fatigue
  • Relapses
  • Disclosure
  • Bladder and bowel
  • Pain
7

@EbonyJoy 

2 Jul 2023 01:38Last reply 2 Jul 2023 09:18

EbonyJoy

Solid sleep but worse fatigue

Hey guys, I’m really struggling with my MS at the moment, physically I’m a lot stronger than I used to be but my fatigue, pain and short term memory is worse. I used to have issues sleeping through night and in the last month I’ve been having my full 8 hours but waking up more tired than ever, idk w...
Canberra, Australia
  • Symptoms
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4

@CarlaCan 

10 Feb 2023 23:47 EditedLast reply 11 Feb 2023 17:30

CarlaCan

Just saw

I just saw after reading here about the living proof documentary, I bought it on Amazon, and all I can say is wow, scare the living shit out of me so has, anyone else with their diet and stuff I’m gonna be starting DMT soon I’ve had some horrible MS days and scared as hell not a good thing to watch ...
  • Which DMT
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3

@WillGlasgow 

12 Jun 2020 12:22Last reply 13 Jun 2020 09:53

WillGlasgow

Feeling worse in lockdown

Hey - anyone else feeling generally worse (more exhausted, more painful limbs, worse sleep etc.) during lockdown? All my normal day to day symptoms have kinda ramped it up over the past 12 weeks. Nothing new to make me thinks it’s new activity, just the same stuff but turned up... Love+solidarity ...
  • Symptoms
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  • Fatigue
  • Relapses
  • Work and play
  • Mental health
4

@DominicS 

30 Mar 2020 11:12

DominicS

Daily Briefing Covid-19 [30th Mar 2020]

Morning y'all (technically it is the afternoon but I am well behind and had planned this out for a morning post so y'all still get the American solidarity greeting). - The last loaf of bread was an unmitigated disaster and have been attending - with very limited success - to that. I am trying to sal...
  • Exercise
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  • Coronavirus
  • Work and play
  • Which DMT
  • Relationships
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@DominicS 

26 Mar 2020 12:10Last reply 26 Mar 2020 18:35

DominicS

Daily Briefing Covid-19 [26th Mar 2020]

Ciao Ciao (in solidarity with our Italian friends), - Apologies for the lateness. 3 key things have happened at Chez Shadbolt 1- It is an amazingly sunny day near Oxford (UK) 2- We went for a 10km walk by the Thames and over some hills, it was utterly lovely 3- I forgot to eat breakfast so upon gett...
  • Coronavirus
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  • Gilenya
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13

@dpommo 

15 Nov 2016 22:20Last reply 7 Dec 2016 14:47

dpommo

Newly diagnosed (London)

Hi all, So four weeks ago I was happily plodding along in life and here I am posting about my story with MS so far. Through September and October I was having an extremely stressful time at work, to the point where I had threatened to resign out of principle. That all worked out in the end but on ...
  • Diagnosis
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  • Balance
  • Blurred vision
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10

@isaacson72 

27 Jun 2017 14:16Last reply 29 Jun 2017 21:05

isaacson72

Spasticity questions

Hi everybody, I have some questions about spasticity. I am having a hard time figuring out what it is, exactly, and how to differentiate it from something as simple as sore muscles or some other type of issue. Currently, I have a stiff neck. Like you get when you sleep in the wrong position in...
  • Healthy living
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  • Mind and body
  • Symptoms
  • Brain fog
  • Pain
  • Spasticity
7
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