#vitamins-and-supplements

26 Oct 2014 21:09Last reply 10 Nov 2014 19:31

Vitamin & supplement minefield

Hi everyone, I've been reading through what seems like a zillion threads here trying to determine what vitamins and supplements everyone takes. If you have a moment could you please post here what you take, dosage etc . I'm currently taking supplements as advised by the site Overcoming Multiple Scle...

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@teecher66

16 Sep 2017 21:43Last reply 19 Sep 2017 11:19

wahl's protocol and dmt's

My daughter has recently been diagnosed with MS and wants to follow the Wahl's protocol as well as take the DMT drug. However I'm worried that she may be stimulating the immune system while the drugs are repressing it. The MS diet eliminates as much as possible dairy,refined sugar,legumes and glut...

2

@inesmartins

11 Jul 2012 08:52Last reply 20 Aug 2012 07:33

Vitamin D Reviews Please!!

Hi everyone! I would like to know who is taking vitamin D and what differeces has it made? I have been taking mine for about 1 month, 2000iu, and I feel good, but I'm thinking of upgrading to 4000iu. I have a friend that is not taking any medicine and is getting really depressed because nothing he...

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@chris

3 Nov 2012 14:52Last reply 29 Nov 2012 23:15

When were you born

My birthday is in April and I know a few ms'ers who were also born in the early spring (mothers pregnant during winter no summer sun low vitamin D) wonder how this fits with everyone on here. Cheers Chris.

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@Mandela

3 Dec 2012 00:24Last reply 8 Dec 2012 13:33

Dreams/Ambitions/Aspirations/Goals

I was just wondering if MS has hindered anyone from pursuing their dreams, their goals in life, their ambitions, their aspirations, or just made you rethink how you are going to get where you want to go. Or has it made you grab the bull by the horns and pursue your dreams vigorously? I have experien...

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@Kitty

10 May 2017 07:55Last reply 19 Apr 2019 00:45

Confused

Hi, so dont know what to do. Ive known about my Ms over 7 years and only had 2 relapses. Ive also only ever tried 1 drug... Avonex for 6 months and then came off it as I felt it was effecting quality of life. This week Ive found out the results to latest MRI...3 new lesions and enhancement of e...

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@MelvieMoon

20 Oct 2019 07:48Last reply 23 Nov 2020 21:34

What lead you to your MS diagnosis?

I would like to start a thread to find out how others found out lead others to their MS diagnosis... I found out I had MS by fluke and for that I am extremely grateful! I started out with what I can only describe as ‘my own legs not feeling like my own’...I got bloods done and found out I was defici...

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@KrisP

16 Mar 2015 18:24Last reply 2 Sep 2016 13:25

Progressive ms

Sorry for this not sure if it's been mentioned before but for you guys with progressive Ms I read about a drug called MD1003 which appears to be high dose vitamin h, looks good so far, might give some here a lift

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@CheshireCat

15 Apr 2016 16:20Last reply 20 Apr 2016 01:31

Newbie, diagnosed, worried!

Hi all. It's my first post and I'm sort of... shy. I was diagnosed 2 years ago. Had my left eye almost blind and went to ophthamlmologist who decided to ask for an MRI (I told her I had diplopia 10 years before and she had a patient with a similar story that had MS). It was confirmed, so I went to a...

29

@Wobbler

19 Jun 2018 00:22Last reply 24 Jun 2018 09:30

Diet

Hello fellow MS people! I joined up and have been loitering here for a couple of weeks now and have made a few friends... I wish I had found this forum years ago! I know this isn't the first post on the subject, but this is my first post here and I would like to get some opinions and suggestions on ...

24

@Jacobo_Santamarta_Barral

2 Jan 2019 06:04Last reply 28 Aug 2019 11:18

Ocrevus and SPMS

Hi everyone, I was with my Neuro on Monday and shd told me that, given the evolugion of my symptoms lately my RRMS may had become already an SPMS. Thus she recommended me to start taking Ocrevus and leave the treatmenr I am on at the moment (I've been taking Tysabri for the last 8 years). I think ...

23

@JaneB74

22 Jul 2017 09:44Last reply 20 Jul 2020 10:58

How much vitimin D?

I was told 5000 a day?? What have you been told to take a day for vitamin D daily

22

@Katy79

20 Mar 2016 09:47Last reply 23 Mar 2016 08:01

All new

Hello, this is my first post. I'm currently somewhere between a CIS diagnosis and MS (having been told I meet the revised McDonald criteria for MS based on my MRI and current (very mild) sensory CIS). I don't (think) I know anyone with MS and just want to reach out and share my story and feelings ...

22

@DominicS

2 Jan 2019 10:21Last reply 4 Jan 2019 17:40

Ocrevus - Friday if all goes to plan!

I am scheduled for my first dose of Ocrelizumab this Friday. It has been a long campaign to get this. Am happy to share in DM's but don't want to subject y'all to an unsolicited shaggy-dog story about it. As with most things MS related, it is relevant to me but there are few details that can be take...

21

@jonnydrama

4 Aug 2012 19:19Last reply 15 Aug 2012 09:30

Diet Tracking

Hey all, does anyone use apps or some kind of tracker to monitor their sat fat intake (as well as poly fat, certain vitamin intake etc)? I use MyFitnessPal, although its kind of geared toward weight management I find it great as just a diet management but I don't know if anyone uses anything else? I...

21

@islandgal

28 Jun 2017 08:09Last reply 3 Jul 2017 11:46

Fatigue medication??

Hi ok so my fatigue is bad now extremely debilitating .had blood tests to check for anything lacking ..im now a vegan plus fish.my b12 was about 479 ish which doc said was ok. But im taking various extra supplements to help things.has anyone tried any meducation for fatigue? I cant go on lik...

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@doubleo7HUD

2 Aug 2018 15:52Last reply 3 Aug 2018 15:57

Dear Mr Sunshine

Dear Mr Sunshine, I’m writing to complain about you and the fact that even tho I need my Vitamin D, I’m now bored of being baked to death by your rays. As a dedicated sun dodger I have done your job for you and found a solution to my complaint (solution to follow at the end of my angry rant and waf...

19

@Georgia_Roberts

18 Apr 2020 21:00Last reply 28 Apr 2020 07:28

Long term

Does having ms mean that I will inevitably end up in a wheelchair? I know it’s different for everyone and there is no definite answer but In general does it mean that eventually I will? I’m 21 and currently have no symptoms Other than some tingling if I excercise and I find it hard to accept That I ...

18

@FXMS

22 Sep 2018 23:21Last reply 31 Oct 2018 02:09

Biotin for progressive forms of MS

MedDay Pharmaceuticals is developing high-dose pharmaceutical biotin for treatment of progressive forms of MS. Currently in phase III development, there is an ongoing clinical trial in Europe and the US named SPI2. Some articles I've read argue that this treatment can stop progression and has induc...

18

@cammo

5 Dec 2017 00:55Last reply 6 Dec 2017 16:50

No new lesions

So over the moon right now. I just got back from my Neuro appointment and he told me straight away that everything looks good. There are no new lesions since my MRI 6 months ago (where there were heaps). Things look stable and one of the spinal lesions looks smaller. Fk yeah. I feel like its my bi...

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