Glad to be here as I'm the kind of person who gets stuck into research and support from as early on as possible. I've been struggling since having Covid in March 22 and currently diagnosed with Long Covid. I've been leaning towards MS since early on and my MRI in Nov showed lesions in the Pons. The neuro didn't mention MS at all (although on his report the neurosurgen read, he is considering it), just that it's probably the migraines which caused the lesions. Told to try lifestyle changes and if no help then try migraine meds and await a 6 month review of MRI. Of course, with the NHS admin/pandemic backlogs, my MRI dates got mixed up, so 9 months on (with a relapse or two in between) and I'm finally getting my next MRI on the 7th Sept 🥳 I'm convinced it's MS as I've had periods of getting better and then relapse with new symptoms. I don't want the diagnosis of MS but I'll be damn relieved if I do! I'm currently off on unpaid sick leave (self employed) and awaiting PIP assessment, so some validation for my suffering will come well received. My symptoms are written here in an ish order of appearance since a few months after contracting COVID 19- to date (please note, I have seen GPs, Consultants, Optomatrists, Ophthalmologist, Cardiologist, Neurologist and Neurosurgen, throughout the past year and most things ruled out); Occasional Fatigue Tension headaches Breathlessness Palpitations Chest discomfort/pains Migraines Cyanosed lips Black outs Chest tightening Severe fatigue POTS PEM Non migraine visual disturbances Brain Fog Pain behind eyes (Period of recovery ~3 months mild symptoms) Pre-existing symptoms returned with vengeance along with; New numbness/tingling Other altered sensations Cramps/Spasms (Period of partial recovery ~2 months) Pre-existing symptoms returned with; Tremors Unable to fully empty bladder Optic neuritis symptoms (optic disk looks fine though - awaiting MRI & visual field retest to confirm) Everything is worse around ovulation and the week before and of menstruation 🤦🏻‍♀️ thanks mother nature! I'm laid here writing this with traveling numbness in face and arms, and tremors while I need a wee even though I just went... fighting an internal battle of desperately hoping my MRI is clear but also that it's full of lesions- so I can be diagnosed and validate my suffering; or just move on in the darkness of a failed Long COVID recovery program. Either way, I'll update you once I see the Neurologist on the 14th September 🙂 Thanks for reading, it's nice to be part of a welcoming community who understands ❤️ #solidarity