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We look forward to your post on the topic For all of you interested: watch out for news of TOLEBRUTINIB and FENEBRUTINIB, for us progressive MSers, in the upcoming Euopean Congress of MS in Copenhagen, Denmark (ECTRIMS). Currently in phase III (the last before filing to EMA or FDA), the drugs coul...

I'm having an active flare up and have been placed on 500mg of methylprednisolone daily for 5 days, and am using paramol and tiger balm to try keep the pain at bay. I've been looking into CBD oil as I used to be a heavy cannabis user around 4 years ago, before my diagnosis was confirmed, and did fi...

I wish I could turn back time, just to those simple days after school. Imagine the rain pouring down, the kind that makes the world feel cozy and safe. I’d come home, eat a warm lunch, and do my homework. Then, I’d curl up on the couch with a cup of Zuhurat (herbal infusion popular in Lebanon) and a...

I wish I could turn back time, just to those simple days after school. Imagine the rain pouring down, the kind that makes the world feel cozy and safe. I’d come home, eat a warm lunch, and do my homework. Then, I’d curl up on the couch with a cup of Zuhurat and a toasted labneh sandwich. The heater ...

So yesterday I got told that I ain't one in a million (yes I know I thought it was sarcasm to lol). But I was told I was 1 in at least 1200!! I am all registered onto the MS trial Octopus. Bloods were taken, discussions were had. My first MRI is next week. The team were lovely. There was a def...

Hi everybody from Bonnie Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿. I am flying from Edinburgh to Belfast at the end of the month. How do I transport the hundreds of drugs I take. Can I put them in a pill box or does security need to see the actual box? TIA Karen xx

I havnt myself, although I’ve never been asked. I’m not sure what my response would be. That brings me to my next question. Are there any “game changer” close to if not a cure drugs in trials at the moment ?

Hi everyone hope you are well. We are looking to plan a holiday to Thailand was wondering if anyone has any experience with taking meds over there? I am on baclofen, norflex, anti inflams, pain killers, anti nausea (will be leaving opioids at home can hopefully wear norspan patch?). I have medical c...

I've been diagnosed with MS for 4 years now, first presentation was in 2015 however and it's taken til this year (2024) to find a good treatment. I say good treatment because not only do I have MS but I have other diagnoses too and all other treatments have worsened my symptoms of other conditions. ...

Hi all, I know everyone’s MS is different but I’m wondering if anyone has any insight/advice to share. I started having some sort of flare up 2 months ago, with sensory disturbances and fatigue being the main symptoms. The sensory stuff has cleared up now, and I am back to my normal day to day life...