PPMS and Me!!
So yesterday I got told that I ain't one in a million (yes I know I thought it was sarcasm to lol).
But I was told I was 1 in at least 1200!!
I am all registered onto the MS trial Octopus. Bloods were taken, discussions were had. My first MRI is next week.
The team were lovely. There was a definite buzz about the Ann Rowling clinic.
I am on the trial for the next four years. I will be very well looked after (not that I wasn't already). There will be around 1200 of us from the UK and Northern Ireland, all on the trial for 4 years.
We will not be getting a new drug - we will be getting 1 of 2 drugs already used for other conditions, or we will be put on a control drug. The Ann Rowling staff and me will not know what drug I will be put on. That decision will be random - nobody will know apart from a hospital in London.
It's only us PPMS'ers on this trial (just now).
It's all very exciting and the hope is the results of this trial will find a treatment to suppress / slow progression of PPMS by up to 3 times. It will not cure the damage already caused by current lesions.
It's all just so exciting and I am over the moon!!!
Xxx
Great news that. 👏
wishing you all the best, keep us PPMSer’s in the loop.