@Ireneb74 

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Ireneb74

PPMS and Me!!

So yesterday I got told that I ain't one in a million (yes I know I thought it was sarcasm to lol). But I was told I was 1 in at least 1200!! I am all registered onto the MS trial Octopus. Bloods were taken, discussions were had. My first MRI is next week. The team were lovely. There was a definite buzz about the Ann Rowling clinic. I am on the trial for the next four years. I will be very well looked after (not that I wasn't already). There will be around 1200 of us from the UK and Northern Ireland, all on the trial for 4 years. We will not be getting a new drug - we will be getting 1 of 2 drugs already used for other conditions, or we will be put on a control drug. The Ann Rowling staff and me will not know what drug I will be put on. That decision will be random - nobody will know apart from a hospital in London. It's only us PPMS'ers on this trial (just now). It's all very exciting and the hope is the results of this trial will find a treatment to suppress / slow progression of PPMS by up to 3 times. It will not cure the damage already caused by current lesions. It's all just so exciting and I am over the moon!!! Xxx
@DVGFleming

Great news that. 👏

@TomDonahue

wishing you all the best, keep us PPMSer’s in the loop.