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Multiple sclerosis can take some time to be diagnosed. Whether you're experiencing strange new symptoms, waiting to have an MRI scan, receive a lumbar puncture or for a referral to a neurologist, the uncertainty can be an extremely difficult time. The members on this community know what you're going through.

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@Lifesucks

17 Apr 2025 17:45Last reply 17 Apr 2025 18:44

Anyone have Ms for years without disability?

I’m 18 and my symptoms are pretty bad. I wake up multiple times a night with numb limbs and get constant facial spasms and twitches. These symptoms occur every single day non stop. I’m scared on what will happen in my future. Anyone have any stories?

First posted on the Shift.ms app

@shelina

11 Sep 2024 04:38Last reply 11 Sep 2024 05:56

Newbie here

I’m currently waiting on my diagnosis, my neurologist app is later this month. I’ve been seen by a few Doctors over the last 3 months, my MRI shows numerous lesions and they’ve each said it looks like MS but until my lumbar puncture results are back they won’t fully diagnose me. I’ve recently rece...

First posted on the Shift.ms app

@jealous_wombat

28 Aug 2024 21:24Last reply 29 Aug 2024 16:21

do most employers just suck?

so i work for the public service. they bang on about diversity and inclusion but actually its the complete opposite. so being an idiot i told my managers i have ms. they started spamming my neurologist for more information.im now on a performance improvement plan. if i ever mention i have a health...

First posted on the Shift.ms app

@LynnardSkynnard

26 Aug 2024 16:32 EditedLast reply 26 Aug 2024 16:38

Anyone else have cyst issues (TMI WARNING)

I am having some serious cyst issues which I've just decided to rename cystues. 😂 Seriously though I have had issues with sebatous cysts popping up randomly on my neck low around my collar bones and in my armpits for about a decade now. Before I knew what they were I just used to drain them myself ...

First posted on the Shift.ms app

@whatadorkynerd

13 Aug 2024 09:38Last reply 17 Aug 2024 16:39

Newly diagnosed

I was just diagnosed in July. My first symptoms and lesions were in 2019 but I was in limbo until a lumbar puncture recently for diagnosis. Partly because symptoms overlap chronic migraine and FM which I have. So my neurologist was looking for something strictly MS. I did get drop foot but that wa...

First posted on the Shift.ms app

@hedgehodge

13 Jul 2024 20:33Last reply 18 Jul 2024 04:24

I appreciate you all ❤️

Hey folks! , I don't know about you, but sometimes I tend to forget that I was was diagnosed with a life alternating medical condition. Right now I'm still on the stage of clinically isolated syndrome, but my cognitive abilities are not what they used to be and that is affecting my work. Hindsight b...

Calgary, Canada

@Kimprobable

22 Jun 2024 14:01Last reply 4 Dec 2024 16:55

Getting a diagnosis - UK

I'm not yet diagnosed but I'm pretty sure I've got RRMS and am currently experiencing a flare up of symptoms. I've been on the waiting list to see an NHS neurologist since January, I've got an appointment in December which will be the first time I've been seen by a specialist. I guess I want to kno...

London, United Kingdom

@kilkennykat

13 Jun 2024 14:28Last reply 14 Jun 2024 08:47

Thumb Weirdness

I have some weridness in my thumb over the last week. I seem to be getting pins and needles in it but when I move my thumb down and blood goes to it its fine but when it is faced the other way the pins and needles come back. Could this be CIS / MS related or more trapped nerve related? Also I am c...

Truro, United Kingdom

@Wingsofadove

30 May 2024 17:09 Edited

World MS Day 2024

To all MSers, carers, supporters, health care professionals, et al. However little or much we all do, individually or collectively, we’re all valuable contributors, the cogs in future processes leading to earlier diagnosis, life-enhancing treatments and raising awareness. One hand cannot clap! Sha...

@costella

29 May 2024 21:08Last reply 3 Jun 2024 14:30

Mobility

At this point I am sort of unsure what to do. I know I do not have any formal diagnosis of what is wrong with me but that will not magically make the symptoms pause until I get that diagnosis which I hope will be soon but with healthcare it's always a bit blurry when you'll see progress with a diagn...

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