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Hi Guys, in Limbo land at the moment waiting for MRI scan on Aug 4th. Started with pins and needles in both hands and feet a couple of years ago, various blood test, diagnosed with coeliacs last October, this year pins and needles came back, last 2 months has progressed worse. :-(

Hi guys My name is Maura up until April I was very fit active 37yr old working long hours in a very physical job.In April I started getting abnormal sensations in my right foot Foot mainly felt numb and heavy by end of May both feet were like that all the time.I presented to A&e twice but as I c...

Hi I'm new to the forum but have been following for a while. Just wondered how any of you received your lp results and how long after? My brain mri showed demylination and the report states Ms however my neurologist disagrees with my report. On examination they found mild left limb weakness and when...

Hi there, *update in comments* .... This is a bit of a long rambly first post so thankyou for taking time to read it 🙃 I'm in need any advice relating to what to ask/say in my first neurology appointment today. I am scared/relieved to have found this network as I go through the process of findin...

Where to begin I believe I've had symptoms for a number of years but put it all down to ageing and being clumsy and a stressful job. Symptoms got worse around 18mths ago with chronic fatigue, loss of consciousness and collapse, falling , nerve pain in feet and originally right hand but now both, ...

Sat writing this while sat on my bed on the acute medical unit at the hospital. I had 2 seizures on Sunday night which they dont think is related to the MS. I'm waiting for the results of an MRI scan done yesterday which shows changes, but I'd like to speak to my neurologist but I'm not sure if he's...

Hey guys lovely to meet you all . I am just wondering if you can help me. I’ve had brain and cervical spine mri I have received the letter today. It says there are 3 areas of periventricular white matters changes on the right side of my brain and a small area on the cervical spine. I’ve got...

The last few weeks have been hard as I face severance at work on medical grounds, plenty to worry about, so a few (well maybe more than a few) words to explain it all..... At present I am in limbo land, waiting for dates and final decisions regarding my future. Ill health retirement or severance o...

Just need to VENT! 1 year ago I started to feel really run down. Test after test was normal, except for high antibodies of Epstein Barr (I had mono real bad 25 years ago), and my doc said it was likely a reactivation. But, the symptoms never stopped. Exhaustion alone evolved into pain everywhere...

Hi at the moment I am in limbo, I am 37 and started with pain in my hips which went on for a very long time on and off but became worse I was constantly tired and had numb feet and toes so I went to gp who referred me to the neuro I had a spinal mri which was clear in jan, since then my pain has bec...