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Yesterday was my 12 month check up with Neurology. I was told she can’t decide if I have CIS or RMS but I’m being given information about my local MS nurses. So does this sound like I do have MS? Still in limbola d I think

I’m still waiting on neurology appointment since February for a diagnosis of MS. Ended up back in hopsital all day today due to losing control of my bladder. Worst thing is it was at work and I don’t think I’ve her been so embarrassed. I didn’t realise I had wet myself until it was too late. I’m so ...

I have been suffering for a few years and finally this month got diagnosed with RRMS. However due to being in 'Limbo Land' for so long I actually don't know how to feel about it 😒 Relieved and happy to know I was right all along? Or scared as not knowing what the future holds? Looking for any tips ...

Hope everyone is doing well. Or as well as can be. Woke up this morning feeling like garbage and decided I needed to prod and poke the doctor a little today. As per usual I have blurred vision, sore eyes when moving, the daily dizziness that I've had for 3 years along with the numb left arm, disloca...

Need some advice. I am living in limbo land and have been for just over a year. Not seen a neurologist since January. Had a few test and just been told everything is reassuring as inflammation not changed since last MRI. Phoned a few times as symptoms changed. I now have to walk with a stick sometim...

Hi I'm new here and I was just wondering how many of you had a CIS diagnosis with oligoclonal bands before you got your MS diagnosis? I have a lesion on my spinal cord that affects my right arm, got a lot of sensory issues with it and a lot of numbness as well. However, I've also experienced other...

My diagnosis has been changed recently from CIS to RRMS. I'm currently waiting for my latest MRI to be reviewed so I can start DMT. My memory seems OK but my walking and grip is affected. I am finding though that if too much is going on around me I become overwhelmed and cannot concentrate and end u...

Hi everyone My first MS symptom was an episode of optic neurits at the end of last year. It lasted for 6 weeks before it began to clear and an MRI showed lesions on my brain. I had a lumbur puncture and that was clear, however, since I have continued to have weakness in my arms, and legs, particul...

After what started off as a routine eye test around 3 years ago, I have been undergoing what seems like an endless amount of neurological and optical tests. I have some people saying, “You almost definitely have MS”, whereas others saying, “There are no signs of it at the moment”. I have various odd...

I do apologise if this is not the right place. I dont have a diagnosis yet, but my GP strongly suspects MS. I've had a normal brain scan, nerve conduction studies seemed OK but the doctor said the issue seems to be coming from the spine. I'm not entirely sure how he could tell that. I've had MRI...