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I’m currently waiting on my diagnosis, my neurologist app is later this month. I’ve been seen by a few Doctors over the last 3 months, my MRI shows numerous lesions and they’ve each said it looks like MS but until my lumbar puncture results are back they won’t fully diagnose me. I’ve recently rece...

so i work for the public service. they bang on about diversity and inclusion but actually its the complete opposite. so being an idiot i told my managers i have ms. they started spamming my neurologist for more information.im now on a performance improvement plan. if i ever mention i have a health...

I am having some serious cyst issues which I've just decided to rename cystues. 😂 Seriously though I have had issues with sebatous cysts popping up randomly on my neck low around my collar bones and in my armpits for about a decade now. Before I knew what they were I just used to drain them myself ...

I was just diagnosed in July. My first symptoms and lesions were in 2019 but I was in limbo until a lumbar puncture recently for diagnosis. Partly because symptoms overlap chronic migraine and FM which I have. So my neurologist was looking for something strictly MS. I did get drop foot but that wa...

Hey folks! , I don't know about you, but sometimes I tend to forget that I was was diagnosed with a life alternating medical condition. Right now I'm still on the stage of clinically isolated syndrome, but my cognitive abilities are not what they used to be and that is affecting my work. Hindsight b...

I'm not yet diagnosed but I'm pretty sure I've got RRMS and am currently experiencing a flare up of symptoms. I've been on the waiting list to see an NHS neurologist since January, I've got an appointment in December which will be the first time I've been seen by a specialist. I guess I want to kno...

I have some weridness in my thumb over the last week. I seem to be getting pins and needles in it but when I move my thumb down and blood goes to it its fine but when it is faced the other way the pins and needles come back. Could this be CIS / MS related or more trapped nerve related? Also I am c...

To all MSers, carers, supporters, health care professionals, et al. However little or much we all do, individually or collectively, we’re all valuable contributors, the cogs in future processes leading to earlier diagnosis, life-enhancing treatments and raising awareness. One hand cannot clap! Sha...

At this point I am sort of unsure what to do. I know I do not have any formal diagnosis of what is wrong with me but that will not magically make the symptoms pause until I get that diagnosis which I hope will be soon but with healthcare it's always a bit blurry when you'll see progress with a diagn...

Hello everyone! I have an update regarding my MS situation- I posted a few weeks ago that my first neuro consult was scheduled for June 25th, but, I called the MS clinic and told them I am having worsening symptoms and in extreme pain (occipital neuralgia+bilateral trigeminal neuralgia+possible MS...