Looking for
something specific?

Hello. I wanted to find out if anyone has had no relapses for years and then had a significant one. I was diagnosed in September 2019 with optic issues and a numb chin on one side but since then nothing. I am on Aubagio and have been well since. I feel like I am in some ways “free” of MS . If I have...

I haven't really had a flare up for 15 years (I'm now 45). I would love to know if anyone else has been in this position and did it remain benign ? I realise I am very lucky, but wish I knew a bit more about the future.

I haven't really had a flare up for 15 years (I'm now 45). I would love to know if anyone else has been in this position and did it remain benign ? I realise I am very lucky, but wish I knew a bit more about the future.

Going for another MRI in January, after that neurologist will see if he can get me into the London MS clinic or the one in Hamilton to get set up with an MS Doctor. Been a long process, bit it's all about Patience.🙂

hi there this is my first post I have very recently been diagnosed with benign ms it all started back 12-13 years ago when I had optic neuritis and was told it could be a early sign of ms which I didn't give a second thought to being only 19-20 years of age. Then in 2010 I had facial numbness which ...

I was just diagnosed with benign MS not quite sure about it as of yet, all I know is my symptoms with Tingling in the scalp, right arm, pain in those areas also plus right leg, are very real, but I guess will know more once I get to see the MS specialist

Hello all. I was originally diagnosed with MS in 2002. Optical neuritis was my main symptom - in the following years I had a few unexplained falls, just walking one moment and dropping on the pavement the other, developed depression, hypothyroidism (connected? I don't know) and fatigue. My last c...

How benign is benign? Would you ever decide to stop treatment? I haven't posted here before, although I've sometimes browsed. But now I'm pondering a big question about possibly benign MS: How benign is benign enough to consider stopping treatment - when that treatment has a significant negative i...

Am a little nervous about posting my first public message but am keen to have contact with people who really understand. Was diagnosed in 1996 with benign ms and left to get on with it with no support. Recently contacted ms nurse due to minor walking and balance difficulties. Still feel a fraud b...

I'm suffering with a vertigo/dizziness at the moment and it's getting me down. I get it often and it'd be nice to try and get rid. I've been reading that the Epley repositioning manoeuvre can get rid of symptoms in about 90-95% of people with BPPV (the GP agrees i have classic symptoms). Has anybod...

I was diagnosed with Benign MS six years ago but for me things have gradually got worse, albeit mild I have problems down my right hand side, balance and I suffer from TM. I knew things are changing for me even if it is on the mild side,but then again I cannot do alot with my right hand my co-ordin...

Hi all I was just wondering whether anyone else had been diagnosed with benign MS. I was over 10 years ago but in all that time I've never actually found anyone else that has. I've had some people who 'claim' I don't have MS as it's not the 'proper' kind (mad hey). Would be interested to hear fro...

I was diagnosed with ms in February..my neurologist describes it as benign so I almost feel like a bit of a fraud as on the outside there doesn't seem to be a problem and I am sure some people have trouble believing me.Most of my symptoms have gone since my last episode this time last year.I know we...

RRMS SPMS PPMS BENIGN Yes I said it before, we are all different, we all have different feelings, thoughts, some are better /worse than others, we live in different countries. We need to accept it, that we have MS. My theory is we got it for a reason. WHY? Well we need to figure out that one. We a...

Kinda wonder what happens now ? All a lot to process, waiting for another MRI to confirm progression or not 🤷‍♀️ Anyone any advice ? & what is benign MS ? X

I've had "benign"MS for a while 20 years or so, with no motor and little sensory problems, but I have noticed changes in my behaviour that are slightly concerning such as risk taking, disinhibition, and being detached emotionally from things that really should be attached. From believing I was fortu...

Hello all, Does anyone have an idea which one is better in both of these to treat Benign MS or very mild MS? Also, does anyone have past experience of the Side effects caused for any of these?

My general neurologist says the 7 lesions on my brain r nothing, benign really. I feel like I need a second opinion

G'day everyone, I have been dx with Benign MS due to some nice lesions, a lumbar puncture, and some weird history. Parallel to that, I keep getting what appear to be viral infections, for about 4-5 years, every 3 months or 6 months I do get pneumonia and bronchitis, and sore throat and ears etc, as...

Hiya everyone 🙂 I have a lumber MRI this Thurs and I have been having symptoms again since May 2020. My symptoms started in May 2019 numb feet, pins and needles, ataxia and weakness on left side. I have brain fog, cant concentrate and struggle finding the right words. I was seen in Nov 19 by a ...