@maura

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maura

Limbo land and scared

Hi guys My name is Maura up until April I was very fit active 37yr old working long hours in a very physical job.In April I started getting abnormal sensations in my right foot Foot mainly felt numb and heavy by end of May both feet were like that all the time.I presented to A&e twice but as I could move my feet ok and walk they weren't interested. A week or so later my hands were tingling followed by burning can't do any amount of physical activity or the burning gets worseRight hand sometimes get weak.Gp referred me to a Neuro who seems very relaxed due to get Mri in two days time then will take over a week for her to review it. Went to wash my hair over sink a few weeks ago and got an electric shock in back of head and down arms. Today my right eye is sore but no blurred vision yet.Had to pay alot of Money up front for scans on Tuesday and if I get unwell before then they won't refund me. I strongly feel this is MS wondering if anyone had similar first symptoms and What do you guys consider an emergency????I am in Ireland and you won't get help in an A&e unless your in a pretty bad way it doesn't help if you look well. How fast do MS symptoms progress?I am pretty scared.thanks so much.

Stumbler

@Stumbler

Hi @maura and welcome. I can understand your reasoning for joining us. Your present symptoms do suggest MS. Unfortunately, those symptoms also present in various other ailments, from a simple vitamin deficiency forwards. MS causes a whole array of symptoms, so there's no common pattern. As for emergencies, it's when your quality of life is threatened, e.g. visual issues, severe mobility issues, etc.. Of course, any standard medical issues, e.g. tachycardia, would require immediate action too. There is no set pattern for the progress of MS symptoms. No two people are the same. I can also understand your fear, you're getting the problem investigated, so that's all you can do at the moment. Apart from take care of yourself. Sit down and just breath. Stress is counter-productive to your good health.

maura

@maura

Thank you so much stumbler the right side of my body is burning very bad and right eye sore. Hopefully won't get worse thank you so much.

Stumbler

@Stumbler

@maura , I know it won't be easy but you need to sit down and relax yourself. Just try and switch yourself off for a bit. You're allowing your brain to race away, imagining all kinds of scenarios. You need to switch off this activity, as it will be making these symptoms worse.

Gijs

@Gijs

Leave it, when I was first tentatively diagnosed many years ago, I’ve spent months and months wondering what if, and started having many anxiety related symptoms (heart racing, hair loss, sweating, etc. ). After a couple of months of symptoms I was relapse free for 12 years. So - even if it is MS (again, you don’t know that without thorough neuro exam, a couple of MRIs and possibly some extra tests), you dont know how it will roll. Try to relax and enjoy the sun (if you can).

maura

@maura

Thanks gijs. You definitely help making me calmer am prob over thinking. Thank you!

cameron

@cameron

Three suggestions: 1) put a strict time limit (e.g. an hour a day) on how long you allow yourself to have 'medical' thoughts/worries. I found this easier to do than it might seem and it stopped me going over things endlessly. 2) Reward this new disciplined approach by giving yourself little treats whenever possible, whether that's a bit of retail therapy, a cappuccino or fancy bathtime products (better options than chocolate, although from time to time that's EXACTLY what's needed!). 3) Keep a symptom diary. Get into the habit of making a brief note every day of what's going on. Three reasons for this: it'll be useful info to take to your neuro appointment. It will increase your self-awareness of what is a 'come-and-go' symptom and what is constant. The act of noting down on paper (the more systematically you do this the better - i.e. do it at the same time every day, try and use the same range of words each time) - sort of discharges it from your mind. You don't need to fret about things - a quick look at your diary tells you all you need to know. You may also start to see patterns - for example, after a late night you may find that everything seems worse, or that if you're engrossed in an activity, symptoms lessen. Limboland is the worst of all worlds. We've all been there, we've come through it and until YOU do,I'm sending a big hug through the ether. xxKay

potter

@potter

If you can get to your MRI appointment you will be able to handle it. All you do is lay there very still. My neuro was wanting to get a MRI during the relapse so he could see the activity. I unfortunately came down with the flu and couldn't get away from the toilet. Try binging some movies to keep your mind off of your worries and get some sleep. I hadn't had a relapse in 10 years until I was over doing it and stressing. Potter

Vixen

@Vixen

Hi @maura, I did what @cameron said but only gave myself 25 minutes wallow time a day! Now I have it down to 5 minutes a day, if that! I still do daily treats. Good luck with the investigation, hopefully you’ll find that posting often might help too x

ChezN87

@ChezN87

Hi sorry to hear your having a hard time, it does sound very similar to ms symptoms, My symptoms started with tingling down my left arm which I put down at first to carpal tunnel but the very next week I woke up with double vision I was admitted into hospital as they suspected a stroke at first that when I had mri that showed lesions, the electric shock type feeling your experiencing is called llhermitte sign and is very common for ms’ers I can still experience it from time to time. Hope your able to get answers from your mri, if they find anything they might look into lumber puncture, hope it goes well x

maura

@maura

Thanks so much everyone for the replies and encouragement no idea what a difference it makes as am pretty much in my own with this.thanks again.xx

Lightning87

@Lightning87

Hey Sorry to hear you are going through this but don't be scared, you aren't alone. If you ever feel worried or scared, come on here and chat - no one will mind and we all understand what you are going through to a degree. I had lhermittes also (electric shock sensation) - bit weird but didn't hurt. It did go away after a few months although I still have a tingly hand. Try to relax and not worry about the future so much, no one ever knows what is around the corner - even someone with no symptoms! Although your symptoms could be suffestive of MS, it doesn't mean it is as there are many other reasons why you may be having these symptoms. If it is, we are in a far better place treatment wise now to try and keep things at bay. Don't give up hope. We are always here x

maura

@maura

Thanks lightning that is a really lovely reassuring post😊