@kithough

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kithough

In Limbo Land

Hi Guys, in Limbo land at the moment waiting for MRI scan on Aug 4th. Started with pins and needles in both hands and feet a couple of years ago, various blood test, diagnosed with coeliacs last October, this year pins and needles came back, last 2 months has progressed worse. :-(

kithough

@kithough

Just to add, tingling, numbness, over tired, prickling, left side has got worse these last few days with pains on top of the prickling, pins and needles and numbness, legs very week with aching knees, numbness and prickling in left face, wobbly spells when i close my eyes or in the dark. i'm nervous about MRI, think im more worried if it dosnt show anything, read so many posts about people left in limbo land :(

Lillylilly

@Lillylilly

I'm sure your doctors will continue to check what is wrong if your MRI comes back clear. My lesions were very small on the MRI so they did a lumbar puncture to confirm the MS, but I was on meds within a week or so after the MRI as I was so symptomatic. Good luck and try not to worry until you have to x

kithough

@kithough

Had MRI, today, think it might not show anything, can you still be diagnosed with ms, pains in arms and legs, numbness, tingling getting worse :( cant wait for follow up appointment with consultant.

Cathy74

@Cathy74

Hey Kit, did they just scan your head, or full body? I went undiagnosed for 8 years as my scaring was on my spine rather than brain (got scanned at bupa in the end to get diagnosed) Cathy x

T

@T

Ditto to Cathy's comment above! Hope they did the brain AND spine. If not, go back and ask them to. The waiting is always the worst part. I planned lots of things in between my scans/appointments to take my mind off things and make the time go quicker x

T

@T

Also, you may find this useful to read (if you haven't already): http://www.mssociety.org.uk/about_ms/first_questions/diagnosing_ms.html

kithough

@kithough

I was on scanner for an hour, they did brain, and 2 sections of the spine. the scanner dude said there's nothing obvious that jumps out :( then he said but I'm not an expert.

kithough

@kithough

just to add the first time I saw consultant he did finish of saying that he thinks I have an autoimmune response causing inflammation of the central nervous system. and as I have coeliac disease its even more likely.

kithough

@kithough

hey Mawson , were you diagnosed then without a conclusive MRI scan? my pins and needles is now in both arms and legs, and seems to be gradually getting worse each week along with all the other bits

kithough

@kithough

hey Mawson , were you diagnosed then without a conclusive MRI scan? my pins and needles is now in both arms and legs, and seems to be gradually getting worse each week along with all the other bits