#limbo-land - Shift.ms

23 Oct 2021 22:55 EditedLast reply 25 Oct 2021 07:07

Limbo land and diagnosis

Where to begin I believe I've had symptoms for a number of years but put it all down to ageing and being clumsy and a stressful job. Symptoms got worse around 18mths ago with chronic fatigue, loss of consciousness and collapse, falling , nerve pain in feet and originally right hand but now both, ...

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@Sharrona

23 Feb 2017 17:24Last reply 12 Jul 2021 08:27

Struggling in Limboland :-(

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

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@Eileenp

18 Jun 2021 02:57Last reply 18 Jun 2021 16:46

Limbo Land

I am no closer to a diagnosis then I was back in December after my MRI. I however was diagnosed with Pelvic floor dysfunction which my dr said it is neurological. Since my last visit with my neurologist I've had new and worsening symptoms. Such as burning tingling and numbness in my leg, arm face, b...

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@nikchez

27 Aug 2019 08:56Last reply 28 Aug 2019 14:00

Limbo land

Sat writing this while sat on my bed on the acute medical unit at the hospital. I had 2 seizures on Sunday night which they dont think is related to the MS. I'm waiting for the results of an MRI scan done yesterday which shows changes, but I'd like to speak to my neurologist but I'm not sure if he's...

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@Leanne83

1 Apr 2019 19:23Last reply 3 Apr 2019 17:42

Limbo land and results

Hi I'm new to the forum but have been following for a while. Just wondered how any of you received your lp results and how long after? My brain mri showed demylination and the report states Ms however my neurologist disagrees with my report. On examination they found mild left limb weakness and when...

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@msimon

2 Dec 2018 21:44Last reply 6 Dec 2018 16:14

Recent convert from Limboland

Hello all - long time lingerer but first time poster! I’ve just been ‘officially’ diagnosed with MS but was CIS for nearly two years so Dr wants me on some dmds as my last MRI had A couple more lesions. I have been offered Aubagio and Tecfidera (as well as some injectables - ummm no thanks!) and m...

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@niteowl

15 Aug 2018 17:14Last reply 16 Aug 2018 09:23

Limbo land

Hi at the moment I am in limbo, I am 37 and started with pain in my hips which went on for a very long time on and off but became worse I was constantly tired and had numb feet and toes so I went to gp who referred me to the neuro I had a spinal mri which was clear in jan, since then my pain has bec...

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@maura

15 Jul 2018 11:55Last reply 16 Jul 2018 20:16

Limbo land and scared

Hi guys My name is Maura up until April I was very fit active 37yr old working long hours in a very physical job.In April I started getting abnormal sensations in my right foot Foot mainly felt numb and heavy by end of May both feet were like that all the time.I presented to A&e twice but as I c...

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@ninamarina

12 May 2018 09:02Last reply 12 May 2018 21:30

Limbo land waiting to see neurologist

Afternoon to you there, I'm looking for advice from you lovely people as I am finally going to see a neurologist in a few weeks and need to know how best to prepare myself. I have all sorts of symptoms for last 15 years. It just lately they're all teaming up together and affecting my life so Dr says...

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@SleepyRachel

16 Feb 2018 00:00Last reply 16 Feb 2018 08:43

Scary limbo land

I was diagnosed with CIS in November, and last Wednesday my feet went numb and I became incredibly fatigued again. I am being sceduled for another MRI but I already feel like I know what the answer is going to be. I had no idea what MS was until about 3-4 months ago and it’s scary to think that now ...

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@jade6687

8 Dec 2017 11:06Last reply 8 Dec 2017 21:28

In limbo land .

Hey guys lovely to meet you all . I am just wondering if you can help me. I’ve had brain and cervical spine mri I have received the letter today. It says there are 3 areas of periventricular white matters changes on the right side of my brain and a small area on the cervical spine. I’ve got...

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@TheQuietLady

13 Sep 2016 19:00Last reply 14 Sep 2016 18:58

Still in Limboland?

Hi, I got a letter from the neurologist today that my repeat MRI brain and cervico-thoracic spine with contrast is unchanged compared to the scans in Dec 2015. I will have repeat blood tests and she will see me in Jan. So the initial diagnosis of CIS is correct? But the tingling in my limbs is al...

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@Azlemed

15 Nov 2014 09:37Last reply 15 Nov 2014 13:03

limbo land since May 2013

hi, I had what has now been confirmed as a CIS in May last year, my MRI shows multiple t2 hyperintensites and I have headaches, tingling and numbness on my right side, I also have bladder issues, fatigue and insomnia. The neurologist sent me to a psych because he thinks it's functional neurological ...

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@kithough

14 Jul 2011 22:00Last reply 6 Aug 2011 15:23

In Limbo Land

Hi Guys, in Limbo land at the moment waiting for MRI scan on Aug 4th. Started with pins and needles in both hands and feet a couple of years ago, various blood test, diagnosed with coeliacs last October, this year pins and needles came back, last 2 months has progressed worse. :-(

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@hmassy

17 Jul 2022 20:15Last reply 18 Jul 2022 05:12

Limboland advice

I’ve been referred to see a neurologist and my appointment is the end of August. It seems a long time away. I have a two year progression of various symptoms: Right sided numbness and tingling One loss of use of right hand-quickly recovered Spinal pain and inflammation Unexplained severe herniati...

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@Ally_Rodgers

28 Dec 2019 06:43Last reply 3 Jan 2020 20:16

I'm in limboland

Help. I've been I'll for over 4 years now and told more than once it's all in my head. Last 5 months things have got worse and worse with dizziness, sickness, loss of hearing, loss of vision, upset innards, insomhia etc etc. Its totally taken over my life. To have a young Dr say its stress was beyon...

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@Ally_Rodgers

28 Dec 2019 06:42Last reply 29 Dec 2019 11:31

I'm in limboland

Help. I've been I'll for over 4 years now and told more than once it's all in my head. Last 5 months things have got worse and worse with dizziness, sickness, loss of hearing, loss of vision, upset innards, insomhia etc etc. Its totally taken over my life. To have a young Dr say its stress was beyon...

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@hmassy

7 Aug 2022 08:13

Lupoid Sclerosis

I recently posted as I am in limboland, waiting to see a neurologist. However, I was also referred to a rheumatologist due to a positive ANA and a mix of symptoms. The rheumatologist I saw was excellent and incredibly thorough. He obviously confirmed that seeing a neurologist is the next step, but ...

@d1zzy

12 Aug 2018 05:46Last reply 3 Jun 2022 23:24

Hello and Thank you

Hi everyone, I am new here and have found this site so helpful whilst hanging out in limbo land, wondering what’s going on. I am waiting for my next neuro appt, whichI expect will set off the chain of further scans etc- and hopefully, finally, provide a basis for some treatment. I’m getting weary ...

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@WildBritain

2 Mar 2021 02:46Last reply 4 Mar 2021 10:30

Returning to the U.K.

Hey Shift whanau, I am currently living in NZ and in limbo land going back and forth from the GP, the neurologist and the hospital.. if / when I get an official diagnosis of what now seems unlikely to be anything else other than MS I am considering moving back to the U.K. to be nearer my family and ...

Invercargill, Southland, New Zealand

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