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Hi all. I thought I would post. I’ve been stuck in limbo land since a flurry of neuro symptoms starting most noteable in sept 2022. My symptoms started to improve by December 2022. My mri in March 2023 showed multiple small lesions to the periventricular and subcortical areas. All inactive at the ti...

Hi all. I thought I would post. I’ve been stuck in limbo land since a flurry of neuro symptoms starting most noteable in sept 2022. My symptoms started to improve by December 2022. My mri in March 2023 showed multiple small lesions to the periventricular and subcortical areas. All inactive at the ti...

The last few weeks have been hard as I face severance at work on medical grounds, plenty to worry about, so a few (well maybe more than a few) words to explain it all..... At present I am in limbo land, waiting for dates and final decisions regarding my future. Ill health retirement or severance o...

Just need to VENT! 1 year ago I started to feel really run down. Test after test was normal, except for high antibodies of Epstein Barr (I had mono real bad 25 years ago), and my doc said it was likely a reactivation. But, the symptoms never stopped. Exhaustion alone evolved into pain everywhere...

Curious if anyone gets really painful calves especially high up in the back of the knee. It’s like achey, stiff, and makes it hard to walk normally. I’m also really curious if anyone experiences like an isolation of symptoms like one week or 3 fatigue is the worst and then maybe the next week or two...

Curious if anyone gets really painful calves especially high up in the back of the knee. It’s like achey, stiff, and makes it hard to walk normally. I’m also really curious if anyone experiences like an isolation of symptoms like one week or 3 fatigue is the worst and then maybe the next week or two...

I am no closer to a diagnosis then I was back in December after my MRI. I however was diagnosed with Pelvic floor dysfunction which my dr said it is neurological. Since my last visit with my neurologist I've had new and worsening symptoms. Such as burning tingling and numbness in my leg, arm face, b...

Hi there, *update in comments* .... This is a bit of a long rambly first post so thankyou for taking time to read it 🙃 I'm in need any advice relating to what to ask/say in my first neurology appointment today. I am scared/relieved to have found this network as I go through the process of findin...

Where to begin I believe I've had symptoms for a number of years but put it all down to ageing and being clumsy and a stressful job. Symptoms got worse around 18mths ago with chronic fatigue, loss of consciousness and collapse, falling , nerve pain in feet and originally right hand but now both, ...

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...