#limbo-land - Shift.ms

14 Jul 2011 22:00Last reply 6 Aug 2011 15:23

In Limbo Land

Hi Guys, in Limbo land at the moment waiting for MRI scan on Aug 4th. Started with pins and needles in both hands and feet a couple of years ago, various blood test, diagnosed with coeliacs last October, this year pins and needles came back, last 2 months has progressed worse. :-(

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@msimon

2 Dec 2018 21:44Last reply 6 Dec 2018 16:14

Recent convert from Limboland

Hello all - long time lingerer but first time poster! I’ve just been ‘officially’ diagnosed with MS but was CIS for nearly two years so Dr wants me on some dmds as my last MRI had A couple more lesions. I have been offered Aubagio and Tecfidera (as well as some injectables - ummm no thanks!) and m...

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@maura

15 Jul 2018 11:55Last reply 16 Jul 2018 20:16

Limbo land and scared

Hi guys My name is Maura up until April I was very fit active 37yr old working long hours in a very physical job.In April I started getting abnormal sensations in my right foot Foot mainly felt numb and heavy by end of May both feet were like that all the time.I presented to A&e twice but as I c...

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@Leanne83

1 Apr 2019 19:23Last reply 3 Apr 2019 17:42

Limbo land and results

Hi I'm new to the forum but have been following for a while. Just wondered how any of you received your lp results and how long after? My brain mri showed demylination and the report states Ms however my neurologist disagrees with my report. On examination they found mild left limb weakness and when...

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@Sharrona

23 Feb 2017 17:24Last reply 12 Jul 2021 08:27

Struggling in Limboland :-(

Hi everyone I know many people go through this, but I am really struggling with being in limbo, with my current symptoms and with fears for the future. I had an MRI in November and saw the neurologist in December - a new area of inflammation was found (he called this transverse myelitis). This is ...

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@mutley64

23 Oct 2021 22:55 EditedLast reply 25 Oct 2021 07:07

Limbo land and diagnosis

Where to begin I believe I've had symptoms for a number of years but put it all down to ageing and being clumsy and a stressful job. Symptoms got worse around 18mths ago with chronic fatigue, loss of consciousness and collapse, falling , nerve pain in feet and originally right hand but now both, ...

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@nikchez

27 Aug 2019 08:56Last reply 28 Aug 2019 14:00

Limbo land

Sat writing this while sat on my bed on the acute medical unit at the hospital. I had 2 seizures on Sunday night which they dont think is related to the MS. I'm waiting for the results of an MRI scan done yesterday which shows changes, but I'd like to speak to my neurologist but I'm not sure if he's...

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@jade6687

8 Dec 2017 11:06Last reply 8 Dec 2017 21:28

In limbo land .

Hey guys lovely to meet you all . I am just wondering if you can help me. I’ve had brain and cervical spine mri I have received the letter today. It says there are 3 areas of periventricular white matters changes on the right side of my brain and a small area on the cervical spine. I’ve got...

6

@niteowl

15 Aug 2018 17:14Last reply 16 Aug 2018 09:23

Limbo land

Hi at the moment I am in limbo, I am 37 and started with pain in my hips which went on for a very long time on and off but became worse I was constantly tired and had numb feet and toes so I went to gp who referred me to the neuro I had a spinal mri which was clear in jan, since then my pain has bec...

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@TheQuietLady

13 Sep 2016 19:00Last reply 14 Sep 2016 18:58

Still in Limboland?

Hi, I got a letter from the neurologist today that my repeat MRI brain and cervico-thoracic spine with contrast is unchanged compared to the scans in Dec 2015. I will have repeat blood tests and she will see me in Jan. So the initial diagnosis of CIS is correct? But the tingling in my limbs is al...

3

@Azlemed

15 Nov 2014 09:37Last reply 15 Nov 2014 13:03

limbo land since May 2013

hi, I had what has now been confirmed as a CIS in May last year, my MRI shows multiple t2 hyperintensites and I have headaches, tingling and numbness on my right side, I also have bladder issues, fatigue and insomnia. The neurologist sent me to a psych because he thinks it's functional neurological ...

3

@ninamarina

12 May 2018 09:02Last reply 12 May 2018 21:30

Limbo land waiting to see neurologist

Afternoon to you there, I'm looking for advice from you lovely people as I am finally going to see a neurologist in a few weeks and need to know how best to prepare myself. I have all sorts of symptoms for last 15 years. It just lately they're all teaming up together and affecting my life so Dr says...

3

@SleepyRachel

16 Feb 2018 00:00Last reply 16 Feb 2018 08:43

Scary limbo land

I was diagnosed with CIS in November, and last Wednesday my feet went numb and I became incredibly fatigued again. I am being sceduled for another MRI but I already feel like I know what the answer is going to be. I had no idea what MS was until about 3-4 months ago and it’s scary to think that now ...

3

@Eileenp

18 Jun 2021 02:57Last reply 18 Jun 2021 16:46

Limbo Land

I am no closer to a diagnosis then I was back in December after my MRI. I however was diagnosed with Pelvic floor dysfunction which my dr said it is neurological. Since my last visit with my neurologist I've had new and worsening symptoms. Such as burning tingling and numbness in my leg, arm face, b...

2

@Ally_Rodgers

28 Dec 2019 06:43Last reply 3 Jan 2020 20:16

I'm in limboland

Help. I've been I'll for over 4 years now and told more than once it's all in my head. Last 5 months things have got worse and worse with dizziness, sickness, loss of hearing, loss of vision, upset innards, insomhia etc etc. Its totally taken over my life. To have a young Dr say its stress was beyon...

3

@Ally_Rodgers

28 Dec 2019 06:42Last reply 29 Dec 2019 11:31

I'm in limboland

Help. I've been I'll for over 4 years now and told more than once it's all in my head. Last 5 months things have got worse and worse with dizziness, sickness, loss of hearing, loss of vision, upset innards, insomhia etc etc. Its totally taken over my life. To have a young Dr say its stress was beyon...

3

@KoffeeLover

23 Aug 2016 12:43Last reply 29 Aug 2016 08:04

Wheelchairs

At the moment my symptoms are worsening every day, to the point where I am mainly staying upright through shear bloody mindedness. I'm concerned that someday soon I will start to have days where bloody mindedness isn't enough. Soooo - does anyone know how I could get a self propelling wheelchair qui...

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@Jasminefairy

20 Feb 2013 18:38Last reply 21 Feb 2013 21:08

A step further.

Hi, so I just came back from having my head/spine mri. I can't say that it was a nice experience, it was really loud and enclosed, but I coped. They did all the scans, then the radiologist did one more. So ofcourse, all I'm thinking now is that she has seen something ad wants a closer look. I ask af...

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@Lightning87

5 Jun 2018 12:01Last reply 12 Jun 2018 20:55

Joining the club!

Hey all So today I was diagnosed with RRMS. I expected MS a year ago when I started having vibrations down my spine and numbness in my hand. So about 9 months after being referred I have now been diagnosed - thankfully to a GP who listened to my worries and didn’t keep going down the carpal tunnel ...

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@cwe33

27 Aug 2019 19:21Last reply 25 Aug 2020 20:04

Newly Diagnosed.. I think

Feel like I’m in limbo land at the moment which is frustrating. I have an appointment with my neurologist on 20th Sept to discuss my lumbar puncture results, although he’s sent my GP a letter with results and copied me in. MRI showed 4 lesion on my brain Lumbar Puncture confirms “multiple oligoclo...

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