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Hello all 🙋🏽‍♂️ The symptom that started my ms journey was nystagmus. It started subtle but now it’s become a problem for sure but I’m learning to deal with it. What are y’all’s experiences with vision issues?

I had a chiropractor appointment today for my back spasms. Seems I may have yet another neurological symptom... does anyone know much about nystagmus? I guess basically it means that when tracking an object right and left without moving my head, my left eye is jerking around and not tracking with ...

I struggled with double vision and nystagmus a lot during my first flare up... so of course I visualised what it feels like for my art project A Thousand Faces with which I want to raise awareness of our invisible illness. In my latest video I talk about it and introduce Kira to you; my personificat...

Hello sorry to bother everyone but do you know if there is any new research going for nystagmus because that’s stopping me doing things like making my way to the music studio and Travelling?

Has anyone found any painkillers that aren't as heavy as gabapentin that deal with nerve pain? I react really badly to a lot of drugs so prefer a gentler approach but the pain in my eye is really getting to me. After a week of covid I don't think I've got the strength to deal with drug side effects ...

I was wondering if anybody suffered from the symptoms acquired pendular nystagmus and is it forever im really scared its so debilitating

Hi everyone hope this helps explain MS a bit better and what most of us suffer lots if not daily. Onwards and upwards MS and b12 deficiency symptoms, and explanations to help with BRAIN -COGNITIVE ISSUES Memory loss. Loss of concentration. Difficulty of keeping track of conversations, processing i...

Does anyone follow/recommend any sort of special anti-inflammatory diet for those with MS? I'm pretty healthy don't drink, don't smoke and practice very low impact yoga. I just wondered if anyone on here swears by a specific diet. Thank you x #diet #workandplay #nystagmus #tremor #yoga

I'm just here to vent a bit. I am not sure I have MS or not, I suspect it but I am only one person. I'm AFAB and I'm 26 years old. Summer 2021, I started to notice things in my vision moving. The walls and everything are constantly moving up and down or side to side. Then in October of 2021 I sudden...

Evening all :D Hoping for some answers/experiences please! For almost 13 weeks now I've been experiencing intermittent blurry vision in my left eye. It comes on when I'm active (and by active i mean pretty much anything other than sitting/lying still) and gets worse the more i do to the point where...

So what was wrong with my eyes that in the end even made me go to the ER: When I looked down I saw double. When looking to the left I had a strongly pronounced nystagmus which is the medical term for an uncontrollable muscle movement. So whenever I looked to the left my eyes started shaking horizont...

In April 2021 I had sudden vision problems -vertigo, double vision and nystagmus in my right eye. A referal from my eye doctor to the opthamologist resulted in an urgent brain MRI which revealed a lesion. After a course of steroids, I was thankful for the nystagmus to have resolved. I was referred t...

Hi all I've only just been diagnosed with RRMS. Came as a huge shock as I thought it may have been an issue with my eyes - Nystagmus - that was what my neurologist said at first before further investigation. Obviously after MRI's and lumber spine it was confirmed. My heads been in a spin and possi...

I have one Dawson finger and three lesions in centrum semi oval . I was just diagnosed with central vertigo, horizontal unfatiguing nystagmus ( horizontal) slow saacads and slow smooth movement. I feel like my neuro isn’t putting all the pieces together.

I've been very recently diagnosed with MS after having intranuclear Opthalmoplegia in November along with a tremor in my arms and head which comes and goes. I'm struggling to accept the diagnosis and feel just really shocked, my eyes have improved a lot and now just my tremor frustratingly reminds ...

Hello everyone I joined this group about 10 days ago after being diagnosed with rrms. It’s taken 20 years from possible ms/cis with very few relapses that have always been put down to other things ie migraine or shingles. Last year I developed nystagmus and from there, following a third mri was giv...

Just a rant please! Had neuro symptoms for years, as well as a lot of other issues. No diagnosis, but my neurologist writes MS when requesting investigations etc. I have asymmetrical rotary nystagmus, loosing site in some outer areas. I have dysphagia, a hyper mobile bowel with hypo-motility. I hav...

Hello, so I am currently still undiagnosed. I have been having symptoms since August so 4 or 5 months. My neurologist has tried to say all my symptoms are anxiety and that it’s not neurological, I know this isn’t the case. He also didn’t do any texts except the reflex one with the hammer, I know fro...

Just before Xmas I had some dizziness. Not unusual for me, got worse over the week. Felt like I was drunk and my brain was floating around in head. Went to doctor and tried to explain that I had something like this before, she was a locum so just gave me something for the dizziness. Then I became un...