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Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

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Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

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Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

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Sort 57 results by
Recent activityNewest posts

@StaceyCain91 

1 Sep 2023 16:15Last reply 7 Sep 2023 06:06

StaceyCain91

Nystagmus

Hey :) In the midst of a relapse. Nystagmus & vertigo being the tell tale symptoms this time round. I’ve suffered with optic neuritis. Though my vision has never been the same, it did improve and I became accustomed to a change in sight. Now nystagmus 🤯😵‍💫 just curious, those who’ve experience...
Chester, UK
  • Symptoms
  • Blurred vision
  • Relapses
  • Diagnosis
  • Disclosure
  • Dizziness
  • Lemtrada
4

@FromAmsterdam 

21 Feb 2023 14:19Last reply 21 Feb 2023 18:32

FromAmsterdam

Nystagmus

Also
Amsterdam, Netherlands
  • Symptoms
  • Work and play
3

@DannyEsteban 

1 Mar 2022 01:56Last reply 1 Mar 2022 19:43

DannyEsteban

Nystagmus

Hello all 🙋🏽‍♂️ The symptom that started my ms journey was nystagmus. It started subtle but now it’s become a problem for sure but I’m learning to deal with it. What are y’all’s experiences with vision issues?
  • Symptoms
  • Blurred vision
  • Treatment
4

@Sugargliderz 

8 Jun 2016 23:27Last reply 19 Jan 2018 22:37

Sugargliderz

Nystagmus

I had a chiropractor appointment today for my back spasms. Seems I may have yet another neurological symptom... does anyone know much about nystagmus? I guess basically it means that when tracking an object right and left without moving my head, my left eye is jerking around and not tracking with ...
  • Symptoms
  • Hot and cold
  • Spasticity
14

@MrRuinedbyMS 

17 May 2025 08:47Last reply 31 May 2025 09:20

MrRuinedbyMS

Does anyone have nystagmus?

First posted on the Shift.ms app
7

@kez1978 

24 Nov 2024 13:33Last reply 24 Nov 2024 23:24

kez1978

RRMS, ACQUIRED NYSTAGMUS, SEVERELY SIGHT IMPAIRED (BLIND)

Good afternoon. Hope everyone is feeling o.k. with the storm Bert. I have accepted everything that MS has thrown at us and this one was coming. I was registered visually impaired in July 2021. Now to be re registered as severely sight impaired isn't a massive shock, still dinks my confidence! Hey ho...
First posted on the Shift.ms app
4

@Deedeexx 

23 Jul 2024 16:53Last reply 24 Jul 2024 05:08

Deedeexx

Hi there my 16 year old has just been diagnosed with RRMS unfortunately due to the start of his journey he started experiencing eye problems which turned out to be nystagmus, he has just had his first lot of ocrevus and his eyes have got worse which is said to be normal has anyone else had this problem

First posted on the Shift.ms app
2

@adamslilith 

22 Dec 2022 17:22Last reply 26 Dec 2022 00:59

adamslilith

Double Vision and Nystagmus

I struggled with double vision and nystagmus a lot during my first flare up... so of course I visualised what it feels like for my art project A Thousand Faces with which I want to raise awareness of our invisible illness. In my latest video I talk about it and introduce Kira to you; my personificat...
  • Blurred vision
  • Symptoms
  • Relapses
5

@music 

10 Oct 2022 20:40 Edited

music

Any news on nystagmus

Hello sorry to bother everyone but do you know if there is any new research going for nystagmus because that’s stopping me doing things like making my way to the music studio and Travelling?
  • Research
  • Work and play
  • Travel

@funnybank 

25 Jul 2022 19:00 Edited

funnybank

Covid has triggered nystagmus

Has anyone found any painkillers that aren't as heavy as gabapentin that deal with nerve pain? I react really badly to a lot of drugs so prefer a gentler approach but the pain in my eye is really getting to me. After a week of covid I don't think I've got the strength to deal with drug side effects ...
  • Pain
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