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We are a charity and rely on donations

Charity Number: 1117194 (England and Wales)

Registered Company: 06000961

Registered address:
Shift.ms, Platform, New Station Street, LS1 4JB, United Kingdom

London office:
Shift.ms, Somerset House, Strand, West Goods Entrance, London WC2R 1LA, United Kingdom

ยฉ2023 Shift.ms

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Found 43 results

@FromAmsterdam

Last reply

FromAmsterdam

Nystagmus

Also
Amsterdam, Netherlands
  • Symptoms
  • Work and play
3

@DannyEsteban

Last reply

DannyEsteban

Nystagmus

Hello all ๐Ÿ™‹๐Ÿฝโ€โ™‚๏ธ The symptom that started my ms journey was nystagmus. It started subtle but now itโ€™s become a problem for sure but Iโ€™m learning to deal with it. What are yโ€™allโ€™s experiences with vision issues?
  • Symptoms
  • Blurred vision
  • Treatment
4

@Sugargliderz

Last reply

Sugargliderz

Nystagmus

I had a chiropractor appointment today for my back spasms. Seems I may have yet another neurological symptom... does anyone know much about nystagmus? I guess basically it means that when tracking an object right and left without moving my head, my left eye is jerking around and not tracking with ...
  • Symptoms
  • Hot and cold
  • Spasticity
14

@adamslilith

Last reply

adamslilith

Double Vision and Nystagmus

I struggled with double vision and nystagmus a lot during my first flare up... so of course I visualised what it feels like for my art project A Thousand Faces with which I want to raise awareness of our invisible illness. In my latest video I talk about it and introduce Kira to you; my personificat...
  • Blurred vision
  • Symptoms
  • Relapses
5

@music

Edited

music

Any news on nystagmus

Hello sorry to bother everyone but do you know if there is any new research going for nystagmus because thatโ€™s stopping me doing things like making my way to the music studio and Travelling?
  • Research
  • Work and play
  • Travel

@funnybank

Edited

funnybank

Covid has triggered nystagmus

Has anyone found any painkillers that aren't as heavy as gabapentin that deal with nerve pain? I react really badly to a lot of drugs so prefer a gentler approach but the pain in my eye is really getting to me. After a week of covid I don't think I've got the strength to deal with drug side effects ...
  • Pain
  • Symptoms
  • Fun drugs
  • Steroids
  • Healthy living
  • Work and play

@Hajer1

Last reply

Hajer1

Acquired pendular nystagmus?

I was wondering if anybody suffered from the symptoms acquired pendular nystagmus and is it forever im really scared its so debilitating
  • Symptoms
10

@watsoncraig

Last reply

watsoncraig

A friend posted this

Hi everyone hope this helps explain MS a bit better and what most of us suffer lots if not daily. Onwards and upwards MS and b12 deficiency symptoms, and explanations to help with BRAIN -COGNITIVE ISSUES Memory loss. Loss of concentration. Difficulty of keeping track of conversations, processing i...
  • Symptoms
  • Blurred vision
  • Brain fog
  • Dizziness
  • Hot and cold
  • Balance
  • Relapses
  • Spasticity
  • Fatigue
  • Mental health
20

@Cbarker

Last reply

Cbarker

Any MS diets?

Does anyone follow/recommend any sort of special anti-inflammatory diet for those with MS? I'm pretty healthy don't drink, don't smoke and practice very low impact yoga. I just wondered if anyone on here swears by a specific diet. Thank you x #diet #workandplay #nystagmus #tremor #yoga
  • Diet
  • Healthy living
  • Work and play
  • Mind and body
  • Going out
16

@Hendrix

Hendrix

Just looking for some answers

I'm just here to vent a bit. I am not sure I have MS or not, I suspect it but I am only one person. I'm AFAB and I'm 26 years old. Summer 2021, I started to notice things in my vision moving. The walls and everything are constantly moving up and down or side to side. Then in October of 2021 I sudden...
  • Symptoms
  • Blurred vision
  • Pain
  • Diagnosis
  • Fatigue
  • Work and play
  • Healthy living
  • Exercise
  • Work and Study
  • Newly diagnosed

@katiegee

Last reply

katiegee

Uhthoffs/blurry vision anyone??

Evening all :D Hoping for some answers/experiences please! For almost 13 weeks now I've been experiencing intermittent blurry vision in my left eye. It comes on when I'm active (and by active i mean pretty much anything other than sitting/lying still) and gets worse the more i do to the point where...
  • Blurred vision
  • Symptoms
  • Which DMT
  • Diagnosis
  • Newly diagnosed
  • Treatment
  • Hot and cold
10

@adamslilith

Edited

adamslilith

How did it start? : my eyes.

So what was wrong with my eyes that in the end even made me go to the ER: When I looked down I saw double. When looking to the left I had a strongly pronounced nystagmus which is the medical term for an uncontrollable muscle movement. So whenever I looked to the left my eyes started shaking horizont...
Mainz, Deutschland
  • Symptoms
  • Blurred vision
  • Dizziness
  • Exercise
  • Healthy living
  • Brain fog
  • Treatment
  • Balance
  • Work and Study
  • Numbness

@Tiffy1324

Tiffy1324

My MS Story

In April 2021 I had sudden vision problems -vertigo, double vision and nystagmus in my right eye. A referal from my eye doctor to the opthamologist resulted in an urgent brain MRI which revealed a lesion. After a course of steroids, I was thankful for the nystagmus to have resolved. I was referred t...
Toronto, Canada
  • Blurred vision
  • Diagnosis
  • Symptoms
  • MRI
  • Steroids
  • Dizziness
  • Limbo land
  • Brain fog
  • Relapses
  • Newly diagnosed

@gary79

Last reply

gary79

Diagnosis - a new direction for my life

Hi all I've only just been diagnosed with RRMS. Came as a huge shock as I thought it may have been an issue with my eyes - Nystagmus - that was what my neurologist said at first before further investigation. Obviously after MRI's and lumber spine it was confirmed. My heads been in a spin and possi...
Dublin, Ireland
  • Diagnosis
  • Relapsing remitting
  • Newly diagnosed
  • Blurred vision
  • MRI
  • Disclosure
  • Relationships
  • Symptoms
  • Numbness
3

@dh4730

dh4730

Frustrated! Iโ€™m new here.

I have one Dawson finger and three lesions in centrum semi oval . I was just diagnosed with central vertigo, horizontal unfatiguing nystagmus ( horizontal) slow saacads and slow smooth movement. I feel like my neuro isnโ€™t putting all the pieces together.
  • Newly diagnosed
  • Diagnosis
  • Dizziness
  • Hot and cold
  • Symptoms
  • MRI

@Cbarker

EditedLast reply

Cbarker

Newly diagnosed - struggling to accept

I've been very recently diagnosed with MS after having intranuclear Opthalmoplegia in November along with a tremor in my arms and head which comes and goes. I'm struggling to accept the diagnosis and feel just really shocked, my eyes have improved a lot and now just my tremor frustratingly reminds ...
Bournemouth, United Kingdom
  • Diagnosis
  • Newly diagnosed
  • Blurred vision
  • Symptoms
  • Work and play
11

@Moomin71

Last reply

Moomin71

Side effects of DMDs

Hello everyone I joined this group about 10 days ago after being diagnosed with rrms. Itโ€™s taken 20 years from possible ms/cis with very few relapses that have always been put down to other things ie migraine or shingles. Last year I developed nystagmus and from there, following a third mri was giv...
  • Diagnosis
  • Disclosure
  • Limbo land
  • Newly diagnosed
  • Relapsing remitting
  • Symptoms
  • Fatigue
  • Treatment
  • Which DMT
  • MRI
6

@vickyeaston

Last reply

vickyeaston

Not sure what I have!

Just a rant please! Had neuro symptoms for years, as well as a lot of other issues. No diagnosis, but my neurologist writes MS when requesting investigations etc. I have asymmetrical rotary nystagmus, loosing site in some outer areas. I have dysphagia, a hyper mobile bowel with hypo-motility. I hav...
  • Diagnosis
  • Healthy living
  • Exercise
  • Symptoms
  • Balance
  • Bladder and bowel
  • Pain
  • Work and play
  • Money
3

@ariana98

Last reply

ariana98

Can RRMS present itself differently?

Hello, so I am currently still undiagnosed. I have been having symptoms since August so 4 or 5 months. My neurologist has tried to say all my symptoms are anxiety and that itโ€™s not neurological, I know this isnโ€™t the case. He also didnโ€™t do any texts except the reflex one with the hammer, I know fro...
  • Diagnosis
  • Relapsing remitting
  • Symptoms
  • Blurred vision
  • Mental health
  • Pain
  • Relapses
10

@SamyJ

Last reply

SamyJ

Relapse then shingles

Just before Xmas I had some dizziness. Not unusual for me, got worse over the week. Felt like I was drunk and my brain was floating around in head. Went to doctor and tried to explain that I had something like this before, she was a locum so just gave me something for the dizziness. Then I became un...
  • Symptoms
  • Pain
  • Blurred vision
  • Dizziness
  • Relapses
  • Steroids
  • Hot and cold
  • Balance
  • Disclosure
  • Bladder and bowel
17
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